Webinar presented February 29, 2009

1. Partnering with Your Doctor: A Workshop for Persons with Memory Problems and their Care Partners Presented by Mary Ann Johnson Program Director, Alzheimer's Association Greater Richmond

3. Partnership Model & Benefits Patient Care Partner Doctor

4. P lan for the visit A sk for a diagnosis R eport recent or sudden changes and other concerns T alk to the doctor about your role in the partnership N ame your community resources E ngage in the partnership to make sure you understand R estate and agree on a plan S chedule your next visit Strategies to be Successful PARTNERS

5. • Care Log • Medication Log • Appointment Log Strategy 1: Plan for the Visit Strategies to be Successful PARTNERS

6. • Changes in memory ability • Drastic mood changes • Unusual behavior • Health related changes (to: sleep, appetite, skin, hair…) • Health complaints of the patient Write in the Care Log

7. Sample Care Log John had a hard time sleeping tonight. He was pacing across the room for 2 hours. When I tried to get him to go back to bed, he started crying and seemed angry. 2:20 AM 2/02/02 John fell asleep in his chair while watching TV. When I tried to wake him after an hour, he became angry and pushed me away. He slept 3 hours. 1:15 PM 2/01/02 Changes in Health/Mood/Memory/ Behavior Time Date John Smith Name

8. • Prescription medications • Over-the-counter products • Vitamins • Herbal supplements • Dosages • Possible side effects • Special instructions Write in the Medication Log

9. Name _______John Smith_____________________________________ Prescriptions medications/ Over the Counter Products/ Vitamins/ Herbal Supplements Medication Log Sample Once per day with food Urinary Incontinence Blood Pressure 3/00 25 mg HCTZ Dr. Jones Once per day in the a.m. Dizziness Blood Pressure 3/00 20 mg Benazapril Dr. Jones Once per day with food Nausea Alzheimer’s Disease 5/01 10 mg Donepezil (Aricept) Dr. Jones Instructions Side Effects What is it for? Date Started Dosage Name of Medication Name of Prescribing Doctor Benadryl High Blood Pressure Alcohol Alzheimer’s Disease Penicillin Things to Avoid (food, drink, activities): Current Medical Conditions/Illnesses: Allergies:

10. • Date and time of your next appointment • Your three biggest concerns • Any questions you have for the doctor Write in Appointment Log

11. Appointment Date: ______ 06/29/03 Top 3 concerns: Appointment time: ____ 10:30 AM _____ 1. __ wandering at night Name of Patient _ John Smith _____ 2. __sleeping during the day Name of Doctor _ Dr. Peterson 3 . __too many pills Notes: ____John may not be sleeping well in the evening because of sleeping during the day and not getting enough daytime exercise. We will have to talk about sleeping pills if this continues. There are things we can do to our home to prevent wandering at night as well as enrolling in the Safe Return Program just in case John wanders away or gets lost. We need to call the Alzheimer’s Association for more information and referrals. To Do: No caffeine after noon Daytime exercise Enroll in a day program Enroll in Safe Return Program Look into making changes to our home (safety locks, alarms, etc.) Set a consistent wake-up time and a time to go to bed Monitor any changes and note them in the care log Next Appointment Scheduled for: 8/30/ 03 at_ 10:30 AM./p.m. Appointment Log Sample

12. Strategy 2: Ask for a Diagnosis Strategies to be Successful PARTNERS

13. Strategy 3: Report Recent and Sudden Changes and Other Concerns Strategies to be Successful PARTNERS

14. Strategy 4: Talk to the Doctor about Your Role in the Partnership Strategies to be Successful PARTNERS

15. Strategy 5: Name Your Community Resources Strategies to be Successful PARTNERS

16. 1. Information and Referral Help line 24/7 Website ( www.alz.org ) Newsletter 2. Care Consultation 3. Education Care Partner and Community Professional 4. Support Groups 5. Safe Return Resources: Alzheimer’s Association Alzheimer’s Association Toll-Free Number: 1-800-272-3900 Find local chapter: www.alz.org/apps/findus.asp The Alzheimer’s Association is the leading voluntary health organization in Alzheimer care, support and research. The mission of the organization is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected ; and to reduce the risk of dementia through the promotion of brain health .

17. 1. Information and access services 2. Community-based services 3. In-home services 4. Housing 5. Elder rights Resources : Area Agencies on Aging The fundamental mission of the AAAs is to provide services which make it possible for older individuals to remain in their home, thereby preserving their independence and dignity. These agencies coordinate and support a wide range of home- and community-based services, including information and referral, home-delivered and congregate meals, transportation, employment services, senior centers, adult day care and a long-term care ombudsman program. Eldercare Locator: www.n4a.org/locator/ 1.800.677.1116

18. Virginia Department for Aging www.vda.virginia.gov 1.800.552.3402 (toll free) Senior Navigator www.seniornavigator.com 1.866.393.0957 (toll free) Resources : Virginia-based

19. Strategy 6: Engage in the Partnership to Make Sure You Understand Strategies to be Successful PARTNERS

20. Strategy 7: Restate and Agree on a Plan Strategies to be Successful PARTNERS

21. Strategy 8: Schedule Your Next Visit Strategies to be Successful PARTNERS

22. Remember... PARTNERS Strategies Strategies for Successful Partnership STRATEGY 1: Plan your visit STRATEGY 6: Engage in the partnership to ensure you understand STRATEGY 2: Ask for a diagnosis STRATEGY 3: Report Recent and Sudden Changes and Other Concerns STRATEGY 5: Name your community resources STRATEGY 4: Talk to the doctor about your role in the partnership STRATEGY 7: Restate and agree on a plan STRATEGY 8: Schedule your next visit

23. 1-800-272-3900