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PREVENTING CHRONIC DISEASE
P U B L I C H E A L T H R E S E A R C H , P R A C T I C E , A N D P O L I C Y
Volume 12, E127 AUGUST 2015
ORIGINAL RESEARCH
Community Member and Stakeholder
Perspectives on a Healthy Environment
Initiative in North Carolina
Lori Carter-Edwards, PhD, MPH; Abby Lowe-Wilson, MPH;
Mary Sherwyn Mouw, MD, MPH; Janet Yewon Jeon, MPH; Ceola Ross Baber, PhD;
Maihan B. Vu, DrPH, MPH; Monique Bethell, PhD 
Suggested citation for this article: Carter-Edwards L, Lowe-
Wilson A, Mouw MS, Jeon JY, Baber CR, Vu MB, et al.
Community Member and Stakeholder Perspectives on a Healthy
Environment Initiative in North Carolina. Prev Chronic Dis 2015;
12:140595. DOI: http://dx.doi.org/10.5888/pcd12.140595.
PEER REVIEWED
Abstract
Introduction
The North Carolina Community Transformation Grant Project
(NC-CTG) aimed to implement policy, system, and environment-
al strategies to promote healthy eating, active living, tobacco-free
living, and clinical and community preventive services to advance
health equity and reduce health disparities for the state’s most vul-
nerable communities. This article presents findings from the
Health Equity Collaborative Evaluation and Implementation
Project, which assessed community and stakeholder perceptions of
health equity for 3 NC-CTG strategies: farmers markets, shared
use, and smoke-free multiunit housing.
Methods
In a triangulated qualitative evaluation, 6 photo elicitation (PE)
sessions among 45 community members in 1 urban and 3 rural
counties and key informant interviews among 22 stakeholders
were conducted. Nine participants from the PE sessions and key
informant interviews in the urban county subsequently particip-
ated in a stakeholder power analysis and mapping session (SPA)
to discuss and identify people and organizations in their com-
munity perceived to be influential in addressing health equity–re-
lated issues.
Results
Evaluations of the PE sessions and key informant interviews indic-
ated that access (convenience, cost, safety, and awareness of
products and services) and community fit (community-defined
quality, safety, values, and norms) were important constructs
across the strategies. The SPA identified specific community- and
faith-based organizations, health care organizations, and local gov-
ernment agencies as key stakeholders for future efforts.
Conclusions
Both community fit and access are essential constructs for promot-
ing health equity. Findings demonstrate the feasibility of and need
for formative research that engages community members and loc-
al stakeholders to shape context-specific, culturally relevant health
promotion strategies.
Introduction
Chronic diseases in North Carolina account for nearly 60% of all
deaths in the state (1,2). Modifiable burdens of these diseases are
often greater in rural counties or counties with high rates of
poverty, poor access to health care, and high proportions of people
of color (2). Effective interventions are needed at the institutional,
organizational, system, and policy levels for sustainable change,
especially among groups that are disproportionately affected by
health disparities (3). To design and implement such interventions,
it is important to understand the issues and perspectives of com-
munity members (4).
The Health Equity Collaborative Evaluation Planning and Imple-
mentation Project (HECEPP) was one of 4 evaluation efforts of
the North Carolina Community Transformation Grant Project
(NC-CTG), a statewide initiative designed to promote healthier
environments through local implementation of evidence-based
strategies. HECEPP, the only qualitative evaluation effort of NC-
The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health
and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 1
CTG, was conducted to investigate perspectives of health equity
(ie, all residents having access to opportunities for optimal health)
in rural and urban counties in 2 NC-CTG regions.
Using a unique, triangulated evaluation approach, we assessed
community member and stakeholder perceptions of 3 NC-CTG
strategies: farmers markets (healthy eating), shared use (active liv-
ing), and smoke-free multiunit housing (tobacco-free living). The
primary evaluation question was: How do residents from urban
and rural counties perceive health equity in terms of farmers mar-
kets, shared use agreements, and smoke-free policies in multiunit
housing? The primary hypothesis was that there would be differ-
ences in health equity perceptions between urban and rural county
residents. This article presents the overall findings from this evalu-
ation.
Methods
To improve health and prevent chronic diseases at the community
level, the national CTG Program provided implementation and ca-
pacity-building support to awardees across the United States. In-
tervention areas included healthy eating, active living, tobacco-
free living, and clinical and community preventive services to pre-
vent and control high blood pressure and high cholesterol. The
CTG was funded by the Affordable Care Act’s Prevention and
Public Health Fund, through the Centers for Disease Control and
Prevention. NC-CTG was awarded to the state’s Division of Pub-
lic Health Chronic Disease and Injury Section (DPH-CDI), which
worked with state and local partners to implement evidence-based
strategies to support healthier environments. Strategies were to ad-
here to CTG principles: maximizing health impact through pre-
vention, using and expanding the evidence base, and advancing
health equity. Although NC-CTG was originally designed to be
implemented from 2012 through 2016, the project concluded in
September 2014 because of CTG federal budget cuts (5).
DPH-CDI contracted with the University of North Carolina at
Chapel Hill to evaluate perceptions of health equity in the context
of CTG strategy implementation. With community engagement at
its core, HECEPP staff developed a comprehensive evaluation
framework to guide collaboration with NC-CTG state staff and the
HECEPP Advisory Group, consisting of community and academ-
ic leaders with expertise in community engagement and health
promotion. The framework included a communication plan for
sharing information with DPH-CDI and the strategy-specific eval-
uation teams (6), orientation of the evaluation teams to culturally
competent evaluation readiness (at the request of NC-CTG state
staff) (7), and a health equity evaluation plan (8). The evaluation
plan included 3 qualitative approaches: photo elicitation (PE) ses-
sions; key informant interviews; and stakeholder power analysis
and mapping (SPA), a group process of identifying and mapping
stakeholder influence and issue-specific interest (9–12). The ap-
proach was designed to evaluate health equity perceptions across
all 3 strategies in 1 urban county and 1 strategy each in 3 rural
counties (year 1), across all 3 strategies in 1 rural county and 1
strategy each in 3 urban counties (year 2), and collectively across
all participating rural and urban counties (year 3). The evaluation
for year 1 was successfully completed by September 2014. This
evaluation included 1 urban county (Gaston) and 3 rural counties
(Lee, farmers markets; Scotland, shared use; and Montgomery,
smoke-free multiunit housing). PE was the primary qualitative
evaluation approach (per the requirements of NC-CTG), and key
informant interviews and SPA were used as complementary ap-
proaches.
PE participants were recruited through 5 HECEPP-trained com-
munity coordinators working in the 4 participating counties. The
PE target sample was 60 community members (6 sessions, 10 per
session) residing in 1 of 4 participating counties. Key informants
were recruited by HECEPP staff from a stakeholder list of NC-
CTG county and regional-level staff and community leaders and
partners in the 2 participating NC-CTG regions. The key inform-
ant interview target sample was 24 stakeholders residing or work-
ing in one of the participating counties. The original SPA target
sample was 30 people (2 sessions, 15 per session) across the 4
counties who also participated in PE sessions or as a key inform-
ant. Because of funding cuts, SPA was conducted only in Gaston
County.
