This document discusses the use of social media in hematology, oncology, and bone marrow transplantation. It begins with an introduction and outline. Some key points include:
1. Social media allows for rapid communication with patients, colleagues, and the public. It can increase education networks and enable crowdsourcing.
2. Hashtags like #CTO (Cancer Tag Ontology), #OTO (Oncology Tag Ontology), and disease-specific hashtags like #MPNSM and #MMSMe (Multiple Myeloma Social Media) are used to facilitate online discussions around cancer care.
3. Social media platforms like Twitter are being used to engage patient communities around diseases like multiple myeloma and myel
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#EBMT16 - Social Media in Hematology / Oncology / BMT
1. www.ebmt.org#EBMT16
Social Media in
Hematology / Oncology / BMT:
Introduction
Mike Thompson, MD, PhD
@mtmdphd
@Aurora_Cancer @Aurora_Health – Wisconsin, USA
Valencia, Spain,
4 April, 2016
2. 2
@TheEBMT Twitter wall is live
@TweetBeam: http://goo.gl/oXou05
Tag your tweets with #EBMT16 !
#bmtsm = CTO hashtag
#EBMT16 #bmtsm
3. 3
• Intro – Mike Thompson, MD, PhD - @mtmdphd
• How to Tweet – Navneet Majhail, MD - @BldCancerDoc
• President EBMT - Mohamad Mohty, MD - @Mohty_EBMT
• @TheEBMT Comm Coordinator - Mélanie Chaboissier
• Patient Advocate - Maarten van der Weijden - @mvdweijden
Social Media Panel
#EBMT16
4. 4#EBMT16
@BldCancerDoc
at #ASH14
Navneet Majhail, MD
Director, Blood & Marrow Transplant Program, @ClevelandClinic |
Tweets: blood cancers, blood/marrow transplant, health policy, musings as
doc | Opinions my own
I am among the converted
5. 5#EBMT16
All You need to Know!
@BldCancerDoc:
“Or How I Learned to Stop
Worrying and Love Twitter"
- @ASH_hematology http://ow.ly/Kj7CJ
#ASH14 #bmtsm
6. 6#EBMT16
Resources
ASCO15 Education Book. Table 1 - http://ow.ly/NwAZ5
• Using Social Media to Learn & Communicate: It Is Not About the Tweet - #ASCO15 Ed Book http://ow.ly/NwAZ5
• ASCO Social Media: http://www.asco.org/about-asco/social-media
• How Can Social Media Improve Oncology Care? – Thompson. Comm Oncol 2013 http://ow.ly/C4kxZ
• Social Media & the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider – Thompson et al. 2015. Curr
Hematol Malignancy Reports
• Social Media Myeloproliferative Neoplasms (MPN)-Focus on Twitter and the Development of a Disease-specific
Community: #MPNSM - Pemmaraju et al. 2015. Cur Hematol Malignancy Reports
• Disease-specific Hashtags For Online Communication Disease-Specific Hashtags For Online Communication About
Cancer Care – Katz et al. 2015 JAMA Oncol. Nov 5, 2015 http://ow.ly/UiZ81
• & [Poster] #ASCO15 http://bit.ly/1cxy9Bp
• Social media in cancer care: highlights, challenges & opportunities [3/30/16] - @DrAttai et al. "COSMO" @fsgfon
http://ow.ly/105vXi
Title Author(s) (Date) Link
Medicine and Social Media: Why Do I Tweet? Younes A (June 15, 2009) http://ow.ly/sUlLO
The Evolving Role of Healthcare Professionals Katz M (October 20, 2011) http://ow.ly/xcaKk
Getting Started in Social Media – What to Do Before You Join Katz M (April 28, 2014) http://ow.ly/IHi6q
Twitter 101: Signing Up – A Tutorial for Oncologists Katz M (May 4, 2014) http://ow.ly/xc8Wq
Twitter 102: Account Settings – A Tutorial for Oncologists Katz M (May 5, 2014) http://ow.ly/xc8MO
Twitter 103: Trolls, Malware & Spam – A Tutorial for
Oncologists
Katz M (May 5, 2014) http://ow.ly/xc7OA
Internet, Social Media, Privacy Regulations, and Clinical Trials Bogler O, Thompson MA,
Miller RS (June 2, 2014)
http://ow.ly/xEy8f
Social Media & Academic Oncology – Challenges and
Opportunities
Katz M (December 19, 2014) http://slidesha.re/1Jqa6B0
7. 7
• What is social media?
