ROJoson PEP Talk: CANCER SURVIVORSHIP and National Cancer Survivors Day

1. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
June 3, 2023
1400H - 1500H
Via Zoom
Empowerment
objective - for
laypeople to have an
essential
understanding of
CANCER
SURVIVORSHIP in
their health
management.

2. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
June 3, 2023
1400H - 1500H
Via Zoom
Empowerment
objective - for
laypeople to have an
essential
understanding of
CANCER
SURVIVORSHIP in
their health
management.
Welcome all!
MUTE yourself but always
show your video picture.
Sign in your name, FB
account, or email address in
the Chat Box! Include names
of companions attending.
Use the Chat Box to ask
questions and make
comments while the PEP TALK
is on.
Group pictures at start and
end of PEP TALK – show your
face in video.

3. Reminder after the PEP
Talk:
Take the Online Learning
cum Evaluation Test
Exercise (OLETE) for
mastery of learning and
have a perfect score to get
a Certificate.
Link is in Chat Box.

4. Reminder:
50 OLETE Certificates = 1
Voucher for ROJoson
Telemedical Consultation

5. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Empowerment
objective - for
laypeople to have an
essential
understanding of
CANCER
SURVIVORSHIP in
their health
management.
ROJOSON’S REQUEST:
FEEDBACK TO THIS
PEP TALK!
Pls. type in your
feedback in the chat
box during the open
forum and before we
adjourn!
Thank you!

6. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Empowerment
objective - for
laypeople to have an
essential
understanding of
CANCER
SURVIVORSHIP in
their health
management.
LET’S NOW HAVE A
GROUP PICTURE
TAKING BEFORE WE
START PEP TALK
PROPER IN 2
MINUTES!
Pls. turn on your
video!
Show your face!

7. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Empowerment
objective - for
laypeople to have an
essential
understanding of
CANCER
SURVIVORSHIP in
their health
management.
ROJoson PEP Talk
I have a Patient
Empowerment
Program in which I
like to empower the
lay people or
patients to take
control in the
management of
their health.

8. I started the PEP Talk
on May 15, 2021.
There are 3 courses
in the PEP Talk.
I completed the Core
Course on October 9,
2021.

9. From October 23,
2021 onwards, I have
been tackling Health
Disorder and Health
Issue Courses. This
may take 3 years or
longer depending on
our enthusiasm and
perseverance.

10. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Empowerment
objective - for
laypeople to have an
essential
understanding of
CANCER
SURVIVORSHIP in
their health
management.
My PEP TALK today is
entitled:
CANCER
SURVIVORSHIP
and National
Cancer Survivors
Day
In consonance with
DOH Health Awareness
Calendar
- National Cancer
Survivors Day (First
Sunday of June)

11. Contents
• National Cancer Survivors Day in the
Philippines and Abroad – ROJoson Background
Story and Advocacy; Philosophy and Concept
• Cancer Survivor
• Cancer Survivorship
• Phases of Cancer Journey
• Common Experiences Among Cancer Survivors
• Need for Continuous Cancer Survivorship Care
• How to contribute to the cause / advocacy of
cancer survivorship
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

12. National Cancer Survivors Day in the Philippines
I became aware of the presence of National
Cancer Survivors Day in the Philippines only this
year (2023) when I was looking at the DOH
Health Calendar to guide me in preparing for my
ROJoson PEP Talk during the year.
I was happy to see the inclusion of National
Cancer Survivors Day in the DOH Health
Calendar. I tried to trace when DOH started
having this in its Calendar. I just found records in
2022. Thus, it seems it just started in 2022.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
ROJoson Backgrounder

13. ROJoson Proposal for National Cancer Survivors
Day in the Philippines
Since 2014, every April 9 in the Philippines, on
my own, I have been commemorating April 9 as
the Araw ng Kagitingan, Day of Valor as well
as CANCER SURVIVORS DAY – to commemorate
the bravery of cancer survivors as well as those
of the soldiers who fought in Bataan for the
independence of the Philippines.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Note: DOH started
celebrating National
Cancer Survivor Day
only in 2022
vs 2014 (ROJoson).
ROJoson Backgrounder

14. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
I have this picture in
my blogs
commemorating
April 9 as the Araw
ng Kagitingan, Day of
Valor as well
as CANCER
SURVIVORS DAY.

