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How Data is Transforming Health and Society
1. +
Data for Good: How Data is
Transforming Health Care and Society
Jeanne Holm
April 28, 2016
2.
3. + What is Open Data?
Open data can be
freely used,
modified, and
shared by anyone
for any purpose
4. + What is Open Data?
Open data can be
freely used,
modified, and
shared by anyone
for any purpose
Private data =
proprietary,
personal,
discrete
+
5. + Who Benefits from Open Data?
Financial services
Health care
Communications and media
Energy and utilities
Charities and non-profits
Government
Retail and wholesale
Insurance
Manufacturing
Technology
Transportation
6. + Is Open Data Worth Using?
Open data creates $3 trillion of economic
growth annually in the US
7. +
Who’s Using Your Data
Open
data
Governments
Developers
Businesses
Customers Suppliers
Journalists
Researchers
Competitors
Worked to roll out Red Cross hurricane app the night of the storm
Evacuation risk and routes
http://www.hhs.gov/open/plan/medicare-program-data-transparency.html
Provider Health Care
Hospital costs vary widely
Finding better care for a parent (nursing home compare dataset: https://data.medicare.gov/data/nursing-home-compare
iTriage
Patients Like Me
Propeller Health
Flatiron Health = accelerate cancer research and care by connecting patient outcomes, treatments, clinical trials, and empowering doctors http://www.flatiron.com/ ($175M in start up funding)
Clear Health Costs = open data about pricing of most common procedures in your region http://clearhealthcosts.com/
Iodine is a yelp for all drug treatments, combining both medical experts and patients http://www.iodine.com/
Purple binder = health-related community services for individuals like food pantries, homeless shelters, etc.
Most diverse city on the planet
9 million people
147 languages spoken
65% of severe and fatal accidents are on 6% of our streets
Zero vision
Propeller Health
Nampiira and her husband live in Lugazi district, near Kampala, Uganda. They own a small farm. Like you and I, they have hopes and dreams for themselves and their family. They want a stable income, a safe home, and a good education and future for their children.
Each day they make decisions that will affect their future: what and when to plant, how to mitigate risk, and how to spend their money.
They are often subject to the whims of weather.
They want to build a well rather than gathering water at the river.
Satellite imagery of storms
APIs to data from space missions that show weather, land use, moisture levels in soil, and water on the surface and under the ground.
One of the most important things is getting water at the farm
Crowdsourcing of banana blight
Some of the decisions happen in Nampiira’s community without her knowledge. The crops she plants each year are partly determined by seed crop available and affordable. These can be identified by local businesses and seed companies through data gathered by crop viability, weather patterns, predicted blight, etc.
Mobile money for women’s saving group
Send my child to school
My daughter goes to college in Makerere and starts a new business based on open data for health care for maternal health
Data integration from multiple sources
Mapping seamlessly with geospatial data from many places
Analytics
Visualization
Mobile push and pull as we migrate from SMS to smart phones in Africa
Nampiira doesn’t have to change her culture, values, or dreams. What changes is that she is now confident in the decisions she makes, she is less worried about the future, and better able to handle the things that come up.
Africa Open Data Meet Up
Africa Open Data Conference in Dar es Salaam, Tanzania, September 2-6, 2015
Code for Africa, School of Data, Ebola Data Jam, Open Data for Development, Web Foundation, + more