• Why social media?
• Use Cases – Networks & Impact
• Meetings & Networks
• Action Plan
Outline
#EBMT16
8. 8
• What is social media?
• Why social media?
• Use Cases – Networks & Impact
• Meetings & Networks
• Action Plan
Outline
#EBMT16
9. 9#EBMT16
What is Social Media?
• Social media is a form of media
• Media is used to communicate
• Communication:
at the core of what we do – with:
– Patients
– Colleagues
– Public
Thompson MA, Majhail NS, Wood WA, Perales M-A, Chaboissier M.
Social Media and the Practicing Hematologist: Twitter 101 for the Busy
Healthcare Provider. Current Hematologic Malignancy Reports. 2015.
10. 10#EBMT16
While social media is media,
there are differences between social
and traditional media…
• Faster
• Permanent (archived)
• Interactive
• Searchable
• Impact often amplifies beyond the initial
“broadcast” audience
Thompson MA, Majhail NS, Wood WA, Perales M-A, Chaboissier M.
Social Media and the Practicing Hematologist: Twitter 101 for the Busy
Healthcare Provider. Current Hematologic Malignancy Reports. 2015.
11. 11#EBMT16
It’s not about the “Tweet”
or the Platform…
• Platforms:
– Facebook
– Blogs (e.g., ASCO Connection, KevinMD)
– Forums (e.g., Doximity, Sermo, HealthTap)
– LinkedIn
– Image/video (eg, YouTube, Vine, Instagram, SnapChat,
Periscope, Pinterest)
– Twitter (& now w/ media integration)
Thompson MA. Using Social Media to Learn and
Communicate: It’s Not About the Tweet.
In ASCO 2015 Annual Meeting Educational Book.
12. 12#EBMT16
It’s not about the “Tweet”
or the Platform…
• There is increasing blurring between these various
tools, and the social media platforms have evolved
and will continue to evolve.
• They will not be the same years from now.
• The content, curation, and connectivity are what
matter
Thompson MA. Using Social Media to Learn and
Communicate: It’s Not About the Tweet.
In ASCO 2015 Annual Meeting Educational Book.
13. 13
• What is social media?
• Why social media?
• Use Cases – Networks & Impact
• Meetings & Networks
• Action Plan
Outline
#EBMT16
14. 14#EBMT16
Why?
• SM offers rapid incoming and outgoing forms of
communications
• Use cases:
– Increase signal-to-noise ratio
– Education networks
– Crowdsourcing / crowdfunding
– Collaboration
– Promotion
Thompson MA. Using Social Media to Learn and
Communicate: It’s Not About the Tweet.
In ASCO 2015 Annual Meeting Educational Book.
18. 18#EBMT16
Why scholars use social media (Twitter)
Online Collaboration: Scientists & the Social Network - @Richvn
@AcademicsSay - http://ow.ly/UQktv
@nature - http://ow.ly/UQluG
19. 19
• What is social media?
• Why social media?
