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Piedmont Down Syndrome Support Network
Piedmont Down Syndrome Support Network’s Mission

•

Ensure individuals with Down
syndrome in the Piedmont area are
valued, included, and given the
opportunities to pursue fulfilling lives

•

Provide information, networking
opportunities, and advocacy for
individuals with Down syndrome and
their families, educators, health care
professionals, and the community at
large
PDSSN’s History

Founded in 1987
Has grown and increased services
to others over the past 13 years
Became a 501(c)(3) nonprofit
organization in 2005
While the main advocacy remains
on Down syndrome, welcomes
other special needs groups to
many activities
PDSSN Organization

In 2012, awarded a grant from the Winston-Salem Foundation and hired
a part-time executive director

Affiliations: National Down Syndrome Congress; National Down
Syndrome Society; Down Syndrome Affiliates in Action; and HandsOn
Northwest North Carolina
www.pdssn.org highlights our mission, programs, events calendar,
information about Down syndrome, resources and more.
PDSSN Representation on Community Committees

CenterPoint’s Consumer & Family Advisory Committee
CenterPoint’s IDD Advisory Committee
Forsyth County Special Needs Planning Committee
Family Support Network’s Local Collaboration Team

Disability Rights North Carolina Board
Keynote Presentation at the NC ARC State Conference
Disability Advocates

DHHS and the Medicaid Reform Advisory Group
Programs for Families Who Have
Children with Down Syndrome
Family Social Gatherings
D.A.D.S. Group
Ladies Night Out
PDSSN Member Scholarships
Sunshine Fund

New Parent Resource Notebook
Pre and Post Natal Program
Triad First in Family Funds
Seasonal Newsletters
Family Social Gatherings

Regular gatherings include:
•

Dine Out - PDSSN family
nights at area restaurants

•

Winter family social

•

Summer family picnic

•

Spring KIDS FEST
Dine Out for Down Syndrome

Meets monthly at a different
restaurants in the area
Provides opportunities to raise
awareness in our community
while enjoying fun meals out with
PDSSN families and friends

Raises funds to support PDSSN
events throughout the year
Outings are listed on PDSSN’s
event calendar on our website
PDSSN sends out emails each
month with information about the
location
LNO – Ladies Night Out

A casual night out to catch up
with friends and enjoy the
support of other moms

Meets monthly at different
restaurants in the area
Outings are listed on PDSSN’s
event calendar on our website
and emails are sent out monthly
with the dates and locations
D.A.D.S. – Piedmont Chapter
Simple Mission:

Simple Goals:

“To assist and support, through fellowship and action, the fathers and
families of individuals with Down syndrome”

•
•
•
•

Information:

:

•
•
•

To create a network of fathers willing to develop a program based on the needs
of the men involved
To enhance a father’s knowledge and resources about children and individuals
with Down syndrome
To enhance personal advocacy skills
To improve a family’s ability to cope with the unique challenges of raising a child
with Down syndrome
To provide a safe atmosphere of support where men can openly share
To have fun and build camaraderie and friendships among fathers
Open Forum and Info: https://www.facebook.com/DADS.Piedmont

• Closed discussion group on Facebook
• PDSSN Site: http://pdssn.org/programs-3/d-a-d-s/
Support

Fellowship

Action

The Foundation
PDSSN Member Scholarships
PDSSN members can apply for funding to attend national and local
Down syndrome related conferences.
Scholarship awards based on past years involvement with the PDSSN.
Sunshine Fund

Support for families who are
experiencing illness,
hospitalization, or other
hardship by offering visits and
gift cards.
Electronic care calendar that
allows members to sign up to
help with other families’ needs
for meals, rides, etc. during
times of hardship.
PDSSN New Parent Resource Notebook

Provides comprehensive
information for ages birth
through adulthood

Lists IDD related resources for
the surrounding six counties
Available in both English and
Spanish
Resources also available
online at www.pdssn.org
Pre & Post Natal Program

Available to any family whose child is diagnosed with Down
syndrome before or after birth

Provides up-to-date accurate written information as well as a
trained volunteer
Triad First in Family Funds
First In Families of North Carolina - Believe, Achieve, Give Back.

TFIF offers support to families and individuals in Forsyth, Davie & Stokes
Counties by connecting them to community programs, obtaining discounts, and in
some cases providing funds.
PDSSN provides funds annually to TFIF for individuals who have Down
syndrome and their families in the 3 counties TFIF covers plus Surry, Yadkin, and
Davidson. Distribution of funds is determined by the TFIF management team.

