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Optimizing Patient Outcomes:
Role of the Healthcare Professional
            Eva R. Serber, Ph.D.
      Centers for Behavioral & Preventive Medicine,
                   The Miriam Hospital
      Department of Psychiatry & Human Behavior,
          Warren Alpert Brown Medical School
Disclosures


• Medtronic, Inc – Speaker Honoraria

• NIH/NHLBI – R21 HL092340 (CARE-E Trial)




                                                       Ψ
                                       © 2010 Serber
The healthcare professional has
              many roles:
•   Support
•   Education
•   Coping skills training
•   Symptom management
•   Transition and recovery
•   Addressing family needs

                  …to name a few
                                                   Ψ
                                   © 2010 Serber
Communication


Support

              Patient Outcomes

Education

                                       Ψ
                       © 2010 Serber
Predictors of Improved Outcomes

•   Understanding of disease and treatment
•   Social support
•   Self-efficacy
•   Self-management
•   Positive outlook and expectations
•   Shared decision-making



                                                             Ψ
                                             © 2010 Serber
Social Support

•   Encouragement
•   Facilitating activities
•   Seeking meaningful information
•   Sharing experiences, concerns, feelings
•   Forming relationships
    – With peers
    – Health care providers


                                                              Ψ
                                              © 2010 Serber
Common SCA/ICD Patient
                 Concerns
•   Preventive care
•   Health care providers
•   Partner relationships
•   Activities of daily living
•   Physical changes
•   Emotional challenges
•   Coping with shocks

Dougherty et al., Adv Nurs Pract 2001
                                                        Ψ
                                        © 2010 Serber
Effective Education

•   Find out what works
•   Find out what is needed
•   Let the patient play
•   Encourage planning and prep
•   Be patient
•   Model problem-solving


Boyd et al., 1997; Lorig, 2001; Overgaard, Nurs Crit Care 2010
                                                                                 Ψ
                                                                 © 2010 Serber
Patient’s Preferences

• Support – psychosocial or adjustment needs
    – Office visit or call with device nurse (23-25%)
    – Support group (15%)

• Education – content of dx, ICD, coping strategies
    – Written materials (48%)
    – Office visit with cardiologist or nurse (42%, 40%)

• Interest in attending Supportive and Educational
  ICD meeting (68%)
Serber et al., PACE 2009
                                                                  Ψ
                                                  © 2010 Serber
Disparities in Preferences

• African-Americans – written materials and phone
  contact with cardiologist

• Women – Support from ICD peers, device nurse,
  professional counselor

• Young Age (< 67 yo) – Internet and e-
  communication for support and education

Serber et al., PACE 2009                                 Ψ
                                         © 2010 Serber
Benefits of Communication

Without intervention:
• No change in uncertainty and adjustment 1- to 8-
  wks post ICD
With intervention:
• Psychoeducation: ↓ s/o depression, anxiety, ↓
  healthcare utilization and sick days
• Recall counseling: ↓ worry and uncertainty

Dunbar et al., PACE 2009 Fisher et al., PACE 2009 Mauro, Int J Nurs Stud 2010
                                                                                            Ψ
                                                                            © 2010 Serber
Intervention Outcomes

  •   Blood pressure                                •   Weight loss
  •   Lipids                                        •   Healthcare utilization
  •   Physical activity                             •   Mortality
  •   Smoking                                       •   Quality of life
  •   Dietary intake                                •   Psychosocial outcomes




Allen & Dennison, JCN 2010; Stolic et al., Euro J Cardiovasc Nurs, 2010                   Ψ
                                                                          © 2010 Serber
Support Groups

Benefits:
• ↑ coping
• ↑ adjustment to device
• ↑ life satisfaction
• ↑ connection to others
• ↑ health



Dickerson et al., Heart Lung 2000, Clin Nurse Spec 2006
                                                                          Ψ
                                                          © 2010 Serber
Support Groups

Nurse facilitator:
• Fosters individual participation
• Encourages group cohesion
• Provides medical and technical expertise
• Maintains topic relevance
• Addresses distress and provides referrals


Dickerson et al., Heart Lung 2000, Clin Nurse Spec 2006
                                                                          Ψ
                                                          © 2010 Serber
Therapeutic Connection & Themes

•   Information and education
•   Interaction and stories
•   Benefiting each other
•   Support and friendship
•   Importance of a facilitator
•   Accessibility (for online)


Dickerson et al., Heart Lung 2000a & b; Serber et al., Heart Lung 2010
                                                                                         Ψ
                                                                         © 2010 Serber
“Informed Consent”
• Process – ongoing conversation
• Communication and comprehension
  –   Description, explanation, trajectory
  –   Risks or discomforts
  –   Benefits
  –   Appropriate alternatives
• Current status and future options

