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An unknown problem

An estimated 2 million girls
and women live with fistula
      worldwide. Each year
     there are an additional
       130,000 new cases.
 In other words: every four
minutes somewhere in the
      world a girl or woman
              gets a fistula.
 Sources: World Health Organization, 1998
          L. Lewis Wall, The Lancet, 2006




              I never heard of fistula
                    before I got one.
  I thought I was the only woman in
 the world leaking urine and faeces.
Now I know there are so many other
       girls and women with fistula!




                            photos: Mwanzo Millinga
70 percent of the girls
           and women in the
        ’Risk and Resilience’
     study got their fistula at
      the age of 20 or older.
          For many, this was
       not their first delivery.
 Source: Women’s Dignity, EngenderHealth,
                              et al., 2006




              Don’t think fistula is only
                a young girl’s problem.
I got fistula when I was 29 years old.
  I am 54 now, and am so happy I will
        finally get surgery and be dry.
The disgrace of fistula

The majority of the women
in the fistula study isolated
     themselves from other
      community members,
   remaining in their homes
  as much as possible and
 forgoing public events like
 funerals, celebrations and
         visiting neighbours.
Source: Women’s Dignity, EngenderHealth,
                             et. al., 2006




    “I feel shame. They laugh at me.
  They turn their lips up, and others
leave the moment I enter to take my
                      tea with them.”




                             photo: Mwanzo Millinga
Alone,
         but not neglected

 Although fistula makes it
     difficult for women to
participate actively in their
 community, they are not
        abandoned. All the
women in the fistula study
   received some form of
  help from their family or
                 community.
Source: Women’s Dignity, EngenderHeallth,
                             et. al., 2006




           My husband has paid for
  everything – the bus, the hospital,
  the medicines….He saved my life,
    but it will take him years to pay
                      back the loans.
Precious water

            One out of three
      Tanzanians report that
    their family did not have
   enough clean water over
                the past year.
             Source: Afrobarometer 2005




 “Imagine you have fistula. You have
  to walk six hours to get one bucket
   of water. Now, you have to decide
 how you are going to use the water
– for washing, drinking, bathing, and
             cooking, or for yourself.”
Being ready

           The majority of the
 women in the fistula study
     wanted to deliver their
       baby at a health care
        facility of some sort.
  However, fewer than half
 set aside money – ranging
      from USD 3.50 to 50.
 Preparing for delivery was
      difficult, due to lack of
    money and the hospital
          being too far away.
 Source: Women’s Dignity, EngenderHealth,
                              et. al., 2006




    I was prepared for my baby – I’d
saved some money, I knew where to
        go and my husband asked a
 neighbour to bring me there on his
     bicycle. All women in my village
         should have a plan like this.




                              photo: Mwanzo Millinga
photo: Sala Lewis

Theory vs. reality
According to the official guidelines of the Ministry of Health and Social
Welfare in Tanzania, antenatal care services should include: physical
examination from head to toe; check for blood count, blood pressure
and urine; screening for syphilis and HIV; provision of tetanus toxoid
vaccination; anti-malaria medicines and iron supplements; health
education, including information about pregnancy, labour and delivery.
However, reality is often different. For example, out of every ten of the
poorest women in Tanzania, only four have their blood checked during
antenatal care. For the wealthiest women, almost 9 out of 10 receive
this service.

                                                            If only I had been told that my blood pressure was
Sources: Ministry of Health (RNC/NMCP) JHPIEGO, 2004                             too high, I would have gone to
Demographic and Health Survey 2004/05                                                   the hospital for delivery.
Access to
            health services

       More than half of the
          poorest women in
Tanzania say they face big
    problems in accessing
  health care because the
facility is too far away and
           they need to take
     transport to get there.
 Source: Demographic and Health Survey
                              2004/05




 When my family realized I needed
   professional help, I had to walk
      four hours to the main road.
 There I waited for a bus, but only
one passed and it was already full.
Safe delivery
In Tanzania, one woman out of every 66 who give birth,
will die. In the USA, one woman out of 5,882 dies during
childbirth. A caesarean section can save the life of a
woman who has an obstructed labour.
In Tanzania, 65% of government hospitals provide
caesarean section, but no health centres or dispensaries
provide this life-saving service.
                                                                                                  The nearest hospital to my village is
Sources: World Development Report 2006                                                40 kilometers away. I can get to the local health
National Institute of Medical Research, Ministry of Health and Social Welfare, 2006          centre, but it cannot do operations at all.
Professional help

 In rural areas of Tanzania,
        there is usually one
  medical officer caring for
   45,000 people or more.
          In Ruvuma region,
there is just one doctor for
250,000 people. In Dar es
       Salaam there is one
 doctor for 14,700 people.