15. ROJoson Proposal for National Cancer Survivors Day in the Philippines
In April 9, 2014, I was proposing that April 9 should also be considered
as National Cancer Survivors Day in the Philippines.
I was thinking: April 9 is Araw ng Kagitingan or Day of Valor
commemorating the bravery of the soldiers. For sure, there is bravery
in my cancer survivors and in other cancer survivors.
I was asking myself: Why not use April 9 to commemorate the bravery
of cancer survivors as well, that is, if there is no official date for such
purpose?
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

16. ROJoson Proposal for National Cancer Survivors
Day in the Philippines
I searched the Internet for information that
would answer my queries and that would bolster
my idea.
There has been no “Cancer Survivors Day” or a
day that commemorates the cancer survivors in
the DOH Calendar. (until lately – 2023 / 2022)
[am happy when I learned this.]
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

17. ROJoson Proposal for National Cancer Survivors
Day in the Philippines
BUT……………………………………………
There is a National Cancer Survivors Day in the
United States being celebrated every first Sunday
of June. It started in 1988. It was established
and being maintained by the National Cancer
Survivors Foundation, Inc., a non-profit
organization. (http://www.ncsd.org/) Though it
is mainly celebrated in the United States, the
National Cancer Survivors Day Foundation is
attempting to grow its popularity in other
countries.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

18. ROJoson Projects on Cancer Survivors and Cancer
Survivorship
ON MY OWN ………………………………………
I have 3 activities or projects:
• Every first Sunday of December (through the
ROJoson Cancer Crusaders Club Annual
Christmas Get-Together since 1988)
• My Cancer Survivors Registry (through
tracking, updating, and online publishing since
2011).
• Every April 9 commemorating Cancer
Survivors Day (through online media at the
very least, since 2014)
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Started in 1988

19. National Cancer Survivors Day Abroad and at Present
National Cancer Survivors Day is an annual, treasured
CELEBRATION OF LIFE that is held in a lot of countries.
It is a CELEBRATION for those who have survived, an
INSPIRATION for those recently diagnosed, a gathering of
SUPPORT for families, and an OUTREACH to the community.
Participants unite in a symbolic event to show the world that
life after a cancer diagnosis can be meaningful, productive, and
even inspiring.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

20. National Cancer Survivors Day Abroad and at Present
“Cancer survivors face ongoing, often long-lasting, hardships because of
their disease. These include long-term physical and emotional side
effects, increased risk for second primary cancers and other health
problems, and potentially devastating financial setbacks.
On National Cancer Survivors Day, we want to raise awareness of these
challenges of cancer survivorship.
NCSD is a celebration, but it’s more than that. It is also a call to action
for further research, more resources, and increased public awareness to
improve the lives of cancer survivors.”
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

21. National Cancer Survivors Day in the Philippines
Should have the same philosophy and concept as that abroad.
It should be a CELEBRATION for those cancer patients who have survived,
an INSPIRATION for those recently diagnosed, a gathering of SUPPORT for
families, and an OUTREACH to the community.
It should increase public awareness to IMPROVE THE LIVES of cancer
survivors through a well-defined CANCER SURVIVORSHIP PROGRAM
knowing that cancer survivors face ongoing, often long-lasting, hardships
because of their disease. These include long-term physical and emotional
side effects, increased risk for second primary cancers and other health
problems, and potentially devastating financial setbacks.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

22. Cancer Survivor
So many definitions:
- “any person diagnosed with cancer, from the
time of initial diagnosis until his or her death”
- patients who have completed their cancer
treatment and now living through and beyond
their cancers
- surviving – thriving - navigating their life
experiences and challenges resulting from
their cancer diagnosis.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Cancer survivor –
stage where chances
of recurrence are low
(based on track
records of specific
cancers).
In general, use 10
years.