      Always comes down to communication –
          providing support and education
                                                             Ψ
                                             © 2010 Serber
The 5 A’s
1. Ask: about concerns and wellbeing
2. Advise: provide education about psychosocial
   impact
3. Assess: emotional and behavioral sx
4. Assist: be practical; educate; support
5. Arrange: follow-up and refer as needed
Take the time and listen to the person who is your
    patient.
Interact with the patient and family in dialog
Fiore et al., 2000; Sotile & Sears, You Can Make a Difference, 1999                   Ψ
                                                                      © 2010 Serber
Screening for Psychological
                  Distress

Ask questions that help identify:
• Emotional factors
• Chronic Stressors
• Somatic complaints



Rozanski et al., J Am Coll Cardiol 2005;45:637-651

                                                                     Ψ
                                                     © 2010 Serber
Screening for Psychological
                  Distress

Possible screening questions:
• How has your mood been recently?
• How would you describe your energy level?
• How have you been sleeping?
• What kind of pressure have you been under at
  work/home?
• How do you unwind at the end of the day?
Rozanski et al., J Am Coll Cardiol 2005;45:637-651
                                                                     Ψ
                                                     © 2010 Serber
Specific Areas For Intervention
• Relaxation and shock-anxiety management
  – Breathing exercises
  – Imagery
  – Positive self-talk
• Education
  – Cardiac dx, course, and tx
  – Relationship between emotions, behaviors, and cardiac
    events
• Family involvement
  – Pt-focused
  – Caregiver strain
                                                              Ψ
                                              © 2010 Serber
Specific Areas For Intervention

• Activity planning and pacing
• Physical activity
• Thought management
  – ↓ Negative
  – ↑ Positive
• Goal Setting and problem-solving
  – Long- and short-term
  – Are they realistic?
• Finding meaning and purpose
                                                     Ψ
                                     © 2010 Serber
Know When to Refer & Get
             Consult
• Most common times:
  – After SCA
  – Time of ICD implantation
  – Status Post ICD shock
• Other times:
  – Pt benefit from more 1-on-1 time than can be provided
    during clinic visits
  – Treatment adherence issues
  – Increase in medical care utilization
  – Change in patient temperament, interactions, or loved
    ones voicing concerns
  – Recognizing own limitations with
    psychosocial issues
                                                             Ψ
                                               © 2010 Serber
Thank you!


 Questions?



                              Ψ
              © 2010 Serber
Validated Screening Surveys

• Patient Health Questionnaire
  – 2-item, 9-item, or 4 pg comprehensive versions
• Hospital Anxiety and Depression Scale
• Beck Depression Inventory
• Center for Epidemiological Survey Depression
  Scale

• Florida Patient Acceptance Scale
• Florida Shock Anxiety Scale
                                                               Ψ
                                               © 2010 Serber

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Optimizing Patient Outcomes Through Healthcare Communication