• Use Cases – Networks & Impact
• Meetings & Networks
• Action Plan
Outline
#EBMT16
20. 20#EBMT16
Cancer Tag Ontology (CTO)
Disease-Specific Hashtags for Online
Communication About Cancer Care
E-pub 11/5/15 ; Print March 2016
@JAMAOnc http://ow.ly/UiZ81
Matthew S. Katz, MD - @subatomicdoc
Audun Utengen, MBA - @audvin
Patricia F. Anderson, MILS - @pfanderson
Michael A. Thompson, MD, PhD - @mtmdphd
Deanna J. Attai, MD - @DrAttai
Claire Johnston, BA - @ClaireHJay
Don S. Dizon, MD - @drdonsdizon
21. 21#EBMT16
CTO, OTO, PTO…
via @symplur – can add hashtags
• Cancer Tag Ontology (CTO) - http://ow.ly/LSlFx
eg - #bmtsm #leusm #lymsm #mpnsm #mmsm
• Oncology Tag Ontology (OTO) http://ow.ly/LSjvg
- Clinical Tags – eg
– #ImmunoOnc, #CardioOnc, #gerionc
– #castemc = cancer stem cells
– #hpeonc = Health Policy & Economics in Oncology
• Introducing the Pathology Hashtag Ontology [3/11/16] -
@JMGardnerMD @Symplur http://ow.ly/ZqFki
22. 22#EBMT16
Multiple Myeloma Social Media
#mmsm
• Online Patient Communities for the E-Patient:
“Betwixt and Between” a New Patient & an Expert
ASCO Connection - 8/29/13
• Embraced by MM thought leaders to educate
• Quadrupled MD conversations about multiple
myeloma from 2012-2013 – Reid et al. ASCO14
e17644
http://connection.asco.org/Commentary/Article/ID/3645/Online-Patient-Communities-for-the-E-Patient-Betwixt-and-Between-a-New-Patient-and-an-Expert.aspx
23. 23#EBMT16
#mmsm Myeloma Twitter
Discussion Group
• Developed #mmsm (multiple myeloma social
media) Twitter discussion group with patient Cynthia
Chmielewski (@myelomateacher).
• Moderate & facilitate provider, patient, advocate
discussions.
• 10/15/15 - Dana Holmes (@DanaHolmes911)
started a Facebook page to cover the #mmsm
Twitter activity
• https://www.facebook.com/MultipleMyelomaMMSMTweetChat
24. 24#EBMT16
#mmsm Topics (1)
Date Topic People
09/15/13 Online Info, SMM Rajkumar, Orlowski
10/20/13 Induction; VRd vs CfRd Kumar
11/16/13 ECOG-ACRIN Mtg Thompson
01/26/14 Allo SCT in MM Hari
02/23/14 Racial Disparities in MM Rajkumar
03/16/14 Clinical Trials in MM Chmielewski
05/18/14 Can we cure MM? Fonseca
06/29/14 Amyloidosis Weiss
07/27/14 MRD Landgren
08/24/14 MM Risk Assessment Usmani
09/07/14 Crowdfunding for MM Research Ahlstrom
25. 25#EBMT16
#mmsm Topics (2)
Date Topic People
11/23/14 Advocating for yourself and others Chmielewski (@MyelomaTeacher)
02/25/15 Panobinostat in multiple myeloma Rajkumar (@VincentRK)
03/12/15 #DFCIchat on multiple myeloma Ghobrial (@IreneGhobrial)
05/27/15 MGUS Screening and follow up Kristinsson (@sykristinsson)
& Landgren (@DrOlaLandgren)
07/01/15 Role of imaging… Gertz (@MorieGertz)
07/22/15 Immuno-Oncology in Multiple Myeloma Cohen (@CohenAd_MMdoc)
& Garfall (@AlGarfall)
09/09/15 Amyloidosis Weiss (@brendanweiss)
10/14/15 Allogeneic SCT Hari (@phari)
11/18/15 Social media in multiple myeloma @MyelomaTeacher & @northtxmsg
12/09/15 FDA Approval of Daratumumab Usmani (@szusmani)
12/16/15 FDA Approval of Elotuzumab Fonseca (@Rfonsi1)
01/20/16 FDA Approval of Ixazomib Kumar (@myelomaMD)
02/17/16 Agent Orange & M. Gammopathy Landgren (@DrOlaLandgren)
04/27/16 NEOD001 in Amyloidosis Gertz (@MorieGertz)
26. 26#EBMT16
Facebook MM Groups
http://www.myelomacrowd.org/myeloma-crowd-radio/
• Multiple Myeloma Family & Caregiver Group
• General Multiple Myeloma Information
Group
• MGUS Group
• Smoldering Myeloma Group
• Cyclin D(12;14) Group
• MAF (14;16) Group
• MAFB (14;20) Group
• MMSET and FGFR3 (4;14) Group
• CCND3 (6;14) Group
• CCND1 (11;14) Group
• Myeloma Patients with Kidney Issues Group
