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The Internet and Health:
 Controversies and Opportunities




The Internet and Health:

         Controversies and Opportunities


                                     Ignacio Basagoiti
                     Director de Campusalud www.campusalud.com
                 Proyecto Webs Médicas de Calidad www.pwmc.org
2
                          The Internet and Health:
                          Controversies and Opportunities

Objetives
 Internet
 Quality          g   limit the importance of topic

Experience        g   incite questions

Proposals         g   promote considerations
                  g   suggest, propose solutions



             I am going to exclusively speak of the health information,
             leaving aspects like the electronic mail, the communication
             between health profesionals and patients, the forums and
             spaces of interaction and other important emergent elements
             like health blogs, drugs commerce and the children in the
             Internet
3
                     The Internet and Health:
                     Controversies and Opportunities

Objetives
             An educated health care consumer is likely to get
 Internet    better care.
             A “citizen-centered health system” that promotes
 Quality     health, requires informed patients capables to take
Experience   their own decisions about your health.

Proposals
                            tree of Knowledge




                      The Internet as theTree of Knowledge
4
                               The Internet and Health:
                               Controversies and Opportunities

Objetives                                                               Connected users
 Internet
 Quality
Experience   Reino Unido
                                                        Nov 2002
                 Suecia
Proposals      Finlandia
                Portugal
                 Austria
                Holanda
             Luxemburgo
                  Italia
                 Irlanda
                 Francia
                 España                       31
                 Grecia
               Alemania
              Dinamarca                                                          Nº de individuos
                 Belgica                                      Fuente:EGM, 2003
                     UE                        43
                           0       20    40        60    80
5
                                   The Internet and Health:
                                   Controversies and Opportunities

Objetives                                                                          Algunos datos
                                                                            ciudadanos conectados
 Internet
                                                                                  (América Latina)
 Quality          Argentina
                     Bolivia

Experience            Brasil                                                      14,3
                       Chile

Proposals         Colombia
                      Cuba
             Rep Dominicana
                   Ecuador
                 El Salvador
                 Guatemala
                  Honduras
                  Nicaragua
                     Mexico
                    Panama
                  Paraguay
                       Peru
                Puerto Rico


                                                                                         22,8
                   Uruguay
                  Venezuela
                      Total


                               0      1      2      3          4        5

                                                                   Octubre 2003
                                                        http://global-reach.biz/globstats/refs.php3
6
                    The Internet and Health:
                    Controversies and Opportunities

Objetives                                             Algunos datos
                                                      Citizen conected
 Internet
 Quality
Experience   20,7               17
Proposals


              44,1 millones (39,8 spanish speakers)
              74,8 millones (60,5 spanish speakers)




                                22,8 + 14,3 =37,1

                                                               Nov 03
7
              The Internet and Health:
              Controversies and Opportunities

Objetives
 Internet                               Who, What and Why access to
                                               medical information?
 Quality
Experience
Proposals     “Health seekers” — Internet users who
                 search online for information on
             health topics, whether they are acting as
               consumers, caregivers, or e-patients
8
                       The Internet and Health:
                       Controversies and Opportunities

Objetives
 Internet                             Who?               Who, What and Why access to
                                                                medical information?
 Quality
Experience
                                                                   Use of Internet to look
Proposals                                                          for health information
              Eurobarometro 2003 (58.0)
             50

             45

             40

             35

             30

             25

             20

             15

             10

             5

             0
                  UE     B   DK   D   GR   E   FR   IR   IT   LX   NL   A   P   FIN   S   UK
9
                    The Internet and Health:
                 Controversies and Opportunities

Objetives
 Internet     Spain Who?                               Who, What and Why access to
                                                              medical information?
 Quality
             Spanish Health-Seekers os all those online, years 2003-2005.
Experience
Proposals
             2005                                28%




             2004                          23%




             2003                  18%




                    0%     5%        10%           15%       20%    25%     30%




                             Source: SIBIS 2004, INE 2003 & 2005
10
                          The Internet and Health:
                         Controversies and Opportunities

Objetives
 Internet
             g Number of spanish health-seekers has a continuous
 Quality     increase. 28% of citizens online search the internet for
             health information.
Experience
Proposals
11
                                     The Internet and Health:
                                    Controversies and Opportunities

Objetives
 Internet                       Spain Who?                                    Who, What and Why access to
                                                                                     medical information?
 Quality                  Global use of the Internet vs search health information, last tree
                                                  months, by age.
Experience                     Millares
                               16000

Proposals                      14000

                               12000

                               10000

                                 8000

                                 6000

                                 4000

                                 2000

                                    0
                                            Total 15-24 25-34 35-44 45-54                 55-64 65-74   >74
                       Total               15-24       25-34       35-44       45-54           55-64     65-74     >74

             Total   15.131.420           4.207.916   4.799.150   3.382.589   1.791.724       780.737   144.617   24.685
             Salud   4.255.720            867.193     1.467.377   1.161.245    516841          202288    35286    5489




                                                                   Source: INE 2005
12
                          The Internet and Health:
                         Controversies and Opportunities

