This presentation is anchored in a study that Deloitte conducted in late 2009 to further investigate emerging trends in health care and consumer dynamics. Seeing an emerging trend in the US towards new attitudes around what constitutes health services and what patients want to see as part of their experience Deloitte replicated the US survey in Canada. A key finding was that as patients want to see the traditional model of healthcare evolve, how they capture, share and manage their health information is a key desire of theirs.
Markle foundation defines a PHR as : an internet-based set of tools that allows people to access and coordinate their lifelong health information and make appropriate parts of it available to those who need it . This is different from the many of the recent models where the communications hub is controlled by governments, payers, hospitals, etc. In the PHR world, the patient is the keeper of the information and it resides on a non-owned technology platform. Based on other research we know that: over 40% of adults keep a personal or family health record in some form. And of those individuals that do, over 80% of them keep a paper record in a file or drawer at home. Although survey results in Canada and the US point to high interest in PHRs, there is a caveat. We also know that there is a significant gap among patients in understanding how IT contributes to improving care so PHRs provide a better platform than traditional EHRs to allow for patient participation and uptake.
Early days for PHRs but already we can see a maturity pathway starting to form. Points to very specific initiatives being critical to accelerating uptake of PHRs
A key challenge with EHRs has been to build a robust and understandable business case for participation. Often data sharing and participation has been driven by voluntary adoption, unclear business models, which has led to uneven implementation and success across Canada. – Why am I doing this? PHRs actually are premised on having patients be the advocates for connectivity – Why are you (hospital, MD, Lab, etc). Not doing this?
EHR challenges: All or nothing infrastructure Care providers first, patient access after Generic information views versus patient-specific (e.g. diabetes specific view). Build times (PHRs are ready now) and competency to “get it right” (government versus software company) Patient trust – Privacy debate Lack of reason for community MDs to use IT.
Do you have transparency built into your corporate values? Do you capture the information and are you ready to make it visible outside of your organization? Do your patients and community care providers use technology (stakeholder approach) or is their another lever (e.g. a specific disease group) that may make it more compelling to implement? Do you have the competency in house (integration, support, data quality)? Will you be able to sustain and enhance your PHR support?
![A Canadian health consumer survey was conducted in 2009 highlighting the behaviours, attitudes, and unmet needs in areas of health consumerism ,[object Object],[object Object],[object Object],Health Consumer Survey Framework ,[object Object],[object Object],[object Object],[object Object],[object Object],Health Care Consumerism](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)