Debatte an der ICF Anwenderkonferenz - Moderation: Dr. Thomas Ewert, DGRW; Prof. Olaf Kraus de Camargo, McMaster Universität, Canada; Dr. Sabine Grotkamp, DGSMP
F-Words y Comunicación desde el nacimiento y los 1ros años del bebé - Estrat...Olaf Kraus de Camargo
Ponencia presentada durante el curso de diplomatura para la intervención temprana en la Fundación Kinesiológica del Funcionamiento Humano. Ofrece una introducción al marco de las palabras F y la CIF y da ejemplos de cómo pueden utilizarse estos marcos en la intervención temprana para capacitar a los padres y desarrollar intervenciones terapéuticas significativas.
The presentation titled "NDIS after 10 years" focuses on evaluating the National Disability Insurance Scheme (NDIS) a decade after its implementation. It outlines the principles behind NDIS, emphasizing increased funding for disability through tax increases, and the process for individuals with disabilities to apply for support. The presentation reviews the system's needs assessment, highlighting that only a fraction of people with disabilities qualify for NDIS support. It addresses market failures, due to thin markets, leading to a failure of the NDIS in the current market economy. This has led to inequities, cost explosions and loss of workforce emphasizing the need for further investment and funding. The final sections suggest a change of focus from "choice" to "voice" in decision-making, strengthening public service infrastructure, and enhancing workforce development.
Presentation at the 60th Anniversary of the Hong Kong Physiotherapy Association conference "Glocalisation of WHO's ICF in Clinical Practice:
Worldwide Experience Sharing" https://www.icf-conf2023hk.com
This presentation was part of the Panel "Functionality versus Diagnosis" at the 5th IDPA (International Developmental Pediatrics Association) conference in Johannesburg, South Africa.
How participatory action research informed practice and policy at a Canadian ...Olaf Kraus de Camargo
Presentation given in October 2023 at Grand Rounds for the Department of Pediatrics at the School of Medicine of Ankara University and with additional slides at the 7th UDEMKO conference at Anadolu University in Turkey. The presentation describes the origins of family engagement at CanChild since its foundation in 1989 through a series of examples of past and current research studies.
How Participatory Action Research (PAR) informed practice and policy at a Can...Olaf Kraus de Camargo
Presentation at the 77th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine on Sep 13th 2023 in Chicago. Olaf Kraus De Camargo, Alice Soper and Elizabeth Chambers provide an overview of the approach to engage families and patients in research with several projects as examples.
F-Words y Comunicación desde el nacimiento y los 1ros años del bebé - Estrat...Olaf Kraus de Camargo
Ponencia presentada durante el curso de diplomatura para la intervención temprana en la Fundación Kinesiológica del Funcionamiento Humano. Ofrece una introducción al marco de las palabras F y la CIF y da ejemplos de cómo pueden utilizarse estos marcos en la intervención temprana para capacitar a los padres y desarrollar intervenciones terapéuticas significativas.
The presentation titled "NDIS after 10 years" focuses on evaluating the National Disability Insurance Scheme (NDIS) a decade after its implementation. It outlines the principles behind NDIS, emphasizing increased funding for disability through tax increases, and the process for individuals with disabilities to apply for support. The presentation reviews the system's needs assessment, highlighting that only a fraction of people with disabilities qualify for NDIS support. It addresses market failures, due to thin markets, leading to a failure of the NDIS in the current market economy. This has led to inequities, cost explosions and loss of workforce emphasizing the need for further investment and funding. The final sections suggest a change of focus from "choice" to "voice" in decision-making, strengthening public service infrastructure, and enhancing workforce development.
Presentation at the 60th Anniversary of the Hong Kong Physiotherapy Association conference "Glocalisation of WHO's ICF in Clinical Practice:
Worldwide Experience Sharing" https://www.icf-conf2023hk.com
This presentation was part of the Panel "Functionality versus Diagnosis" at the 5th IDPA (International Developmental Pediatrics Association) conference in Johannesburg, South Africa.
How participatory action research informed practice and policy at a Canadian ...Olaf Kraus de Camargo
Presentation given in October 2023 at Grand Rounds for the Department of Pediatrics at the School of Medicine of Ankara University and with additional slides at the 7th UDEMKO conference at Anadolu University in Turkey. The presentation describes the origins of family engagement at CanChild since its foundation in 1989 through a series of examples of past and current research studies.