Objetives
 Internet
             g Number of spanish health-seekers has a continuous
 Quality     increase. 28% of citizens online search the internet for
             health information.
Experience
             g Main number of the Internet users and health- seekers
Proposals
             are between 25 and 34 years.
13
                                    The Internet and Health:
                                    Controversies and Opportunities

Objetives
 Internet                   Spain Who?                            Who, What and Why access to
                                                                         medical information?
 Quality                      Percentage of the Internet users that search health information last tree
                                    month of whole poblation and online poblation, by gender.
Experience
                                                                                                   30,9
Proposals                           35               28,13
                                                                          25,84
                                    30

                                    25

                                    20

                                    15

                                    10

                                     5

                                     0       Total                Hombres                Mujeres

             % de poblacion total            4,87                  9,85                   9,45
             % de usuarios de Internet       28,13                 25,84                  30,9
14
                          The Internet and Health:
                         Controversies and Opportunities

Objetives
 Internet
             g Number of spanish health-seekers has a continuous
 Quality     increase. 28% of citizens online search the internet for
             health information.
Experience
             g Main number of the Internet users and health- seekers
Proposals
             are between 25 and 34 years.
             gWomen online search health information more than
             men (30,9 vs 25,8)
15
                                         The Internet and Health:
                                     Controversies and Opportunities

Objetives
 Internet                      Spain Who?                                  Who, What and Why access to
                                                                                  medical information?
 Quality                       Percentage users who search health information last tree years
                                 of whole population and online population by age groups.
Experience
                                    35
Proposals
                                    30


                                    25


                                    20


                                    15


                                    10


                                     5


                                     0     Total   15-24   25-34   35-44     45-54   55-64   65-74   >74

             % de poblacion total          4,87    16,15   19,07   16,3      9,15    4,36    0,92    0,16
             % de usuarios de Internet     28,13   20,61   30,58   34,33     28,85   25,91   24,4    22,24
16
                          The Internet and Health:
                         Controversies and Opportunities

Objetives
 Internet
             g Number of spanish health-seekers has a continuous
 Quality     increase. 28% of citizens online search the internet for
             health information.
Experience
             g Main number of the Internet users and health- seekers
Proposals
             are between 25 and 34 years.
             gWomen online search health information more than
             men (30,9 vs 25,8)
             g 34% of online users betwwen 35-44 years, searched
             the web for health information in last tree months.
17
                                The Internet and Health:
                                Controversies and Opportunities

Objetives
 Internet                  Spain Who?                                   Who, What and Why access to
                                                                               medical information?
 Quality
                       Percentage of use the Internet for search health information last tree
Experience                       month of all online users, by educational level.
                40
Proposals
                35


                30

                25

                20
                                                                                                           35,18
                15
                        28,13                                                  26,47          27,2
                                                                22,47
                10
                                                  16,65
                 5
                                      0
                 0
                                                             E.Secundaria   E.Secundaria
                        Todas     Analfabetos   E.Primaria                                 FP Superior   E.Superior
                                                                  1ª             2ª
             % salud    28,13          0          16,65         22,47          26,47          27,2         35,18
18
                          The Internet and Health:
                         Controversies and Opportunities

Objetives
 Internet
             g Number of spanish health-seekers has a continuous
 Quality     increase. 28% of citizens online search the internet for
             health information.
Experience
             g Main number of the Internet users and health- seekers
Proposals
             are between 25 and 34 years.
             gWomen online search health information more than
             men (30,9 vs 25,8)
             g34% of online users betwwen 35-44 years, search the
             web for health information in last tree months.
             g A higher educational level correlates a higher search for
             health information
19
                                 The Internet and Health:
                                 Controversies and Opportunities

Objetives
 Internet                  Spain Who?                           Who, What and Why access to
                                                                       medical information?
 Quality
                       Percentage of use the Internet for search health information last
Experience                    tree month of all online users, by work situation.
                 40

Proposals        35

                 30

                 25

                 20
                                                                        34,19       35,23       35,22
                 15                   29,3
                         28,13                  26,3
                 10                                         21,8

                  5

                  0
                                     Activos   Activos                 Labores
                         Todas                           Estudiantes             Pensionistas   Otras
                                    ocupados   parados                  hogar
             % salud     28,13        29,3      26,3        21,8        34,19       35,23       35,22
20
                          The Internet and Health:
                         Controversies and Opportunities

Objetives
                       Spain Who?                  Who, What and Why access to
                                                          medical information?
 Internet
             g Number of spanish health-seekers has a continuous
 Quality     increase. 28% of citizens online search the internet for
             health information.
Experience
             g Main number of the Internet users and health- seekers
Proposals
             are between 25 and 34 years.
             gWomen online search health information more than
             men (30,9 vs 25,8)
             g34% of online users betwwen 35-44 years, search the
             web for health information in last tree months.
             g A higher educational level correlates a higher search for
             health information
             g Housewife and pensioners online are the two groups
             with highest percentages of health-seekers
21
             The Internet and Health:
             Controversies and Opportunities

Objetives
 Internet             What?            Who, What and Why access to
                                              medical information?
 Quality
Experience
Proposals
22
                                    The Internet and Health:
                                    Controversies and Opportunities