For PE, community members attended an informational meeting,
completed an informed consent and demographic survey, and re-
ceived a disposable camera (used and subsequently mailed to
HECEPP staff). Approximately 3 weeks later, they returned to re-
view their photos and collectively select, describe, and title the 5
photos they felt best reflected health equity issues in their com-
munity. They responded to focus group questions on experiences
related to the selected photos, including people, places, and things
perceived to have the greatest impact on health disparities and
health equity in their communities and what can maximize health
equity. Key informants each signed an informed consent and
demographic survey, and participated in a 30- to 40-minute phone
interview. They discussed their connection to NC-CTG; percep-
tions on health equity, health disparities, and community engage-
ment; and the progress of and lessons learned from NC-CTG. For
SPA, community members and stakeholders recruited from
Gaston County PE sessions and key informant interviews each
PREVENTING CHRONIC DISEASE VOLUME 12, E127
PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015
The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services,
the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
2 Centers for Disease Control and Prevention • www.cdc.gov/pcd/issues/2015/14_0595.htm
completed a power relationship “wheel,” a visual tool for identify-
ing influential relationships they have with stakeholders in their
community; and they collectively mapped these stakeholders as
having high or low interest and power in addressing health equity
surrounding NC-CTG strategies. All sessions were audio-recor-
ded and transcribed.
For this evaluation, PE data were treated as the reference, and key
informant interview and SPA data were compared with PE find-
ings. Separate codebooks were created to analyze data from PE
sessions and key informant interviews. Topical codes were drawn
from interview guides (eg, influential people and organizations)
and participants’ words, (eg, convenience, cost, safety); inductive
codes emerged on re-reading (eg, values, community fit). For PE
analysis, HECEPP staff developed the codebook iteratively, focus-
ing on what participants said about each strategy specifically and
what they described collectively as influencing health equity. To
ensure intercoder reliability, HECEPP staff worked together to ap-
ply codes to 2 transcripts and compared others that were coded in-
dependently, discussing discrepancies before individually com-
pleting coding. Data were analyzed using ATLAS.ti version 7.1.8
(Scientific Software Development GmbH). This project was ap-
proved by the institutional review board at the University of North
Carolina at Chapel Hill.
Results
PE participants had a mean age of 50.7 years and had lived in their
counties approximately 36 years (Table 1). Approximately 77% of
participants were female, 80% were black, and slightly more than
one-third had achieved a high school education or less. Mean age
of the 22 key informants was 45.7 years; 76% of key informants
were female, 73% were white, 46% had at least an associate’s de-
gree, and they lived or worked in their county roughly 18 years.
Nine of the 30 PE and key informant interview participants also
participated in SPA.
Overall, community fit and community access were important
health equity issues for community members and stakeholders. No
distinct differences in perceptions were observed between the
counties.
Photo elicitation findings
Multiple factors influenced PE participants’ perspectives on the 3
NC-CTG strategies (Table 2). Both rural and urban participants in-
dividually discussed safety, cost, quality, convenience, values,
perceived norms, and awareness. When viewed collectively, 2
broader community-level themes emerged: access and community
fit. Access referred to how easy or difficult it was for groups or
communities to be connected to or use resources related to a NC-
CTG strategy. Community fit was the collective acceptability or
desirability of a strategy for community members. If an implemen-
ted strategy was deemed inconvenient for many respondents, it
was viewed as an access issue. Likewise, community fit was
shaped by commonly shared, individual-level factors such as val-
ues, perceived norms, knowledge, and safety. Unequal levels of
access or community fit influenced the perceived health equity im-
pact of a strategy (Figure).
Figure. Conceptual model of health equity through contextual perceptions of
community members and other stakeholders.
 
In the PE sessions, there was little direct reference to racial
groups’ use of the strategies. Rather, PE participants focused on
how each strategy was relevant for them individually and how the
strategies pertained to groups defined by characteristics other than
race. For example, participants were keenly interested in how the
strategies might affect groups perceived as vulnerable: the elderly,
the disabled, the poor, children and young parents, smokers and
nonsmokers, farmers, and working people.
Participants discussed location of farmers markets, produce qual-
ity, transportation, acceptable use of Electronic Benefit Transfer
(EBT) cards, and benefits to farmers and the local economy. Con-
venience stood out as a particular concern, as reflected in this ex-
change between 2 Gaston County participants:
Taking a closer look at the times, the times did not suit me.
You got a life, right?
Well, I work.
Thus, working people as a group cannot access the markets. Loca-
tion and safety were the main concerns about shared-use facilities.
For example, a Gaston County participant was concerned about
traffic:
PREVENTING CHRONIC DISEASE VOLUME 12, E127
PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015
The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services,
the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 3
The children . . . have to cross the road. . . . It’s not safe;
they’ll run across.
When discussing a photo of a walking trail, 2 Scotland County
residents reflected,
I think it started getting dark. I might not want to be out
there . . .
I think it is in a positive, safe environment. . . . So I think at
night, it would be safe. But for a woman to go by herself, I
would not advise it, because there is not enough light.
Therefore, safety was considered a limit to shared-use access for
women and children.
Attitudes toward smoke-free policies in multiunit housing were
shaped by health concerns (personal health and experiences with
others’ tobacco-related illnesses), worries about fire hazards, and
considerations about whether such policies were fair to smokers.
A Montgomery County resident expressed concerns, for example,
when smoke-free policies were seen to force elderly smokers to
stand outside in inclement weather:
It came, that rain and sleet . . . they had to stand out in the
elements. . . . Some were wrapped in quilts, some were
wrapped in coats. . . . These are older people, I would say
from 65 to 80. . . . You really get a guilt trip going.
This remark reflected a negative aspect of the community fit
strategy, because the strategy conflicted with commonly shared
values about respecting and protecting elders.
PE participants made practical suggestions to increase the impact
of the strategies; examples cited were providing transportation to,
expanding the hours of, and advertising farmers markets; improv-
ing existing spaces for physical activity and increasing their visib-
ility; including both smokers and nonsmokers in implementing
smoke-free policies in multiunit housing properties; and incorpor-
ating safety issues into these discussions.
Findings of key informant interviews and SPA
As did PE participants, key informants emphasized access. Key in-
formants’ work with CTG strategies often addressed the same
factors influencing access as those described by PE participants.
They focused on cost and convenience, for example, in situating a
new farmers market adjacent to a federally qualified health center,
and in efforts to expand methods of payment to include EBT
cards. Key informants who were county or regional NC-CTG staff
implemented smoke-free policies in properties designated for
people with disabilities, mental illness, and substance use, improv-
ing these vulnerable groups’ access to clear air. In contrast to PE
participants, however, few key informants referenced community
fit of the proposed strategies. Most of what the key informants and
SPA participants said about community pertained to partnerships
with policy makers and organizations. The common thread in the
key informant interviews and SPA was that the power to make
systems and environmental changes comes from multisector part-
nerships. When discussing community engagement, key inform-
ants generally described building relationships with partners who
could successfully implement strategies. This concern reflected re-
sourcing, in that the CTG often provided funding or technical as-
sistance for projects conducted by other entities, including govern-
ment agencies (eg, school districts, cooperative extensions), faith
communities, property managers, farmers, hospitals, city planners,
and nongovernment organizations. Key informants and SPA parti-
cipants deemed multisector partnerships essential to NC-CTG’s
successes.
