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Archiving qualitative data for
 policy research: meeting
challenges and establishing
       best practices



         Aileen O’Carroll
   Manager, Irish Qualitative Data
               Archive
Irish Qualitative Data Archive
•   Funded by the Irish Government under the Programme for
    Research in Third Level Institutions (Cycle 4)
•   Several major datasets being archived, including –
    •   Growing up in Ireland study
    •   Life Histories and Social Change in Ireland in 20th Century Ireland


•   Re-use & Archiving of Complex Community-based
    Evaluation Research (RACcER) project explores issues
    specific to archiving community-based evaluation data,
    also aims to raise awareness throughout research
    community
Tallaght West Childhood
Development Initiative (CDI)
 1 of 3 Prevention and Early Intervention
 Programmes jointly funded by government &
 philanthropy
 Aims to improve the education and well-being
 outcomes for children and families in historically
 disadvantaged areas of Tallaght West
 5 constituent projects: early years, literacy, pro
 social behaviour, healthy schools, community
 safety
 Major emphasis on evaluation
RACcER
   RACcER co-funded by IRCHSS and CDI: demonstrator
   project for qualitative archiving
   Objectives:
      Scope concerns, issues and requirements in qualitative
      data archiving through interviews
      Explore issues and challenges for researchers, participants,
      funders, potential data users
      Test feasibility of archiving evaluation data
      Develop protocols and procedures for archiving evaluation
      data
   Research Process

Consultation > Pilot Strategy > Consultation > Archiving process
Findings – qualitative data gathered in
evaluations
 Range of qualitative material collected
 Variety of participant groups
 Most material recorded, anonymised and
 transcribed
Findings – archiving policy
 Evaluators’ research centres didn’t generally have
 archiving policies for qualitative material
 Range of experience of what happens to
 qualitative data after project
 No evidence of researchers sharing datasets
 informally
 Default ethics position is to destroy after 5 years
Findings – archiving experience
 No evidence of formal archiving
 Limited experience of accessing qualitative
 archives,
   One example for use in teaching
 Some had archived quantitative material
 Some had accessed quantitative archives
 Range of views on resource implications of
 prepare qualitative material for archiving
Findings – issues with archiving
 Difficulties of anonymising in small community


“Just to follow on really from that, archiving
  to do what really? Archiving to make
  something as a resource that can be used
  again. In the context of some of my own
  work, to anonymise it sufficiently is to
  make it meaningless. ”
Findings – issues with archiving

  “There’s interconnections, there’s politics, and there’s
  alliances, and there’s you know, sort of, tensions,
  between people and characters and actors and you
  know there’s a finite cast of characters. I think in that
  context, it is challenging about how anonymise that
  work and then allow it to be available and maybe you
  can’t, I don’t know, maybe that’s not possible”.

  “I think there are enormous issues, if you talk about
  archiving do you anonymise transcripts to make... so
  then you do all this anonymisation activity, you invest
  time and money in it, and what you come out with is
  nothing. If you remove all the contextual information
  and so on. Then you’ve got a set of data which would
  essentially be akin to what was in a report. ”
Findings – issues(Consent)

 “…. could you actually be happy that you would have
 informed consent from somebody? That they actually fully
 understand what it means to have this available and what
 the implications are. Because, to a degree, you don’t
 actually know what the implications are.”

 “If we were to put on our consent forms or our information
 sheets that data generated from interviews will be
 available, anonymised, as part of an archive, we’re
 screwed. That’s basically it. Sorry for using such
 unparliamentary language, we would not get responses,
 not in a country like ours.   ”
Findings – issues(3)
  Wide perception of fundamental difference
  between evaluation research and broader
  topics

“we’re generally speaking about evaluation and evaluation is
  different. It’s not asking people whether the sky is blue or
  green or how you perceive that, you’re talking about
  somebody else’s actions or activities and putting some,
  essentially, value on those in what you say. So therefore,
  there’s another level that you have to add into the mix.”
Findings – issues(4)

