Presentation at the 2017 joint annual convention of the Philippine Society of Hypertension & Philippine Lipid & Atherosclerosis Society 25 Feb 2017, Crowne Plaza Galleria Manila.
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Social Media & Health: Safety Concerns
1. SOCIAL MEDIA
& HEALTH:
SAFETY CONCERNS
IRIS THIELE ISIP TAN MD, MSC
Professor, UP College of Medicine
Chief, UP Medical Informatics Unit
Director, UP Manila Interactive Learning Center
@endocrine_witch
6. Patients are increasingly using online social networks to
connect with other patients and healthcare professionals
PEER-TO-PEER HEALTHCARE
Pagoda S. et a. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
7. SOCIAL MEDIA FOR HEALTH COMMUNICATION
Provide health information
Provide answers to medical Qs
Facilitate dialogue
Collect patient data
Health promotion
Moorhead SA et al. J Med Internet Res 2013;15(4):e85
Health education
Reduce stigma
Online consultation
9. BENEFITS OF SOCIAL MEDIA
FOR HEALTH COMMUNICATION
Increase interaction
Increase accessibility
More available, shared, tailored information
Moorhead SA et al. J Med Internet Res 2013;15(4):e85
Peer/social/emotional support
Public health surveillance
Potential to influence health
policy
10. LIMITATIONS OF SOCIAL MEDIA
FOR HEALTH COMMUNICATION
Lack of reliability
Quality concerns
Moorhead SA et al. J Med Internet Res 2013;15(4):e85
11. Moorhead SA et al. J Med Internet Res 2013;15(4):e85
LIMITATIONS OF SOCIAL MEDIA
FOR HEALTH COMMUNICATION
Lack of confidentiality & privacy
Often unaware of risks of disclosing
personal information online
12. LIMITATIONS OF SOCIAL MEDIA
FOR HEALTH COMMUNICATION
Unaware of risks of
communicating harmful/
incorrect advice using
social media
Unsure how to correctly
apply information found
online to their personal
health situation
Information overload
Moorhead SA et al. J Med Internet Res 2013;15(4):e85
13. LIMITATIONS OF SOCIAL MEDIA
FOR HEALTH COMMUNICATION
Adverse health consequences
Negative health behaviors
Moorhead SA et al. J Med Internet Res 2013;15(4):e85
14. LIMITATIONS OF SOCIAL MEDIA
FOR HEALTH COMMUNICATION Moorhead SA et al. J Med
Internet Res 2013;15(4):e85
Health professionals may not often
use social media for communication
Social media may act as a deterrent from
visiting health professionals
16. Do cultural variations exist in patterns
of online health information seeking?
Song et al. Trusting Social Media as a Source of Health Information: Online Surveys
Comparing the United States, Korea, and Hong Kong. J Med Internet Res 2016;18(3):e25)
17. HEALTH INFORMATIONSong et al. J Med Internet Res 2016;18(3):e25)
Expertise-based information
produced by medical professionals
Experience-based information
laypersons’ subjective first-hand
experiences of health & illness
18. Song et al. J Med Internet Res 2016;18(3):e25)
SURVEY QUESTIONNAIRE
English (Milwaukee) n=301
Korean (Seoul) n=179
Chinese (Hongkong) n=337
826 College students
Voluntary participation
Health information seeking & trust
Goals of online health information seeking
Seeking health information on
behalf of family members
19. Frequency of using health
information sources
Song et al. J Med Internet Res 2016;18(3):e25)
Blogs
Support groups
Social networks
Professional
health information
websites
20. SEEKING HEALTH INFORMATION ONLINE
Song et al. J Med Internet Res 2016;18(3):e25)
GOALS
health maintenance
preparation
complementing consultation
validating/challenging consultation
“Searching information for sick family
members is an important family responsibility.”
7-point Likert scale
21. HEALTH INFORMATIONSong et al. J Med Internet Res 2016;18(3):e25)
Expertise-based information
Americans showed a stronger
preference for WebMD & CDC
Experience-based information
Asians showed more trust in
blogs, online support groups &
social networking sites
22. SEEKING HEALTH INFORMATION ONLINE
Song et al. J Med Internet Res 2016;18(3):e25)
“Searching information for sick family
members is an important family responsibility.”
