ROJoson PEP Talk: CANCER JOURNEY SHARING

1. Empowerment
objective - for
laypeople to have an
understanding of
the importance of
CANCER JOURNEY
SHARING in health
management.
November 26, 2022
1400H - 1500H
Via Zoom
Cancer
Journey
Sharing

2. Empowerment
objective - for
laypeople to have an
understanding of
the importance of
CANCER JOURNEY
SHARING in health
management.
Cancer
Journey
Sharing
ROJoson PEP Talk
I have a Patient
Empowerment
Program in which I
like to empower the
lay people or
patients to take
control in the
management of
their health.

3. There are 3 courses
in the PEP Talk.
I completed the Core
Course on October 9,
2021.

4. From October 23,
2021 onwards, I have
been tackling Health
Disorder and Health
Issue Courses. This
may take 3 years or
longer.

5. Empowerment
objective - for
laypeople to have an
understanding of
the importance of
CANCER JOURNEY
SHARING in health
management.
Cancer
Journey
Sharing
My PEP TALK today
is entitled:
CANCER
JOURNEY
SHARING.

6. Contents of PEP Talk:
• What is a Cancer Journey Sharing?
• What are the benefits that can be derived
from Cancer Journey Sharing?
• When to do a Cancer Journey Sharing?
• To whom to share the cancer journey?
• What are the media that can be used to share
the cancer journey?
• What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
• What are some tips on Cancer Journey
Sharing?
Cancer
Journey
Sharing
Why do CANCER
JOURNEY
SHARING?

7. • What is a Cancer Journey Sharing?
Cancer
Journey
Sharing

8. • What is a Cancer Journey Sharing?
Cancer
Journey
Sharing
Sharing will be operationally defined as
voluntarily disclosing or revealing information by
a person to a third party.
The opposite term is holding back.

9. • What is a Cancer Journey Sharing?
Cancer
Journey
Sharing
Cancer Journey will be operationally defined as
the life lived by a person with a cancer from
diagnosis to treatment to until the current phase,
in remission, with recurrence, or has died.

10. • What is a Cancer Journey Sharing?
Cancer
Journey
Sharing
Cancer Journey Sharing, therefore, is
voluntarily disclosing or revealing
information by a person on his life
with cancer to a third party.

11. • What are the benefits that can be derived
from Cancer Journey Sharing?
Cancer
Journey
Sharing

12. • What are the benefits that can be derived
from Cancer Journey Sharing?
Cancer
Journey
Sharing
For the cancer patients doing a Cancer Journey
Sharing, the deed
 Shows or promotes acceptance of the cancer
diagnosis. Acceptance is the most effective
coping tactic for the psychological distresses of
cancer patients. Thus, it is therapeutic.

13. • What are the benefits that can be derived
from Cancer Journey Sharing?
Cancer
Journey
Sharing
For the cancer patients doing a Cancer Journey Sharing, the
deed
 Raises awareness about cancer, its treatment,
prognosis, psychological distresses, etc. not only to
the sharer herself or himself but also to other
people, particularly those living a life with cancer.
Thus, it is therapeutic for the sharer herself or himself
as it raises awareness from within (empowerment) and
it makes the sharer feels good to be able to reach out to
be of help to other cancer patients (also therapeutic at
the same time doing a social responsibility).

14. • When to do a Cancer Journey Sharing?
Cancer
Journey
Sharing

15. • When to do a Cancer Journey Sharing?
Cancer
Journey
Sharing
When a cancer patient has achieved a level of
psychological comfort to share.
Cancer Journey Sharing is voluntary.
Nobody will be forced.
Do it only when you are ready but have the
benefits in mind, particularly on its therapeutic
effect.

16. • To whom to share the cancer journey?
Cancer
Journey
Sharing

17. • To whom to share the cancer journey?
Cancer
Journey
Sharing
Depending on the level of psychological comfort,
to individual/s or group/s third party.
• To your relatives.
• To your friends.
• To a public group (including cancer support
groups).
Either face-to-face sharing or online sharing or
both.