• Myeloma Patients with Chromosome 1
Addition Group
• Myeloma Patients with Chromosome 13
Deletion Group
• Myeloma Patients with Chromosome 17
Deletion Group
• Waldenstrom's Macroglobulinemia Patients
• Plasma Cell Leukemia
• General Multiple Myeloma Support Group
• Myeloma UK Support Group
• MM Allogeneic Transplant Group
• Myeloma Australia Support Group
• Multiple Myeloma Heavenly Heros
27. 27#EBMT16
#MCRI
Myeloma Crowd Research Initiative
• Patient-Driven, High-Risk Focused Search for a Cure
• Filling Funding Gaps
• Crowdsourced ideas - Finding the “Best” Available Research
• 36 ideas vetted by Scientific Advisory Board
• Top 10 socialized on Myeloma Crowd Radio to patient
community
• Votes by Patient Advisory Board & Scientific Advisory Board
- 2 projects selected
• Selection based on:
– curative potential
– time to clinic
– applicability for high risk patients
28. 28#EBMT16
MCRI Crowdfunding
• Peer-to-Peer campaign - patients and family members
• 12-Day Challenge Social Media Campaign
- promote awareness and involvement
– Pharma corporate sponsors
– Corporate sponsors provide prizes
– Patients, family, large circle of friends
– Celebrity spokespeople
• Traditional fundraising tools/events
• Goal: Involve patient community in taking action to advance their own cure
29. 29#EBMT16
Social Media and MPNs:
#MPNSM
Pemmaraju N, Gupta V, Mesa R, Thompson MA Curr Hematol Malig Rep. 2015 Dec;10(4)413-20.
31. 31#EBMT16
#MPNSM: An ongoing Twitter
conversation about MPNs
• Inspired by: CTO (based on #hcsm & #btsm) (Katz et al Disease-Specific hashtags
for online communication about cancer care - JCO. 2015;33 suppl abstr 6520); and
for hematology specific influence, #mmsm
• Founder of #MPNSM Twitter community : Naveen Pemmaraju, MD @doctorpemm
– With key co-founders: @mtmdphd, @Vikas_Gupta_1, @mpdrc
• First tweet: @doctorpemm [Aug 2014]but #mpnsm did not really take off as a
regular hashtag until Dec’14-Jan’15: during/after #ASH15 meeting
• As of Sept,13,2015: For #MPNSM, According to @symplur @healthcarehashtags
project: Jan’15-Sept’15
– 2013 tweets from 285 participants
– Resulting in: 4,049,415 impressions
• Brings together, in real-time: investigators/researchers, MPN healthcare providers,
patients, advocates, organizations for discussion of basic science, translational, and
clinical topics in MPNs
32. 32#EBMT16
Cross Soc Med Platform use for BMT
• @ASBMT Online Journal Club (@bmtojc, bmtojc.net) was
launched in 2014 by Drs. @AndreasKleinMD, Perales, &
Wood
• Journal club is held quarterly for fellows on a Google
hangout with live-streaming & archiving on YouTube &
simultaneous discussion on Twitter
• The article is presented by a fellow & a faculty discussant
(often one of the lead authors of the article being discussed)
• This is another example of social media being used for
medical education (#MedEd)
Thompson MA, Majhail NS, Wood WA, Perales M-A, Chaboissier M. Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare
Provider. Section: Social Media Impact of Hematologic Malignancies. Current Hematologic Malignancy Reports. 10(4), 405-412. 10/09/15 online
37. Figure 1. Cumulative number of cases posted on the ASBMT CCF.
Pere Barba, Linda J. Burns, Mark R. Litzow, Mark B. Juckett, Krishna V. Komanduri, Stephanie J. Lee, Sean M. Devlin, Luciano
J. Costa, Shakila Khan, Andrea King, Andreas Klein, Amrita Krishnan, Adriana Malone, Muhammad Mir, Carina Moravec,
George Selby, Vivek Roy, Melissa Cochran, Melisa K. Stricherz, Michael D. Westmoreland, Miguel-Angel Perales, William A.
