2. Background
•More and more young people are surviving into adulthood
and services have not kept pace.
•Not just health, all services need to think about these
young people and coordinate provision.
•Transition Taskforce has been working to address this
problem and supporting development of partnerships
through Regional Action Groups.
•Above all, it’s about supporting young people, their
families & services to move towards being young-person
centred.
3. “I was discharged from a paediatric
ward on one visit and my next
hospital admission was onto an
adult ward with five other elderly
dementia patients. I was suddenly
expected to make decisions alone,
when only weeks before my mum
had been at my side to support me
through any medical decisions I
needed to make.”
Lucy Watts, Young Avenger
4. Aim
To distribute a small number of awards for
innovative projects that have the potential to
transform the experience of young people with
life-limiting conditions, and their families, as they
prepare for and move on to adult services.
6. What has been funded in
first round ?
• Martin House and St Leonards Hospice ,York
• Regular meetings at St Leonards, planned by young
people and facilitated by professionals
• Aims to build resilience, explore sense of identity, develop
social skills and address emotions
• Projects; beer making, photography, graphic design,
drama, mindfullness,
7. What has been funded
• Volunteering Matters
• Offering mentor support to YP to engage in skills
development,volunteering, social action and work
placements
9. Improving Transitions for Young
People Fund Projects
Hospice lead (Children and Adult)
Lead organisation Project
Martin House Expanding Worlds
Series of sessions with young adult group delivered at St Leonard’s Hospice
for adult to encourage them to socialise, develop new skills and prepare for
adult life
St Oswalds Engaging GPs – Improving Outcomes
Pilot to develop and test systems which will enable GPs to confidently
provide support in their local communities
Ty Hafan Transition Hubs
To evaluate and roll out of a one-stop point of contact within an adult
setting to support young adults and offer benefit and legal advice
St Elizabeth Hospice Transforming transition experiences of young people in Suffolk
Pilot of a coordination role across CCG, CHC team, children and adult
hospice, hospital, neuromuscular service and community teams.
10. Improving Transitions for Young
People Fund Projects
Statutory lead
Lead organisation Project
Royal Devon & Exeter Hospital
Trust
Carousel Clinic – transferring young people with complex needs from a
consultant paediatrician to a consultant adult physician
Testing a multidisciplinary model to support transition and use of
specialised adult ward for acute admissions
Sunderland Royal Hospitals NHS
Trust
Teen matters: Transition: Each and Every Need Matters
Evaluation of care pathway and development of tools to support its
implementation
11. Improving Transitions for Young
People Fund Projects
Charity/national organisation lead
Lead organisation Project
NCB for the Council for Disabled
Children
The Expert Parent Programme
A tailored co-produced programme to support parents advocating for their
child at transition
Volunteering Matters Futures
Piloting the use of volunteers to support young adults into work
placements and work experience.
Royal College of General
Practitioners
Developing positive transitions into primary care
Development of e-learning module for GPs
Hospice UK for the Sexuality
Alliance
Talking about – sex and relationships: Young people speak out
Development of short videos by young people and accompanying
professional resource to support conversations about sex and relationships