1. Peter J. Murray Panel Discussion: Studying and Using Social Media in Academic Research Chris Paton, Peter J. Murray, Margaret Hansen, Francsico J. Grajales III IMIA Social Media Working Group

2. Chris Paton BMBS BMedSci MBA FACHI Senior Clinical Research Fellow, National Institute for Health Innovation, University of Auckland, New Zealand Researching Social Media in Healthcare IMIA Social Media Working Group IMIA Social Media Working Group

3. What is Social Software? is it Web 2.0?...

5. $0 to $1,600,000,000 in 21 months

7. “ If you click edit and you see some Wiki syntax and some bizarre table structure - a lot of people are literally afraid . ” Jimmy Wales , Founder of Wikipedia, 2011

8. 20 billion page views per month

10. Reflexive Feedback Loop

11. Complexity

12. Why does this matter in healthcare?

14. Lithium Experiment

18. D ata M ining and S ocial H ealthcare A pplications for A cademic R esearch Medicine 2.0 Stanford | Francisco Grajales | September 17th, 2011

20. What does this mean?

23. Data in Action!

26. Research

31. Professional Considerations

32. Privacy

33. Security

34. What is the expectation of privacy?

35. Guidelines

36. Are 145 characters enough?

41. Questions

42. Cisco | Ciscogiii | [email_address] http://franciscograjales.com / quality-improvement

43. Margaret Hansen Ed.D., R.N. Associate Professor School of Nursing and Health Professions Illustration of the use of iPods, Twitter, Facebook, Skype & Google Suites in Academic Research IMIA Social Media Working Group IMIA Social Media Working Group

44. Millennial Social Medical Intern Research Participants

45. Video iPods in Medical Education Pilot Randomized Controlled Trial: New Zealand Base To determine whether instructional videos via iPods regarding urinary catheterization would increase undergraduate medical students ’ confidence and enhance skills competencies Pilot trainee interns; 10 control; 11 intervention ~intervention= 3 mos video iPod access ~control= no access to technology Results: Control group decline in skill competency over time; whereas, skill level remained stable for the intervention group. ~Intervention group ’ s confidence levels for performing female catheterization increased significantly over time

46. Video iPods in Nursing Education Pilot Randomized Controlled Trial: California Base To determine whether instructional videos via iPods regarding urinary catheterization would increase nursing students ’ confidence and enhance skills competencies Pilot nursing students; 9 control; 7 intervention ~intervention= 2 week video iPod access ~control= no access to technology Results: Close to zero variation for skill competency for both groups; Confidence levels did not significantly change over time ~ however, anecdotal notes imply students desire to have high self confidence in performing both male and female urinary catheterizations

47. iPad uPad? ~Voted #1 of top ten innovations and most tweeted about technology topics in 2010 ~Short time on the market, however, it is being used in healthcare, business and education ~Graduate students introduced to the iPad Fall 2010 and used it to assist them with their patient teaching project in Clinical Sites ~Research potential is endless! Annecdotal notes: ~ The iPad is visually transfixing ~ Cutting edge apps, such as Heart Pro, ECG iPocket cards, Nimble, OsiriX HD, Blausen Human Atlas

48. To Tweet or not to Tweet? ~ Free micro-blogging platform ~ 100 million users worldwide ~ Instantly publish brief text-based posts up to 140 characters ~ Collect research data ~ Real time communication among researchers and participants Tweeter!!

51. A software app that allows users to make video voice calls via the Internet Teach a course Interviews Focus Groups Dissertation Research Supervision

56. Let your research creative side shine and consider using social media to assist you with your data collection!

57. Look forward to hearing from you… @m2hansen, m2hansen, [email_address] or 415.422. 2017! Thanks, M. Hansen

59. Luis Fernandez-Luque @luisluque PhD Student, Researcher, Northern Research Institute & Tromsø Telemedicine Laboratory, Tromsø, Norway Health Videos and Social Media IMIA Social Media Working Group IMIA Social Media Working Group

62. IMIA Social Media Working Group

64. IMIA Social Media Working Group Should we use YouTube for Public Health, TV or printed press? How effective is YouTube? Should I recommend YouTube or Vimeo? What is next?

