Teemu Möttönen, Infectious Disease Control and Vaccinations Unit: National Infectious Diseases Register (NIDR)

1. THE NATIONAL
INFECTIOUS
DISEASE
REGISTER
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2. DATA FLOW IN NATIONAL INFECTIOUS
DISEASE REGISTER
Treating physician:
physician notification
Health care district
(checking, completion)
National register
in THL
Primary Health
Care Center
Automated
reminder
to notify
NIDR microbial strain
collection (THL)
Microbiology laboratory:
notifiable diagnostic finding
isolate notification
n=135 600
87 % electronically
n=3300
81 % electronically
Encrypted www-
access
Population
register
Encrypted www
access
19.7.2016 Ruska Rimhanen-Finne/ THL
Data from 2018

3. NATIONAL INFECTIOUS DISEASE REGISTER
(NIDR)
 Started in 1994-1995
 Based on Law on Communicable diseases (1227/2016) and the
Communicable diseases act (146/2017)
 Physicians notify on 22 generally hazardous communicable
diseases and 18 monitored communicable diseases
 Laboratories notify on findings of 60 causative microbes and all
findings from blood and cerebrospinal fluid (CSF)
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4. PHYSICIANS NOTIFICATION
 The personal identity code of the patient
– Patients name depending on disease classification
 Infectious disease, the date of sampling
 The manner, time and place of the infection
 Any data on the given treatment
 Doctor´s name, code and the hospital
 Web notification application started in 2017, replaces paper forms
– disease specific questions
– physicians authenticate with Healthcare Personnel Smart Cards – the app
checks for valid physicians credentials
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5. Sari Jaakola 5

6. LABORATORY NOTIFICATION
 Mostly electrically from the LIMS of larger labs
 Smaller labs notify with web form (paper form being phased out)
 The personal identity code of the patient
 Microbial finding and microbe characteristics
 The date of sampling
 Hospital or other place the patient is treated
 The name (code) of the laboratory
 THL reference labs notify their results as well
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7. NIDR NOTIFICATIONS AND CASES ETC.
 Physicians and labs notifications are combined into disease cases
– same patient (personal identity code, or birthdate and sex)
– same disease or causative microbe
– within a specific time period (3 months, 1 year, 3 years, 50 years)
 Information on notifications and cases is stored in a relational
database
 Case data updated with data from National Population Register
every night
– municipality of residence, nationality, possible date of death
 Public statistics reports automatically updated daily
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8. NIDR REMOTE ACCESS (WEB INTERFACE)
 With NIDR remote access web interface, cases and notifications
can be categorized by
– year, month, week
– sex, age, agegroup
– health care district, county
– country of infection (from diseases where it’s notifiable)
– many other variables/fields
 Health care districts and Primary health care centers can access
their own area data and monitor the epidemic situation
– list and check new cases in their own area
– THL reference labs genotyping and serotyping information also available
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9. 9
NIDR: BASIC CONCEPTS (ER DIAGRAM)
~ 1 600 000
~ 1 800 000~ 120 000
~ 100 ~ 1,700
21
started 1994
first full year 1995
~ 850