Wood
Success of an International Learning Health Care System in Hematopoietic Cell Transplantation: The American Society of
Blood and Marrow Transplantation Clinical Case Forum
null, 2015, Available online 21 December 2015
http://dx.doi.org/10.1016/j.bbmt.2015.12.008
38. Figure 2. Distribution of diseases in patients undergoing HCT reported in the CCF and in the United States (2013).
Pere Barba, Linda J. Burns, Mark R. Litzow, Mark B. Juckett, Krishna V. Komanduri, Stephanie J. Lee, Sean M. Devlin, Luciano
J. Costa, Shakila Khan, Andrea King, Andreas Klein, Amrita Krishnan, Adriana Malone, Muhammad Mir, Carina Moravec,
George Selby, Vivek Roy, Melissa Cochran, Melisa K. Stricherz, Michael D. Westmoreland, Miguel-Angel Perales, William A.
Wood
Success of an International Learning Health Care System in Hematopoietic Cell Transplantation: The American Society of
Blood and Marrow Transplantation Clinical Case Forum
null, 2015, Available online 21 December 2015
http://dx.doi.org/10.1016/j.bbmt.2015.12.008
39. 39
• What is social media?
• Why social media?
• Use Cases – Networks & Impact
• Meetings & Networks
• Action Plan
Outline
#EBMT16
50. 50#EBMT16
#EBMT2014 vs. #EBMT15
Total physician authors increased from 14 in 2014 to 50 in 2015, but physician’s decreased as
a portion of overall #EBMT15 health ecosystem conversation (Pt conversation incr 10%)
51. 51#EBMT16
#EBMT2014 #EBMT15
• @chimoose (Greg Matthews)
of @W2OGroup
• MD conversation increased by 453%
• # of MDs tweeting increased by 257%
• Metrics for network quality
52. 52#EBMT16
#ASH15 and #EBMT15 Comparison
combination of number of posts and number of health
ecosystem participants
amount of participation from different health ecosystem
stakeholder groups, e.g., doctors, patients, healthcare
company execs, caregivers, etc
the breadth of the topics
discussed
the level of connection &
conversation engaged in
by participants
The presence of industry “heavy hitters” in the conversation
*** Quality is higher for
EBMT15 due to the smaller set
of authors, resulting in a more
connected conversation
among all authors
54. 54
• What is social media?
• Why social media?
• Use Cases – Networks & Impact
• Meetings & Networks
• Action Plan
Outline
#EBMT16
55. 55#EBMT16
Action Plan
• Create account
– If tentative can “protect” and just watch
• Follow high value tweeps
• Follow hashtags and learn the culture
• Engage at your own pace
• Learn more (eg Mayo/Ragan, HootSuite, etc)
• Mentor others
63. 63#EBMT16
9 next generation metrics to measure the
effectiveness of an online network
• Rather than just looking at the number of posts (size) or the theoretical “reach” of the
authors of those posts (an aggregation of the number of followers each poster has – a
misleading measurement), we’re measuring online conversations with 9 different metrics:
• Size Index: Our index incorporates the number of posts & the number of unique health
ecosystem authors (validated & indexed stakeholders in the health ecosystem like doctors,
patients, hospitals, reporters, healthcare companies, caregivers, etc.)
• Author Diversity: How many different stakeholder groups are represented in the
conversation? Is it just doctors? Or just healthcare company executives?
• Content Diversity: How broad are the topics that are discussed at the conference?