  • 1. Optimizing Patient Outcomes: Role of the Healthcare Professional Eva R. Serber, Ph.D. Centers for Behavioral & Preventive Medicine, The Miriam Hospital Department of Psychiatry & Human Behavior, Warren Alpert Brown Medical School
  • 2. Disclosures • Medtronic, Inc – Speaker Honoraria • NIH/NHLBI – R21 HL092340 (CARE-E Trial) Ψ © 2010 Serber
  • 3. The healthcare professional has many roles: • Support • Education • Coping skills training • Symptom management • Transition and recovery • Addressing family needs …to name a few Ψ © 2010 Serber
  • 4. Communication Support Patient Outcomes Education Ψ © 2010 Serber
  • 5. Predictors of Improved Outcomes • Understanding of disease and treatment • Social support • Self-efficacy • Self-management • Positive outlook and expectations • Shared decision-making Ψ © 2010 Serber
  • 6. Social Support • Encouragement • Facilitating activities • Seeking meaningful information • Sharing experiences, concerns, feelings • Forming relationships – With peers – Health care providers Ψ © 2010 Serber
  • 7. Common SCA/ICD Patient Concerns • Preventive care • Health care providers • Partner relationships • Activities of daily living • Physical changes • Emotional challenges • Coping with shocks Dougherty et al., Adv Nurs Pract 2001 Ψ © 2010 Serber
  • 8. Effective Education • Find out what works • Find out what is needed • Let the patient play • Encourage planning and prep • Be patient • Model problem-solving Boyd et al., 1997; Lorig, 2001; Overgaard, Nurs Crit Care 2010 Ψ © 2010 Serber
  • 9. Patient’s Preferences • Support – psychosocial or adjustment needs – Office visit or call with device nurse (23-25%) – Support group (15%) • Education – content of dx, ICD, coping strategies – Written materials (48%) – Office visit with cardiologist or nurse (42%, 40%) • Interest in attending Supportive and Educational ICD meeting (68%) Serber et al., PACE 2009 Ψ © 2010 Serber
  • 10. Disparities in Preferences • African-Americans – written materials and phone contact with cardiologist • Women – Support from ICD peers, device nurse, professional counselor • Young Age (< 67 yo) – Internet and e- communication for support and education Serber et al., PACE 2009 Ψ © 2010 Serber
  • 11. Benefits of Communication Without intervention: • No change in uncertainty and adjustment 1- to 8- wks post ICD With intervention: • Psychoeducation: ↓ s/o depression, anxiety, ↓ healthcare utilization and sick days • Recall counseling: ↓ worry and uncertainty Dunbar et al., PACE 2009 Fisher et al., PACE 2009 Mauro, Int J Nurs Stud 2010 Ψ © 2010 Serber
  • 12. Intervention Outcomes • Blood pressure • Weight loss • Lipids • Healthcare utilization • Physical activity • Mortality • Smoking • Quality of life • Dietary intake • Psychosocial outcomes Allen & Dennison, JCN 2010; Stolic et al., Euro J Cardiovasc Nurs, 2010 Ψ © 2010 Serber
  • 13. Support Groups Benefits: • ↑ coping • ↑ adjustment to device • ↑ life satisfaction • ↑ connection to others • ↑ health Dickerson et al., Heart Lung 2000, Clin Nurse Spec 2006 Ψ © 2010 Serber
  • 14. Support Groups Nurse facilitator: • Fosters individual participation • Encourages group cohesion • Provides medical and technical expertise • Maintains topic relevance • Addresses distress and provides referrals Dickerson et al., Heart Lung 2000, Clin Nurse Spec 2006 Ψ © 2010 Serber
  • 15. Therapeutic Connection & Themes • Information and education • Interaction and stories • Benefiting each other • Support and friendship • Importance of a facilitator • Accessibility (for online) Dickerson et al., Heart Lung 2000a & b; Serber et al., Heart Lung 2010 Ψ © 2010 Serber
  • 16. “Informed Consent” • Process – ongoing conversation • Communication and comprehension – Description, explanation, trajectory – Risks or discomforts – Benefits – Appropriate alternatives • Current status and future options Always comes down to communication – providing support and education Ψ © 2010 Serber
  • 17. The 5 A’s 1. Ask: about concerns and wellbeing 2. Advise: provide education about psychosocial impact 3. Assess: emotional and behavioral sx 4. Assist: be practical; educate; support 5. Arrange: follow-up and refer as needed Take the time and listen to the person who is your patient. Interact with the patient and family in dialog Fiore et al., 2000; Sotile & Sears, You Can Make a Difference, 1999 Ψ © 2010 Serber
  • 18. Screening for Psychological Distress Ask questions that help identify: • Emotional factors • Chronic Stressors • Somatic complaints Rozanski et al., J Am Coll Cardiol 2005;45:637-651 Ψ © 2010 Serber
  • 19. Screening for Psychological Distress Possible screening questions: • How has your mood been recently? • How would you describe your energy level? • How have you been sleeping? • What kind of pressure have you been under at work/home? • How do you unwind at the end of the day? Rozanski et al., J Am Coll Cardiol 2005;45:637-651 Ψ © 2010 Serber
  • 20. Specific Areas For Intervention • Relaxation and shock-anxiety management – Breathing exercises – Imagery – Positive self-talk • Education – Cardiac dx, course, and tx – Relationship between emotions, behaviors, and cardiac events • Family involvement – Pt-focused – Caregiver strain Ψ © 2010 Serber
  • 21. Specific Areas For Intervention • Activity planning and pacing • Physical activity • Thought management – ↓ Negative – ↑ Positive • Goal Setting and problem-solving – Long- and short-term – Are they realistic? • Finding meaning and purpose Ψ © 2010 Serber
  • 22. Know When to Refer & Get Consult • Most common times: – After SCA – Time of ICD implantation – Status Post ICD shock • Other times: – Pt benefit from more 1-on-1 time than can be provided during clinic visits – Treatment adherence issues – Increase in medical care utilization – Change in patient temperament, interactions, or loved ones voicing concerns – Recognizing own limitations with psychosocial issues Ψ © 2010 Serber
  • 23. Thank you! Questions? Ψ © 2010 Serber
  • 24. Validated Screening Surveys • Patient Health Questionnaire – 2-item, 9-item, or 4 pg comprehensive versions • Hospital Anxiety and Depression Scale • Beck Depression Inventory • Center for Epidemiological Survey Depression Scale • Florida Patient Acceptance Scale • Florida Shock Anxiety Scale Ψ © 2010 Serber