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Querying Patients About Race and Ethnicity

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Yiscah Bracha

Results from experiment with registrars on best way to ask patients to self-identify race & ethnicty. Experiment performed at Hennepin County Medical Center, a public safety net in Minneapolis MN. Presentation to MN Cancer Alliance, April 2006.

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Minnesota Cancer Summit April 25, 2006 Querying Patients About Race and Ethnicity at a Public Safety Net Medical Center Yiscah Bracha,M.S. Research Director, CUH
Goal: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Setting: Hennepin County Medical Center ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
HCMC Patient Population ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
HCMC Patient Population (cont.) ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
HCMC – The Region’s Safety Net ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Who should ask questions, and when? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Who asks Qs and when…? ,[object Object],[object Object],[object Object],[object Object]
When during interview should Qs be asked? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
When during interview are Qs asked? ,[object Object],[object Object],[object Object],[object Object],[object Object]
Which Qs and How Many Qs to Ask? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Constraints: Computer vs. Paper ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Who are the downstream users? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Clinical & Planning Staff Needs: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Reporting & Research Needs: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Office of Management & Budget (OMB) ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Who needs what? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Conflict area: Number of questions ,[object Object],[object Object]
Conflict area: Use of OMB categories ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Method of conflict resolution: ,[object Object],[object Object],[object Object],[object Object]
HCMC Patients Queried About: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
HCMC Experiment ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
For each method tested: ,[object Object],[object Object]
All Methods Marital status Race or ethnicity Question Religious preference Race or ethnicity Question Language(s) Birthplace
HCMC Experimental Methods ,[object Object],[object Object],[object Object],[object Object],[object Object]
Outcomes of interest ,[object Object],[object Object],[object Object],[object Object]
Method One: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Method One: Intent & Qualitative Results ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Method Two: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Method Two: Intent & Qualitative Results ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Method Three: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Method Three: Intent & Qualitative Results ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Method Four: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Method Four: Intent & Qualitative Results ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Quantitative Results 2.4 1.9 2.9 2.3 Max Time (mins) 1.1 1.2 1.0 0.9 Avg Time (mins) 78.9 100.0 100.0 90.0 Race Q done (%) 86.8 97.4 100.0 93.3 Ethnicity Q done (%) 76 39 59 60 Interviews (n) Four Three Two One Method Outcomes of Interest
Other results ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
General Conclusions ,[object Object],[object Object],[object Object]
Conclusions: Hispanic ethnicity ,[object Object],[object Object]
Conclusions: OMB Classification ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Pragmatic Outcomes ,[object Object],[object Object],[object Object],[object Object]
The future… ,[object Object],[object Object],[object Object],[object Object]
Thank You!
Racial distribution of 236 respondents: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],3.8 9 No response given 6.4 15 Multi-Racial 1.3 3 Native American 2.1 5 Asian 28.0 66 Hispanic 27.5 65 Black or AA 34.7 82 White %* N RACE
Detail on Whites/Caucasian (n=82) % N ETHNICITY 9.8 8 Hispanic 11.0 9 No other detail given 1.2 1 Western European 1.2 1 Russian 1.2 1 Norwegian 2.4 2 German 3.7 3 Irish 69.5 57 American, American-born white, Caucasian, European-American
Detail on Blacks (n=65) 3.1 2 Hispanic 6.2 4 No other detail 1.5 1 Multi-racial 29.2 19 African, African-born 60.0 39 African-American, American-born Black % N ETHNICITY 42.1 8 Unknown 5.3 1 Togo 36.8 7 Somali 5.3 1 Liberian 10.5 2 Ethiopian % N African
Detail on Hispanic (n=69) 21.7 15 No other detail 4.5 3 Multi-racial (also listed under multi-racial) 12.1 8 White (also listed under White) 3.0 2 Black (also listed under Black) 51.5 34 Mexican 3.0 2 Guatamalen 7.6 5 Ecuadoran % N HISPANIC ORIGIN
Other detail ASIAN (n=5) 1 Unknown 1 Laotian 1 Indian 1 Chinese 1 Cambodian 1 Chippewa 1 Sioux 1 Unknown NATIVE AMERICAN 8 No other detail 3 Hispanic (also listed with Hispanic) 1 Chippewa (also listed with Native Am.) 1 Malodo 2 White MULTI-RACIAL (n=15)

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Querying Patients About Race and Ethnicity

  • 1. Minnesota Cancer Summit April 25, 2006 Querying Patients About Race and Ethnicity at a Public Safety Net Medical Center Yiscah Bracha,M.S. Research Director, CUH
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  • 24. All Methods Marital status Race or ethnicity Question Religious preference Race or ethnicity Question Language(s) Birthplace
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  • 35. Quantitative Results 2.4 1.9 2.9 2.3 Max Time (mins) 1.1 1.2 1.0 0.9 Avg Time (mins) 78.9 100.0 100.0 90.0 Race Q done (%) 86.8 97.4 100.0 93.3 Ethnicity Q done (%) 76 39 59 60 Interviews (n) Four Three Two One Method Outcomes of Interest
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  • 44. Detail on Whites/Caucasian (n=82) % N ETHNICITY 9.8 8 Hispanic 11.0 9 No other detail given 1.2 1 Western European 1.2 1 Russian 1.2 1 Norwegian 2.4 2 German 3.7 3 Irish 69.5 57 American, American-born white, Caucasian, European-American
  • 45. Detail on Blacks (n=65) 3.1 2 Hispanic 6.2 4 No other detail 1.5 1 Multi-racial 29.2 19 African, African-born 60.0 39 African-American, American-born Black % N ETHNICITY 42.1 8 Unknown 5.3 1 Togo 36.8 7 Somali 5.3 1 Liberian 10.5 2 Ethiopian % N African
  • 46. Detail on Hispanic (n=69) 21.7 15 No other detail 4.5 3 Multi-racial (also listed under multi-racial) 12.1 8 White (also listed under White) 3.0 2 Black (also listed under Black) 51.5 34 Mexican 3.0 2 Guatamalen 7.6 5 Ecuadoran % N HISPANIC ORIGIN
  • 47. Other detail ASIAN (n=5) 1 Unknown 1 Laotian 1 Indian 1 Chinese 1 Cambodian 1 Chippewa 1 Sioux 1 Unknown NATIVE AMERICAN 8 No other detail 3 Hispanic (also listed with Hispanic) 1 Chippewa (also listed with Native Am.) 1 Malodo 2 White MULTI-RACIAL (n=15)