 Lack of clarity on who can access data and how
 it could be used generates fear and reduces
 inclination to archive
 Concern over data being used out of context,
 ‘twisted’, sensationalising populations, journalists
 gaining access
Findings – issues(5)
 Researchers concerned about being opened up to
 scrutiny

 PhD/masters students using archived material
 could reduce valuable learning opportunities
 gained from fieldwork

 Resource implication of archiving
Findings – advantages
 Potential to explore alternative research
 questions
 Contributing to cumulative knowledge of
 implementation of children’s services
 Facilitate comparative analysis over time or
 place
Findings – advantages (2)
 A valuable teaching resource

 Increase the standing of qualitative
 research if it is open to external
 examination, improved validity and
 reliability

 Contribute to corporate memory of
 commissioning organisation
Findings - risks
 Reputational risk for organisations involved at
 all levels
 Negative publicity risk for researched
 community
 User agreement could be breached
 Anonymity could be compromised –

 But...
 Need to consider likelihood of risk occurring and
 how serious it would be if it happened and
 develop approperiate archiving strategies
Findings – mitigating risks
 Strict controls on user access

 Archive to facilitate collaboration between
 researchers

 Hierarchy of access, tailored depositor and user
 agreements
Process of archiving CDI
datasets


  Consultation     Building                         Data          Data
                                      Data
     With                                        Anonymisation   Costing
                                    Collection
  CDI Board      Informed Consent
Accessing Sensitivity level
of the data


  Risk of Identification   Risk Of Harm   Sensitivity Level
  Little                    Low            Low
  Some                     Low             Medium
  Any                       High           High
Archiving Strategy Appropriate
to the Level of Sensitivity

               Participant   Anon-    Access        Remove        Embargo      30 Year
 Sensitivity     Consent     ymised                 Sensitive   (Anonymised   Embargo
     Level                                            Text        Sensitive   (Sensitive
                                                                    Text       Text Not
                                                                 Removed)     Removed
Low                Yes          Yes    Restricted        N/A          No           No
Medium             Yes          Yes    Restricted        No           No           No
High               Yes          Yes    Restricted        Yes          No           No
Thank You
  RACcER Team
   Irish Qualitative Data Archive
     Jane Gray
     Julius Komolafe
     Hazel O’Byrne
     Aileen O’Carroll


   Tallaght West CDI
     Tara Murphy

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Archiving qualitative data for policy research meeting challenges and establishing best practices

