My talk at the 2015 American Diabetes Association meeting!

1. Applications of Social Media for
Research and Health Promotion
Joyce Lee, MD, MPH
Doctor as Designer
Twitter: @joyclee

2. JAMA Pediatrics
Social Media Editor

4. Agenda
• Social Media Statistics
• Users/Features
• Opportunities/Challenges

5. Agenda
• Social Media Statistics
• Users/Features
• Opportunities/Challenges

6. Q: Are there any other uses of
social media in clinical medicine
or research that you want to
learn about?
A: “No. This is a complete waste
of time. This is not real research.
The fad will die out soon.”

7. % of US Adults who use Social Media
(2012-2014)
Pew Research

11. Agenda
• Social Media Statistics
• Users/Features
• Opportunities/Challenges

14. “Teens are leaving Facebook in
droves for new friends like
Instagram, Snapchat and Twitter -
at an estimated rate of up to a
million a year…It’s hard to look cool
when you’re hanging out with Mom
and Dad.”

15. Intimacy
Less Social Pressure
“Privacy”
Fast and visual
Exclusively Mobile
Snapchat

16. Yikyak

22. Campaigns

30. http://foodborne.smartchicagoapps.org/

31. Measurement

32. Articleurl&utm_campaign=social_42414&utm_me
dium=email&utm_source=healthdesignbyus
Articleurl&utm_campaign=social_42414&utm_me
dium=twitter&utm_source=@healthbyus
Articleurl&utm_campaign=social_42414&utm_me
dium=facebook&utm_source=healthdesignbyus
Google Analytics

34. Recruitment

35. Facebook Targeting by:
• Age (18-25)
• Location (United States or California)
• Language (English)
• Tobacco- and/or marijuana-related keywords
that appeared in their Facebook profiles

36. Intervention

38. Rare Disease Research

39. Only pt with NGLY-1
#umichmed

40. #umichmed

41. 16 cases worldwide
Parent advocacy/fundraising
Treatments
Clinical Trials
#umichmed

42. #umichmed

43. Patient survey about protein losing enteropathy
(PLE) and plastic bronchitis (PB)
• Hosted on website & Facebook page
• Posted on 2 existing, patient-run Facebook
pages
• Request for survey results ->asked to refer
other individuals
• Google ads

45. Challenges

46. Limitations
• No available detailed clinical data (i.e.
hemodynamic data in CHD)
• Disease verification
• Bias of online communities
• Privacy (social media is not secure)

54. Social Media Research
in Diabetes

66. Studies
• Descriptive Survey
• Ethnography
– Health communities/Makers
• Facebook Mining
– Reliability of Health Information
• Patient powered research network?

67. Take the survey!
www.nightscoutstudy.info

68. http://nightscoutstudy.info/
http://twittersuperuser.com/