   In Germany there is one
   medical doctor for every
              280 people.
    Sources: Ministry of Health Personnel
                      Census 2002, draft
        World Development Report 2004




                          I was lucky.
I got to a hospital with a nurse and
a doctor who took good care of me.
 But I know women from my village
    who have died during childbirth
   because no one could help them.
photo: Dorthe Friis Pederson


How healthcare ranks
Tanzania spends $12 per person per year on health.
This compares to approximately $6,000 in USA, $3,100
in Australia, $70 in China, and $33 in India.




                                                               The maternity ward was packed with women –
                                                       on beds, on the floor, everywhere. There were only five
Source: World Development Report 2004                      nurses. I saw one woman deliver without any help.
photo: Dorthe Friis Pederson


Money well spent
Spending 8 percent of Tanzania’s annual health budget
on required delivery kits, skilled health workers, and
emergency obstetric care would ensure all pregnant
women a safer childbirth.



                                                                  What is more important – education, water,
Sources: UNFPA                                           infrastructure, or healthcare? The budget is limited
Tanzania budget estimates, 2006                              and we have to make choices. Difficult choices.
Less income, more expenses
Almost half of Tanzanians live on less than 1 dollar a day;
almost three quarters live on less than 2 dollar a day.
In poor families, everyone has to contribute to the
household income.


                                                                     “Our income has decreased because only my
                                                              husband is working. There are times when we don’t
                                                              have food. Washing daily is costly, you must buy the
Source: World Development Report 2006                          soap. This money could be used for other things.”
A costly service
Half of the poorest women in Tanzania say that getting
money for treatment is their single biggest obstacle while
seeking health care. Twenty five percent of the
wealthiest women also experience this problem.



                                                                      Money determines where one gives birth.
                                                             I didn’t have enough money to deliver in a health
Source: Demographic and Health Survey 2004/05                                  facility, so I delivered at home.
Unhealthy practices

    More than 60 percent of
     Tanzanians believe that
  the current government is
     fighting corruption well.
    At the same time, if you
    ask 7 Tanzanians if they
  paid some kind of bribe to
    get medicine or medical
         attention in the past
     12 months, one person
                will say ‘yes’.
              Sources: Afrobarometer 2005




     “The nurse at the facility told me,
 ‘If you don’t pay Tshs 15,000 (US$15)
you will never get a blood transfusion.
        If you have to die, better die.’ ”
photo: Dorthe Friis Pederson


The right to information
Widely disseminated messages about health rights –
including respectful treatment by health workers, and
mechanisms of complaint – can enable citizens to
demand their rights and hold government accountable.



                                                           Very few people are aware of their
                                                        health rights. It’s important that they
                                                            know, so they can demand them.
photo: Dorthe Friis Pederson


One man’s voice
Speaking out against bad health services is risky. You will
be remembered. But individual acts of courage can bring
change to thousands.




                                                                 How can the clinic staff deny
                                                                   a desperate young woman
                                                              transport for the sake of US$ 6?

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The Right to be Safe: Fistula, Maternal Health and Dignity in Tanzania