How Participatory Action Research (PAR) informed practice and policy at a Can...Olaf Kraus de Camargo
Presentation at the 77th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine on Sep 13th 2023 in Chicago. Olaf Kraus De Camargo, Alice Soper and Elizabeth Chambers provide an overview of the approach to engage families and patients in research with several projects as examples.
Participação de Pacientes e Familiares em Pesquisa - Reflexões do Centro CanC...Olaf Kraus de Camargo
Palestra dada no Encontro de Reumatologia Pediátrica descrevendo a história de um centro de pesquisa canadense no engajamento de pacientes e familiares para eles se tornarem parceiros ativos nas pesquisas desenvolvidas.
Using the ICF framework for children, families and carers to formulate health...Olaf Kraus de Camargo
Presentation at the International Conference of Autism Acceptance and Neurodiversity at Ambedkar State Institute of Medical Sciences, India
April 1 & 2 2023
Invited talk at the Joint Symposium of WFNR and ICF Education | Functioning science – The future of the biopsychosocial model and its impact on rehabilitation
A description of the pathway towards a patient-driven ICF platform enabling users to share their lived experience.
Presentation at the 8th ICF Education International Symposium and 5th Neuro Socio Psycho Rehab Conference - 2022 in India
An overview of current best practice and guidelines in treatment approaches for developmental disabilities and tools to implement a patient centred approach.
How participatory research can inform practice and policy? The CanChild exper...Olaf Kraus de Camargo
Conférences scientifiques du Département de pédiatrie
CHU St. Justine, Montréal, Québec – 23 November 2022
Invited Rounds describing CanChild approach to participatory research.
International Classification of Functioning, Disability and Health - From Pat...Olaf Kraus de Camargo
Presentation at the First Conference of the National Developmental and Behavioral Disorders Program in Riyadh, Saudi Arabia, on November 15th 2022. It provides an overview of the ICF, its uses in clinical care, patient engagement and health systems design.
Functionomics -The International Classification of Functioning, Disability an...Olaf Kraus de Camargo
Presentation during the Workshop on Assistive Technologies for People with Disabilities: Patient Perspectives – 13/12/2021organized by the Multitouch Project: https://multitouch-itn.eu
Grand Rounds McMaster University Department of Pediatrics, December 2nd, 2021
Olaf Kraus de Camargo, @DevPeds
Rachel Martens, @RaeofSunshine79
Keiko ShikakoThomas, @KeikoShikako
Participação de Pacientes e Familiares em Pesquisa - Reflexões do Centro CanC...Olaf Kraus de Camargo
Palestra dada no Encontro de Reumatologia Pediátrica descrevendo a história de um centro de pesquisa canadense no engajamento de pacientes e familiares para eles se tornarem parceiros ativos nas pesquisas desenvolvidas.
Using the ICF framework for children, families and carers to formulate health...Olaf Kraus de Camargo
Presentation at the International Conference of Autism Acceptance and Neurodiversity at Ambedkar State Institute of Medical Sciences, India
April 1 & 2 2023
Invited talk at the Joint Symposium of WFNR and ICF Education | Functioning science – The future of the biopsychosocial model and its impact on rehabilitation
A description of the pathway towards a patient-driven ICF platform enabling users to share their lived experience.
Presentation at the 8th ICF Education International Symposium and 5th Neuro Socio Psycho Rehab Conference - 2022 in India
An overview of current best practice and guidelines in treatment approaches for developmental disabilities and tools to implement a patient centred approach.
How participatory research can inform practice and policy? The CanChild exper...Olaf Kraus de Camargo
Conférences scientifiques du Département de pédiatrie
CHU St. Justine, Montréal, Québec – 23 November 2022
Invited Rounds describing CanChild approach to participatory research.
International Classification of Functioning, Disability and Health - From Pat...Olaf Kraus de Camargo
Presentation at the First Conference of the National Developmental and Behavioral Disorders Program in Riyadh, Saudi Arabia, on November 15th 2022. It provides an overview of the ICF, its uses in clinical care, patient engagement and health systems design.
