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Issues of Consent in Anthropological and Ethnographic Research

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Helen Porter of SOAS, University of London gave a talk on challenges associated with obtaining practical informed consent in Issues of Consent in anthropological and ethnographic Research. Presented at the London Area Research Data meeting held at London School of Hygiene & Tropical Medicine on 17th Nov 2017

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Issues of Consent in Anthropological and Ethnographic Research

  1. 1. Issues of Consent in Anthropological and Ethnographic Research Helen Porter, Digital Services Support Officer, SOAS University of London Email: hp7@soas.ac.uk Tel: 02078984179 Research Data Management SOAS Website Use of Personal Data in Research: Code of Practice for SOAS Staff and Students
  2. 2. The SOAS Context ● Majority of research with personal data undertaken overseas ● Sometimes dramatic shifts in the political climate of regions where data was collected over the lifetime of a research project ● Data collection in remote locations and/or different cultural contexts ● A significant number of projects involving participant observation and ethnographic methods ● A close link between data management and ethical concerns
  3. 3. Meaningful Informed Consent “Research participants should understand what they are consenting to” "Consent should not be regarded as freely given if the data subject has no genuine or free choice or is unable to refuse or withdraw consent without detriment." Village elders providing consent on behalf of a village Male of the family giving consent on behalf of females What is a data archive or repository? What does data being made available under licence on the internet mean?
  4. 4. Documenting Informed Consent “Where processing is based on consent, the controller shall be able to demonstrate that the data subject has consented to processing of his or her personal data” Issues with forms and audio recorders ‘power relationships’ Importance of relationship building in research Different concepts of ‘private’ and ‘non-private’ spaces
  5. 5. Withdrawal of Consent “The data subject shall have the right to withdraw his or her consent at any time. The withdrawal of consent shall not affect the lawfulness of processing based on consent before its withdrawal. Prior to giving consent, the data subject shall be informed thereof. It shall be as easy to withdraw as to give consent” True ability to make the request for withdrawal of consent NB. Also applies to right to access personal data and right to make a complaint
  6. 6. Debating These Issues Monday 19th February 12.30-17.00 Data Debates (Anthropology): Research Data Manager Meets Researcher Co-ordinated by SOAS - Location TBC https://eprints.soas.ac.uk/22407/ UPCOMING EVENT