18. • What are the media that can be used to share
the cancer journey?
Cancer
Journey
Sharing

19. • What are the media that can be used to share
the cancer journey?
Cancer
Journey
Sharing
• Through oral (spoken words or conversations)
or written.
• Through video messages (mainly oral or at
times, written messages).
• Through audio messages (oral messages).
• Through printed messages (books, pamphlets,
blogs in the Internet, social media).
Again, depending on the level of psychological
comfort of sharer.

20. • What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
Cancer
Journey
Sharing

21. • What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
Cancer
Journey
Sharing

22. • What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
Cancer
Journey
Sharing General Instructions to Sharer:
Cancer Journey Sharing is essentially a storytelling of
experiences encountered from the time of recognition of
possible cancer to diagnosis, treatment, and after
treatment.
There is something cathartic about telling the story and
being heard. Going through the details of when something
happened, who was there, how we felt at that time and
how we feel now reminds us of how far we’ve come — and
how far we can still go!

23. • What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
Cancer
Journey
Sharing General Instructions to Sharer:
Your Cancer Journey Sharing will also be useful in
inspiring other cancer patients to emulate your
response management to a cancer diagnosis and
treatment.

24. • What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
Cancer
Journey
Sharing Content Guides:
• Name
• Age
• What is your cancer diagnosis?
• What major treatment did you undergo?

25. • What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
Cancer
Journey
Sharing Reflection and Narration (Pls. include the
following in your Sharing):
What psychological distress experienced
What coping mechanism used and what
happened
Lessons learned
Advice to other patients in a similar
category of journey

26. • What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
Cancer
Journey
Sharing More detailed guides in reflection and narration:
1. During your entire cancer journey, from the time you felt
a symptom that made you suspect possible cancer which
eventually turned out to be really cancer up to now (after
treatment and in remission), did you go into depression?
Or just anxiety? If depression, how severe was it (worst
ever, severe, moderate, mild)? If anxiety, how severe was
it (worst ever, severe, moderate, mild)? Pls. describe what
you felt. Make sure to differentiate depression from
anxiety.

27. • What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
Cancer
Journey
Sharing More detailed guides in reflection and narration:
2: How did you cope with the depression? Or the
anxiety, if you did not have depression?
3: Up to now, do you still have recurring
depression or anxiety? If yes, how often? How
are you coping with it?
4: What are your advice to other cancer patients
on controlling depression or anxiety, secondary
to cancer or any other cause?

28. • What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
Cancer
Journey
Sharing Limit your Cancer Journey Sharing to not more
than 10 minutes or 1000 words.
You can share in English, Tagalog or Taglish.

29. • What are some tips on Cancer Journey
Sharing?
Cancer
Journey
Sharing

30. • What are some tips on Cancer Journey
Sharing?
Cancer
Journey
Sharing
BE OPEN
Where to start? Focus on your diagnosis, how it
changed your life and what you think others
facing cancer should know.
Recall any activities in course of your treatment
and thereafter that have impacted your journey.

31. • What are some tips on Cancer Journey
Sharing?
Cancer
Journey
Sharing
BE REAL
This is an opportunity for you to share your story
with a community (people with and without
cancer) that understands your triumphs and your
struggles.
While it can be difficult to get personal, these
details are what make your story unique.

32. • What are some tips on Cancer Journey
Sharing?
Cancer
Journey
Sharing
BE CONCISE
While every detail of your story is important, we
suggest keeping it brief yet concise. Less than
1000 words or less than 10 minutes as much as
possible.

33. • Why do Cancer Journey Sharing?
Cancer
Journey
Sharing

34. • Why do Cancer Journey Sharing?
Cancer
Journey
Sharing
Patients with cancer will experience various
degrees of depression and anxiety in their cancer
journey.
One of the coping mechanisms in controlling
depression and anxiety is to know and accept
that this negative effect happens to practically all
cancer patients.
It is normal to have depression and
anxiety. What is left is how to control them.