Objetives
 Internet                           USA What?                              Who, What and Why access to
                                                                                  medical information?
 Quality                                       Health topics searched for by internet users

             Topics                                                        % of online men    % of online women
Experience
             Specific disease or medical problem                                  60                 71*

Proposals    Certain medical treatment or procedure                               46                 57*

             Diet, nutrition, vitamins, nutritional supplement                    43                 59*

             Exercise or fitness                                                  40                 45

             Prescription drugs or over-the-counter drugs                         36                 43

             Health insurance                                                     30                 31

             Alternative treatments or medicines                                  27                 33

             A particular doctor or hospital                                      27                 30

             Depression, anxiety, stress, mental health issues                    19                 26*

             Experimental treatments or medicines                                 21                 24

             Environmental health hazards                                         18                 18

             Immunizations or vaccinations                                        15                 17

             Sexual health information                                            11                 11

             Medicare or Medicaid                                                  9                 13

             Problems with alcohol or drugs                                        7                  9

             How to quit smoking                                                   5                 10*

             Source: Pew Internet & American Life Project November 2004
The Internet and Health:
             Controversies and Opportunities

Objetives
 Internet    USA What?                 Who, What and Why access to
                                              medical information?
 Quality
Experience
Proposals
24
                        The Internet and Health:
                       Controversies and Opportunities

Objetives
 Internet              USA What?                   Who, What and Why access to
                                                          medical information?
 Quality
Experience   44% of Internet users have searched online for information about
             diet, nutrition, vitamins, or nutritional supplements
Proposals
             36% have searched online for information about exercise or
             fitness. Internet users between the ages of 18 and 29 are the
             most likely to have searched for this type of information – 51%,
             compared to 35% of 30-49 year-olds, 28% of 50-64 year-olds,
             and just 13% of Internet users age 65 or older.

             34% users have ever searched online for information about
             prescription or over-the-counter drugs

             25% have searched online for information related to health
             insurance.
25
                   The Internet and Health:
                  Controversies and Opportunities

Objetives
 Internet         USA What?                     Who, What and Why access to
                                                       medical information?
 Quality
Experience
               80% internet users have looked online for
Proposals    information on at least one of 16 health topics, with
             increased interest since 2002 in diet, fitness, drugs,
             health insurance, experimental treatments, and
             particular doctors and hospitals.

               Some demographic groups showed notable interest
             in specific topics – 59% of online women have read up
             on nutrition information online, for example,
             compared with 43% of online men. Thirty-eight
             percent of online parents have checked online for
             health insurance information, compared with 26% of
             internet users who do not have children living at
             home.

                       Pew Internet & American Life Project May 2005.
26
                         The Internet and Health:
                         Controversies and Opportunities

Objetives
 Internet                USA Why?                   Who, What and Why access to
                                                           medical information?
 Quality
             Among other things, Internet users:
Experience       Research a diagnosis or prescription.
                 Prepare for surgery or find out how best to recover
Proposals    from one.
                 Get tips from other caregivers and e-patients about
             dealing with a particular symptom.
                 Give and receive emotional support.
                 Keep family and friends informed of a loved one’s
             condition.
                 Find humor and even joy in a bad situation

               More than half of those who recently conducted searches did so on
               behalf of someone else — a spouse, child, friend, or other loved
               one — not for themselves.
27
                         The Internet and Health:
                         Controversies and Opportunities

Objetives
 Internet                USA Why?                    Who, What and Why access to
                                                            medical information?
 Quality
             57% of those who recently conducted searches did so on behalf
Experience   of someone else — a spouse, child, friend, or other loved one —
             not for themselves.
Proposals

               parents, women, healthy people, and the middle aged
              between 30 and 49 years old.

                small group of Internet users who are living with a
              disability, handicap, or chronic disease.

                who take care of someone living in their household
28
                           The Internet and Health:
                           Controversies and Opportunities

Objetives
 Internet                  USA Why?                    Who, What and Why access to
                                                              medical information?
 Quality
Experience
               38% of online parents have checked online for health insurance
Proposals    information, compared with 26% of internet users who do not have
             children living at home.

               Caregivers who live with someone who is chronically ill or disabled, a
             group of searchers who make through and frequent use the Internet
             for health issues, are particularly likely to have searched for
             information about a specific treatment – 62% have done so

               44% of Internet users have searched online for information about
             diet, nutrition, vitamins, or nutritional supplements. Some of these
             searches are certainly for weight management
29
                         The Internet and Health:
                         Controversies and Opportunities

Objetives
 Internet             Advantages Health Care Information
 Quality
                Accesibility to information: one of the most
Experience   important aspects of online health advice is the fact that it
Proposals    is available at any hour of the day or night, from wherever
             users are able to log on.
                Instantaneous
                Comfortable
                Conectivity (interaction space)
                Personalization: allows consumers to customize the
             portal interface and information preferences
               Anonimity: is important that Internet users can get
             health information anonymously
30
                           The Internet and Health:
                          Controversies and Opportunities

Objetives
 Internet                  Problems Health Care Information
 Quality       Accesibility
                  oConection
Experience        oSpecial needs

