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Open Inclusion Research London a11y Meetup May 2018
1. Top down and bottom up:
Gaining insights from the
people who know best
London Accessibility Meetup - GAAD 2018
17 May 2018
Tom Pokinko
Christine Hemphill
Open Inclusion
2. Openâs essence
We identify and remove hurdles or friction
between customers and product or service
providers so that both can achieve to the
fullest of their ambitions.
4. Janeâs story
⢠Jane is a very independent, professional
working woman with a family. She has MS
⢠During a particularly bad spell she was
unable to get out of bed for a few months
⢠Her usual supermarket didnât offer an online
experience inclusive enough given her
limited dexterity and sight at the time
⢠She tried a new provider. Beside an easier
online experience, they also did delivery to
the kitchen rather than to the front door
5. Being able to use my phone to order my
groceries when I was bed bound was a
great service. I could choose what I wanted,
and didnât have to disturb family and friends.
Iâm a fan!
Features that I found so accessible when I
was ill have led to me recommending this
service to other people in a range of
different situations.â
â
6. Janeâs story is one experience. n = 1
How many people / experiences does it represent?
⢠This story relates to a person with Multiple Sclerosis (MS).
⢠Over 100,000 people in the UK have MS
⢠It is a fluctuating condition that can variably impact energy, dexterity,
mobility, sight, speech and/or mental health
Mobility
19% impaired 10.4m
15% disabled 6m
19%
7. Janeâs story is one experience. n = 1
How many people / experiences does it represent?
⢠This story relates to a person with Multiple Sclerosis (MS).
⢠Over 100,000 people in the UK have MS
⢠It is a fluctuating condition that can variably impact energy, dexterity,
mobility, sight, speech and mental health
Dexterity
10% impaired 5.7m
8% disabled 4.5m
10%
8. Janeâs story is one experience. n = 1
How many people / experiences does it represent?
⢠This story relates to a person with Multiple Sclerosis (MS).
⢠Over 100,000 people in the UK have MS
⢠It is a fluctuating condition that can variably impact energy, dexterity,
mobility, sight, speech and mental health
Stamina / breathing
16% impaired 8.6m
11% disabled 6.0m
16%
9. This story is not unusual in that the customer has multiple needs
Impairments are far more common in multiples than just one.
Only 34% of
people with an
impairment
have only one.
More than 40%
have three or
more
impairments.
8
7
6
3.9%
5
6.6%
4
11.2%
3
18.8%
2
22.9%
1
33.9%
% of people classed as disabled wit h mult iple impairment s
0.2% 33.9%
% Of Disable..
10. Individual experience can engage hearts and minds across a business â
especially those tasked with designing and delivering brand experience
Ongoing research (regular stories) in combination with broader statistics allows
these rich stories to become valuable decision support insights
12. But despite our best efforts,
do we ask them enough?
â I donât know what it is. It seems deaf people often
fall through the net when it comes to accessibility.
Why donât they [companies] just ask us?
~ Ed
Open Panel Community Lead
Hearing Impairment
13. So how can we generate personal stories and insight?
There are many different ways to ask
16. Get user insights early to avoid costly changes
COSTTOMAKECHANGES
PROJECT ENDPROJECT START
17. Case studies
1. Paper prototype stage
2. Component testing
3. Prototype
4. Beta and live stage
18. Case study #1 (Paper prototype) SURVEY
WHAT WE TESTED:
Prototype iOS app that presents stock market graphs
in sound form, so blind traders can understand
patterns and trends in data
19. Case study #1 (Paper prototype) SURVEY
âI think this is a fabulous idea
because I can see it in my head.â
âI was skeptical at first. Personally, Iâve never
invested directly in the stock-market, but I could see
that this would be a useful way to help spot trends
in stock market variation.â
20. Case study #2 (Components testing) SURVEY
WHAT WE TESTED:
Accessibility and usability of specific UI components
⢠Back âbuttonâ - which gesture for blind users?
⢠Home â how to get to home page?
22. Case study #3 (Prototype testing) IN-CONTEXT
WHAT WE TESTED:
Real-time assistance functionality using an
iPhone app for booking assistance during rail
journeys in England
23. Case study #3 (Prototype testing) IN-CONTEXT
âThe app feels personal and friendly. I
wasnât expecting to feel that closeness to
the staff, because itâs not needed strictly
for the journey. But actually emotionally it
is needed.â
âIf people like me assigning passengers had
the app, that would save me going upstairs or
radioing to my colleagues to find out who to expect
and whenâŚâ (assistance staff)
24. Case study #3 (Prototype testing) IN-CONTEXT
What was your favourite feature of the
app?