  • 1. Archiving qualitative data for policy research: meeting challenges and establishing best practices Aileen O’Carroll Manager, Irish Qualitative Data Archive
  • 2. Irish Qualitative Data Archive • Funded by the Irish Government under the Programme for Research in Third Level Institutions (Cycle 4) • Several major datasets being archived, including – • Growing up in Ireland study • Life Histories and Social Change in Ireland in 20th Century Ireland • Re-use & Archiving of Complex Community-based Evaluation Research (RACcER) project explores issues specific to archiving community-based evaluation data, also aims to raise awareness throughout research community
  • 3. Tallaght West Childhood Development Initiative (CDI) 1 of 3 Prevention and Early Intervention Programmes jointly funded by government & philanthropy Aims to improve the education and well-being outcomes for children and families in historically disadvantaged areas of Tallaght West 5 constituent projects: early years, literacy, pro social behaviour, healthy schools, community safety Major emphasis on evaluation
  • 4. RACcER RACcER co-funded by IRCHSS and CDI: demonstrator project for qualitative archiving Objectives: Scope concerns, issues and requirements in qualitative data archiving through interviews Explore issues and challenges for researchers, participants, funders, potential data users Test feasibility of archiving evaluation data Develop protocols and procedures for archiving evaluation data Research Process Consultation > Pilot Strategy > Consultation > Archiving process
  • 5. Findings – qualitative data gathered in evaluations Range of qualitative material collected Variety of participant groups Most material recorded, anonymised and transcribed
  • 6. Findings – archiving policy Evaluators’ research centres didn’t generally have archiving policies for qualitative material Range of experience of what happens to qualitative data after project No evidence of researchers sharing datasets informally Default ethics position is to destroy after 5 years
  • 7. Findings – archiving experience No evidence of formal archiving Limited experience of accessing qualitative archives, One example for use in teaching Some had archived quantitative material Some had accessed quantitative archives Range of views on resource implications of prepare qualitative material for archiving
  • 8. Findings – issues with archiving Difficulties of anonymising in small community “Just to follow on really from that, archiving to do what really? Archiving to make something as a resource that can be used again. In the context of some of my own work, to anonymise it sufficiently is to make it meaningless. ”
  • 9. Findings – issues with archiving “There’s interconnections, there’s politics, and there’s alliances, and there’s you know, sort of, tensions, between people and characters and actors and you know there’s a finite cast of characters. I think in that context, it is challenging about how anonymise that work and then allow it to be available and maybe you can’t, I don’t know, maybe that’s not possible”. “I think there are enormous issues, if you talk about archiving do you anonymise transcripts to make... so then you do all this anonymisation activity, you invest time and money in it, and what you come out with is nothing. If you remove all the contextual information and so on. Then you’ve got a set of data which would essentially be akin to what was in a report. ”
  • 10. Findings – issues(Consent) “…. could you actually be happy that you would have informed consent from somebody? That they actually fully understand what it means to have this available and what the implications are. Because, to a degree, you don’t actually know what the implications are.” “If we were to put on our consent forms or our information sheets that data generated from interviews will be available, anonymised, as part of an archive, we’re screwed. That’s basically it. Sorry for using such unparliamentary language, we would not get responses, not in a country like ours. ”
  • 11. Findings – issues(3) Wide perception of fundamental difference between evaluation research and broader topics “we’re generally speaking about evaluation and evaluation is different. It’s not asking people whether the sky is blue or green or how you perceive that, you’re talking about somebody else’s actions or activities and putting some, essentially, value on those in what you say. So therefore, there’s another level that you have to add into the mix.”
  • 12. Findings – issues(4) Lack of clarity on who can access data and how it could be used generates fear and reduces inclination to archive Concern over data being used out of context, ‘twisted’, sensationalising populations, journalists gaining access
  • 13. Findings – issues(5) Researchers concerned about being opened up to scrutiny PhD/masters students using archived material could reduce valuable learning opportunities gained from fieldwork Resource implication of archiving
  • 14. Findings – advantages Potential to explore alternative research questions Contributing to cumulative knowledge of implementation of children’s services Facilitate comparative analysis over time or place
  • 15. Findings – advantages (2) A valuable teaching resource Increase the standing of qualitative research if it is open to external examination, improved validity and reliability Contribute to corporate memory of commissioning organisation
  • 16. Findings - risks Reputational risk for organisations involved at all levels Negative publicity risk for researched community User agreement could be breached Anonymity could be compromised – But... Need to consider likelihood of risk occurring and how serious it would be if it happened and develop approperiate archiving strategies
  • 17. Findings – mitigating risks Strict controls on user access Archive to facilitate collaboration between researchers Hierarchy of access, tailored depositor and user agreements
  • 18. Process of archiving CDI datasets Consultation Building Data Data Data With Anonymisation Costing Collection CDI Board Informed Consent
  • 19. Accessing Sensitivity level of the data Risk of Identification Risk Of Harm Sensitivity Level Little Low Low Some Low Medium Any High High
  • 20. Archiving Strategy Appropriate to the Level of Sensitivity Participant Anon- Access Remove Embargo 30 Year Sensitivity Consent ymised Sensitive (Anonymised Embargo Level Text Sensitive (Sensitive Text Text Not Removed) Removed Low Yes Yes Restricted N/A No No Medium Yes Yes Restricted No No No High Yes Yes Restricted Yes No No
  • 21. Thank You RACcER Team Irish Qualitative Data Archive Jane Gray Julius Komolafe Hazel O’Byrne Aileen O’Carroll Tallaght West CDI Tara Murphy