Proposals      All we can = noise
             Not only can nearly everyone use the information, but publishing your own
             Web site is just as easy. This has resulted in an unprecedent proliferation of
             information sources on a global scale
               A new religion
             Absolutely trues, solution for whole problems, virtual sustitute...User must
             accept the considerable discrepancy (‘asymmetry’) in knowledge between
             themselves and health professionals.
               Credibility
             Information sources, scientific references
               Information excess–Organization chaos
             Where is Wally?
               “Plain language” Information must be
             comprehensible
               Cybercondriacs
31
                      The Internet and Health:
                      Controversies and Opportunities

Objetives
 Internet                 Problems Health Care Information
 Quality     Accesibility
               oConection
Experience     More than 70% world population have no access to a telephone
               line.
Proposals             Home Internet conection in Spain by kind and year

                Millares
                  5000

                  4000

                  3000

                  2000

                  1000

                      0
                           Whole homes online   Phone line traditional   Broadband
                   2003        3.599.054              2.683.193          1.275.790
                   2004        4.544.751              2.405.420          2.029.652
                   2005        4.982.199              2.124.647          2.956.752
32
                           The Internet and Health:
                          Controversies and Opportunities

Objetives
 Internet                   Problems Health Care Information
 Quality
               Accesibility
Experience                     Special needs
                                    oPhísicals
Proposals                           oCognitives
                                    oEducacionals

             Technical adaptation to ageing changes is necessary for better usability.
             Additionally, cognitive, psychological and social factors are just as important for
             optimizing access and usage of computers by the elderly population.

             Low health literacy limits many users’ ability to understand what is available
             online
33
                     The Internet and Health:
                    Controversies and Opportunities

Objetives
 Internet            Problems Health Care Information
 Quality
Experience
Proposals

                 Health .................... 4.220.000.000
                 Salud ....................... 136.000.000
                 Medicine................. 1.170.000.000

                                 30 march 2006

             Searching for information has become more
             difficult, and the quality of search results is often
             disappointing
34
                        The Internet and Health:
                       Controversies and Opportunities

Objetives
 Internet               Problems Health Care Information
 Quality
             Plain language” Information must be
Experience
             comprehensible.
Proposals
                 Consumer health information should be written at a
                 comprehensible reading level; often patients want
                 pragmatic information sauch as how long their illsness
                 will prevent them from working, before scientific details
35
                                           The Internet and Health:
                                           Controversies and Opportunities

Objetives
 Internet                                   Problems Health Care Information
             Cyberchondriacs
 Quality                       FREQUENCY OF ACCESSING HEALTH INFORMATION ONLINE: 1998-2005
                               "How often do you look for information online about health topics – often, sometimes, hardly ever or never?"
                               Base: Have access to Internet
Experience                          1998            1999             2001             2002             2003             2004            2005
Proposals                             %                %                %               %                %                %                   %
                Often                 12               13              16               18               17               19              25
                Sometimes             30               30              30               35               37               31              33
                Hardly ever           29               31              30               27               23               24              14
                Never                 29               26              25               20               22               26              29

                Total who
                have
                looked for
                health or
                medical               42              43               46               53               54              50               58
                informati
                on
                sometimes
                or often
                Total who
                have    ever
                looked for
                                      71               74              75               80               78               74              72
                health    or
                medical
                information
35
                           The Internet and Health:
                          Controversies and Opportunities

Objetives
 Internet                  Problems Health Care Information
 Quality     Cyberchondriacs
Experience
                       Adults who now look for medical data
Proposals              or on sanitary cares assiduously do it
                       more than in previous years.

                •Although the total number of adults who have looked
                Health information online there are decreased, the
                frequency with which the North American users consult
                the pages Web that offer health contents increases.

                •Thus, 58% of the interviewed people whom they have
                access to Internet recognize that it looks for this class of
                information "some times" or "often", 50% as opposed to
                that it consulted these news year the past.
36
                       The Internet and Health:
                      Controversies and Opportunities

Objetives
 Internet              Solutions Health Care Information
 Quality
Experience
                    accesibility
Proposals

             □The European Commission has been active in
             establishing quality criteria for Health related
             websites and accessibility of web sites. Patients who
             seek online health information may have a variety of
             physical impairments, and its important to develop
             resources that are usable by individuals with
             disabilities.
             □The Web Accesible initiative (WAI) and the
             spanish UNE 139803, provides guidelines for
             assuring broad accesibility to Internet Based
             Information.
37
                           The Internet and Health:
                          Controversies and Opportunities

Objetives
 Internet                  Solutions Health Care Information
 Quality
Experience         credibility
Proposals
               Self- regulaing policies
             They are the rules and guiding principles a health site follows with respect to
             privacy, security, editorial, and advertising. Their main problema are that
             often are posted as footnotes –so consumers may be unaware of their
             existence- , are self-proclaimed, and are not standardized.