25. Case study #4 (Beta/live testing) USABILITY TEST
WHAT WE TESTED:
The European and UK websites of a major
electronics retailer
26. Case study #4 (Beta/live testing) USABILITY TEST
âI couldnât get through to buy the product. Itâs good there are
pictures but it feels too much like a promotions feed.â
âI canât get past the cookie message!â
âI donât like âlink find out moreâ -
find out more about what?â
âFonts too small, poor contrast. What does the hand icon mean?â
28. Research can be done at many levels of scope and styles specific to
resolving the question at hand.
⢠Product level insight
⢠Organisation level â business maturity
⢠Leading practice reviews
⢠Market / industry volumes and value
⢠Customer segment volumes and value
⢠ROI modelling
29. Itâs not what you donât know that gets you in trouble.
Itâs what you know that just ainât so.
Mark Twain
â
Learning or unlearning
30. We have a robust, actionable dataset with a relatively complete picture of
the prevalence and value of access needs in the UK.
In God we trust
All others bring data.
â
W. Edwards Deming
31. Quantitative research
⢠How many people in your user base are impacted by impairments
â By category and severity
â By adaption approach
â By co-morbidity
⢠Value of this group â overall and sub-segments
⢠Digital usage and device preference
⢠Age, gender, other demographics
⢠Align the data to your customer database or target market
32. Where can we get good primary data that we can trust?
Study Source Style Breadth (n) Last released
Family Resources
Survey
DWP / ONS,
GOV.UK
Annual (since 1994)
Cross-sectional not
longitudinal
19,000
households
Adults 16 y.o. +
March 2017
Understanding
Society
ISER, Uni. of
Essex
Longitudinal
Annual (since 2009)
40,000
households
Wave 7
November 2017
Life Opportunities
Survey
DWP / ONS,
GOV.UK
Longitudinal from
2009-2014 in 3 waves
19,950
households
No longer run
Completed 2014
Labour Force
Survey
DWP / ONS,
GOV.UK
Annual (since 1973)
Rotating panel each
for 5 quarters
89,000 individuals
in 37,400
households
February 2017
33. Myth 1 â itâs a small market
34% of the UK adult population have an impairment
That is 1 in every 3 or 18.6m adults
34. Myth 1 â itâs a small market
24% of the UK adult population are classified as âdisabledâ
That is 1 in every 4 or 12.8m adults
35. Understanding each impairment is important
1 in 5
19%
All mobility
impaired
10.4m
Mobility
as a
disability
8.2m
1 in 7
15%
36. Myth 2 â itâs not such a valuable segment
ÂŁ265 billion
In 2016
The âPurple Poundâ is worth ÂŁ265 billion
That is +15% of all UK discretionary income
This is based on all impairment categories
⢠Physical: mobility, dexterity
⢠Sensory: sight, hearing
⢠Cognitive: memory, learning & mental health
37. Myth 2 â itâs not such a valuable segment
Given it is so big and so valuable, why is is this not better known?
Complexity, visibility and value perceptions
all limit more general understanding of this massive market segment.
38. National averages can be useful.
Population
BY CATEGORY
Impaired Disabled Impaired Disabled
Sight Impaired 280,916 203,653 ÂŁ6,149,822,697 ÂŁ3,965,202,162
Hearing Impaired 303,917 223,304 ÂŁ6,842,989,594 ÂŁ4,677,933,098
Mobility Problems 961,770 755,214 ÂŁ21,205,112,769 ÂŁ15,355,014,068
Dexterity Problems 524,095 416,015 ÂŁ11,746,005,985 ÂŁ8,631,486,758
Learning Difficulties 219,508 179,313 ÂŁ5,022,339,333 ÂŁ3,832,279,934
Memory Difficulties 319,101 250,770 ÂŁ6,930,512,786 ÂŁ5,072,583,627
Mental Health problems 477,424 363,986 ÂŁ10,774,504,042 ÂŁ7,324,844,804
Stamina/ Breathing problems 793,399 559,377 ÂŁ18,730,566,746 ÂŁ11,635,031,932
Social / Behavioural Problems 97,807 80,836 ÂŁ2,348,142,432 ÂŁ1,824,307,981
5,000,000
Population Value ofHH income
39. Myth 3 â theyâre not my target customers / staff / users
Age wealth bias: Disability is incurred increasingly with age.