Eligibility Requirements:
Triad First In Families supports any family in which one
family member has a developmental disability or
traumatic brain injury.

The family/individual must be living in their own rented
or owned home, not in a group home.
Total household income cannot exceed $65,000 per
year.
PDSSN Programs Open to the Community

Exceptional Families Program
Next Chapter Book Clubs
No Limits II Dance
Community Education Programs
Annual Down Syndrome Update

Community Grants
Exceptional Families Program
Partnership with Family Support Network
Meets 10 times a year on the 4th Thursday
of the month from 5:30pm to 7:00pm at the
Little Creek Recreation Center

Guest facilitators support discussions
regarding topics of interest to parents of
children who have intellectual and
developmental disabilities
A light supper and childcare are available
but reservations for both are required

Professionals are welcome and Infant
Toddler Credit is available
Next Chapter Book Club

Promotes literacy and encourages
friendships among adolescents and adults
with intellectual disabilities
Members meet for one hour a week at local
bookstores, coffee shops and cafés to read
and discuss a book of their choosing
Anyone can participate, no matter their
reading or ability level

Two trained volunteers facilitate each group
Currently 4 adult clubs in Forsyth County
Will expand to other counties when enough
people show interest
No Limits II Dance Club
A fun evening out for adults with
disabilities (18 years and older)
Dance, play Bingo, ride in a limo, enjoy
refreshments and door prizes
Dates in 2014: 2/21; 5/2; and 9/12
Community Education Programs
PDSSN Community Education
Programs are open to everyone.
Our speakers have included:
speech language pathologists;
occupational therapists; ear, nose
and throat doctors; special needs
trusts attorneys; estate planning
professionals; and others.
PDSSN hosts an annual Down
Syndrome update meeting every
January, at which Dr. Tamison
Jewett presents the most current
medical information available about
Down syndrome.
Community Grants

PDSSN makes donations to
groups that support people who
have Down syndrome or other
intellectual disabilities.
Some recipients: Triad First in
Families, Beyond Academics,
The Special Children’s School,
No Limits II Dance Club, Friday
Socialites, and the Family
Support Network.
Dress Down for World Down Syndrome Day
March 21, 2014 marks the 9th
anniversary of World Down
Syndrome Day. This day was
chosen to symbolize the third copy
of chromosome 21 in Trisomy 21,
the most common form of Down
syndrome.
Last year, PDSSN celebrated
individuals with Down syndrome in
our community with our first Dress
Down for Down Syndrome day.

Please join us this year by encouraging companies and
organizations to help promote the acceptance and inclusion of
individuals with Down syndrome by “Dressing Down” on March
21st. We’ll be sending out more information by email soon.
The PDSSN Buddy Walk
Usually held in October
which is Down Syndrome
Awareness Month

Promotes awareness,
acceptance and inclusion
of individuals with Down
syndrome.
Fun for all includes: food,
carnival games, music,
magic shows, inflatables,
train rides, and the famous
talent show!
2013 Buddy Walk Results

Revenue

Expenses

Net

2013 Walk

$55,220

$10,633

$44,587

2012 Walk

$46,932

$10,388

$36,543

2011 Walk

$22,048

$9,255

$12,793
2013 Accomplishments

Launched new website PDSSN.org
Founded D.A.D.S. Group –
Dads Appreciating Down
Syndrome
Launched Dress Down for
Down Syndrome
Implemented monthly Dine
Out for Down Syndrome event
Held Most Successful Buddy
Walk

Distributed Baby Bootie Boxes
2013 Accomplishments Continued

Received Prevention,

Outreach, and Wellness
Programs of Excellence Award
from NC Council of
Community Programs for the
Next Chapter Book Club
Selected by Leadership
Winston Salem Action
Learning Team for Board
Development Project

Increased Community
Awareness – magazine
articles and PepsiCo donation
2014 Initiatives

Down syndrome awareness video
Support for Spanish speaking
families
Leadership Winston-Salem
Action Learning Board
Development Project
Increase number and variety of
social and educational gatherings
Build and expand partnerships
with community organizations

Add No Limits II Dances to
PDSSN’s programs
PDSSN Member Benefits
Support, social, and educational
opportunities
Input and voting privileges
regarding PDSSN issues
Information on Down syndrome,
resources, and advocacy
Parent resource notebooks
Support if a family member is
hospitalized
Scholarship funds to attend local
and national conferences
Opportunities to be involved and
make a difference!
Thank you!