               Source disclosure.
             By using high-quality sources, a health site can demonstrate it has the ability
             to gather, organize, and present quality health information and add value for
             consumers. If consumers trust most of the sources used by a health portal,
             they are likely to transfer that trust to the portal itself.
38
                          The Internet and Health:
                          Controversies and Opportunities

Objetives
 Internet                  Solutions Health Care Information
 Quality
Experience
               Acredited Search Engines
Proposals
              The search engines, on the heels of the Web, realized
             that they have a real stake in making sure the results of
             their searches are relevant, reliable and trustworthy.
             Rather search engines (not specialized) promoting
             trustworthy health and medical sites such as
             Kosmix.com, mamashealth.com, Webmd.com and
             Healthline.com whith “touts sites that have been
             accredited by online Web ethics committees like the
             Health on the Net Foundation.”
39
                      The Internet and Health:
                      Controversies and Opportunities

Objetives
 Internet
             g   Authority, Transparency and Honesty
 Quality
Experience   g   Contents:
                  gtrustworthy,
Proposals         gupdated,

                  glegible,
                                                          iniciativas
                  gadapted to the receiver
                                                  • eHealth
             g   Orientación:                     • Hon Code
                  g receiver information,
                                                  • Discern
                  g segmentation
                  (patients vs profesionals)      • IHC
                  g   disclaimers,
                  g   contact facilities,         • pWMC
                  g   usability                   • WMA
40
              The Internet and Health:
             Controversies and Opportunities

Objetives
                                                            iniciatives
 Internet
                                          HON PRINCIPLES (*)

 Quality                       1     2    3     4     5    6        7   8


Experience       WMA



Proposals        PWMC



             HON: Authority / Complementarity / Confidentiality /
             Attribution / Justifiability / Authorship /
             Sponsorship / Editorial policy .


                             eEUROPE 2002 QUALITY CRITERIA (*)

                               1     2    3     4     5    6


                 WMA



                 PWMC


             eEurope: Transparency and Honesty / Authority
             / Privacy / Updating / Accountability /
             Accesibility
41
                          The Internet and Health:
                         Controversies and Opportunities

Objetives                                                      una duda ...
 Internet
 Quality     Who must assume responsability offer health
Experience   information online to citizen?
Proposals
                  g   goverment institutions
                  g   medical societies and organizations
                  g   patient associations(asoc. enfermos, autoayuda...)
                  g   profesional staff
42
                              The Internet and Health:
                              Controversies and Opportunities

 Objetives                                                                             una duda ...
 Internet
                 ...What sources of information trust european citizens?
  Quality
Experiences
                                    0     20          40      60          80          100

 Proposals
               Medical societies                                               84,4


              Org consumidores                                     67,2


                    Universities                                   65,5


                    Mass Media                         39,3


                     Goverment                 23,4


                   Org religious               22,9


                    Political org       10,7

                                                                    Eurobarometro 2003 (58.0)
43
                      The Internet and Health:
                     Controversies and Opportunities

Objetives
 Internet
 Quality     En la mejora de calidad ...
Experience
Proposals                proyect Webs Médicas de Calidad (pWMC)
44
                          The Internet and Health:
                         Controversies and Opportunities

Objetives                     proyecto Webs Médicas de Calidad (pWMC)
 Internet
             Is ....
 Quality
Experience          An inter-institutional iniciative with an important
                    Presence of scientific organizations (TSB, AEP...)
Proposals
             Look for ...
                       An rigurous acreditation of the Internet
                       resources, since ethic and usability perspective


             Seal
45
                       The Internet and Health:
                      Controversies and Opportunities

Objetives
 Internet                  Internet presence
 Quality              E-journal ?
                                     Educaensalud ?      Campusalud vs
Experience                                                 TSBsalud
Proposals

                                        web TSB



             Accesibility plans
                                                        Online education?
             Experts group NTS
                                                          pWMC
                                  Campusalud Prof
46
                     The Internet and Health:
                     Controversies and Opportunities

Objetives
 Internet
 Quality               A Patients Virtual Library
Experience
Proposals    Access to credible and comprehensible health information
             Evidence based information
             Documents offers by prestige organizations
             User friendly and accesible tools
             Free log in
             Pattern standard defined by BIREME-PAHO/WHO


                     A reference site where obtain
                     trustworthy health information for
                     citizens who consume that like for
                     professionals who must provide it
47
              The Internet and Health:
              Controversies and Opportunities

Objetives
 Internet      Finding relevant information
                    and ascertaining its
 Quality         trustworthiness are two
Experience   inseparable concepts necessary
               for the web to flourish as an
Proposals        unpredecedent source of
                knowledge and continue in
Conclusion    helping ill patient or citizen to
                       stay healthy
The Internet and Health:
Controversies and Opportunities




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The Internet And Health : Controversies and opportunities

