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Participatory Design, 
the “Making” of Health, 
and the Future of 
Diabetes Technology 
John Costik, Adrien de Croy, Weston 
Nordgren II, The Nightscout community, 
Joyce Lee, MD, MPH, Doctor as Designer
Co-director-Mott Mobile 
Technology for Enhancing Health 
Social Media Editor, JAMA 
Pediatrics 
Healthdesignby.us
The promise of mobile health has 
yet to be realized 
Hard to !nd 
Too many 
Uncertain Quality 
Uncertain Bene!t 
Lack of link to provider 
Lack information on security/data 
Eng DS, Lee JM. The Promise and Peril of Mobile Health Applications 
for Diabetes and Endocrinology. Pediatric Diabetes 2013: 14: 231–238.
@joyclee
https://medium.com/@joyclee
75% 
of children fail to achieve recommended 
blood sugar goals in Type 1 Diabetes 
Diabetes through the 
eyes of healthcare
But is it really their fault? 
Look at this series of 
#design #fails
What do those buttons mean & 
why are they so hard to press?
Why are the menus all 
different and confusing? 
A green screen? Really?
Why does your doctor ask 
you to keep a paper 
logbook? To practice your 
penmanship?
Hi-tech #dataviz in the clinic! 
Circles for highs, triangles for lows?
Which cord? A desktop software 
program? No cloud connectivity? 
Really?
#waiting
#waiting
How many different data displays 
are there for all the different 
meters/pumps?
Not so helpful? Not so 
Interactive? Not so useful?
Oh and the devices don’t talk to 
each other, so many caregivers still 
use paper for communication
Don’t forget to fax BS to your MD 
and wait for a rotary phone call! 
Kid: “Mom, what’s a fax? Is it 
compatible with Snapchat?”
“Design was at fault, 
not the operators” 
-Don Norman 
http://bit.ly/1xcgR4Z
http://bit.ly/1wIvdc6
75% 
of health care providers/systems fail to help 
children achieve recommended blood sugar 
goals in Type 1 Diabetes 
Diabetes through the 
eyes of a designer
Patient problems 
are really 
design problems 
Joyce Lee 
Medical Designer
Fix the design, 
and it’s no longer the 
patient’s problem 
Joyce Lee 
Medical Designer
Let patients and caregivers 
design, and they will 
!x the problem! 
The Nightscout 
Project
But we have to overcome the 
#cultureofhealthcare 
which says:
“D!"#$r%&'(e)*+, & 
d-./0c!123n4567 
a-5'8h9:;<p9=#>,? 
N@A'BaC*;Dt%”
“OEFG0c9=#Hf45I0h9JK8h/ 
iELM>t-N'Br!O;>s4PQ3l%: 
sRPMSd?T;0c-5U8iEV' 
d4JW,t9X'8eYZQ$l!VG”
“D!"#$t%& t%'()o*+,- i. 
c/012e3 B4 t50 d6'78r & 
c69:;n< F=> t50 
p?@A$nB”
Have you guys heard 
about the 
Nightscout Project?
http://on.wsj.com/1zFbT1I
Patient as 
expert 
maker 
collaborator 
#thefutureofdiabetestechnology
Patient as 
expert 
http://bit.ly/10IUyph
Patient as 
maker
http://bit.ly/1qyPESH 
Patient as 
collaborator
John 
Costik 
Adrien de 
Croy 
Weston 
Nordgren II
John 
Costik 
Adrien de 
Croy 
Weston 
Nordgren II
#currentdiabetestechinnovation 
MD to Patient 
Passive 
Solitary
#futurediabetestechinnovation 
Patient to Patient 
Active 
Collaborative
THANK YOU 
John Costik 
Adrien de Croy 
Weston Nordgren II 
The Nightscout/#doc community 
David Klonoff 
Twitter: @NightscoutProj 
FB: CGM in the Cloud 
#wearenotwaiting

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Participatory Design, the "Making of Health", and the Future of Diabetes Technology