Functionomics -The International Classification of Functioning, Disability an...Olaf Kraus de Camargo
Presentation during the Workshop on Assistive Technologies for People with Disabilities: Patient Perspectives – 13/12/2021organized by the Multitouch Project: https://multitouch-itn.eu
Grand Rounds McMaster University Department of Pediatrics, December 2nd, 2021
Olaf Kraus de Camargo, @DevPeds
Rachel Martens, @RaeofSunshine79
Keiko ShikakoThomas, @KeikoShikako
Individuell oder standardisiert? – unterschiedliche Positionen zu den personbezogenen Faktoren
1. Individuell oder standardisiert? –
unterschiedliche Positionen zu den
personbezogenen Faktoren
Olaf Kraus de Camargo
@DevPeds
Definitionen Gebrauch
Funktionsfähigkeit – Behinderung – Gesundheit
ICF Anwenderkonferenz – Hamburg
12. April 2018
9. Recht auf Gesundheit
Respekt für die Person
Wohlergehen
Gerechtigkeit
Cato, K.D., Bockting, W., Larson, E., 2016.
https://doi.org/10.1177/1556264616661611
PrinzipienGebrauch
10. Individualisiert
“Die Erfassung und Dokumentation von personbezogenen Faktoren sollten
dem persönlichen Austausch zwischen den beteiligten Personen vorbehalten
bleiben.”
Kraus de Camargo, O., 2016.
https://doi.org/10.1007/s00103-016-2402-z
https://medium.com/@DevPeds/personal-factors-and-
participation-7372ad74ac06#.n5j91e1eb
“Was uns zu Personen macht, ist die Art wie wir
denken, wie wir träumen, wie wir Andere sind .”
Couto, M., 2011. E Se Obama Fosse Africano? Companhia
das Letras, Sao Paulo, Brasil.
Gebrauch
11. Menschenwürde
Gebrauch
….die Würde kommt….“innerhalb der Natur …nur…dem Menschen zu, ihm
aber ohne jede individualisierende Selektion, d.h. jedem Exemplar der
Gattung, auch dem Neugeborenen u. Heranwachsenden, auch dem geistig
Schwerstbehinderten. Menschenwürde ist ein Superlativ, der sich weder
steigern noch abschwächen läßt, überdies jedem Menschen vor allen
individuellen Leistungen unverlierbar zukommt.“
„Lexikon der Ethik“Hg. Otfried Höffe, Verlag C.H. Beck, München 2002, S. 169
12. Literatur
• World Health Organization, 2013. How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and
Health (ICF). WHO, Geneva. http://www.who.int/classifications/drafticfpracticalmanual.pdf
• Geyh, S., Peter, C., Muller, R., Bickenbach, J.E., Kostanjsek, N., Ustun, B.T., Stucki, G., Cieza, A., 2011. The Personal Factors of the
International Classification of Functioning, Disability and Health in the literature - a systematic review and content analysis. Disabil Rehabil 33,
1089–1102. https://doi.org/10.3109/09638288.2010.523104
• Grotkamp, S.L., Cibis, W.M., Nüchtern, E.A.M., von Mittelstaedt, G., Seger, W.K.F., 2012. Personal Factors in the International Classification of
Functioning, Disability and Health: Prospective Evidence. Aust. J. Rehabil. Couns. 18, 1–24. https://doi.org/10.1017/jrc.2012.4
• Heerkens, Y.F., De Brouwer, C.P.M., Engels, J.A., Van Der Gulden, J.W.J., Kant, I., 2017. Elaboration of the contextual factors of the ICF for
Occupational Health Care. Work 57, 187–204. https://doi.org/10.3233/WOR-172546
• Geyh, S., Schwegler, U., Peter, C., Müller, R., 2018. Representing and organizing information to describe the lived experience of health from a
personal factors perspective in the light of the International Classification of Functioning, Disability and Health (ICF): a discussion paper.
Disabil. Rehabil. 0, 1–12. https://doi.org/10.1080/09638288.2018.1445302
• Botsman, R., 2017. Big data meets Big Brother as China moves to rate its citizens. Wired. http://www.wired.co.uk/article/chinese-government-
social-credit-score-privacy-invasion
• Cato, K.D., Bockting, W., Larson, E., 2016. Did I Tell You That? Ethical Issues Related to Using Computational Methods to Discover Non-
Disclosed Patient Characteristics. J. Empir. Res. Hum. Res. Ethics 11, 214–219. https://doi.org/10.1177/1556264616661611
• Kraus de Camargo, O., 2016. [Personal Factors and Participation] Personbezogene Faktoren und Teilhabe. Bundesgesundheitsblatt -
Gesundheitsforsch. - Gesundheitsschutz 59, 1133–1138. https://doi.org/10.1007/s00103-016-2402-z,
https://medium.com/@DevPeds/personal-factors-and-participation-7372ad74ac06#.n5j91e1eb
• Couto, M., 2011. E Se Obama Fosse Africano? Companhia das Letras, Sao Paulo, Brasil.
• „Lexikon der Ethik“ Hrsg. Otfried Höffe, Verlag C.H. Beck, München 2002, S. 169