23. Cancer Survivor
The phrase cancer survivor can mean different
things to different people.
Starting point is a cancer diagnosis.
Afterwards, it includes people who have no signs
of cancer after finishing treatment, people
receiving extended treatment over a longer
period of time to control the cancer or reduce
risk of its return, people with advanced cancer
and people with recurrence.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

24. Cancer Survivor
Not everyone who has or has had cancer uses
the word survivor.
For some people, this term doesn't feel right.
They may feel more comfortable defining
themselves as a "person who has had cancer",
"a person living with cancer," or another way.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

25. Cancer Survivorship
“Cancer survivorship" usually refers to people or
patients navigating their life experiences and
challenges resulting from their cancer diagnosis.
It focuses on the health and well-being of a
person with cancer from the time of diagnosis
until the end of life. This includes the physical,
mental, emotional, social, and financial effects
of cancer that begin at diagnosis and continue
through treatment and beyond.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Cancer Journey

26. Dr. Mullan identified four “Seasons of Survival”:
1. Acute survivorship
2. Transitional survivorship
3. Extended survivorship
4. Permanent survivorship
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Cancer Journey

27. Dr. Mullan identified four “Seasons of Survival”:
1. Acute survivorship, including the time of
diagnosis (shock) and treatment.
2. Transitional survivorship, when treatment has
ended, but survivors may still feel anxious,
depressed, and isolated as they engage in
‘watchful waiting’ to see if cancer will return.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Cancer Journey

28. Dr. Mullan identified four “Seasons of Survival”:
3. Extended survivorship, which comes in three
forms:
• cancer-free (treatment-free remission)
• maintained remission (staying cancer-free due
to ongoing therapy)
• living with cancer (as a chronic, advanced
disease that requires continued treatment)
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Cancer Journey

29. Dr. Mullan identified four “Seasons of Survival”:
4. Permanent survivorship, which has four
subgroups, including survivors who
• are cancer-free and asymptomatic
• are cancer free but with long-term/late
problems (such as fatigue or depression)
• develop second cancers (unrelated to earlier
treatment)
• have secondary cancers (related to earlier
treatment)
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Cancer Journey

30. Cancer Journey Phases - ROJoson
• PHASE OF DIAGNOSIS
• PHASE OF TREATMENT (DURING, RIGHT
AND/OR SOON AFTER TREATMENT)
• PHASE AFTER TREATMENT (IN REMISSION)
• PHASE WHEN THERE IS RECURRENCE OF
CANCER
• PHASE DURING NEAR-END-OF-LIFE
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Cancer Journey

31. Common Experiences Among Cancer Survivors
Bottomline:
Cancer survivors face ongoing, often long-
lasting, hardships because of their cancer
diagnosis.
These include long-term physical and emotional
side effects, increased risk for second primary
cancers and other health problems, and
potentially devastating financial setbacks.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Cancer Journey
Need for
Continuous Cancer
Survivorship Care
• Fear of death /
recurrences
• Anxiety over
• physical
image
• physical /
social
functioning
• expenses

32. Cancer Survivorship Care
Is essentially assisting persons with cancers on
how to live a life with cancer.
how to live or continue to live a functional and
meaningful earthly life after a cancer diagnosis.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

33. Cancer Survivorship Care
• Medical care during cancer treatment in the
acute phase, recovery phase, rehabilitative
phase, recurrence phase, near-end-of life
phase.
• Patient-empowered self-care during the
cancer journey.
• Supportive care given by relatives and friends
to patients with cancer throughout their
journey.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Multi-partnership
care
Medical care +
patient-empowered
self-care
Medical care +
patient-empowered
self-care + caregivers

34. Cancer Survivorship Medical Care
ROJoson Tips:
• Have one holistic coordinator or oncologist
(who is not biased with his subspecialty) and
who is well-rounded and who is
compassionate and who can take care of
cancer patients all the way up to near-end or
end-of life.
• Keep all the medical records – important in
medical management.
• Be empowered as a patient.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

35. Cancer Survivorship Care
ROJoson Advice on Living with Cancer
• Acceptance of the cancer diagnosis
• Intentional living plan in the light of cancer
diagnosis
• Trust in a competent and compassionate
physician
• Spiritual trust
• Support from loved ones and significant
others
• Cancer journey sharing
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

36. How to contribute to the cause / advocacy of
cancer survivorship
• As a layperson
• As a health professional
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

37. How to contribute to the cause / advocacy of cancer
survivorship
AS A LAYPERSON
Be an ADVOCATE. Educate your community of people
(relatives, friends, work colleagues, etc.).
Provide COMPASSIONATE ASSISTANCE to cancer patients
(you know and you don’t know) in whatever way you can:
• Educational support (patient –empowerment on cancer
issues)
• Moral support
• Financial support
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Understand
CANCER
SURVIVORSHIP
processes.