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PDSSN PowerPoint 2014

  • 1. Piedmont Down Syndrome Support Network
  • 2. Piedmont Down Syndrome Support Network’s Mission • Ensure individuals with Down syndrome in the Piedmont area are valued, included, and given the opportunities to pursue fulfilling lives • Provide information, networking opportunities, and advocacy for individuals with Down syndrome and their families, educators, health care professionals, and the community at large
  • 3. PDSSN’s History Founded in 1987 Has grown and increased services to others over the past 13 years Became a 501(c)(3) nonprofit organization in 2005 While the main advocacy remains on Down syndrome, welcomes other special needs groups to many activities
  • 4. PDSSN Organization In 2012, awarded a grant from the Winston-Salem Foundation and hired a part-time executive director Affiliations: National Down Syndrome Congress; National Down Syndrome Society; Down Syndrome Affiliates in Action; and HandsOn Northwest North Carolina www.pdssn.org highlights our mission, programs, events calendar, information about Down syndrome, resources and more.
  • 5. PDSSN Representation on Community Committees CenterPoint’s Consumer & Family Advisory Committee CenterPoint’s IDD Advisory Committee Forsyth County Special Needs Planning Committee Family Support Network’s Local Collaboration Team Disability Rights North Carolina Board Keynote Presentation at the NC ARC State Conference Disability Advocates DHHS and the Medicaid Reform Advisory Group
  • 6. Programs for Families Who Have Children with Down Syndrome Family Social Gatherings D.A.D.S. Group Ladies Night Out PDSSN Member Scholarships Sunshine Fund New Parent Resource Notebook Pre and Post Natal Program Triad First in Family Funds Seasonal Newsletters
  • 7. Family Social Gatherings Regular gatherings include: • Dine Out - PDSSN family nights at area restaurants • Winter family social • Summer family picnic • Spring KIDS FEST
  • 8. Dine Out for Down Syndrome Meets monthly at a different restaurants in the area Provides opportunities to raise awareness in our community while enjoying fun meals out with PDSSN families and friends Raises funds to support PDSSN events throughout the year Outings are listed on PDSSN’s event calendar on our website PDSSN sends out emails each month with information about the location
  • 9. LNO – Ladies Night Out A casual night out to catch up with friends and enjoy the support of other moms Meets monthly at different restaurants in the area Outings are listed on PDSSN’s event calendar on our website and emails are sent out monthly with the dates and locations
  • 10. D.A.D.S. – Piedmont Chapter Simple Mission: Simple Goals: “To assist and support, through fellowship and action, the fathers and families of individuals with Down syndrome” • • • • Information: : • • • To create a network of fathers willing to develop a program based on the needs of the men involved To enhance a father’s knowledge and resources about children and individuals with Down syndrome To enhance personal advocacy skills To improve a family’s ability to cope with the unique challenges of raising a child with Down syndrome To provide a safe atmosphere of support where men can openly share To have fun and build camaraderie and friendships among fathers Open Forum and Info: https://www.facebook.com/DADS.Piedmont • Closed discussion group on Facebook • PDSSN Site: http://pdssn.org/programs-3/d-a-d-s/ Support Fellowship Action The Foundation
  • 11. PDSSN Member Scholarships PDSSN members can apply for funding to attend national and local Down syndrome related conferences. Scholarship awards based on past years involvement with the PDSSN.
  • 12. Sunshine Fund Support for families who are experiencing illness, hospitalization, or other hardship by offering visits and gift cards. Electronic care calendar that allows members to sign up to help with other families’ needs for meals, rides, etc. during times of hardship.
  • 13. PDSSN New Parent Resource Notebook Provides comprehensive information for ages birth through adulthood Lists IDD related resources for the surrounding six counties Available in both English and Spanish Resources also available online at www.pdssn.org
  • 14. Pre & Post Natal Program Available to any family whose child is diagnosed with Down syndrome before or after birth Provides up-to-date accurate written information as well as a trained volunteer
  • 15. Triad First in Family Funds First In Families of North Carolina - Believe, Achieve, Give Back. TFIF offers support to families and individuals in Forsyth, Davie & Stokes Counties by connecting them to community programs, obtaining discounts, and in some cases providing funds. PDSSN provides funds annually to TFIF for individuals who have Down syndrome and their families in the 3 counties TFIF covers plus Surry, Yadkin, and Davidson. Distribution of funds is determined by the TFIF management team. Eligibility Requirements: Triad First In Families supports any family in which one family member has a developmental disability or traumatic brain injury. The family/individual must be living in their own rented or owned home, not in a group home. Total household income cannot exceed $65,000 per year.