  • 1.
  • 2. An unknown problem An estimated 2 million girls and women live with fistula worldwide. Each year there are an additional 130,000 new cases. In other words: every four minutes somewhere in the world a girl or woman gets a fistula. Sources: World Health Organization, 1998 L. Lewis Wall, The Lancet, 2006 I never heard of fistula before I got one. I thought I was the only woman in the world leaking urine and faeces. Now I know there are so many other girls and women with fistula! photos: Mwanzo Millinga
  • 3. 70 percent of the girls and women in the ’Risk and Resilience’ study got their fistula at the age of 20 or older. For many, this was not their first delivery. Source: Women’s Dignity, EngenderHealth, et al., 2006 Don’t think fistula is only a young girl’s problem. I got fistula when I was 29 years old. I am 54 now, and am so happy I will finally get surgery and be dry.
  • 4. The disgrace of fistula The majority of the women in the fistula study isolated themselves from other community members, remaining in their homes as much as possible and forgoing public events like funerals, celebrations and visiting neighbours. Source: Women’s Dignity, EngenderHealth, et. al., 2006 “I feel shame. They laugh at me. They turn their lips up, and others leave the moment I enter to take my tea with them.” photo: Mwanzo Millinga
  • 5. Alone, but not neglected Although fistula makes it difficult for women to participate actively in their community, they are not abandoned. All the women in the fistula study received some form of help from their family or community. Source: Women’s Dignity, EngenderHeallth, et. al., 2006 My husband has paid for everything – the bus, the hospital, the medicines….He saved my life, but it will take him years to pay back the loans.
  • 6. Precious water One out of three Tanzanians report that their family did not have enough clean water over the past year. Source: Afrobarometer 2005 “Imagine you have fistula. You have to walk six hours to get one bucket of water. Now, you have to decide how you are going to use the water – for washing, drinking, bathing, and cooking, or for yourself.”
  • 7. Being ready The majority of the women in the fistula study wanted to deliver their baby at a health care facility of some sort. However, fewer than half set aside money – ranging from USD 3.50 to 50. Preparing for delivery was difficult, due to lack of money and the hospital being too far away. Source: Women’s Dignity, EngenderHealth, et. al., 2006 I was prepared for my baby – I’d saved some money, I knew where to go and my husband asked a neighbour to bring me there on his bicycle. All women in my village should have a plan like this. photo: Mwanzo Millinga
  • 8. photo: Sala Lewis Theory vs. reality According to the official guidelines of the Ministry of Health and Social Welfare in Tanzania, antenatal care services should include: physical examination from head to toe; check for blood count, blood pressure and urine; screening for syphilis and HIV; provision of tetanus toxoid vaccination; anti-malaria medicines and iron supplements; health education, including information about pregnancy, labour and delivery. However, reality is often different. For example, out of every ten of the poorest women in Tanzania, only four have their blood checked during antenatal care. For the wealthiest women, almost 9 out of 10 receive this service. If only I had been told that my blood pressure was Sources: Ministry of Health (RNC/NMCP) JHPIEGO, 2004 too high, I would have gone to Demographic and Health Survey 2004/05 the hospital for delivery.
  • 9. Access to health services More than half of the poorest women in Tanzania say they face big problems in accessing health care because the facility is too far away and they need to take transport to get there. Source: Demographic and Health Survey 2004/05 When my family realized I needed professional help, I had to walk four hours to the main road. There I waited for a bus, but only one passed and it was already full.
  • 10. Safe delivery In Tanzania, one woman out of every 66 who give birth, will die. In the USA, one woman out of 5,882 dies during childbirth. A caesarean section can save the life of a woman who has an obstructed labour. In Tanzania, 65% of government hospitals provide caesarean section, but no health centres or dispensaries provide this life-saving service. The nearest hospital to my village is Sources: World Development Report 2006 40 kilometers away. I can get to the local health National Institute of Medical Research, Ministry of Health and Social Welfare, 2006 centre, but it cannot do operations at all.
  • 11. Professional help In rural areas of Tanzania, there is usually one medical officer caring for 45,000 people or more. In Ruvuma region, there is just one doctor for 250,000 people. In Dar es Salaam there is one doctor for 14,700 people. In Germany there is one medical doctor for every 280 people. Sources: Ministry of Health Personnel Census 2002, draft World Development Report 2004 I was lucky. I got to a hospital with a nurse and a doctor who took good care of me. But I know women from my village who have died during childbirth because no one could help them.
  • 12. photo: Dorthe Friis Pederson How healthcare ranks Tanzania spends $12 per person per year on health. This compares to approximately $6,000 in USA, $3,100 in Australia, $70 in China, and $33 in India. The maternity ward was packed with women – on beds, on the floor, everywhere. There were only five Source: World Development Report 2004 nurses. I saw one woman deliver without any help.
  • 13. photo: Dorthe Friis Pederson Money well spent Spending 8 percent of Tanzania’s annual health budget on required delivery kits, skilled health workers, and emergency obstetric care would ensure all pregnant women a safer childbirth. What is more important – education, water, Sources: UNFPA infrastructure, or healthcare? The budget is limited Tanzania budget estimates, 2006 and we have to make choices. Difficult choices.
  • 14. Less income, more expenses Almost half of Tanzanians live on less than 1 dollar a day; almost three quarters live on less than 2 dollar a day. In poor families, everyone has to contribute to the household income. “Our income has decreased because only my husband is working. There are times when we don’t have food. Washing daily is costly, you must buy the Source: World Development Report 2006 soap. This money could be used for other things.”
  • 15. A costly service Half of the poorest women in Tanzania say that getting money for treatment is their single biggest obstacle while seeking health care. Twenty five percent of the wealthiest women also experience this problem. Money determines where one gives birth. I didn’t have enough money to deliver in a health Source: Demographic and Health Survey 2004/05 facility, so I delivered at home.
  • 16. Unhealthy practices More than 60 percent of Tanzanians believe that the current government is fighting corruption well. At the same time, if you ask 7 Tanzanians if they paid some kind of bribe to get medicine or medical attention in the past 12 months, one person will say ‘yes’. Sources: Afrobarometer 2005 “The nurse at the facility told me, ‘If you don’t pay Tshs 15,000 (US$15) you will never get a blood transfusion. If you have to die, better die.’ ”
  • 17. photo: Dorthe Friis Pederson The right to information Widely disseminated messages about health rights – including respectful treatment by health workers, and mechanisms of complaint – can enable citizens to demand their rights and hold government accountable. Very few people are aware of their health rights. It’s important that they know, so they can demand them.
  • 18. photo: Dorthe Friis Pederson One man’s voice Speaking out against bad health services is risky. You will be remembered. But individual acts of courage can bring change to thousands. How can the clinic staff deny a desperate young woman transport for the sake of US$ 6?