Key informants and SPA participants stressed the difficulties of
engaging local policy makers, and acknowledged policy makers’
competing responsibilities (Table 3). In the case of smoke-free
policies, the historical significance of tobacco in local economies
was seen as a barrier, as were assumptions about the impact of
smoke-free policies on farmers. Safety concerns (eg, drug dealers
loitering in public spaces), and opposition to tax increases (eg,
funding facility upgrades) were seen as barriers to policy makers’
supporting shared-use agreements. Some participants thought the
CTG being funded by the Patient Protection and Affordable Care
Act deterred some elected officials they believed might have oth-
erwise expressed support.
Key informants were more likely to raise the issue of race than
were the PE participants. Many key informants felt there had not
been enough grassroots participation in NC-CTG projects overall,
but few offered an explanation. One key informant was critical of
there not being any community members on NC-CTG’s regional
planning team; another described the need for formative evalu-
ation with communities:
If you don’t get out with your population, and I am talking
about every aspect of it . . . you can assume they need help,
but you don’t know what they need help with.
Another explained that the process of engaging community mem-
bers takes time:
We decided to take it slow, because we wanted to make
PREVENTING CHRONIC DISEASE VOLUME 12, E127
PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015
The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services,
the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
4 Centers for Disease Control and Prevention • www.cdc.gov/pcd/issues/2015/14_0595.htm
sure we were spending money where it was needed . . . to
have that health equity focus . . . trying to figure . . . that
people actually want these things. . . . If you're going to
make that community-level change, you’re going to have to
[engage] with and through people, and that starts again
with the relationships.
These insights centered on community engagement and com-
munity fit. When partner organizations were rooted in community,
projects were described as well-received and smoothly implemen-
ted, as when NC-CTG staff worked with an established com-
munity–university partnership to conduct a survey of local farm-
ers. Several key informants mentioned a successful meeting
between NC-CTG staff and multiunit housing residents about
smoke-free policies. Key informants were most confident of their
impact on promoting health equity where staff had been most dir-
ectly engaged with the people being affected.
An NC-CTG administrator pointed out that, although project lead-
ership was tasked with promoting health equity, partners from oth-
er sectors may have different interests and priorities. Key inform-
ants and PE participants offered cautionary insights into how part-
ner organizations can influence health equity. While taking photos,
a PE participant noticed that a management company had imple-
mented smoke-free policies differently at 2 properties. One had an
outdoor smoking shelter; the other did not. The participant saw
disparity in treatment of the 2 groups of residents, thus varying ac-
cess to clean air. The inferred questions were: Who was differen-
tially affected by the policies? Why was the policy implemented in
that way? Was there something different about the groups that led
to the different rules?
Discussion
HECEPP used a comprehensive qualitative approach to gain an
overview of contextual conditions and social and cultural relev-
ance of the 3 NC-CTG strategies. Findings indicate that com-
munity fit and access are important considerations for addressing
health equity. Missing was a sense that there was an overarching,
shared vision of how NC-CTG policy, structural, and environ-
mental changes were to reduce health disparities and for which
groups. The conceptual model derived from the PE findings (Fig-
ure) may be useful in understanding how such interventions can
work and in creating measures of community fit for evaluating
short-term outcomes. Identifying measurable mediators that re-
flect community fit will strengthen the evidence base for strategies
whose effects on health outcomes and health disparities are likely
to be realized in the long term (13).
One limitation of the evaluation is that there was minimal men-
tion of race or racism as a health equity construct in this project.
Although key informants in the CTG administrative roles talked
about race more often than did other stakeholders, there were
missed opportunities in the PE sessions and SPA to further probe
relevant comments (eg, the potential influence of faith communit-
ies in the CTG projects, references to perceived unequal
treatment). Most key informants were white and had higher educa-
tion (Table 1). In addition to completing urban and rural health
equity comparisons, future work must explore how race interacts
with other social determinants to influence population health. Al-
though NC-CTG ended early, these findings should be a spring-
board to additional work addressing the strategies in counties in-
volved in this project.
Recognizing the importance of sharing results to provide com-
munity members and stakeholders with relevant, accessible, ac-
tionable information, HECEPP findings have been presented at a
Gaston County Town Hall meeting, where some attendees were
stakeholders identified through SPA, including a local official, a
health care system representative, community leaders and mem-
bers, and NC-CTG local and state staff. Unintended positive con-
sequences of this evaluation were the subsequent presentations of
HECEPP findings at the Gaston County Board of Health, and the
DPH-CDI Section Health Equity Workgroup meetings. In fact, the
DPH-CDI Section Health Equity Workgroup has used the
HECEPP framework to explore its efforts to address health equity.
This study contributes to the literature by exploring methods to en-
gage community members in the evaluation process. It identifies
important considerations for structural, environmental, and policy
health promotion initiatives, particularly the need for formative re-
search with communities about their interests and perceived needs.
PE participants’ practical suggestions and context-specific ideas
have potential for grassroots participation and community-driven
initiatives for promoting healthy eating, physical activity, and to-
bacco use cessation. Participants’ future efforts can involve people
in their respective counties and catalyze a more community-en-
gaged process for future policy and systems initiatives.
Acknowledgments
We thank the project participants for their invaluable contribu-
tions. We also thank the community coordinators (Karen Creech,
Kenya Reid, Ellen McAuley, Sabrina Malloy, and Goldie Pryor)
for their tireless efforts to reach out to their communities to share
information about HECEPP and the members of the HECEPP Ad-
visory Group (Ronny Bell, Kenisha Bethea, Danny Ellis, Calvin
Ellison, Richard Hooker, Cheryl LeMay, Ralph Mitchell, James
Smith III, and Willona Stallings) for their guidance, expertise, and
PREVENTING CHRONIC DISEASE VOLUME 12, E127
PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015
The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services,
the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 5
engagement in the design of the evaluation implementation plan.
M.S. Mouw is funded through University of North Carolina Line-
berger Cancer Center CCEP, National Institutes of Health training
grant no. 5R25CA057726-23. This article was supported in part by
a cooperative agreement with the Centers for Disease Control and
Prevention (CDC; FOA CDC-RFA-DP11-1115PPHF11).
Portions of this project’s work involve the CTG initiative suppor-
ted by CDC funding. Users of this document should be aware that
every funding source has different requirements governing the ap-
propriate use of funds. Under US law, no federal funds are permit-
ted to be used for lobbying or to influence, directly or indirectly,
specific pieces of pending or proposed legislation at the federal,
state, or local levels. Organizations should consult appropriate leg-
al counsel to ensure compliance with all rules, regulations, and re-
striction of any funding sources.
Author Information
Corresponding Author: Lori Carter-Edwards, PhD, MPH, Public
Health Leadership Program, Gillings School of Global Public
Health, 4111 McGavran-Greenberg Hall, University of North
Carolina at Chapel Hill, CB no. 7469, Chapel Hill, NC 27599-
7469. Telephone: 919-966-5305. Email: lori_carter-
edwards@unc.edu. Dr Carter-Edwards is also affiliated with the
Department of Health Behavior and the UNC Center for Health
Promotion and Disease Prevention at the University of North
Carolina at Chapel Hill, Chapel Hill, North Carolina.
