This is the true story as to how MyMedicalFile (C) came into being. It is a story that involves my father, Michael Quigley, Steve Jobs , the founder of Apple and my mother-in-law.
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Let Me Tell You A Story .......
1. Let me tell you a storyâŠâŠâŠ.
Managing the medical treatment of yourself or a loved one can be a very complex
undertaking. It can be mentally demanding, and emotionally stressful.
The story of the development of MyMedeicalFile involves three people. My father
Michael Quigley, Steve Jobs, the founder of Apple and my mother-in-law.
1. My Father, diagnosed with skin cancer.
Around 2003 my father was diagnosed with skin cancer on the right side of his
face just below his cheek bone.
He served in the British army in North Africa during the Second World War.
He reckoned that long sentry service standing in the baking African sun, while
guarding a soldier who had been sentenced to death for shooting a sergeant in a fit
of rage, had caused the damage to his skin.
Dad was granted free cancer treatment in the Dublin cancer treatment centre as he
was an old age pensioner. The treatment involved radiation therapy. My sister and
I were looking after my father and I agreed to go with him to his initial
consultation at the cancer centre.
When we arrived, after some initial paperwork, we were ushered in to see the
consultant managing Dadâs treatment. After settling my father down in a
comfortable seat the following conversation took place, no word of a lie:
Consultant: âNow Mr. Quigley you are here today to commence radiation
treatment for skin cancer on the right side of your face, is that correct?â
Dad: âYes doctorâ, said my father in a hushed solemn tone.
Consultantâ âMr. Quigley do you suffer from any other medical ailment
other than skin cancerâ.
My father looked at me in disbelief and I looked at him, stunned, but we both said
nothing.
2. Dad: âWell doctor I am blind in one eye and deaf in one ear and I had an
aneurism which required a major operation. There were complications during that
procedure and I ended up needing a colostomy bagâ.
Consultant: Aghast, âOh Mr. Quigley you are blind in one eye, deaf in one
ear and have skin cancer, an aneurism and have a colostomy bagâ.
Dad: âYes doctorâ.
Consultant: âMr. Quigley thatâs very interesting. Do you mind if I bring in
some of my colleagues to sit in on this matter, as I think they will greatly benefit,
training wise, from your caseâ.
Dad: âNo not at all doctorâ, replied Dad.
The consultant immediately left the room and rounded up whatever trainee doctors
and nurses were about and ushered them into the room. He gave the assembled
group a quick summary of what was going on, and continued his interrogation of
Dad.
Consultant: âNow Mr. Quigley, in addition to being half blind and deaf,
having skin cancer, an aneurism and a colostomy bag, do you have any other
medical ailments?â
Dad: âYesâ replied dad, âI am an MRSA carrier but I do not suffer from itâ.
Consultant: âOhâ, said the consultant in increasing disbelief, âYou are an
MRSA carrier. Really and is that it Mr. Quigley, I mean to say is that the extent of
your ailmentsâ?
Dad: âNo, no I also have diabetes, Doctor, type 2 in fact.â
At this stage the consultantâs mouth dropped.
Consultant: âMr. Quigley âŠ.. youâŠ.. have âŠâŠ. diabetes?â
Dad: âYesâ said dad, âtype 2, in factâ.
Consultant: âType 2, and anything else Mr. Quigley?â queried the consultant
who at this stage spoke in whispers, barely able to contain his astonishment and
admiration at dadâs stoicism.
3. Dad: âWell I have an expanded heart as a result of the delayed aneurism
operation and corresponding high blood pressureâ.
At this stage there was a distinct pause in the room. The consultant looked to the
assembled doctors and nurses and they all stared at dad in wonderment.
Consultant: âSo Mr. Quigley, to summarise, you are blind in one eye, deaf in
one ear, you have skin cancer, an aneurism, a colostomy bag, are a MRSA carrier,
have an expanded heart and high blood pressure, and diabetes, type 2. Is that it?â
said the perplexed consultant as he prepared to close his written file.