In the UK Baby Boomers have the highest assets and disposable income.
Older people, especially younger old, are increasingly opting for digital channels.
Design for us all: Mobile technology means we all use inclusive technology when we
canât see, hear, touch or otherwise use our devices due to situational impairments. We
are getting more used to having and adopting user-defined interaction options.
Employment is higher than you know: 1 in 5 employees have an impairment.
In most workplaces only 3-5% share that with employers.
40. How do I use inclusion data along with user insights to
make better product decisions?
Get insight
Prioritise
Improve
Measure
41. Qualitative rich stories plus quantitative numeric insight
Can drive real change in customer experience and value
42. For more information, please contact:
christine@openinclusion.com
tom@openinclusion.com
better experiences for all
Hinweis der Redaktion
Iâm Tom and this is Christine. Today weâd like to talk to you about when to use qualitative and quantitative approaches in inclusive research to help improve business decisions and outcomes.
We gather feedback from real disabled and older users to gauge where products or organisations are on their inclusion journey, that allows us to provide insight and find efficient solutions to improve experiences
Essentially we help map out the speed bumps along various customer journeys
Detailed qualitative rich stories + perspective from volumes and value of people that may have similar experiences = strong engaging prioritised insight
That can drive powerful change momentum in business, increasing value driven by real change in satisfaction, loyalty and value for your customers
For example, Jane is someone with whom we work closely on projects. Sheâs a member of our panel that helps deliver insights to businesses.
By using a service that accommodated her needs, she became a strong brand advocate.
Jane has MS. She had a bad period when she couldnât get up and about easily so swapped to doing her grocery shopping online
She swapped from her previous standard brand as their website wasnât able to support her needs effectively
The company she switched to also provided a better quality, more reliable and friendly home delivery service than she had experienced before
After she recovered from that spell she stuck with the new brand, and has singing their praises every since
They helped her at a time she appreciated it most. That is great customer service.
She also found other suppliers annoying when she couldnât use their app or their service punctuality was not as goodâŚ
Source Family Resources Survey 2015/16 (Released April 2017)
Impaired = âillness, disability or impairment which causes substantial difficulty with day-to-day activitiesâ
Disability = Long standing (expected to or has already lasted for more than 12 months)
This is NOT the social model of disability but it is in line with the Equality Act 2010 definition and in line with the questions asked of survey participants.
10.4m = More than the populations of London + Birmingham + Manchester
5.7m = More than the UK households subscribing to Netflix
8.6m = just more than the 8.1m viewers that tuned in the UK last Saturday night during the height of Eurovision finals in Portugal
Multiple Sclerosis by its nature has multiple, fluctuating impacts that generate co-occurring access needs
Treat people as whole people donât simplify them into single access needs boxes. Be supportive of multiple adaption options
The reality is many people have a mix of co-occurring needs. The needs here are just long term ones, even more true once you add situational needs.
Therefore design that solves for one need in isolation is likely to be insufficient
We have just heard from Molly who is a smart, tech savvy lady with Usherâs Syndrome. She has product design needs that take both hearing and sight adaptations into account.
Some of the most common co-morbidities are:
mobility along with stamina, dexterity, memory, hearing then sight
Then Dexterity and memory
Memory and stamina
Mental health and stamina
Mobility and learning difficulties
A large crowd at a festival in Germany. A diverse group.
Within the crowd are older people who donât identify as disabled, younger neuro-diverse and other non-visibly disabled such as people with speech or mental health conditions, people with temporary and permanent physical or sensory impairments etc. Also carers, family and friends of these people. Many people within the crowd with many varying needs, preferences and adaption approaches to a single environment.
Because most disabled users have been solving access problems throughout their lives, they are uniquely placed to give useful feedback on problems.
Unfortunately, not enough organisations ask disabled people for their input.
Research we provide includes behavioral and attitudinal approaches, quantitative and qualitative styles. There are many research formats within these ranges.
Donât mistake Attitudinal for Behavioural research! Use the right research tool at the right time.
Get input throughout the project development cycle. There are numerous opportunities throughout, at each stage.
