This document summarizes tips for managing pediatric arthritis during the winter holidays. It discusses common triggers for arthritis flares like infections, provides recommendations for preventing infections through vaccinations and avoiding indoor crowds, and offers lifestyle advice for travel, diet, exercise, and managing medications and insurance over the holidays. The goal is to help patients and families reduce arthritis flare risks and maintain healthy routines during the busy winter season.
2. 2
Who and Why?
What is a flare, and why do we care?
Infections and the holidays
Vaccines
Travel
Yummy holiday treats
Weather
Medications
R&R
Insurance
Questions
Agenda
3. Target Audience (you)
There are many pediatric rheumatologic conditions with arthritis
Juvenile Idiopathic Arthritis (JIA)
Several subtypes- oligoarticular, polyarticular, psoriatic, enthesitis
related, systemic
Systemic lupus erythematosus (SLE/lupus)
Juvenile Dermatomyositis (JDM)
Vasculitis
Periodic fever syndromes
Other chronic conditions
Thyroid conditions, IBD (Crohn’s, Ulcerative colitis), Celiac disease
3
4. What is a flare, and why do we care?
Flare = exacerbation of underlying condition
Can happen after long period of quiet disease activity
Often from a “trigger”-
Infection**
Stress
Poor medication compliance
Sun (JDM, SLE)
Can be mild to severe
4
5. Infections (there isn’t just Covid!)
Respiratory viral infections are common during winter months, especially in children and adolescents
Common viral illnesses during the winter- RSV, influenza(flu), enterovirus, parainfluenza, human metapneumovirus,
rhinovirus
Infections not only increase flare risk, but holding medications if ill can also increase the risk of flare
Easy strategies to avoid getting sick-
Good handwashing
Avoiding contact with those who are sick
Mask wearing
Vaccinate if possible (annual flu vaccine)
5
6. Covid-19
Mask up! (if you’re 2 or older)
Continue to social distance and stay 6 feet apart
Avoid large indoor gatherings if possible
Consider rapid Covid tests prior to gathering
Avoid poorly ventilated spaces
Hand hygiene
Vaccinate, vaccinate, vaccinate
6
https://www.cdc.gov/coronavirus/2019-ncov/index.html
7. Vaccinations
Annual influenza vaccine
Anyone 6 months and older
If on an immunosuppressant the injectable form is acceptable (inactivated)
Those on immunosuppressants should not get the intra-nasal form (live)
Contraindications (talk to your doctor first):
Severe, life-threatening allergic reaction to any ingredient in the flu vaccine
Severe allergic reaction to flu vaccine in the past
Egg allergies are ok, but if you are concerned, talk to your doctor first
Routine childhood vaccinations
Discuss with your child’s rheumatologist and pediatrician if live vaccines are due and your child is on an
immunosuppressant
7
8. Covid-19 Vaccination
Types
Pfizer: 2 dose, 12 years and older
Pfizer child vaccine: 2 dose, ages 5-11
Moderna: 2 dose, 18 years and older
Johnson & Johnson: 1 dose, 18 years and older
Contraindications
Severe allergic reaction (anaphylaxis) after a previous dose or to a
component the Covid vaccine
Immediate allergic reaction of any severity to a previous dose or known
(diagnosed) allergy to a component of the vaccine
Other than that- ok for everyone age eligible!
8
10. Traveling During the Holiday Season
Walking breaks during long car rides
Before flying:
Ensure you have enough refills for medications
Make sure you have rheumatologist’s contact info handy
Get letter from your child’s rheumatologist if he or she is on an injectable medication
Allows for sharps during air travel
Going somewhere warm and sunny?
Pack the sunscreen and hat!
Children with JDM or SLE can get disease flares that can be triggered by UV light exposure
SPF 30 or above
10
11. Yummy Holiday Treats: Friend or Foe?
No hard data on diet’s impact on pediatric autoimmune conditions (e.g. “anti-inflammatory diet”)
Combine a healthy diet with exercise, physical therapy, and medication for best outcomes
and avoidance of flares
Fruits, leafy greens
Foods rich in vitamin D and calcium
Plant based proteins
Beans
Nuts
Legumes
Fish and lean meats
Avoid or limit-
Foods high in sugar
Processed foods
11
12. Brrr It’s cold!
Fewer opportunities for exercise
Outdoor pools closed
Jogging, cycling, hiking difficult
Feeling lazy!
Joint stiffness can be exacerbated by limited movement
Light activity is always recommended
Low impact activities such as yoga, swimming, tai chi
Stationary bike
12
13. Other Important Issues to Consider
New year=new insurance
Avoid lapses in medication refills, infusions**, doctors visits
Clarify coverage before new year
Change in routine
Missed doses of medications
Set alarm reminders
Free time!
Use this free time to add modalities such as meditation and massage
to your child’s treatment regime
Use the time to connect virtually with other parents, families, or
patients
Arthritis Foundation: JA Connect Groups, JA Online Community
13
Include that you should always ask your primary rheum first for medical advice and that this is generalized info
Anyone with anyone of these would benefit from watching this talk
All conditions can have different types of flares, including arthritis as part of the flare
Mild= need to take an nsaid, severe-hospitalization, change in medication
Will talk about covid in a sec
These apply to those who are AND aren’t immunosuppressed as well as vaccinated AND unvaccinated. Generalization as guidelines are constantly changing. Vaccination= 2 weeks after 2nd dose or 2 weeks after j&j
Holding medications varies on several factors such as disease activity, type of medication, etc, and it should be discussed with your pediatric rheumtologist; may not need to do at all
If not immunocompromised: left two charts. If your child works in a high risk setting and is older than 18. Recommend same type of mrna if possible. J&J all 18 plus.
If immunocompromised: Depending on initial series, should get third dose of Pfizer (12 and older) or Moderna (18 and older) at least 28 days after 2nd dose.Not a booster but third dose.
Walking improves stiffness
Some of these may have anti inflammatory prorperies where as sugar and processed foods can ido the opposite. “Mediterranean diet”. Try to limit sweets during holidays.