• Connectivity: How well-connected are the participants in the conversation to each other?
• Equitability: Are there one or two people who dominate the conversation, or is there a
more equal share among participants?
• Originality: How many posts are original vs shared (or retweeted) posts?
• Temporality: How long is the nose (pre-conference) and tail (post conference) relative to
the conversation occurring in real time during the conference?
• Impact: How many of the participants have real influence in the online health ecosystem?
• Conversationality: How many posts represent actual conversations between participants
as opposed to simple posts?
The 9 next generation metrics to measure the effectiveness of an online network [1/11/16] @chimoose @MDigitalLife
http://ow.ly/Xf1mY
64. 64#EBMT16
Education Outreach
A few examples to RT
An educated & engaged (via social media & IRL) public necessary to
sustain a national #clinicaltrials infrastructure - @mtmdphd
#ClinicalTrials Information for Patients and Caregivers - @theNCI
@NIH http://ow.ly/YqDRV
Creating a "culture of research" in a community hospital: Strategies &
tools from @theNCI NCCCP - Dimond et al. 2015 http://ow.ly/Jw6hM
RT @rsm2800 “I think a big misconception about clinical trials is that
they are the “last resort.” In many cases they may be best first option
"Without clinical trials, cancer treatment would always remain the
same." via @TomBeer in @OncologyTimes ow.ly/fmaKk
65. 65#EBMT16
CTO - More detail in the poster…
1) Disease-specific hashtags for online communication about cancer care - @subatomicdoc et al. #ASCO15 Abstr 6520 http://ow.ly/MV516
2) Slideshare: http://www.slideshare.net/subatomicdoc/disease-specific-hashtags-for-communication-about-cancer-care-48866106
66. Contents are proprietary and confidential.
0
5000
10000
15000
20000
25000
30000
35000
2009 2010 2011 2012 2013 2014
Patient Mentions of Doctors Doctor Mentions of Patients
8,404% Growth
3,896% Growth
An increasingly connected community
68. 68#EBMT16
Following Meeting Tweets – and
Analytics in Real Time…
Navneet Majhail, MD @BldCancerDoc 6h6 hours ago
12,000 tweets by 2300 tweeters in 1st two days of #ASH15
http://www.symplur.com/healthcare-
hashtags/ASH15/analytics/?hashtag=ASH15&fdate=12%2F04%2
F2015&shour=00&smin=00&tdate=12%2F06%2F2015&thour=00
&tmin=00 …
69. 69#EBMT16
#ASH15 Analytics…in real time…
Tejas Desai, MD @nephondemand
Realtime #ASH15 analytics: Tremendous activity from Day -1 to 0: 16,263 tweets from 2,521
authors.
71. 71#EBMT16
Mathematicians mapped out every “Game of
Thrones” relationship to find the main character
http://qz.com/650796/mathematicians-mapped-out-every-game-of-thrones-relationship-to-find-the-main-character/?utm_source=digg&utm_medium=twitter
Hinweis der Redaktion
09.00 - 09.20 | Social media in Haematology / oncology
Speaker: Mike Thompson (United States)
09:20 - 09:40 | All you need to know about Twitter
Speaker: Navneet Majhail (United States)
09:40 - 10:00 | From leukaemia to Olympics gold medal: how I share my story on social media
Speaker: Maarten van der Weijden (The Netherlands)
10:00 - 10:30 | Discussion with the audience
Pemmaraju N, Gupta V, Mesa R, Thomson MA. Social Media Myeloproliferative Neoplasms (MPN)-Focus on Twitter and the Development of a Disease-specific Community: #MPNSM. Section: Social Media Impact of Hematologic Malignancies. Current Hematologic Malignancy Reports10(4), 413-420. 9/28/15 online. Link
Thompson MA, Majhail NS, Wood WA, Perales M-A, Chaboissier M. Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider. Section: Social Media Impact of Hematologic Malignancies. Current Hematologic Malignancy Reports. 10(4), 405-412. 10/09/15 online. Link
Pemmaraju N, Gupta V, Mesa R, Thomson MA. Social Media Myeloproliferative Neoplasms (MPN)-Focus on Twitter and the Development of a Disease-specific Community: #MPNSM. Section: Social Media Impact of Hematologic Malignancies. Current Hematologic Malignancy Reports10(4), 413-420. 9/28/15 online. Link
