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Aac and mowat wilson syndrome 0617

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Considerations for use of AAC with children with Mowat-Wilson Syndrome and other rare genetic disorders

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Aac and mowat wilson syndrome 0617

  1. 1. Augmentative and Alternative Communication What? Who? Where? When? Why? and How? Kim Singleton, MS, CCC-SLP Mowat-Wilson Syndrome 2017 International Family Conference June 29 – July 1, 2017 Washington, DC
  2. 2. Disclosure: Kim Singleton has no relevant financial or non-financial relationships to disclose. Kim Singleton, MS, CCC-SLP Director of Assistive Technology @ Institute on Disabilities @ Temple University kim.singleton@temple.edu 215-204-3862 Kim Singleton, MS, CCC-SLP Mowat-Wilson Syndrome 2017 International Family Conference June 29 – July 1, 2017 Washington, DC
  3. 3. Key Concepts Definitions
  4. 4. Key Concepts lan·guage ˈlaNGɡwij/ noun the method of human communication, either spoken or written, using words in a structured and conventional way. speech spēCH/ noun. the expression of or the ability to express thoughts and feelings by articulate sounds. Definitions
  5. 5. Key Concepts sym·bol ˈsimbəl/ noun a mark or character used as a conventional representation of an object, function, or process, e.g., the letter or letters standing for a chemical element or a character in musical notation Definitions
  6. 6. Key Concepts Communication Symbols Holding Up
  7. 7. Symbol A symbol “stands for” something else Objects TV remote = activity of watching show Parts of objects keys = go for ride Textures/Fabrics soft fabric of blanket = sleep Gestures/Signs pantomime throwing = play ball Pictures photo of Grandma = Grandma Sounds “kiss sound” = Grandma Spoken names “Grandma” = Grandma
  8. 8. Symbol Type – Letters, pictures, objects, gestures – Depend on person’s vision, motor skills, & learning/understanding – Depend on environment (partners, setting, culture) Teaching Symbol Use - Models, Models, Models - Use and see symbols being used Symbol
  9. 9. Language Language requires combining symbols for concrete and abstract communication. - When motor planning is an issue, telegraphing verbal messages occurs. - When telegraphing occurs, language development suffers.
  10. 10. Communication
  11. 11. AAC • Augmentative – Enhances – Makes (speech) greater or better by adding to it • Alternative – Different from the usual or conventional – Offering or expressing a choice • Communication – the imparting or exchanging of information or news. – means of connection between people or places Key Concepts
  12. 12. Key Concepts
  13. 13. Key Concepts AAC Things • Things you already have • Things you can easily get or make • Things you can acquire with resources
  14. 14. Key Concepts AAC & MWS • Children with Mowat-Wilson Syndrome often understand more than they expressive communicate. • When comprehension is better than speech ability it is imperative to look for ways to develop communication using non-verbal ways such as signing or using an AAC system.
  15. 15. What do you have with you?Discussion What is your name? Where do you live? How are you feeling? What do you want to do? How many people live in your house? What did you do last night?
  16. 16. Core Vocabulary Core vocabulary is a small set of simple words, in any language, that are used frequently and across contexts. Approximately 80% of the words in a sample of 100 total words will be core, but many of the core words will be used repeatedly, so the number of different words is small.
  17. 17. Core Vocabulary Interjections (social words) yes no thank you please hi / hello good-bye Pronouns I me my mine you it he she we they Question Words what when where who why how Preverbs (helping words) be is am are was were do did can have will Verbs (action words) go stop turn make look see find put open close eat drink get help want need say tell come read like feel color ‘let’s work’ play finished / ‘all done’ Adjectives (descriptive words) more one big little fast slow same different pretty red blue yellow good bad new old happy sad Prepositions (placing words) on off in out up down to for under with Determiners (pointer words) this that some all Conjunctions (connecting words) and but Adverbs (tell when, where, how) not / don’t now here there away again attributed to prenrom.com 100 Core Word List based on: • Banajee List of Toddler Vocabulary • Dolch Pre-Primer & Primer • Gail Van Tatenhove First 50 Words • LAMP Starter Words • PRC Core Starter Sets • Clinical Judgment
  18. 18. AAC Modeling • Would we expect children to learn to talk if they never heard speech? •Would we learn a new language if no one around us used it? Why do we expect children to robustly use AAC if we don’t model it?
  19. 19. Video Aided Language Stimulation https://youtu.be/QywUaX99-D4
  20. 20. Key Concepts AAC Users ALL of us AUGMENT our speech with other forms of communication. (saying +) ALL of us use ALTERNATIVES to speech at times (texting, smiling, gesturing). Some of us use Augmentative or Alternative Communication ALL of the time.
  21. 21. Video AAC Example https://youtu.be/Tp2ROyyyqjo
  22. 22. AAC Example Kim’s Personal Video
  23. 23. Resources AAC Resources AACCommunity.net
  24. 24. Resources AAC Resources https://www.ataporg.org/programs
  25. 25. AAC Funding • Private Funding – Insurance – Private foundations, charitable organizations • Pilot Club, Lions Club, etc. – Crowd-funding – AT Loans – “Previously owned” or recycled equipment • Public Funding – School System (EI, IUs) – Medicaid (including waivers) – Office of Vocational Rehabilitation (OVR) – Medicare – Telecommunication Device Distribution Programs (TDDP) *exceptions process* – Skilled Nursing Facility
  26. 26. What Not To Do https://youtu.be/8erfGhAHVY4
  27. 27. AAC Tips Connect! Engage! and Keep the Connection Model. Model. Model. And Model some more… Use multiple ways of communicating yourself. Relax and take your time. Admit when you don’t understand and work together to clarify. Assume competence and ability.
  28. 28. Let’s TalkDiscussion Kim Singleton kim.singleton@temple.edu 215-204-3862

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