  • 1. The Internet and Health: Controversies and Opportunities The Internet and Health: Controversies and Opportunities Ignacio Basagoiti Director de Campusalud www.campusalud.com Proyecto Webs Médicas de Calidad www.pwmc.org
  • 2. 2 The Internet and Health: Controversies and Opportunities Objetives Internet Quality g limit the importance of topic Experience g incite questions Proposals g promote considerations g suggest, propose solutions I am going to exclusively speak of the health information, leaving aspects like the electronic mail, the communication between health profesionals and patients, the forums and spaces of interaction and other important emergent elements like health blogs, drugs commerce and the children in the Internet
  • 3. 3 The Internet and Health: Controversies and Opportunities Objetives An educated health care consumer is likely to get Internet better care. A “citizen-centered health system” that promotes Quality health, requires informed patients capables to take Experience their own decisions about your health. Proposals tree of Knowledge The Internet as theTree of Knowledge
  • 4. 4 The Internet and Health: Controversies and Opportunities Objetives Connected users Internet Quality Experience Reino Unido Nov 2002 Suecia Proposals Finlandia Portugal Austria Holanda Luxemburgo Italia Irlanda Francia España 31 Grecia Alemania Dinamarca Nº de individuos Belgica Fuente:EGM, 2003 UE 43 0 20 40 60 80
  • 5. 5 The Internet and Health: Controversies and Opportunities Objetives Algunos datos ciudadanos conectados Internet (América Latina) Quality Argentina Bolivia Experience Brasil 14,3 Chile Proposals Colombia Cuba Rep Dominicana Ecuador El Salvador Guatemala Honduras Nicaragua Mexico Panama Paraguay Peru Puerto Rico 22,8 Uruguay Venezuela Total 0 1 2 3 4 5 Octubre 2003 http://global-reach.biz/globstats/refs.php3
  • 6. 6 The Internet and Health: Controversies and Opportunities Objetives Algunos datos Citizen conected Internet Quality Experience 20,7 17 Proposals 44,1 millones (39,8 spanish speakers) 74,8 millones (60,5 spanish speakers) 22,8 + 14,3 =37,1 Nov 03
  • 7. 7 The Internet and Health: Controversies and Opportunities Objetives Internet Who, What and Why access to medical information? Quality Experience Proposals “Health seekers” — Internet users who search online for information on health topics, whether they are acting as consumers, caregivers, or e-patients
  • 8. 8 The Internet and Health: Controversies and Opportunities Objetives Internet Who? Who, What and Why access to medical information? Quality Experience Use of Internet to look Proposals for health information Eurobarometro 2003 (58.0) 50 45 40 35 30 25 20 15 10 5 0 UE B DK D GR E FR IR IT LX NL A P FIN S UK
  • 9. 9 The Internet and Health: Controversies and Opportunities Objetives Internet Spain Who? Who, What and Why access to medical information? Quality Spanish Health-Seekers os all those online, years 2003-2005. Experience Proposals 2005 28% 2004 23% 2003 18% 0% 5% 10% 15% 20% 25% 30% Source: SIBIS 2004, INE 2003 & 2005
  • 10. 10 The Internet and Health: Controversies and Opportunities Objetives Internet g Number of spanish health-seekers has a continuous Quality increase. 28% of citizens online search the internet for health information. Experience Proposals
  • 11. 11 The Internet and Health: Controversies and Opportunities Objetives Internet Spain Who? Who, What and Why access to medical information? Quality Global use of the Internet vs search health information, last tree months, by age. Experience Millares 16000 Proposals 14000 12000 10000 8000 6000 4000 2000 0 Total 15-24 25-34 35-44 45-54 55-64 65-74 >74 Total 15-24 25-34 35-44 45-54 55-64 65-74 >74 Total 15.131.420 4.207.916 4.799.150 3.382.589 1.791.724 780.737 144.617 24.685 Salud 4.255.720 867.193 1.467.377 1.161.245 516841 202288 35286 5489 Source: INE 2005
  • 12. 12 The Internet and Health: Controversies and Opportunities Objetives Internet g Number of spanish health-seekers has a continuous Quality increase. 28% of citizens online search the internet for health information. Experience g Main number of the Internet users and health- seekers Proposals are between 25 and 34 years.
  • 13. 13 The Internet and Health: Controversies and Opportunities Objetives Internet Spain Who? Who, What and Why access to medical information? Quality Percentage of the Internet users that search health information last tree month of whole poblation and online poblation, by gender. Experience 30,9 Proposals 35 28,13 25,84 30 25 20 15 10 5 0 Total Hombres Mujeres % de poblacion total 4,87 9,85 9,45 % de usuarios de Internet 28,13 25,84 30,9
  • 14. 14 The Internet and Health: Controversies and Opportunities Objetives Internet g Number of spanish health-seekers has a continuous Quality increase. 28% of citizens online search the internet for health information. Experience g Main number of the Internet users and health- seekers Proposals are between 25 and 34 years. gWomen online search health information more than men (30,9 vs 25,8)
  • 15. 15 The Internet and Health: Controversies and Opportunities Objetives Internet Spain Who? Who, What and Why access to medical information? Quality Percentage users who search health information last tree years of whole population and online population by age groups. Experience 35 Proposals 30 25 20 15 10 5 0 Total 15-24 25-34 35-44 45-54 55-64 65-74 >74 % de poblacion total 4,87 16,15 19,07 16,3 9,15 4,36 0,92 0,16 % de usuarios de Internet 28,13 20,61 30,58 34,33 28,85 25,91 24,4 22,24
  • 16. 16 The Internet and Health: Controversies and Opportunities Objetives Internet g Number of spanish health-seekers has a continuous Quality increase. 28% of citizens online search the internet for health information. Experience g Main number of the Internet users and health- seekers Proposals are between 25 and 34 years. gWomen online search health information more than men (30,9 vs 25,8) g 34% of online users betwwen 35-44 years, searched the web for health information in last tree months.