35. • Why do Cancer Journey Sharing?
Cancer
Journey
Sharing
A good control strategy is to listen to the
experiences of cancer patients and to learn from
them.
Another good control strategy is to do cancer
journey sharing.

36. • Why do Cancer Journey Sharing?
Cancer
Journey
Sharing
Having the courage to speak up and share your
story with others who are going through a similar
experience can help you to improve your own
well-being.

37. • Why do Cancer Journey Sharing?
Cancer
Journey
Sharing
Opening up to others can be hard, but many
patients with cancer find solace and unexpected
benefits by sharing their stories. Although some
people may hesitate to reveal such a personal
and vulnerable part of their life at first, those
who have summoned the courage to speak up
and reach out to others who have a similar
condition gave themselves the opportunity to
achieve a transformation in their overall well-
being.

38. • Why do Cancer Journey Sharing?
Cancer
Journey
Sharing
In Cancer Journey Sharing, your story can have an
enormous impact.
It can provide hope and inspiration to someone
who’s recently been diagnosed with cancer or a
patient undergoing therapy.
By sharing your story, others will find comfort
and encouragement.

39. • Why do Cancer Journey Sharing?
Cancer
Journey
Sharing
When patients with cancer share their story, it
often reminds them that there are others who
are going through a similar experience.
It promotes connection with other people who
have cancer, and uplifts the sharer and the
listener.

40. • Why do Cancer Journey Sharing?
Cancer
Journey
Sharing
There’s a saying that goes,
“Gaining knowledge is the first step to wisdom,
sharing it is the first step to humanity.”

41. • Why do Cancer Journey Sharing?
Cancer
Journey
Sharing
When patients with cancer speak up about their
experiences, they are affecting themselves, as
well as other patients, their family and friends,
and every person who comes across their stories.
They provide a better understanding of how
cancer affects one’s life, promoting empathy, as
well as inspiration and motivation for
overcoming any ordeal.

42. • Why do Cancer Journey Sharing?
Cancer
Journey
Sharing
The sense of belongingness and camaraderie
gives us hope and strength to outlast the
toughest challenge, no matter what that may be.
https://conquer-magazine.com/web-
exclusives/735-how-sharing-your-cancer-story-
can-have-a-positive-impact

43. Example of Cancer Journey Sharing
Cancer
Journey
Sharing Link:
Cancer Journal Sharing – ROJoson Cancer
Crusaders Club
https://sites.google.com/view/cancerjourneysha
ringrojosonccc

44. Example of Cancer Journey Sharing
Cancer
Journey
Sharing

45. Contents of PEP Talk:
• What is a Cancer Journey Sharing?
• What are the benefits that can be derived
from Cancer Journey Sharing?
• When to do a Cancer Journey Sharing?
• To whom to share the cancer journey?
• What are the media that can be used to share
the cancer journey?
• What should be the contents of Cancer
Journey Sharing? (Sharing Process – ROJoson’s
Template)
• What are some tips on Cancer Journey
Sharing?
Cancer
Journey
Sharing
Why do CANCER
JOURNEY
SHARING?
Summary
Take Away

46. Cancer
Journey
Sharing
Take Away in
relation to
Patient
Empowerment
Be always in touch with reliable medical
information on CANCER JOURNEY SHARING.
Knowledge is power; it gives power.
Use the 4Ks of Patient Empowerment:
Kaalaman, Kakayanan, Karapatan and
Kapangyarihan
to gain greater control over decisions in
determining when to do CANCER
JOURNEY SHARING.

47. Empowerment
objective - for
laypeople to have an
understanding of
the importance of
CANCER JOURNEY
SHARING in health
management.
Cancer
Journey
Sharing