Author Affiliations: Abby Lowe-Wilson, UNC Center for Health
Promotion and Disease Prevention, University of North Carolina
at Chapel Hill, Chapel Hill, North Carolina; Mary Sherwyn
Mouw, Cancer Control Education Program, Lineberger Cancer
Center, University of North Carolina at Chapel Hill, Chapel Hill,
North Carolina; Janet Yewon Jeon, Department of Health
Behavior, Gillings School of Global Public Health, University of
North Carolina at Chapel Hill, Chapel Hill, North Carolina; Ceola
Ross Baber, Department of Leadership Studies, North Carolina
Agricultural and Technological State University, Greensboro,
North Carolina; Maihan B. Vu, Department of Health Behavior,
Gillings School of Global Public Health, and UNC Center for
Health Promotion and Disease Prevention, University of North
Carolina at Chapel Hill, Chapel Hill, North Carolina; Monique
Bethell, Department of Public Health Education, North Carolina
Central University, Durham, North Carolina, and Chronic Disease
and Injury Section, North Carolina Division of Public Health,
Raleigh, North Carolina.
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PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015
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the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
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PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015
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the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 7
Tables
Table 1. Participant Demographics of Photo Elicitation Sessions and Key Informant Interviews, by County Urbanity or Rur-
ality, North Carolina Community Transformation Grant Project, 2014
Characteristic Total Sample
Farmers Markets Shared Use
Smoke-Free Multiunit
Housing
Urbana Ruralb Urbana Ruralc,d Urbana Rurale,f
Photo Elicitation Sessions
No. of participants 45 5 4 8 10 8 10
Mean age, y (SD) 50.7 (16.6) 54.2 (12.1) 47.8
(12.3)
45.4 (22.5) 54.8 (16.4) 55.8 (14.7) 46.1 (17.5)
Sex, % (n = 44)
Female 77.3 80.0 50.0 87.5 77.8 75.0 80.0
Male 22.7 20.0 50.0 12.5 22.2 25.0 20.0
Race, %
Black 80.0 80.0 75.0 75.0 80.0 75.0 90.0
White 15.5 20.0 25.0 0.0 20.0 25.0 10.0
Other 4.5 0.0 0.0 25.0 0.0 0.0 0.0
Education, %
High school 37.8 60.0 0.0 37.5 30.0 37.5 50.0
Some college/trade 22.2 0.0 25.0 12.5 20.0 12.5 50.0
College degree 40.0 40.0 75.0 50.0 50.0 50.0 0.0
Mean time living in county, y 35.7 32.2 32.5 30.3 33.7 43.4 38.8
Perceived influence/power in county, % (n = 44)
Yes, where I work 40.9 40.0 50.0 50.0 40.0 25.0 44.4
Yes, where I live 56.8 60.0 75.0 75.0 80.0 25.0 33.3
Key Informant Interviews
Characteristic Total Sample Urbana,d Ruralb,c,e
No. of participants 22 9 13
Mean age, y (SD) 45.7 (14.5) 39.7 (14.3) 49.9 (13.7)
Sex, % (n = 21)
Female 76.2 87.5 69.2
Male 23.8 12.5 30.8
Race, %
Black 27.3 22.2 30.8
Abbreviation: SD, standard deviation.
a Gaston County.
b Lee County.
c Scotland County.
d Sex was missing for 1 participant.
e Montgomery County.
f Perceived influence/power missing for 1 participant.
(continued on next page)
PREVENTING CHRONIC DISEASE VOLUME 12, E127
PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015
The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services,
the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
8 Centers for Disease Control and Prevention • www.cdc.gov/pcd/issues/2015/14_0595.htm
(continued)
Table 1. Participant Demographics of Photo Elicitation Sessions and Key Informant Interviews, by County Urbanity or Rur-
ality, North Carolina Community Transformation Grant Project, 2014
Characteristic Total Sample
Farmers Markets Shared Use
Smoke-Free Multiunit
Housing
Urbana Ruralb Urbana Ruralc,d Urbana Rurale,f
White 72.7 77.8 69.2
Education, %
Associate/bachelor degree 45.5 44.4 46.2
Master’s degree 45.5 45.5 38.5
Doctorate/professional 9.1 0.0 15.4
Mean time living/working in county,
y
17.6 13.1 20.7
Perceived influence/power in county, %
Yes, where I work 68.2 77.8 61.5
Yes, where I live 54.5 55.6 53.8
Abbreviation: SD, standard deviation.
a Gaston County.
b Lee County.
c Scotland County.
d Sex was missing for 1 participant.
e Montgomery County.
f Perceived influence/power missing for 1 participant.
PREVENTING CHRONIC DISEASE VOLUME 12, E127
PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015
The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services,
the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 9
Table 2. Health Equity Factors That Urban and Rural Community Members Found Important, by Strategy, North Carolina
Community Transformation Grant Project, 2014
Health Equity Factora Farmers Markets Shared Use Smoke-Free Multiunit Housing
Awareness X X X
Convenience X X
Cost X
Perceived norms X
Quality X X
Safety X X
Values X X
a An “X” denotes that the factor emerged as a key theme among participants for the specified strategy.
PREVENTING CHRONIC DISEASE VOLUME 12, E127
PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015
The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services,
the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
10 Centers for Disease Control and Prevention • www.cdc.gov/pcd/issues/2015/14_0595.htm
Table 3. Stakeholder Power Analysis Mapping, by Strategy, North Carolina Community Transformation Grant Project,
2014
Group
Strategy
Farmers Markets Shared Use Smoke-Free Multiunit Housing
High interest
and high power
Foundations (eg, United Way,
YMCA)
•
Health care commissioners•
Local service organizations•
Supportive county
commissioners
•
Foundations (eg, United Way,
YMCA)
•
Health care commissioners•
Pastors•
School principals•
School board members•
Parks and recreation•
Programs promoting physical
activity (eg, Girls on the Run)
•
Supportive city council members•
Supportive county commissioners•
Foundations (eg, United Way, YMCA)•
Health care commissioners•
Pastors•
School principals•
School board members•
Local hospital•
Local service organizations (eg, crisis
pregnancy group to stop smoking during
pregnancy)
•
High interest
and low power
Farmers• Sports organization (eg, Amateur
Athletic Union local chapter)
• NA 
Low interest
and high power
Nonsupporting county
commissioners
•
Farmers market board•
Nonsupporting county
commissioners
•
Drug dealers•
Nonsupporting county commissioners•
Smokers•
Low interest
and low power
Tenants with limited mobility•
Low-income tenants•
Law enforcement• NA 
Abbreviation: NA, not applicable.