A good rule of thumb is to get user insights earlyâŚ
At Open, we know the strategies for getting insight quickly, effectively, relatively cheaply. Insight now = savings tomorrow (avoiding costly changes)
2% to over 100% of total project costs depending on when you start to consider it
So now Iâd like to share with you a few case studies that illustrate how weâve managed to capture real user insights from disabled people at various stages throughout product development cycle, and in that way help determine the most inclusive business decisions and outcomes.
HOW WE TESTED IT:
We described the interface and main user journey to blind members on our research panel
Asked questions about accessibility, usability and the general concept behind the app
We also asked them to download a similar app with less functionality from the App store
Feedback from disabled users allowed us to confirm that this was a good idea. Most users were unaware they might need this kind of app, but they quickly realised its potential and then helped suggest ways to make the UI even better for them.
10-20 users helped us realise that sonification in banking apps has legs â and now the app we created has received a commendation from the Design for All Foundation and is up for an award.
HOW WE TESTED IT:
Described the activity and VoiceOver output; asked would you prefer to swipe right to go back, swipe left, etc?
Provide a link. âPlease explain what you clicked to get to the homepage.â
Back button â which gesture is best for blind users using VoiceOver?
Home button - do older and neurodiverse users prefer to click on a company logo to go to the homepage, or do they prefer a Home link in the main nav?
We found swiping left to go back was a more popular option than swiping right. Some users also liked the 2 finger upward swipe.On the home button issue, in general our findings supported the idea that you should have a separate home link in the main nav rather than relying on a logo to serve as the link to home.
HOW WE TESTED IT:
In-context usability testing of app at rail stations and on train
Accompanied testing (contextual enquiry)
Interviews with station staff
We found the accessibility of the app was already quite good, but key touchpoints in the customer journey made or broke the user experience. Staff needed to be more aware of the app and different levels of staff needed to work together to help create the best customer experience using the app. Also, a key suggestion we got from staff while we were testing the prototype in context of real rail journeys was: we all have smartphones. Put the app on our phones to cut out the middle man!
We found the accessibility of the app was already quite good, but key touchpoints in the customer journey made or broke the user experience. Staff needed to be more aware of the app and different levels of staff needed to work together to help create the best customer experience using the app. Also, a key suggestion we got from staff while we were testing the prototype in context of real rail journeys was: we all have smartphones. Put the app on our phones to cut out the middle man!
HOW WE TESTED IT:
In-lab usability testing with 5 disabled users
Blind
Visually impaired (screen magnifier)
Older/less tech savvy
Dyslexic
Mobility/dexterity impairment
Both desktop and mobile
Unfortunately, there was much in need of fixing both accessibility wise and from the perspective of user experience.
But we could also confirm that the brand was respected and viewed positively by our disabled testers. The client was very grateful for our testing because we identified so many ways their site could be better.
Steve Krug: âYou can find more problems in half a day than you can fix in a month.â
So these case studies illustrate some of the ways that probing deeply with real users â across attitudes and behaviours - allowed us to gather actionable insight that then helped improve products and services at all stages of product evolution.
Now Iâd like to discuss some of the quantitative research that we do. So this is research with over 30 users.
Quant is about market size and breakdown from overall to specific usable sub-segments
A report that tells you a lot but doesnât make decision making easier and better is useless
Good quant research is designed, conducted and delivered to inform better decision making that will create more value for your customers and for you
The goal is to use data and insights to:
increase the quality of management decisions
shorten the time to improvements and innovation
I should add this is also the goal of qualitative research. They just go about it in a slightly different way.
Tom talked about the range of research options before â Quant / Qual, attitudinal and behavioural
These are some of the approaches we provide for clients
This is about the question it is looking to answer and the type of analysis that follows the research
MYTHS and misconceptions:
- Disabled people are only a small group
- That group is not so valuable
- They are not my target audience
Qualitative insight brings emotion and connection. It is great for informing design decisions, especially behavioural insight. Quant transforms that to broader business value.
Challenge myths with real people (as Tom described earlier).
Turn of the century American statistician
Another quote of his
It is not necessary to change. Survival is not mandatory.
Category â eg sight, hearing, mobility, dexterity, speech, social, learning, memory and mental health
Severity â Combination of time impacted - permanently, temporarily or situational along with completeness of impact eg Hard of Hearing vs Deaf
Adaption approach â to follow through the haring impaired example BSL speaker, lip reader or both. For sight, uses Voiceover on mobile vs uses pinch zoom with inverted colour preferences
Co-morbidity â solve for real, whole people with messy, genuine combinations of impairments
What are sources for this data? Where can we get good primary data that we can trust?