38. How to contribute to the cause / advocacy of
cancer survivorship
AS A LAYPERSON (if you have cancer)
CONNECT with other cancer patients like you to
provide SUPPORT to them as well as mutual
support.
Share your SURVIVORSHIP STORY.
By sharing your story — be it a personal mantra
or other words of encouragement — you can
help other people feel less alone as they
navigate their cancer diagnosis.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

39. How to contribute to the cause / advocacy of
cancer survivorship
AS A HEALTH PROFESSIONAL
Be an ADVOCATE. Educate the public.
Provide COMPASSIONATE ASSISTANCE to cancer
patients in whatever way you can:
• Educational support
• Moral support
• Financial support
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Understand CANCER
SURVIVORSHIP
processes.

40. How to contribute to the cause / advocacy of
cancer survivorship
AS A HEALTH PROFESSIONAL (EXAMPLE:
ROJOSON)
Form or encourage CANCER SUPPORT GROUP
(such as the Cancer Crusaders Club).
Encourage patients to share their CANCER
JOURNEY.
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

41. ROJoson Projects on Cancer Survivorship
• On a daily basis, provide compassionate humanitarian
services to cancer patients who consult me.
• April 9 (through online media at the very least, since
2014) [starting 2023 – it will now be in June – National
Cancer Survivors Day]
• First Sunday of December (through the ROJoson Cancer
Crusaders Club Annual Christmas Get-Together since
1988)
• My Cancer Survivors Registry (through tracking,
updating, and online publishing since 2011).
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

42. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
The primary objective of
the Cancer Crusaders Club
meetings:
PSYCHOSOCIAL SUPPORT
AND THERAPY

43. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
The annual year-end
meetings of the Cancer
Crusaders Club are
traditionally being held on
the first Sundays of
December.

44. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

45. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

46. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

47. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

48. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

49. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Cancer Survivor Registry
In Google Sites
In Wordpress.Com
In Facebook
To give inspirations to cancer patients!
As of May 2, 2023, I have a registry of 168 cancer
survivors who have been in remission for 10 or
more years under my care.

50. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Cancer Survivor Registry
In Google Sites
In Wordpress.Com
In Facebook
To give inspirations to cancer patients!
As of May 2, 2023, I have a registry of 168 cancer
survivors who have been in remission for 10 or
more years under my care.

51. Contents
• National Cancer Survivors Day in the
Philippines and Abroad – ROJoson Background
Story and Advocacy; Philosophy and Concept
• Cancer Survivor
• Cancer Survivorship
• Phases of Cancer Journey
• Common Experiences Among Cancer Survivors
• Need for Continuous Cancer Survivorship Care
• How to contribute to the cause / advocacy of
cancer survivorship
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Summary
Take Away

52. Be always in touch with reliable medical
information on CANCER SURVIVORSHIP!
Knowledge is power; it gives power.
Use the 4Ks of Patient Empowerment:
Kaalaman, Kakayanan, Karapatan and
Kapangyarihan
to gain greater control over decisions /
make better decisions in CANCER
SURVIVORSHIP issues in one’s health
management.
Take Away in
relation to
Patient
Empowerment
CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day

53. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Empowerment
objective - for
laypeople to have an
essential
understanding of
CANCER
SURVIVORSHIP in
their health
management.

54. Reminder after the PEP
Talk:
Take the Online Learning
cum Evaluation Test
Exercise (OLETE) for
mastery of learning and
have a perfect score to get
a Certificate.
Link is in Chat Box.

55. Reminder:
50 OLETE Certificates = 1
Voucher for ROJoson
Telemedical Consultation

56. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Empowerment
objective - for
laypeople to have an
essential
understanding of
CANCER
SURVIVORSHIP in
their health
management.
ROJOSON’S REQUEST:
FEEDBACK TO THIS
PEP TALK!
Pls. type in your
feedback in the chat
box during the open
forum and before we
adjourn!
Thank you!

57. CANCER
SURVIVORSHIP
and
National
Cancer
Survivors Day
Empowerment
objective - for
laypeople to have an
essential
understanding of
CANCER
SURVIVORSHIP in
their health
management.
LET’S NOW HAVE A
GROUP PICTURE
TAKING BEFORE WE
START Q&A AND
INTERACTIONS!
Pls. turn on your
video!
Show your face!