PREVENTING CHRONIC DISEASE VOLUME 12, E127
PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015
The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services,
the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions.
www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 11

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PCD_HECEPP_ResultsPaper_2015

  • 1. PREVENTING CHRONIC DISEASE P U B L I C H E A L T H R E S E A R C H , P R A C T I C E , A N D P O L I C Y Volume 12, E127 AUGUST 2015 ORIGINAL RESEARCH Community Member and Stakeholder Perspectives on a Healthy Environment Initiative in North Carolina Lori Carter-Edwards, PhD, MPH; Abby Lowe-Wilson, MPH; Mary Sherwyn Mouw, MD, MPH; Janet Yewon Jeon, MPH; Ceola Ross Baber, PhD; Maihan B. Vu, DrPH, MPH; Monique Bethell, PhD  Suggested citation for this article: Carter-Edwards L, Lowe- Wilson A, Mouw MS, Jeon JY, Baber CR, Vu MB, et al. Community Member and Stakeholder Perspectives on a Healthy Environment Initiative in North Carolina. Prev Chronic Dis 2015; 12:140595. DOI: http://dx.doi.org/10.5888/pcd12.140595. PEER REVIEWED Abstract Introduction The North Carolina Community Transformation Grant Project (NC-CTG) aimed to implement policy, system, and environment- al strategies to promote healthy eating, active living, tobacco-free living, and clinical and community preventive services to advance health equity and reduce health disparities for the state’s most vul- nerable communities. This article presents findings from the Health Equity Collaborative Evaluation and Implementation Project, which assessed community and stakeholder perceptions of health equity for 3 NC-CTG strategies: farmers markets, shared use, and smoke-free multiunit housing. Methods In a triangulated qualitative evaluation, 6 photo elicitation (PE) sessions among 45 community members in 1 urban and 3 rural counties and key informant interviews among 22 stakeholders were conducted. Nine participants from the PE sessions and key informant interviews in the urban county subsequently particip- ated in a stakeholder power analysis and mapping session (SPA) to discuss and identify people and organizations in their com- munity perceived to be influential in addressing health equity–re- lated issues. Results Evaluations of the PE sessions and key informant interviews indic- ated that access (convenience, cost, safety, and awareness of products and services) and community fit (community-defined quality, safety, values, and norms) were important constructs across the strategies. The SPA identified specific community- and faith-based organizations, health care organizations, and local gov- ernment agencies as key stakeholders for future efforts. Conclusions Both community fit and access are essential constructs for promot- ing health equity. Findings demonstrate the feasibility of and need for formative research that engages community members and loc- al stakeholders to shape context-specific, culturally relevant health promotion strategies. Introduction Chronic diseases in North Carolina account for nearly 60% of all deaths in the state (1,2). Modifiable burdens of these diseases are often greater in rural counties or counties with high rates of poverty, poor access to health care, and high proportions of people of color (2). Effective interventions are needed at the institutional, organizational, system, and policy levels for sustainable change, especially among groups that are disproportionately affected by health disparities (3). To design and implement such interventions, it is important to understand the issues and perspectives of com- munity members (4). The Health Equity Collaborative Evaluation Planning and Imple- mentation Project (HECEPP) was one of 4 evaluation efforts of the North Carolina Community Transformation Grant Project (NC-CTG), a statewide initiative designed to promote healthier environments through local implementation of evidence-based strategies. HECEPP, the only qualitative evaluation effort of NC- The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 1
  • 2. CTG, was conducted to investigate perspectives of health equity (ie, all residents having access to opportunities for optimal health) in rural and urban counties in 2 NC-CTG regions. Using a unique, triangulated evaluation approach, we assessed community member and stakeholder perceptions of 3 NC-CTG strategies: farmers markets (healthy eating), shared use (active liv- ing), and smoke-free multiunit housing (tobacco-free living). The primary evaluation question was: How do residents from urban and rural counties perceive health equity in terms of farmers mar- kets, shared use agreements, and smoke-free policies in multiunit housing? The primary hypothesis was that there would be differ- ences in health equity perceptions between urban and rural county residents. This article presents the overall findings from this evalu- ation. Methods To improve health and prevent chronic diseases at the community level, the national CTG Program provided implementation and ca- pacity-building support to awardees across the United States. In- tervention areas included healthy eating, active living, tobacco- free living, and clinical and community preventive services to pre- vent and control high blood pressure and high cholesterol. The CTG was funded by the Affordable Care Act’s Prevention and Public Health Fund, through the Centers for Disease Control and Prevention. NC-CTG was awarded to the state’s Division of Pub- lic Health Chronic Disease and Injury Section (DPH-CDI), which worked with state and local partners to implement evidence-based strategies to support healthier environments. Strategies were to ad- here to CTG principles: maximizing health impact through pre- vention, using and expanding the evidence base, and advancing health equity. Although NC-CTG was originally designed to be implemented from 2012 through 2016, the project concluded in September 2014 because of CTG federal budget cuts (5). DPH-CDI contracted with the University of North Carolina at Chapel Hill to evaluate perceptions of health equity in the context of CTG strategy implementation. With community engagement at its core, HECEPP staff developed a comprehensive evaluation framework to guide collaboration with NC-CTG state staff and the HECEPP Advisory Group, consisting of community and academ- ic leaders with expertise in community engagement and health promotion. The framework included a communication plan for sharing information with DPH-CDI and the strategy-specific eval- uation teams (6), orientation of the evaluation teams to culturally competent evaluation readiness (at the request of NC-CTG state staff) (7), and a health equity evaluation plan (8). The evaluation plan included 3 qualitative approaches: photo elicitation (PE) ses- sions; key informant interviews; and stakeholder power analysis and mapping (SPA), a group process of identifying and mapping stakeholder influence and issue-specific interest (9–12). The ap- proach was designed to evaluate health equity perceptions across all 3 strategies in 1 urban county and 1 strategy each in 3 rural counties (year 1), across all 3 strategies in 1 rural county and 1 strategy each in 3 urban counties (year 2), and collectively across all participating rural and urban counties (year 3). The evaluation for year 1 was successfully completed by September 2014. This evaluation included 1 urban county (Gaston) and 3 rural counties (Lee, farmers markets; Scotland, shared use; and Montgomery, smoke-free multiunit housing). PE was the primary qualitative evaluation approach (per the requirements of NC-CTG), and key informant interviews and SPA were used as complementary ap- proaches. PE participants were recruited through 5 HECEPP-trained com- munity coordinators working in the 4 participating counties. The PE target sample was 60 community members (6 sessions, 10 per session) residing in 1 of 4 participating counties. Key informants were recruited by HECEPP staff from a stakeholder list of NC- CTG county and regional-level staff and community leaders and partners in the 2 participating NC-CTG regions. The key inform- ant interview target sample was 24 stakeholders residing or work- ing in one of the participating counties. The original SPA target sample was 30 people (2 sessions, 15 per session) across the 4 counties who also participated in PE sessions or as a key inform- ant. Because of funding cuts, SPA was conducted only in Gaston County. For PE, community members attended an informational meeting, completed an informed consent and demographic survey, and re- ceived a disposable camera (used and subsequently mailed to HECEPP staff). Approximately 3 weeks later, they returned to re- view their photos and collectively select, describe, and title the 5 photos they felt best reflected health equity issues in their com- munity. They responded to focus group questions on experiences related to the selected photos, including people, places, and things perceived to have the greatest impact on health disparities and health equity in their communities and what can maximize health equity. Key informants each signed an informed consent and demographic survey, and participated in a 30- to 40-minute phone interview. They discussed their connection to NC-CTG; percep- tions on health equity, health disparities, and community engage- ment; and the progress of and lessons learned from NC-CTG. For SPA, community members and stakeholders recruited from Gaston County PE sessions and key informant interviews each PREVENTING CHRONIC DISEASE VOLUME 12, E127 PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015 The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. 2 Centers for Disease Control and Prevention • www.cdc.gov/pcd/issues/2015/14_0595.htm
