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3月社區居住研討會講義(中英文)
1. Dr. Jos van Loon, Arduin January 2011 The Deïnstitutionalisation and Current Practice of Arduin. Quality of life and Deïnstitutionalisation
2. Dr. Jos van Loon, Arduin January 2011 Arduin 的去機構化與現況 生活品質與 去機構化
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19. QOL Factor QOL Domain Exemplary QOL Indicators Independence Personal Development Self-Determination Education status, personal skills, adaptive behavior (ADLs IADLs) Choices/decisions, autonomy, personal control, personal goals Social Participation Interpersonal Relations Social Inclusion Rights Social networks, friendships, social activities, interactions, relationships Community integration/participation, community roles, supports Human (respect, dignity, equality) Legal (legal access, due process) Well-Being Emotional Well-Being Physical Well-Being Material Well-Being Safety & security, positive experiences, contentment, self-concept, lack of stress Health Status Nutritional Status Recreation/Physical Exertion Financial status, employment status, housing status, possessions
31. With respect to the actual provision of support, it is important that the implications of the emancipation cornerstone are carried through consistently in all of the decisions made in the management of Arduin. This was accentuated in the choice to dismantle the institution, as well as in choosing a coaching style of management directed towards autonomy and self-direction. Only a facilitating organization remains, focused on support of the self-determining client, focused on supported living. An important motto in shaping this organization is “Normal if possible, special if necessary”. The Model ‘Arduin ’
37. The practice of self- determination Leading principle in supporting clients is: “ Everyone can make important decisions in his / her life (with the support of a personal assistant) “ Option of accommodation : the housing bureau Option of work : the vacancy bank The practice of personal development Learning by experience: Participating in the community Academy on QOL: Focused on emancipation and self-determination The practice of inclusion: Normal houses for all clients in the community, not grouped together! Foster families for children Work or daily activities in companies and daycentres in the middle of the community The practice of supports: People live in an house where they want to live themselves and work where they want to work themselves and get the supports they subsequently need.
45. How it was: A Map with the care-plan A meeting amongst Professionals The professionals decided How it is: A Personal Plan, internet-based Dialogue with the clients What do you want? How do you want it? The Personal Plan From a “care-plan” to a Personal Plan
49. Academy on Quality of Life Many courses for clients ánd for workers within all the domains of Quality of Life
50. 生活品質學院 ( Academy on Quality of Life ) 為顧客與工作人員 依生活品質的所有領域 開設許多課程
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59. Quality of Care Focus vs. Quality of Life Focus Quality of Care Focus Quality of Life Focus Perspective Provider Person in his natural network Interest Process Outcomes Content Management of care systems Support and its effects on a personal life Typical criteria for Evaluation Efficiency, cost-effectiveness, planning, consumer satisfaction Long term value-based outcomes on inclusion, personal development and self- determination Structures Actual care systems only need improvement Support needs to serve a persons case, even if this means that alternative structures have to be found
131. Personal Outcomes Scale A Scale to Assess an Individual’s Quality of Life Dr. Jos van Loon Prof.dr. Geert van Hove Prof.dr. Robert Schalock Lic. Claudia Claes 2008
132. 個人成果量表 評估個人生活品質的量表 Dr. Jos van Loon Prof.dr. Geert van Hove Prof.dr. Robert Schalock Lic. Claudia Claes 2008
141. Paulo Freire “ Education can never be neutral. Either it is an instrument for liberation of man, or it is an instrument for enslaving, drilling him for oppression"(Freire, 1985).
On a large scale people with intellectual disabilities are going through a process of emancipation and growing awareness. Fundamental moves are being made in the development from a position of dependence of many years’ standing towards one of self-determination. In the last decade, this development is also going on in the Netherlands.
On a large scale people with intellectual disabilities are going through a process of emancipation and growing awareness. Fundamental moves are being made in the development from a position of dependence of many years’ standing towards one of self-determination. In the last decade, this development is also going on in the Netherlands.
In Arduin a former institute, a day nursery and a day centre for adults, have merged. At present Arduin, an independent organization since 1 January 1996, has about 600 clients. In 1994, when the organization formerly known as Vijvervreugd came under new management, there was insufficient quality of care in several respects. An independent study, carried out by Prof. G. Van Hove from the department of special education at the University of Gent (Belgium), reached the conclusion that 35% of the inhabitants of the former Vijvervreugd had fallen through the care net. Arduin became an independent organization and a course of action with the title ‘Het gaat nu echt gebeuren’ (‘It really is going to happen now’) was drawn up.
In Arduin a former institute, a day nursery and a day centre for adults, have merged. At present Arduin, an independent organization since 1 January 1996, has about 600 clients. In 1994, when the organization formerly known as Vijvervreugd came under new management, there was insufficient quality of care in several respects. An independent study, carried out by Prof. G. Van Hove from the department of special education at the University of Gent (Belgium), reached the conclusion that 35% of the inhabitants of the former Vijvervreugd had fallen through the care net. Arduin became an independent organization and a course of action with the title ‘Het gaat nu echt gebeuren’ (‘It really is going to happen now’) was drawn up.
The backgrounds for this development are found in he changing views on the nature of mental disability (the definition by the American Association on Mental Retardation, AAMR (1992); disability studies), criticism of institutional care throughout the years (Rosenberg,1994; John O’Brien and Connie Lyle O’Brien,1993; Van Gennep, 1976; Van Hove, G.,1996; Erving Goffman, 1962; Vreeke, Janssen, Resnick and Stolk,1998), the Universal Declaration of Rights etc. With respect to the actual provision of support, it is important that the implications of the emancipation cornerstone are carried through consistently in all of the resolutions made. This was accentuated in the choice to dismantle the institution, as well as in choosing a coaching style of management directed towards autonomy and self-direction. It is however crucial that a good alternative is introduced in the shape of a service directed towards the support of people with intellectual disabilities.
The backgrounds for this development are found in he changing views on the nature of mental disability (the definition by the American Association on Mental Retardation, AAMR (1992); disability studies), criticism of institutional care throughout the years (Rosenberg,1994; John O’Brien and Connie Lyle O’Brien,1993; Van Gennep, 1976; Van Hove, G.,1996; Erving Goffman, 1962; Vreeke, Janssen, Resnick and Stolk,1998), the Universal Declaration of Rights etc. With respect to the actual provision of support, it is important that the implications of the emancipation cornerstone are carried through consistently in all of the resolutions made. This was accentuated in the choice to dismantle the institution, as well as in choosing a coaching style of management directed towards autonomy and self-direction. It is however crucial that a good alternative is introduced in the shape of a service directed towards the support of people with intellectual disabilities.