This is for the UK. Family resources survey, Understanding society, etc.
Other secondary sources can be good too. Eg the RNIB Sight Loss Tool covers sight loss but also falls, dementia, stroke, hearing impairment, dual sensory loss and learning impairments as well as visual.
Despite these great sources, however, you are still trusting that their use and interpretation aligns to your use and how you would chose to interpret the raw data
All these surveys focus on adults, defined as 16+
Use people who understand the source, sampling method, populations and limitations.
*** We have used reputable data science agencies where they provide the raw data feeds we need along with constraints of use and then we analyse it
So letâs take a look at some of the myths I identified earlier.
That is equivalent to the top 12 cities by population in the UK, from London to Fife
I wonât go through these in detail as we have them provided for you here today by the activity â with details of the relevant category for that activity
Understanding each impairment is important; however, a single number is not enough. It is worth understanding age, gender, employment and severity of each category.
This helps as without it it is hard to know how best to improve your service.
If this sounds hard â get some help.
Advocacy groups can help you to understand the group they advocate for. Businesses like ours work across all impairment categories.
Other businesses and organisations such as many in this room, BBC, GDS and Barclays have been doing this for a while now and are happy to open source knowledge to the broader community,
Meetups, podcasts and the like can all provide a good grounding too.
2012/13 â initial survey ÂŁ212b (household disposable income where at least 1 person in the household had a disability)
2014/15 â restated by DWP to ÂŁ249b
2015/16 Latest stats done for Barclays last year ÂŁ265b
Complexity âItâs not homogeneous This is a dynamic and multi-dimensional group. Fear is also involved (political correctness and legal risk) and not knowing how to get this right (get good insight, which will help you understand whole people and segments, get some support and get started)
Visibility â Less than 1 in 3 impairments are visibly obvious and if you live in âbubble Londonâ then it has the lowest proportion of people with disabilities in the country
Value â negative assumptions and biases prevail around employment and earnings. However 22% of the workforce has an impairment. Even though only 3-5% tend to state it to their employers. New more flexible ways of working, enabled by digital and lower cost of entry to set up a business are making it increasingly easy for people to work as they need to from where they wish to and add great value â either self employed, as entrepreneurs or working in a larger business now offering more flexibility.
Additionally impairments are acquired at increasing rates with age. The Baby Boomers have the highest holdings of assets and disposable income in the UK. They are discerning buyers with high service expectations, still spending and both use digital and adapt to new technology at a much higher rate than the last generation of retirees.
This is an example if a customer database was nationally representative and had 5 million customers.
We can tailor this to align to specific known demographics such as age, gender and region
Understanding the nuances behind the averages is important for major decisions.
+65 and +75 have the fastest increase in smartphone takeup / growth rate.
75% of +65 have and use their mobile phone. Over half now use smartphones up from 1/3 just last year. Ofcom survey Adult Media Use and Attitudes
Also the new old used technology in their working years and had to adapt to device and system change so are less afraid of âbreaking the internetâ than the older old.
+40% now have a social media profile too.
We have created breakdowns of the data
Spend a bit of time understanding how many people will appreciate the effort you make to create more inclusive designs and products.
Get insight â quant and qual and align it to your specific customer or target customer base
Align that to your target or current customer base
Prioritise your improvements based on
Cost and effort
Depth of impact (how annoying is it?)
Scale of impact (how many people are annoyed by it?)
Make the changes
Product level
Organisational level â processes, tools and skills
Measure the changes through analytics, reduced complaints and other metrics
Inclusive design is based on the principle that learning about diverse needs and designing for those needs helps to create better user experiences for everyone.
Simply put, an included customer is a happy customer
A happy customer is loyal and can also be a great advocate
Eg one of our panel members who has MS. She had a bad period when she couldnât get up and about easily so swapped to doing her grocery shopping online
She swapped from her previous standard brand as their website wasnât able to support her needs effectively
The company she switched to also provided a better quality, more reliable and friendly home delivery service than she had experienced before
After she recovered from that spell she stuck with the new brand, and has singing their praises every since
They helped her at a time she appreciated it most. That is great customer service.
Open Inclusion. User research + insight + analysis = business intelligence + better decisions = better outcomes