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Electronic Data Methods Forum - Portable Consent 2.0

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john wilbanks
john wilbanks

Electronic Data Methods Forum - Portable Consent 2.0

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portable consent 2.0: “consent as code” ! EDM Forum 26 March 2014
requires multiple layers of data interoperability.
1. legal interoperability by blanket consent.
terms in blue pop up definitions
volunteer must click to proceed all boxes must be checked
user experience “breadcrumbs”
25
27
26
2. code is law. law is code.
templates for: genetic sequence clinical labs self-tracking EHR/PHR view model
“notwithstanding the foregoing”
collect syndicate use return
drag and drop language UX elements implementation guides
templates for: genetic sequence clinical labs self-tracking EHR/PHR view model controller?
controller?
3. interaction of controls on users with consent.
22memory triggers plain language action-based triggers legally binding documents
23 access to higher-level user powers after certification exams
rebalance the risks and rewards for digital distribution and reuse.
thank you. ! @wilbanks john.wilbanks@sagebase.org

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