Dad: âWell no, sirâ replied my father âI have mild leukaemiaâ.
Consultant: âWhatâ said the consultant, who at this stage found himself a
seat to sit down directly beside my father. âLet me get this clear Mr. Quigleyâ he
blurted. âYou are blind in one eye, deaf in one ear, have skin cancer, an aneurism,
a colostomy bag, are a MRSA carrier, and expanded heart, high blood pressure,
diabetes, type 2 âŠâŠand mild leukaemia. Surely that is it Mr. Quigley?â
Dad sat back and thought for a moment and gently moved forward in his seat, eye-
balling the consultant.
Dad: âWhat sort of food do you serve here? Do you have a printed weekly
menuâ,
Consultantâ âWhat?â whinged the consultant in exasperation. âWhat do you
mean Mr. Quigleyâ.
Dad: âSir, respectfully I have to ask you what type of food do you serve
here, do you have a weekly printed menuâ.
Consultant: âWhy do you ask Mr. Quigley, What bearing has it on your
cancer treatment?â he queried.
Dad; â Wellâ, said my father âyou asked if there was anything else wrong
with me and in truth I think I should mention that I am allergic to chickenâ.
Well at that stage the whole room comprising of patient, son, consultant, doctors
and nurses collapsed into guffaws of laughter.
4. When the laughter had subsided the consultant took up his file and scratched
something onto the front of the file and said in awe and wonder to my father. âMr.
Quigley you are going to be the most complex case we have ever treated here at
the Cancer Centreâ. He said looking straight into my Dadâs eyes: âI am going to
rename your file and while you are under my care I am not going to call you
Michael I am going to call you âDie Hard Quigleyâ.
From that day on my father was always referred to as Die Hard Quigley.
My father finally succumbed to prostate cancer, but only after a very long and
gallant battle to hold onto life.
During his illnesses my sister and I had to manage, over the space of many many
years, hospital appointments, X Rays, CT Scans, biopsies, medical operations,
rehabilitation treatments, blood testings and medication regimens.
It was out of this experience, managing my fatherâs complex health care treatment,
that the initial idea for âMyMedicalFileâ evolved.
2. Steve Jobs, my hero.
Steve Jobs was always one of my heroes.
Single handed, through his amazing APPLE company, he redefined the computer
business, the mobile phone business, the music business and finally the printed
media business.
His commencement speech at Stanford University in June 14 2005 was a classic.
In this presentation he urged the students to âfind what they loved in lifeâ. He was
also there that he announced to the world that he had cancer. He said:
âAbout a year ago I was diagnosed with cancer. I had a scan at 7:30 in the
morning, and it clearly showed a tumor on my pancreas. I didn't even know what a
pancreas was. The doctors told me this was almost certainly a type of cancer that is
incurable, and that I should expect to live no longer than three to six months. My
doctor advised me to go home and get my affairs in order, which is doctor's code
for prepare to die. It means to try to tell your kids everything you thought you'd
have the next 10 years to tell them in just a few months. It means to make sure
everything is buttoned up so that it will be as easy as possible for your family. It
means to say your goodbyes.
5. I lived with that diagnosis all day. Later that evening I had a biopsy, where they
stuck an endoscope down my throat, through my stomach and into my intestines,
put a needle into my pancreas and got a few cells from the tumor. I was sedated,
but my wife, who was there, told me that when they viewed the cells under a
microscope the doctors started crying because it turned out to be a very rare form
of pancreatic cancer that is curable with surgery. I had the surgery and I'm fine
now.
This was the closest I've been to facing death, and I hope it's the closest I get for a
few more decades. Having lived through it, I can now say this to you with a bit
more certainty than when death was a useful but purely intellectual concept.
No one wants to dieâ.
Steve Jobs died on October 5th
, 2011. He did not live for the decades he sought.
Like my father he fought a brave fight for life. As my sister and I had cared for
dad, Steveâs wife looked after Steve; her husband, partner, soul-mate and best
friend.