Asians > Americans
HOLISTIC vs ANALYTIC culture
23. SEEKING HEALTH INFORMATION ONLINE
Song et al. J Med Internet Res 2016;18(3):e25)
GOALS
Health maintenance
Americans > Asians
Preparation
Americans > Asians
Complementing consultation
Asians > Americans 7-point Likert scale
24. Song et al. J Med Internet Res 2016;18(3):e25)
Social media can help disseminate expertise-based health
information by enhancing access, relevance and credibility.
Experience-based information can be strategically and
differentially incorporated into expertise-based health information
to target audiences from diverse cultures.
25. Song et al. J Med Internet Res 2016;18(3):e25)
Incorporating health professionals’ comments
in health-related blogs, SNS, and support group sites
may be imperative for Asians.
27. Concern over veracity & quality of information
Increased use to post anecdotal information
Minimal guidelines regulating content uploaded
28. Madathil KC et al. Health Informatics J 2015;21(3):173-194
HEALTH-RELATED INFORMATION ON YOUTUBE
Health consumers are
viewing health-related
information on YouTube
Misleading information is
found on YouTube & likely
to be found by health
consumers
Reliable postings from
government/professional
orgs are available
Little difference between
frequency of viewings
between misleading &
accurate posts
29. Madathil KC et al. Health Informatics J 2015;21(3):173-194
SAFETY CONCERNS WITH YOUTUBEYouTube is used as a
medium for promoting
unscientific therapies
YouTube contains
information contradicting
reference standards/
guidelines
YouTube can change the
beliefs of patients about
controversial topics
i.e. vaccination
30. Significant lack of research on developing interventions for the effective
dissemination of YouTube videos for healthcare communication.
Madathil KC et al. Health Informatics J 2015;21(3):173-194
32. Characterize tweets of
health professionals
Lee JL et al. J Med Internet Res 2014;16(10):e237
100 random tweets each n=700
Health advocates, businesses, health care organizations,
government organizations, students, professionals, other
33. Lee JL et al. J Med Internet Res 2014;16(10):e237
34. Testable
Evidence-based claim whose
veracity could be assessed
CATEGORIES OF HEALTH-RELATED TWEETS
Lee JL et al. J Med Internet Res 2014;16(10):e237
News
Information or events that
happened recently
Commercial
Advertises a service or product for sale
Wellness
Refers to food, diet or exercise
Personal
Refers to personal experiences
relayed by users
35. Lee JL et al. J Med Internet Res 2014;16(10):e237
Over half of tweets were
testable claims
40% medical
advice
23%
scientific
research
Non-provider
individuals
contributed 20%
of health tweets
Trust?
Unbound by
professional
guidelines?
36. Lee JL et al. J Med Internet Res 2014;16(10):e237
17% of health tweets from providers and 74% from
medical students included personal content
LACK OF ADHERENCE TO PROFESSIONAL GUIDELINES
14% of providers’ tweets included
commercial products or services
38. RESEARCH PRIORITIES
Moorhead SA et al. J Med Internet Res 2013;15(4):e85
Determine the impact of social media for health communication
in specific population groups with large sample sizes
Determine the relative effectiveness of different social media
applications for health communication using RCTs
Determine the longer-term impact on the effectiveness of social
media for health communication using longitudinal studies
39. RESEARCH PRIORITIES
Moorhead SA et al. J Med Internet Res 2013;15(4):e85
Explore potential mechanisms for monitoring and enhancing the
quality and reliability of health communication using social media
Investigate the risks arising from sharing information online
and the consequences for confidentiality and privacy
Determine how social media can be effectively used to support
the patient-health professional relationship
Develop the most suitable mechanisms to effectively educate
users in the maintenance of their confidentiality and privacy
40. IRIS THIELE ISIP TAN MD, MSC
Professor, UP College of Medicine
Chief, UP Medical Informatics Unit
Director, UP Manila Interactive Learning Center
@endocrine_witch