  • 3. completed a power relationship “wheel,” a visual tool for identify- ing influential relationships they have with stakeholders in their community; and they collectively mapped these stakeholders as having high or low interest and power in addressing health equity surrounding NC-CTG strategies. All sessions were audio-recor- ded and transcribed. For this evaluation, PE data were treated as the reference, and key informant interview and SPA data were compared with PE find- ings. Separate codebooks were created to analyze data from PE sessions and key informant interviews. Topical codes were drawn from interview guides (eg, influential people and organizations) and participants’ words, (eg, convenience, cost, safety); inductive codes emerged on re-reading (eg, values, community fit). For PE analysis, HECEPP staff developed the codebook iteratively, focus- ing on what participants said about each strategy specifically and what they described collectively as influencing health equity. To ensure intercoder reliability, HECEPP staff worked together to ap- ply codes to 2 transcripts and compared others that were coded in- dependently, discussing discrepancies before individually com- pleting coding. Data were analyzed using ATLAS.ti version 7.1.8 (Scientific Software Development GmbH). This project was ap- proved by the institutional review board at the University of North Carolina at Chapel Hill. Results PE participants had a mean age of 50.7 years and had lived in their counties approximately 36 years (Table 1). Approximately 77% of participants were female, 80% were black, and slightly more than one-third had achieved a high school education or less. Mean age of the 22 key informants was 45.7 years; 76% of key informants were female, 73% were white, 46% had at least an associate’s de- gree, and they lived or worked in their county roughly 18 years. Nine of the 30 PE and key informant interview participants also participated in SPA. Overall, community fit and community access were important health equity issues for community members and stakeholders. No distinct differences in perceptions were observed between the counties. Photo elicitation findings Multiple factors influenced PE participants’ perspectives on the 3 NC-CTG strategies (Table 2). Both rural and urban participants in- dividually discussed safety, cost, quality, convenience, values, perceived norms, and awareness. When viewed collectively, 2 broader community-level themes emerged: access and community fit. Access referred to how easy or difficult it was for groups or communities to be connected to or use resources related to a NC- CTG strategy. Community fit was the collective acceptability or desirability of a strategy for community members. If an implemen- ted strategy was deemed inconvenient for many respondents, it was viewed as an access issue. Likewise, community fit was shaped by commonly shared, individual-level factors such as val- ues, perceived norms, knowledge, and safety. Unequal levels of access or community fit influenced the perceived health equity im- pact of a strategy (Figure). Figure. Conceptual model of health equity through contextual perceptions of community members and other stakeholders.   In the PE sessions, there was little direct reference to racial groups’ use of the strategies. Rather, PE participants focused on how each strategy was relevant for them individually and how the strategies pertained to groups defined by characteristics other than race. For example, participants were keenly interested in how the strategies might affect groups perceived as vulnerable: the elderly, the disabled, the poor, children and young parents, smokers and nonsmokers, farmers, and working people. Participants discussed location of farmers markets, produce qual- ity, transportation, acceptable use of Electronic Benefit Transfer (EBT) cards, and benefits to farmers and the local economy. Con- venience stood out as a particular concern, as reflected in this ex- change between 2 Gaston County participants: Taking a closer look at the times, the times did not suit me. You got a life, right? Well, I work. Thus, working people as a group cannot access the markets. Loca- tion and safety were the main concerns about shared-use facilities. For example, a Gaston County participant was concerned about traffic: PREVENTING CHRONIC DISEASE VOLUME 12, E127 PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015 The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 3
  • 4. The children . . . have to cross the road. . . . It’s not safe; they’ll run across. When discussing a photo of a walking trail, 2 Scotland County residents reflected, I think it started getting dark. I might not want to be out there . . . I think it is in a positive, safe environment. . . . So I think at night, it would be safe. But for a woman to go by herself, I would not advise it, because there is not enough light. Therefore, safety was considered a limit to shared-use access for women and children. Attitudes toward smoke-free policies in multiunit housing were shaped by health concerns (personal health and experiences with others’ tobacco-related illnesses), worries about fire hazards, and considerations about whether such policies were fair to smokers. A Montgomery County resident expressed concerns, for example, when smoke-free policies were seen to force elderly smokers to stand outside in inclement weather: It came, that rain and sleet . . . they had to stand out in the elements. . . . Some were wrapped in quilts, some were wrapped in coats. . . . These are older people, I would say from 65 to 80. . . . You really get a guilt trip going. This remark reflected a negative aspect of the community fit strategy, because the strategy conflicted with commonly shared values about respecting and protecting elders. PE participants made practical suggestions to increase the impact of the strategies; examples cited were providing transportation to, expanding the hours of, and advertising farmers markets; improv- ing existing spaces for physical activity and increasing their visib- ility; including both smokers and nonsmokers in implementing smoke-free policies in multiunit housing properties; and incorpor- ating safety issues into these discussions. Findings of key informant interviews and SPA As did PE participants, key informants emphasized access. Key in- formants’ work with CTG strategies often addressed the same factors influencing access as those described by PE participants. They focused on cost and convenience, for example, in situating a new farmers market adjacent to a federally qualified health center, and in efforts to expand methods of payment to include EBT cards. Key informants who were county or regional NC-CTG staff implemented smoke-free policies in properties designated for people with disabilities, mental illness, and substance use, improv- ing these vulnerable groups’ access to clear air. In contrast to PE participants, however, few key informants referenced community fit of the proposed strategies. Most of what the key informants and SPA participants said about community pertained to partnerships with policy makers and organizations. The common thread in the key informant interviews and SPA was that the power to make systems and environmental changes comes from multisector part- nerships. When discussing community engagement, key inform- ants generally described building relationships with partners who could successfully implement strategies. This concern reflected re- sourcing, in that the CTG often provided funding or technical as- sistance for projects conducted by other entities, including govern- ment agencies (eg, school districts, cooperative extensions), faith communities, property managers, farmers, hospitals, city planners, and nongovernment organizations. Key informants and SPA parti- cipants deemed multisector partnerships essential to NC-CTG’s successes. Key informants and SPA