Steve Jobs death affected me deeply. I had lived for 6 years in California near Palo
Alto and regularly passed by the Apple factory. Strangely I felt âconnectedâ to the
dream that was Apple. When I first heard that he had died, I reacted as if an old
friend had passed away.
After Steveâs death his wife commented that even though the Apple leader was one
of the wealthiest men in the world, managing his health care was a complex
challenge and in the end she herself had to co-ordinate Steveâs treatment. She, like
my sister and I, had come to the realization that every medical discipline looks
after its own area of expertise but nobody seemed to co-ordinate the whole. In
todayâs complex health care industry the responsibility for this co-ordination must
be taken by the individual or, as in increasingly the case, their families.
Thus Steve Jobâs experience was similar to my fatherâs, even though Steve was
billions of dollars richer, of a different generation and was living on the wealthiest
continent in the world.
It was then I had the epiphany that everybody, rich and poor, could benefit from
the simple medical file system I had developed in my mind during the stressful
times my sister and I managed dadâs health care treatment.
6. 3. My Mother-In-Law, a real soldier in adversity.
My mother-in-law was diagnosed with lung cancer in the summer of 2011.
Through excellent health care and minor radiation treatment the cancer was
brought into remission.
In the main, the co-ordination of nanaâs treatment was managed by my wife and
my brother-in-law. What they went through organising appointments, hospital
visits, biopsies and medication management was reminiscent of what my sister and
I experienced with dad.
To help them I put my medical file epiphany into physical format. That is, I put
together my first: âMy Medical Fileâ.
In essence this file comprises of a calendar and diary and schedule to manage
appointments. It has a section for important phone numbers. It has sections for
every hospital department so that letters and reports, pertaining to each treatment,
can be filed and stored. It has a section for blood reports. It has a section for
current medication regimens. It has a section for notes and sundry items. In short,
over time through use, it becomes a complete health care management system for
an individual or a family.
This file became a great help to nana, my wife and her brother-in-law in their co-
ordination of all medical visits and treatments.
Then something happened that I had not imagined.
In January 2014 Nanaâs came back from a short break with her active retirement
group feeling very poorly.
Overnight her breathing turned bad and the doctor advised that she be brought into
the nearest hospital emergency room.
While preparing transport, with great presence of mind, my brother-in-law took the
âMy Medical Fileâ with him.
What later transpired I will never forget.
When I went into meet Nana after 3 days in hospital she looked great. She was on
intravenous liquids and anti-biotics and was scheduled to be released in a few days.
7. She had caught a bad chest infection but was now âon the mendâ. The infection
had been caught in time.
During my visit she pointed to the medical file I had made and said that the file had
helped âsave herâ and by this stage was becoming âfamous within the hospital
ward and beyondâ.
She said that because of it her doctors and nurses, when she initially came in, were
immediately able to see her medical history from the file. In addition they could
see what medications she was on. (This point, an experienced nurse pointed out,
was crucial to medical staff being able to act quickly in any emergency treatment).
It turned out that a senior nurse had been so impressed with the file that she called
the nursing team and showed them nanaâs âfileâ. Individual doctors also visited
nanaâs bedside to have a quick review.
It was this experience that made me finally realise that the medical file system was
much needed in todayâs complex, pharmacological, inter-departmental, multi-
disciplined heath care environment.
Summary
The âMy Medical Fileâ is a practical yet simple system to assist you to plan,
manage, organize and control your own health care treatment, or that of a loved
one.
It has been developed out of experience.
When being admitted to a hospital in an emergency, vital data is readily available
to nursing staff. Very often this information cannot be obtained from the patient
due to their medical condition.
If you want your own custom hand made âMyMedicalFileâ please email me at
cmqesquire@gmail.com or call 086-8118-600 (353-86-8118-600). The cost is
55.00 Euro plus postage. I hope it will help your family as much as it has helped
mine.
Thank you,