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Improving
Transitions for
Young People
Fund
Background
•More and more young people are surviving into adulthood
and services have not kept pace.
•Not just health, all services need to think about these
young people and coordinate provision.
•Transition Taskforce has been working to address this
problem and supporting development of partnerships
through Regional Action Groups.
•Above all, it’s about supporting young people, their
families & services to move towards being young-person
centred.
“I was discharged from a paediatric
ward on one visit and my next
hospital admission was onto an
adult ward with five other elderly
dementia patients. I was suddenly
expected to make decisions alone,
when only weeks before my mum
had been at my side to support me
through any medical decisions I
needed to make.”
Lucy Watts, Young Avenger
Aim
To distribute a small number of awards for
innovative projects that have the potential to
transform the experience of young people with
life-limiting conditions, and their families, as they
prepare for and move on to adult services.
What do we mean by transition
What has been funded in
first round ?
• Martin House and St Leonards Hospice ,York
• Regular meetings at St Leonards, planned by young
people and facilitated by professionals
• Aims to build resilience, explore sense of identity, develop
social skills and address emotions
• Projects; beer making, photography, graphic design,
drama, mindfullness,
What has been funded
• Volunteering Matters
• Offering mentor support to YP to engage in skills
development,volunteering, social action and work
placements
Round 2
Improving Transitions for Young
People Fund Projects
Hospice lead (Children and Adult)
Lead organisation Project
Martin House Expanding Worlds
Series of sessions with young adult group delivered at St Leonard’s Hospice
for adult to encourage them to socialise, develop new skills and prepare for
adult life
St Oswalds Engaging GPs – Improving Outcomes
Pilot to develop and test systems which will enable GPs to confidently
provide support in their local communities
Ty Hafan Transition Hubs
To evaluate and roll out of a one-stop point of contact within an adult
setting to support young adults and offer benefit and legal advice
St Elizabeth Hospice Transforming transition experiences of young people in Suffolk
Pilot of a coordination role across CCG, CHC team, children and adult
hospice, hospital, neuromuscular service and community teams.
Improving Transitions for Young
People Fund Projects
Statutory lead
Lead organisation Project
Royal Devon & Exeter Hospital
Trust
Carousel Clinic – transferring young people with complex needs from a
consultant paediatrician to a consultant adult physician
Testing a multidisciplinary model to support transition and use of
specialised adult ward for acute admissions
Sunderland Royal Hospitals NHS
Trust
Teen matters: Transition: Each and Every Need Matters
Evaluation of care pathway and development of tools to support its
implementation
Improving Transitions for Young
People Fund Projects
Charity/national organisation lead
Lead organisation Project
NCB for the Council for Disabled
Children
The Expert Parent Programme
A tailored co-produced programme to support parents advocating for their
child at transition
Volunteering Matters Futures
Piloting the use of volunteers to support young adults into work
placements and work experience.
Royal College of General
Practitioners
Developing positive transitions into primary care
Development of e-learning module for GPs
Hospice UK for the Sexuality
Alliance
Talking about – sex and relationships: Young people speak out
Development of short videos by young people and accompanying
professional resource to support conversations about sex and relationships

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Professor Sir Alan Craft

  • 2. Background •More and more young people are surviving into adulthood and services have not kept pace. •Not just health, all services need to think about these young people and coordinate provision. •Transition Taskforce has been working to address this problem and supporting development of partnerships through Regional Action Groups. •Above all, it’s about supporting young people, their families & services to move towards being young-person centred.
  • 3. “I was discharged from a paediatric ward on one visit and my next hospital admission was onto an adult ward with five other elderly dementia patients. I was suddenly expected to make decisions alone, when only weeks before my mum had been at my side to support me through any medical decisions I needed to make.” Lucy Watts, Young Avenger
  • 4. Aim To distribute a small number of awards for innovative projects that have the potential to transform the experience of young people with life-limiting conditions, and their families, as they prepare for and move on to adult services.
  • 5. What do we mean by transition
  • 6. What has been funded in first round ? • Martin House and St Leonards Hospice ,York • Regular meetings at St Leonards, planned by young people and facilitated by professionals • Aims to build resilience, explore sense of identity, develop social skills and address emotions • Projects; beer making, photography, graphic design, drama, mindfullness,
  • 7. What has been funded • Volunteering Matters • Offering mentor support to YP to engage in skills development,volunteering, social action and work placements
  • 9. Improving Transitions for Young People Fund Projects Hospice lead (Children and Adult) Lead organisation Project Martin House Expanding Worlds Series of sessions with young adult group delivered at St Leonard’s Hospice for adult to encourage them to socialise, develop new skills and prepare for adult life St Oswalds Engaging GPs – Improving Outcomes Pilot to develop and test systems which will enable GPs to confidently provide support in their local communities Ty Hafan Transition Hubs To evaluate and roll out of a one-stop point of contact within an adult setting to support young adults and offer benefit and legal advice St Elizabeth Hospice Transforming transition experiences of young people in Suffolk Pilot of a coordination role across CCG, CHC team, children and adult hospice, hospital, neuromuscular service and community teams.
  • 10. Improving Transitions for Young People Fund Projects Statutory lead Lead organisation Project Royal Devon & Exeter Hospital Trust Carousel Clinic – transferring young people with complex needs from a consultant paediatrician to a consultant adult physician Testing a multidisciplinary model to support transition and use of specialised adult ward for acute admissions Sunderland Royal Hospitals NHS Trust Teen matters: Transition: Each and Every Need Matters Evaluation of care pathway and development of tools to support its implementation
  • 11. Improving Transitions for Young People Fund Projects Charity/national organisation lead Lead organisation Project NCB for the Council for Disabled Children The Expert Parent Programme A tailored co-produced programme to support parents advocating for their child at transition Volunteering Matters Futures Piloting the use of volunteers to support young adults into work placements and work experience. Royal College of General Practitioners Developing positive transitions into primary care Development of e-learning module for GPs Hospice UK for the Sexuality Alliance Talking about – sex and relationships: Young people speak out Development of short videos by young people and accompanying professional resource to support conversations about sex and relationships