66. Peter J. Murray RN, PhD, MSc, CertEd, FBCS CITP CEO, IMIA (International Medical Informatics Association) Disclaimer: views expressed are generally personal; and should not be taken to be any official IMIA view or policy IMIA Social Media Working Group IMIA Social Media Working Group

67. IMIA is: the world body for health and biomedical informatics - comprises 56 (national) Member Societies, 45 universities and academic institutions - represents indirectly more than 50,000 health informatics professionals around the world - an NGO with World Health Organization

68. IMIA is: a bridging organisation – and a scientifically and academically-based body – its goals include: - to stimulate research, development and routine application - move informatics from theory into practice in a full range of health delivery settings - further the dissemination and exchange of knowledge, information and technology. www.imia.org

69. IMIA Social Media Working Group IMIA Social Media Working Group IMIA Social Media Working Group Set up at Medinfo2010 GA (Cape Town) International membership Strong Spanish-speaking membership Active in supporting IMIA's 'bridging role' to other organisations and people Help define/promote/evaluate and research IMIA's social media use

70. IMIA Social Media Working Group IMIA Social Media Working Group IMIA Social Media Working Group - why? Why not? - because everyone else uses it? To explore its use – does it have potential or is it all just empty rhetoric – the next 'bubble'? IMIA's exploration of social media use: - improve communication and interaction with members and the wider community - research the real potential - lead rather than follow - contribute to the evidence-base for use, benefit

71. Some issues: Is/are social media really that much different? Do we see the REAL interaction the rhetoric tells us will happen? The 1% rule - if you get a group of 100 people online then one will create content, 10 will "interact" with it (commenting or offering improvements) and the other 89 will just view it. How many REALLY interact via social media, as opposed to continue to broadcast?

72. Some issues: Are we using/developing new research methods and tools? - do we need to? What are 'science 2.0' and 'research 2.0' all about? - Are they simply marketing hype and/or trying to find ways to make money - like 'Health 2.0'? Is there a 'social good' to them?

73. Some issues to consider: … do we have evidence for the value of social media? … towards thinking about the necessary research agenda … with rapid evolution of technology, what are best research methods? … what is the role of social media relative to health?

74. IMIA and Social Media – The Need to Define a Research Agenda - researching collaboration tools and virtual organisations for researchers, and leveraging social tools for data collection; - exploring the implications (e.g. in human factors engineering, or open source software) of the intersection of health and informatics with social media; - discussing what are the next steps for social media and academic research, and how IMIA can contribute, especially in collaboration with other organisations and individuals.

75. IMIA and Social Media – Some Questions for the Research Agenda “ Social media grow more rapidly and less predictably than other types of technology ” - true or false? Technology and technology use seems to be evolving faster than traditional research. By the time you get a grant the technology can be outdated, so traditional RCTs are far too slow. So does this mean that we can ’ t necessarily use the same tools we have previously used to research and study them?

76. IMIA and Social Media – Some Questions for the Research Agenda Are there geographic or cultural differences in uses of and/or attitudes to social media? What effect will increasing mobile access and use of 'apps' versus the web have? What are the effects of the consumer drivers/expectations producing change faster than healthcare and scientific institutions can adapt to?

77. IMIA and Social Media – Some Questions for the Research Agenda “ Health IT systems will soon become social media applications ” - true or false? Will EHRs be built around social networks of patients, their carers and healthcare providers? - a significantly different model from how current EHRs operate - but this change will happen quickly and contracts are currently being signed to develop these systems. How will health professionals adapt?

78. IMIA and Social Media – Some Questions for the Research Agenda Is it possible to determine a priori which technologies or systems will be more cost-effective? Social media allows many different possibilities and therefore uses and ethical challenges. Privacy, control, etc. will become even more important issues in the future. Will social networking help students learn in healthcare courses?

79. IMIA and Social Media – Some Questions for the Research Agenda Tools or attitudes – or something different? Open data, open access, open collaboration etc Because we can reach more people, data, interaction etc – does this mean we WILL get the ones we want, the best, the most appropriate etc? - signal versus noise

80. Discussion The interactive bit – over to you ... Next steps? IMIA Social Media Working Group IMIA Social Media Working Group

81. For further contact: [email_address] [email_address] [email_address] [email_address] IMIA Social Media Working Group IMIA Social Media Working Group