  • 17. 17 The Internet and Health: Controversies and Opportunities Objetives Internet Spain Who? Who, What and Why access to medical information? Quality Percentage of use the Internet for search health information last tree Experience month of all online users, by educational level. 40 Proposals 35 30 25 20 35,18 15 28,13 26,47 27,2 22,47 10 16,65 5 0 0 E.Secundaria E.Secundaria Todas Analfabetos E.Primaria FP Superior E.Superior 1ª 2ª % salud 28,13 0 16,65 22,47 26,47 27,2 35,18
  • 18. 18 The Internet and Health: Controversies and Opportunities Objetives Internet g Number of spanish health-seekers has a continuous Quality increase. 28% of citizens online search the internet for health information. Experience g Main number of the Internet users and health- seekers Proposals are between 25 and 34 years. gWomen online search health information more than men (30,9 vs 25,8) g34% of online users betwwen 35-44 years, search the web for health information in last tree months. g A higher educational level correlates a higher search for health information
  • 19. 19 The Internet and Health: Controversies and Opportunities Objetives Internet Spain Who? Who, What and Why access to medical information? Quality Percentage of use the Internet for search health information last Experience tree month of all online users, by work situation. 40 Proposals 35 30 25 20 34,19 35,23 35,22 15 29,3 28,13 26,3 10 21,8 5 0 Activos Activos Labores Todas Estudiantes Pensionistas Otras ocupados parados hogar % salud 28,13 29,3 26,3 21,8 34,19 35,23 35,22
  • 20. 20 The Internet and Health: Controversies and Opportunities Objetives Spain Who? Who, What and Why access to medical information? Internet g Number of spanish health-seekers has a continuous Quality increase. 28% of citizens online search the internet for health information. Experience g Main number of the Internet users and health- seekers Proposals are between 25 and 34 years. gWomen online search health information more than men (30,9 vs 25,8) g34% of online users betwwen 35-44 years, search the web for health information in last tree months. g A higher educational level correlates a higher search for health information g Housewife and pensioners online are the two groups with highest percentages of health-seekers
  • 21. 21 The Internet and Health: Controversies and Opportunities Objetives Internet What? Who, What and Why access to medical information? Quality Experience Proposals
  • 22. 22 The Internet and Health: Controversies and Opportunities Objetives Internet USA What? Who, What and Why access to medical information? Quality Health topics searched for by internet users Topics % of online men % of online women Experience Specific disease or medical problem 60 71* Proposals Certain medical treatment or procedure 46 57* Diet, nutrition, vitamins, nutritional supplement 43 59* Exercise or fitness 40 45 Prescription drugs or over-the-counter drugs 36 43 Health insurance 30 31 Alternative treatments or medicines 27 33 A particular doctor or hospital 27 30 Depression, anxiety, stress, mental health issues 19 26* Experimental treatments or medicines 21 24 Environmental health hazards 18 18 Immunizations or vaccinations 15 17 Sexual health information 11 11 Medicare or Medicaid 9 13 Problems with alcohol or drugs 7 9 How to quit smoking 5 10* Source: Pew Internet & American Life Project November 2004
  • 23. The Internet and Health: Controversies and Opportunities Objetives Internet USA What? Who, What and Why access to medical information? Quality Experience Proposals
  • 24. 24 The Internet and Health: Controversies and Opportunities Objetives Internet USA What? Who, What and Why access to medical information? Quality Experience 44% of Internet users have searched online for information about diet, nutrition, vitamins, or nutritional supplements Proposals 36% have searched online for information about exercise or fitness. Internet users between the ages of 18 and 29 are the most likely to have searched for this type of information – 51%, compared to 35% of 30-49 year-olds, 28% of 50-64 year-olds, and just 13% of Internet users age 65 or older. 34% users have ever searched online for information about prescription or over-the-counter drugs 25% have searched online for information related to health insurance.
  • 25. 25 The Internet and Health: Controversies and Opportunities Objetives Internet USA What? Who, What and Why access to medical information? Quality Experience 80% internet users have looked online for Proposals information on at least one of 16 health topics, with increased interest since 2002 in diet, fitness, drugs, health insurance, experimental treatments, and particular doctors and hospitals. Some demographic groups showed notable interest in specific topics – 59% of online women have read up on nutrition information online, for example, compared with 43% of online men. Thirty-eight percent of online parents have checked online for health insurance information, compared with 26% of internet users who do not have children living at home. Pew Internet & American Life Project May 2005.
  • 26. 26 The Internet and Health: Controversies and Opportunities Objetives Internet USA Why? Who, What and Why access to medical information? Quality Among other things, Internet users: Experience Research a diagnosis or prescription. Prepare for surgery or find out how best to recover Proposals from one. Get tips from other caregivers and e-patients about dealing with a particular symptom. Give and receive emotional support. Keep family and friends informed of a loved one’s condition. Find humor and even joy in a bad situation More than half of those who recently conducted searches did so on behalf of someone else — a spouse, child, friend, or other loved one — not for themselves.
