1. The ability to create value in healthcare depends on accessto information

2. Milisa When started ER EMR docs said “my pts are going to hate this” Kathryn Teng – Cleveland Clinic SocMed instead of health fairs

3. 4 True storiesof value arisingin social media My kidney cancer Monique’s painful side effect Robin’s Cushing’s med Facebook brings vital information

4. What do you do when you’re diagnosed with... Stage IV, Grade 4Renal Cell Carcinoma ?

6. “My doctor prescribed ACOR”

7. ACOR members told me: The median isn’t the message This is an uncommon disease – get to a hospital that does a lot of cases There’s no cure, but HDIL-2 sometimes works. When it does, about half the time it’s permanent The side effects are severe. Don’t let them give you anything else first Here are four doctors in your area who do it

8. Radical Proposition 1 Genuine value in healthcarecan and does arisefrom people with no medical training.

10. “May Require Refrigeration” cushings365.posterous.com, 9 / 17 / 10 “Panic! For the first time, I got a note on my florinef that it might (MIGHT?) need to be refrigerated. I didn't know that. Should I have been doing that all along? No one told me.” “I called the pharmacy. They read what is on the printout which comes with the drug. I had already read that. It wasn't helpful.”

11. “May Require Refrigeration” cushings365.posterous.com, 9 / 17 / 10 “So, I asked the ones who know. My "Cushie" friends who take it. Those who have had BLA’s. “The verdict: No, that's a generic warning with fludrocortisone (generic). Only at extreme temps should it be refrigerated in the U.S. Some of the brands in the UK and other countries need refrigerated.”

13. Today, because of the Web, patients can connect to information and to each other (and other doctors)

14. Web 2.0: “When the web began to harness the intelligence of its users” – Tim O’Reilly Charlene Li(“Groundswell”) “Social networks will be like air”

15. Cluetrain Manifesto, 1999: “Markets are Conversations” 30 years ago the “marketing funnel” was this: (Graphics by Forrester) Today’s buyer progresses like this:

16. 75% of USadults areonline 80% of themlook forhealth info That’s 60%of US adults A filibuster-proof majority

17. Radical Proposition 2 “The people on ACOR don’t need our helpand they don’t need our permission.”

19. How a kidney cancer wife found the info she needed No insurance; no treatment. Then: Three bad hospitals;no help. Then: A friend said“I know a guy... on Twitter”

22. The ability to create value in healthcare depends on accessto information

23. The internetchanges everything. Transformation