participants stressed the difficulties of engaging local policy makers, and acknowledged policy makers’ competing responsibilities (Table 3). In the case of smoke-free policies, the historical significance of tobacco in local economies was seen as a barrier, as were assumptions about the impact of smoke-free policies on farmers. Safety concerns (eg, drug dealers loitering in public spaces), and opposition to tax increases (eg, funding facility upgrades) were seen as barriers to policy makers’ supporting shared-use agreements. Some participants thought the CTG being funded by the Patient Protection and Affordable Care Act deterred some elected officials they believed might have oth- erwise expressed support. Key informants were more likely to raise the issue of race than were the PE participants. Many key informants felt there had not been enough grassroots participation in NC-CTG projects overall, but few offered an explanation. One key informant was critical of there not being any community members on NC-CTG’s regional planning team; another described the need for formative evalu- ation with communities: If you don’t get out with your population, and I am talking about every aspect of it . . . you can assume they need help, but you don’t know what they need help with. Another explained that the process of engaging community mem- bers takes time: We decided to take it slow, because we wanted to make PREVENTING CHRONIC DISEASE VOLUME 12, E127 PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015 The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. 4 Centers for Disease Control and Prevention • www.cdc.gov/pcd/issues/2015/14_0595.htm
  • 5. sure we were spending money where it was needed . . . to have that health equity focus . . . trying to figure . . . that people actually want these things. . . . If you're going to make that community-level change, you’re going to have to [engage] with and through people, and that starts again with the relationships. These insights centered on community engagement and com- munity fit. When partner organizations were rooted in community, projects were described as well-received and smoothly implemen- ted, as when NC-CTG staff worked with an established com- munity–university partnership to conduct a survey of local farm- ers. Several key informants mentioned a successful meeting between NC-CTG staff and multiunit housing residents about smoke-free policies. Key informants were most confident of their impact on promoting health equity where staff had been most dir- ectly engaged with the people being affected. An NC-CTG administrator pointed out that, although project lead- ership was tasked with promoting health equity, partners from oth- er sectors may have different interests and priorities. Key inform- ants and PE participants offered cautionary insights into how part- ner organizations can influence health equity. While taking photos, a PE participant noticed that a management company had imple- mented smoke-free policies differently at 2 properties. One had an outdoor smoking shelter; the other did not. The participant saw disparity in treatment of the 2 groups of residents, thus varying ac- cess to clean air. The inferred questions were: Who was differen- tially affected by the policies? Why was the policy implemented in that way? Was there something different about the groups that led to the different rules? Discussion HECEPP used a comprehensive qualitative approach to gain an overview of contextual conditions and social and cultural relev- ance of the 3 NC-CTG strategies. Findings indicate that com- munity fit and access are important considerations for addressing health equity. Missing was a sense that there was an overarching, shared vision of how NC-CTG policy, structural, and environ- mental changes were to reduce health disparities and for which groups. The conceptual model derived from the PE findings (Fig- ure) may be useful in understanding how such interventions can work and in creating measures of community fit for evaluating short-term outcomes. Identifying measurable mediators that re- flect community fit will strengthen the evidence base for strategies whose effects on health outcomes and health disparities are likely to be realized in the long term (13). One limitation of the evaluation is that there was minimal men- tion of race or racism as a health equity construct in this project. Although key informants in the CTG administrative roles talked about race more often than did other stakeholders, there were missed opportunities in the PE sessions and SPA to further probe relevant comments (eg, the potential influence of faith communit- ies in the CTG projects, references to perceived unequal treatment). Most key informants were white and had higher educa- tion (Table 1). In addition to completing urban and rural health equity comparisons, future work must explore how race interacts with other social determinants to influence population health. Al- though NC-CTG ended early, these findings should be a spring- board to additional work addressing the strategies in counties in- volved in this project. Recognizing the importance of sharing results to provide com- munity members and stakeholders with relevant, accessible, ac- tionable information, HECEPP findings have been presented at a Gaston County Town Hall meeting, where some attendees were stakeholders identified through SPA, including a local official, a health care system representative, community leaders and mem- bers, and NC-CTG local and state staff. Unintended positive con- sequences of this evaluation were the subsequent presentations of HECEPP findings at the Gaston County Board of Health, and the DPH-CDI Section Health Equity Workgroup meetings. In fact, the DPH-CDI Section Health Equity Workgroup has used the HECEPP framework to explore its efforts to address health equity. This study contributes to the literature by exploring methods to en- gage community members in the evaluation process. It identifies important considerations for structural, environmental, and policy health promotion initiatives, particularly the need for formative re- search with communities about their interests and perceived needs. PE participants’ practical suggestions and context-specific ideas have potential for grassroots participation and community-driven initiatives for promoting healthy eating, physical activity, and to- bacco use cessation. Participants’ future efforts can involve people in their respective counties and catalyze a more community-en- gaged process for future policy and systems initiatives. Acknowledgments We thank the project participants for their invaluable contribu- tions. We also thank the community coordinators (Karen Creech, Kenya Reid, Ellen McAuley, Sabrina Malloy, and Goldie Pryor) for their tireless efforts to reach out to their communities to share information about HECEPP and the members of the HECEPP Ad- visory Group (Ronny Bell, Kenisha Bethea, Danny Ellis, Calvin Ellison, Richard Hooker, Cheryl LeMay, Ralph Mitchell, James Smith III, and Willona Stallings) for their guidance, expertise, and PREVENTING CHRONIC DISEASE VOLUME 12, E127 PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015 The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 5
  • 6. engagement in the design of the evaluation implementation plan. M.S. Mouw is funded through University of North Carolina Line- berger Cancer Center CCEP, National Institutes of Health training grant no. 5R25CA057726-23. This article was supported in part by a cooperative agreement with the Centers for Disease Control and Prevention (CDC; FOA CDC-RFA-DP11-1115PPHF11). Portions of this project’s work involve the CTG initiative suppor- ted by CDC funding. Users of this document should be aware that every funding source has different requirements governing the ap- propriate use of funds. Under US law, no federal funds are permit- ted to be used for lobbying or to influence, directly or indirectly, specific pieces of pending or proposed legislation at the federal, state, or local levels. Organizations should consult appropriate leg- al counsel to ensure compliance with all rules, regulations, and re- striction of any funding sources. Author Information Corresponding Author: Lori Carter-Edwards, PhD, MPH, Public Health Leadership Program, Gillings School of Global Public Health, 4111 McGavran-Greenberg Hall, University of North Carolina at Chapel Hill, CB no. 7469, Chapel Hill, NC 27599- 7469. Telephone: 919-966-5305. Email: lori_carter- edwards@unc.edu. Dr Carter-Edwards is also affiliated with the Department of Health Behavior and the UNC Center for Health Promotion and Disease Prevention at the University of North Carolina at Chapel Hill, Chapel Hill, North Carolina. Author Affiliations: Abby Lowe-Wilson, UNC Center for Health Promotion and Disease Prevention, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina; Mary Sherwyn Mouw, Cancer Control Education Program, Lineberger Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina; Janet Yewon Jeon, Department of Health Behavior, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina; Ceola Ross Baber, Department of Leadership Studies, North Carolina Agricultural and Technological State University, Greensboro, North Carolina; Maihan B. Vu, Department of Health Behavior, Gillings School of Global Public Health, and UNC Center for Health Promotion and Disease Prevention, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina; Monique Bethell, Department of Public Health Education, North Carolina Central University, Durham, North Carolina, and Chronic Disease and Injury Section, North Carolina Division of Public Health, Raleigh, North Carolina. References North Carolina State Center for Health Statistics. North Carolina vital statistics 2012 leading causes of death, volume 2. Raleigh (NC): North Carolina Department of Health and Human Services; 2013. http://www.schs.state.nc.us/schs/ deaths/lcd/2012/pdf/Vol2_2012_PRT.pdf. Accessed November 2, 2014. 