  • 16. PDSSN Programs Open to the Community Exceptional Families Program Next Chapter Book Clubs No Limits II Dance Community Education Programs Annual Down Syndrome Update Community Grants
  • 17. Exceptional Families Program Partnership with Family Support Network Meets 10 times a year on the 4th Thursday of the month from 5:30pm to 7:00pm at the Little Creek Recreation Center Guest facilitators support discussions regarding topics of interest to parents of children who have intellectual and developmental disabilities A light supper and childcare are available but reservations for both are required Professionals are welcome and Infant Toddler Credit is available
  • 18. Next Chapter Book Club Promotes literacy and encourages friendships among adolescents and adults with intellectual disabilities Members meet for one hour a week at local bookstores, coffee shops and cafés to read and discuss a book of their choosing Anyone can participate, no matter their reading or ability level Two trained volunteers facilitate each group Currently 4 adult clubs in Forsyth County Will expand to other counties when enough people show interest
  • 19. No Limits II Dance Club A fun evening out for adults with disabilities (18 years and older) Dance, play Bingo, ride in a limo, enjoy refreshments and door prizes Dates in 2014: 2/21; 5/2; and 9/12
  • 20. Community Education Programs PDSSN Community Education Programs are open to everyone. Our speakers have included: speech language pathologists; occupational therapists; ear, nose and throat doctors; special needs trusts attorneys; estate planning professionals; and others. PDSSN hosts an annual Down Syndrome update meeting every January, at which Dr. Tamison Jewett presents the most current medical information available about Down syndrome.
  • 21. Community Grants PDSSN makes donations to groups that support people who have Down syndrome or other intellectual disabilities. Some recipients: Triad First in Families, Beyond Academics, The Special Children’s School, No Limits II Dance Club, Friday Socialites, and the Family Support Network.
  • 22. Dress Down for World Down Syndrome Day March 21, 2014 marks the 9th anniversary of World Down Syndrome Day. This day was chosen to symbolize the third copy of chromosome 21 in Trisomy 21, the most common form of Down syndrome. Last year, PDSSN celebrated individuals with Down syndrome in our community with our first Dress Down for Down Syndrome day. Please join us this year by encouraging companies and organizations to help promote the acceptance and inclusion of individuals with Down syndrome by “Dressing Down” on March 21st. We’ll be sending out more information by email soon.
  • 23. The PDSSN Buddy Walk Usually held in October which is Down Syndrome Awareness Month Promotes awareness, acceptance and inclusion of individuals with Down syndrome. Fun for all includes: food, carnival games, music, magic shows, inflatables, train rides, and the famous talent show!
  • 24. 2013 Buddy Walk Results Revenue Expenses Net 2013 Walk $55,220 $10,633 $44,587 2012 Walk $46,932 $10,388 $36,543 2011 Walk $22,048 $9,255 $12,793
  • 25. 2013 Accomplishments Launched new website PDSSN.org Founded D.A.D.S. Group – Dads Appreciating Down Syndrome Launched Dress Down for Down Syndrome Implemented monthly Dine Out for Down Syndrome event Held Most Successful Buddy Walk Distributed Baby Bootie Boxes
  • 26. 2013 Accomplishments Continued Received Prevention, Outreach, and Wellness Programs of Excellence Award from NC Council of Community Programs for the Next Chapter Book Club Selected by Leadership Winston Salem Action Learning Team for Board Development Project Increased Community Awareness – magazine articles and PepsiCo donation
  • 27. 2014 Initiatives Down syndrome awareness video Support for Spanish speaking families Leadership Winston-Salem Action Learning Board Development Project Increase number and variety of social and educational gatherings Build and expand partnerships with community organizations Add No Limits II Dances to PDSSN’s programs
  • 28. PDSSN Member Benefits Support, social, and educational opportunities Input and voting privileges regarding PDSSN issues Information on Down syndrome, resources, and advocacy Parent resource notebooks Support if a family member is hospitalized Scholarship funds to attend local and national conferences Opportunities to be involved and make a difference!

Hinweis der Redaktion

  1. Can discuss and elaborate on meetings, speakers, and events as we talk about simple goals.Speakers – Estate planning, challenger league, beyond academics, medical needs, et.Events – Poker night (fund raiser), sporting event