This document provides information about the International Consortium for Health Outcomes Measurement (ICHOM). ICHOM works to define standard sets of outcomes measures for medical conditions that are important to patients. They organize international working groups of physicians, registry leaders, and patient representatives to develop these outcome measure standards. ICHOM then supports healthcare providers in implementing the standards and measuring outcomes to ultimately allow for benchmarking of value, defined as patient outcomes relative to the cost of achieving those outcomes.

1. International Consortium for Health
Outcomes Measurement
European Patients’ Rights Day
12th
May 2015

2. 2Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
Table of contents
Why ICHOM?
What we do

3. 3Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
We believe in value based healthcare
Value =
Cost of delivering those
outcomes
Patient health outcomes
achieved

4. 4Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
variation in 30-day mortality rate from heart attack in US hospitals
variation in bypass surgery mortality in the UK hospitals
Variation of major obstetrical complications among US hospitals
variation in complication rates from radical prostatectomies in the Dutch hospitals
variation in reoperation rates after hip surgery in German hospitals
variation in mortality after colon cancer surgery in Swedish hospitals
variation in capsule complications after cataract surgery in Swedish hospitals
Variation in outcomes is a worldwide challenge
4x
9x
18x
20x
36x
2x
Source: ICHOM analysis, Martin Makary, How Health Care’s Successes Became Distractions, Health Affairs August 2014
5x

5. 5Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
Variation when meaningful outcomes measured
Swedish data rough estimates from graphs; Source: National quality report for the year of diagnosis 2012 from the National Prostate Cancer Register (NPCR) Sweden,
Martini Klinik, BARMER GEK Report Krankenhaus 2012, Patient-reported outcomes (EORTC-PSM), 1 year after treatment, 2010
75.5
43.3
94.0
80.0
50.0
94.0
34.7
6.5
95.0
0
10
20
30
40
50
60
70
80
90
100
1-year severe erectile dysfunction
%
1-year incontinence5-year survival
Best-in-class: Martini KlinikGermany Sweden

6. ADCC Proposal v2_GO.pptx 6Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
1. Average Medicare payment to hospitals 2. Comparisons are not risk-adjusted. Risk-adjustment will likely improve Narayana Health's outcomes due to the large number of advanced patients at Narayana Health 3.Costs based on Medicare average payments and CDC Fasts Stats estimates that 395000 CABG procedures are
conducted annually in the US. Actual costs are likely greater as private insurers pay higher prices 4. One third of Narayana Health's cost is for salaries. Thus the total Narayana Health cost was adjusted to $13700 to compare with US prices, assuming that US doctors are paid twice as much as Indian doctors and other US staff earn
20 times as much. Sources: Harvard Business Review 2013, Birkmeyer et al. Health Services Research 2010
Large variations in the cost of care
45,358
3,160
1.8
1.4
Narayana
Health
US
Medicare
average1
Total cost of CABG ($)Total cost of CABG ($)
30 day post surgery
mortality (%)
30 day post surgery
mortality (%)

7. 7Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
ICHOM
Unlock the potential of Value-Based Health Care by defining global standard
sets of outcome measures that really matter to patients for the most relevant
medical conditions and by driving adoption and reporting of these measures
worldwide.
ICHOM's three founders… ...launched ICHOM as a nonprofit
▪ Independent 501(c)3 organization
▪ Idealistic and ambitious goals
▪ Global focus
▪ Engages diverse stakeholders
Our mission:

8. ADCC Proposal v2_GO.pptx 8Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
PLATINUM
GOLD
SILVER
BRONZE
Cooper-Newell
Foundation
COFOUNDERS
ICHOM sponsors

9. 9Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
Table of contents
Why ICHOM?
What we do

10. 10Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
ICHOM organizes international Working Groups
Physician and
registry leaders Patient representatives
ICHOM facilitates a process with
international physician and registry leaders
and patient representatives to develop a
global Standard Set of outcomes that really
matter to patients

11. 11Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
ICHOM has developed a Standard Set methodology

12. 12Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
ICHOM has recently updated its methodology
Working
Groups
• 20-25% of our Working Groups consist of patient
representatives
Focus Groups
• Larger focus groups of patients feed into the Working
Group process
Surveys
• Our final list of outcomes is shared with hundreds of
patients via patient advocacy groups
1
2
3

13. 13Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
Example: Standard Set for Localized Prostate Cancer
© 2013 ICHOM. All rights reserved. When using this Standard Set of outcomes, or quoting therefrom, in any way, we solely require that you always make a reference to ICHOM a s the source so
that this organization can continue its work to define Standard Sets.

14. 14Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
Global demand to measure and compare outcomes is impressive
Another 40+ institutions have expressed interest in measuring
Standard Sets and are discussing with ICHOM how to begin

15. 15Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
ICHOM implementation support
On-site
Capacity-
building
Implement
Community Action
Period
Call 1 Call 2 Call 3 Call 4
Action
Period
Action
Period
Action
Period
Call 5
Action
Period
Call 1 Visit 1 Call 2 Visit 2
Action
Period
Action
Period
Action
Period
Call 3 and 4
Action
Period
Action
Period
Visit 3

16. 16Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
We are engaging health system stakeholders on the long-term
goal of outcome transparency
P. Conway
Chief Medical Officer - CMS
Our core principle: transparency drives improvement.
CMS, ICHOM and others need to work together to develop and implement
robust sets of aligned outcomes measures.
“
“
E. Schippers
Health Minister – The Netherlands
Transparency on quality of care is crucial if we want to achieve affordable
health care. We cannot stay behind.
ICHOM can be a major facilitator for this change to transparency.
That's why the National Institute for Health Care Quality in the
Netherlands actively promotes the implementation of ICHOM metrics.
“
“

17. 17Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.
Recap
Develop global consensus sets of outcomes…
…to reflect what matters most to patients and then…
…support their implementation and ultimately…
…relate them to the underlying cost to finally benchmark on
value
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