1. North Carolina State Center for Health Statistics. Health profile of North Carolinians: 2011 update. Raleigh (NC): North Carolina Department of Health and Human Services; 2011. h t t p : / / w w w . s c h s . s t a t e . n c . u s / s c h s / p d f / healthprofile2011_web.pdf. Accessed November 8, 2014. 2. Frieden TR. A framework for public health action: the health impact pyramid. Am J Public Health 2010;100(4):590–5. 3. Jack L Jr, Liburd LC, Tucker P, Cockrell T. Having their say: patients’ perspectives and the clinical management of diabetes. Clin Ther 2014;36(4):469–76. 4. Grunbaum J. Challenges in improving community engagement in research. In: Clinical and translational science awards consortium community engagement key function committee task force on the principles of community engagement. Principles of community engagement, 2nd edition. Washington (DC): National Institutes of Health; 2011. p. 116–7. 5. Berger M. Cross-cultural team building: guidelines for more effective communication and negotiation. Columbus (OH): McGraw-Hill; 1996. 6. American Evaluation Association. Public statement on cultural competence in evaluation; 2011. http://www.eval.org/p/cm/ld/ fid=92. Accessed May 1, 2015. 7. Leeman J, Sommers J, Vu M, Jernigan J, Payne G, Thompson D, et al. An evaluation framework for obesity prevention policy interventions. Prev Chronic Dis 2012;9:E120. 8. Harper D. Talking about pictures: a case for photo elicitation. Vis Stud 2002;17(1):13–26. 9. Gilchrist VJ. Key informant interviews. In: Crabtree BF, Miller WL, editors. Doing qualitative research: research methods for primary care, volume 3. Thousand Oaks (CA): Sage Publications; 1992. p.70–89. 10. Scholes E, Clutterbuck D. Communication with stakeholders: an integrated approach. Long Range Plann 1998;31(2):227–38. 11. Muntaner C, Sridharan S, Solar O, Benach J. Against unjust global distribution of power and money: the report of the WHO commission on the social determinants of health: global inequality and the future of public health policy. J Public Health Policy 2009;30(2):163–75. 12. PREVENTING CHRONIC DISEASE VOLUME 12, E127 PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015 The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. 6 Centers for Disease Control and Prevention • www.cdc.gov/pcd/issues/2015/14_0595.htm
  • 7. Green LW, Ottoson JM, García C, Hiatt RA. Diffusion theory and knowledge dissemination, utilization, and integration in public health. Annu Rev Public Health 2009;30(1):151–74. 13. PREVENTING CHRONIC DISEASE VOLUME 12, E127 PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015 The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 7
  • 8. Tables Table 1. Participant Demographics of Photo Elicitation Sessions and Key Informant Interviews, by County Urbanity or Rur- ality, North Carolina Community Transformation Grant Project, 2014 Characteristic Total Sample Farmers Markets Shared Use Smoke-Free Multiunit Housing Urbana Ruralb Urbana Ruralc,d Urbana Rurale,f Photo Elicitation Sessions No. of participants 45 5 4 8 10 8 10 Mean age, y (SD) 50.7 (16.6) 54.2 (12.1) 47.8 (12.3) 45.4 (22.5) 54.8 (16.4) 55.8 (14.7) 46.1 (17.5) Sex, % (n = 44) Female 77.3 80.0 50.0 87.5 77.8 75.0 80.0 Male 22.7 20.0 50.0 12.5 22.2 25.0 20.0 Race, % Black 80.0 80.0 75.0 75.0 80.0 75.0 90.0 White 15.5 20.0 25.0 0.0 20.0 25.0 10.0 Other 4.5 0.0 0.0 25.0 0.0 0.0 0.0 Education, % High school 37.8 60.0 0.0 37.5 30.0 37.5 50.0 Some college/trade 22.2 0.0 25.0 12.5 20.0 12.5 50.0 College degree 40.0 40.0 75.0 50.0 50.0 50.0 0.0 Mean time living in county, y 35.7 32.2 32.5 30.3 33.7 43.4 38.8 Perceived influence/power in county, % (n = 44) Yes, where I work 40.9 40.0 50.0 50.0 40.0 25.0 44.4 Yes, where I live 56.8 60.0 75.0 75.0 80.0 25.0 33.3 Key Informant Interviews Characteristic Total Sample Urbana,d Ruralb,c,e No. of participants 22 9 13 Mean age, y (SD) 45.7 (14.5) 39.7 (14.3) 49.9 (13.7) Sex, % (n = 21) Female 76.2 87.5 69.2 Male 23.8 12.5 30.8 Race, % Black 27.3 22.2 30.8 Abbreviation: SD, standard deviation. a Gaston County. b Lee County. c Scotland County. d Sex was missing for 1 participant. e Montgomery County. f Perceived influence/power missing for 1 participant. (continued on next page) PREVENTING CHRONIC DISEASE VOLUME 12, E127 PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015 The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. 8 Centers for Disease Control and Prevention • www.cdc.gov/pcd/issues/2015/14_0595.htm
  • 9. (continued) Table 1. Participant Demographics of Photo Elicitation Sessions and Key Informant Interviews, by County Urbanity or Rur- ality, North Carolina Community Transformation Grant Project, 2014 Characteristic Total Sample Farmers Markets Shared Use Smoke-Free Multiunit Housing Urbana Ruralb Urbana Ruralc,d Urbana Rurale,f White 72.7 77.8 69.2 Education, % Associate/bachelor degree 45.5 44.4 46.2 Master’s degree 45.5 45.5 38.5 Doctorate/professional 9.1 0.0 15.4 Mean time living/working in county, y 17.6 13.1 20.7 Perceived influence/power in county, % Yes, where I work 68.2 77.8 61.5 Yes, where I live 54.5 55.6 53.8 Abbreviation: SD, standard deviation. a Gaston County. b Lee County. c Scotland County. d Sex was missing for 1 participant. e Montgomery County. f Perceived influence/power missing for 1 participant. PREVENTING CHRONIC DISEASE VOLUME 12, E127 PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015 The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 9
  • 10. Table 2. Health Equity Factors That Urban and Rural Community Members Found Important, by Strategy, North Carolina Community Transformation Grant Project, 2014 Health Equity Factora Farmers Markets Shared Use Smoke-Free Multiunit Housing Awareness X X X Convenience X X Cost X Perceived norms X Quality X X Safety X X Values X X a An “X” denotes that the factor emerged as a key theme among participants for the specified strategy. PREVENTING CHRONIC DISEASE VOLUME 12, E127 PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015 The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. 10 Centers for Disease Control and Prevention • www.cdc.gov/pcd/issues/2015/14_0595.htm
  • 11. Table 3. Stakeholder Power Analysis Mapping, by Strategy, North Carolina Community Transformation Grant Project, 2014 Group Strategy Farmers Markets Shared Use Smoke-Free Multiunit Housing High interest and high power Foundations (eg, United Way, YMCA) • Health care commissioners• Local service organizations• Supportive county commissioners • Foundations (eg, United Way, YMCA) • Health care commissioners• Pastors• School principals• School board members• Parks and recreation• Programs promoting physical activity (eg, Girls on the Run) • Supportive city council members• Supportive county commissioners• Foundations (eg, United Way, YMCA)• Health care commissioners• Pastors• School principals• School board members• Local hospital• Local service organizations (eg, crisis pregnancy group to stop smoking during pregnancy) • High interest and low power Farmers• Sports organization (eg, Amateur Athletic Union local chapter) • NA  Low interest and high power Nonsupporting county commissioners • Farmers market board• Nonsupporting county commissioners • Drug dealers• Nonsupporting county commissioners• Smokers• Low interest and low power Tenants with limited mobility• Low-income tenants• Law enforcement• NA  Abbreviation: NA, not applicable. PREVENTING CHRONIC DISEASE VOLUME 12, E127 PUBLIC HEALTH RESEARCH, PRACTICE, AND POLICY AUGUST 2015 The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, the Centers for Disease Control and Prevention, or the authors’ affiliated institutions. www.cdc.gov/pcd/issues/2015/14_0595.htm • Centers for Disease Control and Prevention 11