Poster for the pHealth 2009 conference dealing with Patient 2.0

1. Vicente T
Vi Traver¹, L i F
¹ Luis Fernandez L q ² Francisco J G j l III³, and R di K l 4
d Luque², F i Grajales III³ d Randi Karlsen
1
1. ITACA Universidad Politécnica de Valencia, Spain Contact e mail: vtraver@itaca.upv.es
ITACA, Valencia e-mail: vtraver@itaca upv es The shift from Patient 1.0 to Patient 2.0
2. Norut and Tromsø T l
2 N dT Telemedicine Laboratory
di i L b y (ePatient)
3 eHealth Strategy Office Faculty of Medicine, University of British Columbia
3. Office, Medicine
Passive Active
p p , y
4. Computer Science Department, University of Tromsø
I t d ti
Introduction: NNowadays, th 2 0 wave i everywhere. F
d the 2.0 is h From concepts t I t
t to Internet productivity, new
t d ti it Reader Content Generator
technologies have paved the way for the emergence of personalized eHealth services and applications. Health
Health managed by
Issues lik i f
I like information, t l content production, t
ti tools, t t d ti type of content, f
f t t focus, relationship or roles are
l ti hi l managed by
doctor
him/herself
moving towards a new paradigm where patients produce, share, review, and comment through blogs,
wikis, podcasting,
wikis podcasting and forums Health related video audio images and texts are produced by
forums. video, audio, images, Patient Client/User/Citizen
everybody in a holistic patient centered approach.
Individual Community
Exchange of best p
g practices. Patients 2.0 Assessment and Advise.
bu d the community a d exc a ge best
build t e co u ty and exchange Citizens are using Internet to
practices and experiences, like en TuDiabetes or assess,advice and evaluate
Diabetes Connect health care services as Patient
services,
Opinion in UK Personal Health Record M
P l H lth R d Manager. Different i iti ti as
Diff t initiatives
Microsoft Health Vault, Google Health, Indivo allow the patient
to introduce data and manage his Personal Health Record
g
Content reviewer. Patient
Community patient support PatientsLikeMe is the
support. can rate review modify content
rate, review,modify
classical example where a community of people with
l i l l h it f l ith according some rules as it
common interests provides support to any member
d b happens in h lth wikis or
h i health iki
through forums, posts, blogs, and data sharing.
g p g g Salupedia
S l di
Patient 2 0
2.0
Content p
provider. Patients acts as content provider with
p Community builder. Patients
y Sensor integration, social
g ,
text, audio, video, images. You Tube, Twitter, b ogs a e
aud o, v deo, ages. ou ube, w tte , blogs are are using Internet to strengthen sharing and healthy
some of the main drivers As examples, a blog where a
drivers. relationships through community lifestyle.
lifestyle Through easy plug
diabetic shows how to hide a pump in a wedding dress and building.
building PatientsLikeMe or and play sensors, measurements
d l t
a video where a girl is explaing how she lives with multiple SecondLife are clear examples of can be shared promoting a
sclerosis and why she uploads videos about her status
l i d h h l d id b th t t that. In the h
th t I th shown example, Alil Alice healthy lifestyle. Examples can
y y p
Krueger explains h
K l i how she fli
h flies be the Activity Coach, result of
y ,
and perform different activities in My Heart project or MapMyRun
Second Life in spite of she has
p
severe multiple sclerosis and is
p
unable to walk without the use of
crutches
The Dark Side
Blogs promoting anorexia
Incentivated or f l patient recommendations
I i d false i d i
Ethical, legal and privacy issues
, g p y
…
Conclusions: Th paradigm-shift of patient's roles i t d y' h lth
C l i The dig hift f ti t' l in today's healthcare systems within th W b 2 0 i presented i thi poster. S
y t ithi the Web 2.0 is t d in this t Some of thf the
most prominent new roles are: content provider, content reviewer, community builder, adviser, community patient support, exchange of best
practices, and P
ti d Personal H lth R
l Health Records manager.
d
Therefore, the patient's role and environment is changing rapidly due to the incidence and accessibility of Web 2.0 platforms and the raise of
patient s
the ti t
th patient empowerment. U f t
t Unfortunately, patient empowerment within W b 2 0 h yet t b understood b public and private h lth
t l ti t t ithi Web 2.0 has t to be d t d by bli d i t healthcare
providers, medical staff, and governmental organizations in order to redefine healthcare processes and services towards a patient-centric
patient centric
care.
care