Thompson MA, Majhail NS, Wood WA, Perales M-A, Chaboissier M. Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider. Section: Social Media Impact of Hematologic Malignancies. Current Hematologic Malignancy Reports. 10(4), 405-412. 10/09/15 online. Link
Pemmaraju N, Gupta V, Mesa R, Thomson MA. Social Media Myeloproliferative Neoplasms (MPN)-Focus on Twitter and the Development of a Disease-specific Community: #MPNSM. Section: Social Media Impact of Hematologic Malignancies. Current Hematologic Malignancy Reports10(4), 413-420. 9/28/15 online. Link
Thompson MA, Majhail NS, Wood WA, Perales M-A, Chaboissier M. Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider. Section: Social Media Impact of Hematologic Malignancies. Current Hematologic Malignancy Reports. 10(4), 405-412. 10/09/15 online. Link
@mtmdphd @ASH_hematology #ASH13 physician mention map is much thinner! http://bit.ly/ASH13mdsna 243 docs; last year 133
300 posts from #ASH2014 in the MDigitalLife Health Ecosystem were removed due to account inactivity.
#EBMT2014 Physician Mention Map
#EBMT15 Physician Mention Map
Patient conversation increased by 10%
Size (a combination of number of posts and number of health ecosystem participants):
Audience Diversity (the amount of participation from different health ecosystem stakeholder groups, e.g., doctors, patients, healthcare company execs, caregivers, etc.)
Topic Diversity (the breadth of the topics discussed)
Quality (the level of connection and conversation engaged in by participants)
Impact (The presence of industry “heavy hitters” in the conversation).
*** Quality is higher for EBMT15 due to the smaller set of authors, resulting in a more connected conversation among all authors.
To do so, we examined the 2015 versions of 8 online networks connected to healthcare conferences* and scored them based on our simplified metrics (which collapse the 9 into 5 without losing the overall meaning):
Scoring online networks -- & why @ASH_Hematology #ASH15 & @ASCO #ASCO15 are better [1/14/16] @chimoose @MDigitalLife http://ow.ly/XeZSo
Greg Matthews (@chimoose)1/14/16, 5:09 PM
Check out this graphical representation of our #NetworkScoring algorithm youtu.be/JQnYyadSP5Q @ASH_hematology @ASCO @mtmdphd @fischmd
I also believe that some online networks are inherently better than others – and that we can quantify that level of effectiveness.
To do so, we examined the 2015 versions of 8 online networks connected to healthcare conferences* and scored them based on our simplified metrics (which collapse the 9 into 5 without losing the overall meaning):
Size (a combination of number of posts and number of health ecosystem participants):
Audience Diversity (the amount of participation from different health ecosystem stakeholder groups, e.g., doctors, patients, healthcare company execs, caregivers, etc.)
Content Diversity (the breadth of the topics discussed)
Quality (the level of connection and conversation engaged in by participants)
Impact (The presence of industry “heavy hitters” in the conversation).
As you can see, the 2015 ASCO and ASH conferences rise to the top in multiple categories that define the effectiveness of an online social network …
They’re both large (and growing); they attract diverse participants; they bring out the “heavy hitters” in their space, and perhaps most importantly both networks are extremely conversational and connected – which, in my opinion, makes for the best kind of conference back-channel.
#EBMT15 Physician Mention Map
A Publicly Funded Clinical Trials Network: Do We Need It? Margaret Tempero, MD - JNCCN http://ow.ly/ztgf7 #ClinicalTrials
Impact of @theNCI Comm CA Ctrs Prog (NCCCP) on #ClinicalTrials & Related Activities [8/11/15] Copur et al. #JOP http://ow.ly/TSd6s