Perspectives on integrating the ICF into the Learning Healthcare System presented at the rehaKIND congress in Düsseldorf, Germany on February 5th 2015.
Fundamentos da Competencia de Profissionais da Saúde no Século XXI
ICF Praxis rehaKIND
1. Research Making
a Difference
www.canchild.ca
ICF in der Praxis
Olaf Kraus de Camargo & Andrea Espei
Stefan Steinebach
Günther Mayer
Detlef Günther
Birgit Babitsch
rehaKind Kongress 2015 Düsseldorf
4. Bio-psycho-soziales Modell
“The dominant model of disease today is biomedical, and it
leaves no room within its framework for the social,
psychological, and behavioral dimensions of illness. A
biopsychosocial model is proposed that provides a blueprint
for research, a framework for teaching, and a design for
action in the real world of health care.”
George Engel, 1977
8. Evidenz basierte Praxis
• Evidenz in der Praxis:
– “Entscheidungen werden nie alleine von der
vorhandenen Evidenz bestimmt, sondern müssen
immer die Vorlieben und Werte des Patienten
berücksichtigen.”
http://ebm.jamanetwork.com
Guyatt, G., et al. (2008). Users's Guide to the Medical
Literature: A Manual for Evidence-Based Clinical Practice,
JAMAevidence, McGraw Hill.
9. Inklusion in der
Gesundheit
• Patienten leidten!
– “Der Patient wird Sie jetzt
sehen!” (Eric Topol)
• Patienten forschen!
– “Daten-Spender” (Paul
Wicks)
– www.patientslikeme.com
10. Wozu?
• Das “lernende Gesundheitssystem”
1. Computerleistung, Big Data
2. Konnektivität – digitale Patientenakte
3. Organisations- und Managementwissen
4. Empowerment der Patienten
Smith, M. et al. (2012)
12. Big Data
• Mehr Details
• Geteilte Daten sind geteiltes Wissen
• Neue Zusammenhänge erkennen
• Induktive Forschungsprozesse
• Gezielte und individualisierte Behandlung
• Prävention von Behinderung
Krumholz, H. M. (2014)
15. Organisation & Management
• Verfügbarkeit von Evidenz
• Nahtlose Schnittstellen
• Individuelle Beratung
(Patienten = aktiv
beteiligte Individuen)
16. Empowerment
• “Prozess durch den die Fähigkeit von Personen
oder Gruppen erhöht wird, um Entscheidungen zu
treffen und diese Entscheidungen in gewünschte
Aktionen und Ziele zu lenken.” (Weltbank in Aymé
2013)
• “Voraussetzung für Gesundheit” (WHO in Aymé
2013)
• Patienten sind aktiver und gestaltender Bestandteil
18. Literatur
• Adolfsson, M., & Granlund, M. (2011). Applying the ICF-CY to identify everyday life situations of children and youth with
disabilities. School of Education and Communication. Jönköping University, Jönköping, Sweden.
• Aymé, S., Kole, A., & Groft, S. (2008). Empowerment of patients: lessons from the rare diseases community. The Lancet,
371(9629), 2048–2051. doi:10.1016/s0140-6736(08)60875-2
• Committee on Quality of Health Care in America, I. of M. (2001). Crossing the Quality Chasm: A New Health System for the 21st
Century (p. 364). National Academies Press. Retrieved from http://www.nap.edu/catalog/10027.html
• Engel, G. L. (1977). The need for a new medical model: a challenge for biomedicine. Science, 196(4286), 129–136.
• Guyatt, G., Rennie, D., Meade, M. O., & Cook, D. J. (2008). Users’s Guide to the Medical Literature: A Manual for Evidence-Based
Clinical Practice (2nd ed., p. 836). JAMAevidence, McGraw Hill.
• Kraus de Camargo, O., & Simon, L. (2013). Die ICF-CY in der Praxis (p. ca. 100). Bern: Verlag Hans Huber.
• Krumholz, H. M. (2014). Big Data And New Knowledge In Medicine: The Thinking , Training , And Tools Needed For A Learning
Health System. Health Affairs, 33(7), 1163–1170. Retrieved from
http://search.proquest.com/docview/1622291706?accountid=27307
• Smith, M., Saunders, R., Stuckhardt, L., & Mcginnis, J. M. (2012). Best Care at Lower Cost The Path to Continuously Learning
Health Care in America Committee on the Learning Health Care System in America. In National Academy Press.
• Tesio, L. (2011). From codes to language: is the ICF a classification system or a dictionary? BMC Public Health, 11 Suppl 4, S2.
doi:10.1186/1471-2458-11-S4-S2
• Topol, E. (2015). The Patient Will See You Now - The Future of Medicine is in Your Hands (p. 384). New York, NY, USA: Basic Books.
• Wicks, P., & Heywood, J. A. (2014). Data donation could power the learning health care system, including special access
programs. Am J Bioeth, 14(11), 27–29. doi:10.1080/15265161.2014.957627