  • 27. 27 The Internet and Health: Controversies and Opportunities Objetives Internet USA Why? Who, What and Why access to medical information? Quality 57% of those who recently conducted searches did so on behalf Experience of someone else — a spouse, child, friend, or other loved one — not for themselves. Proposals parents, women, healthy people, and the middle aged between 30 and 49 years old. small group of Internet users who are living with a disability, handicap, or chronic disease. who take care of someone living in their household
  • 28. 28 The Internet and Health: Controversies and Opportunities Objetives Internet USA Why? Who, What and Why access to medical information? Quality Experience 38% of online parents have checked online for health insurance Proposals information, compared with 26% of internet users who do not have children living at home. Caregivers who live with someone who is chronically ill or disabled, a group of searchers who make through and frequent use the Internet for health issues, are particularly likely to have searched for information about a specific treatment – 62% have done so 44% of Internet users have searched online for information about diet, nutrition, vitamins, or nutritional supplements. Some of these searches are certainly for weight management
  • 29. 29 The Internet and Health: Controversies and Opportunities Objetives Internet Advantages Health Care Information Quality Accesibility to information: one of the most Experience important aspects of online health advice is the fact that it Proposals is available at any hour of the day or night, from wherever users are able to log on. Instantaneous Comfortable Conectivity (interaction space) Personalization: allows consumers to customize the portal interface and information preferences Anonimity: is important that Internet users can get health information anonymously
  • 30. 30 The Internet and Health: Controversies and Opportunities Objetives Internet Problems Health Care Information Quality Accesibility oConection Experience oSpecial needs Proposals All we can = noise Not only can nearly everyone use the information, but publishing your own Web site is just as easy. This has resulted in an unprecedent proliferation of information sources on a global scale A new religion Absolutely trues, solution for whole problems, virtual sustitute...User must accept the considerable discrepancy (‘asymmetry’) in knowledge between themselves and health professionals. Credibility Information sources, scientific references Information excess–Organization chaos Where is Wally? “Plain language” Information must be comprehensible Cybercondriacs
  • 31. 31 The Internet and Health: Controversies and Opportunities Objetives Internet Problems Health Care Information Quality Accesibility oConection Experience More than 70% world population have no access to a telephone line. Proposals Home Internet conection in Spain by kind and year Millares 5000 4000 3000 2000 1000 0 Whole homes online Phone line traditional Broadband 2003 3.599.054 2.683.193 1.275.790 2004 4.544.751 2.405.420 2.029.652 2005 4.982.199 2.124.647 2.956.752
  • 32. 32 The Internet and Health: Controversies and Opportunities Objetives Internet Problems Health Care Information Quality Accesibility Experience Special needs oPhísicals Proposals oCognitives oEducacionals Technical adaptation to ageing changes is necessary for better usability. Additionally, cognitive, psychological and social factors are just as important for optimizing access and usage of computers by the elderly population. Low health literacy limits many users’ ability to understand what is available online
  • 33. 33 The Internet and Health: Controversies and Opportunities Objetives Internet Problems Health Care Information Quality Experience Proposals Health .................... 4.220.000.000 Salud ....................... 136.000.000 Medicine................. 1.170.000.000 30 march 2006 Searching for information has become more difficult, and the quality of search results is often disappointing
  • 34. 34 The Internet and Health: Controversies and Opportunities Objetives Internet Problems Health Care Information Quality Plain language” Information must be Experience comprehensible. Proposals Consumer health information should be written at a comprehensible reading level; often patients want pragmatic information sauch as how long their illsness will prevent them from working, before scientific details
  • 35. 35 The Internet and Health: Controversies and Opportunities Objetives Internet Problems Health Care Information Cyberchondriacs Quality FREQUENCY OF ACCESSING HEALTH INFORMATION ONLINE: 1998-2005 "How often do you look for information online about health topics – often, sometimes, hardly ever or never?" Base: Have access to Internet Experience 1998 1999 2001 2002 2003 2004 2005 Proposals % % % % % % % Often 12 13 16 18 17 19 25 Sometimes 30 30 30 35 37 31 33 Hardly ever 29 31 30 27 23 24 14 Never 29 26 25 20 22 26 29 Total who have looked for health or medical 42 43 46 53 54 50 58 informati on sometimes or often Total who have ever looked for 71 74 75 80 78 74 72 health or medical information
  • 36. 35 The Internet and Health: Controversies and Opportunities Objetives Internet Problems Health Care Information Quality Cyberchondriacs Experience Adults who now look for medical data Proposals or on sanitary cares assiduously do it more than in previous years. •Although the total number of adults who have looked Health information online there are decreased, the frequency with which the North American users consult the pages Web that offer health contents increases. •Thus, 58% of the interviewed people whom they have access to Internet recognize that it looks for this class of information "some times" or "often", 50% as opposed to that it consulted these news year the past.
  • 37. 36 The Internet and Health: Controversies and Opportunities Objetives Internet Solutions Health Care Information Quality Experience accesibility Proposals □The European Commission has been active in establishing quality criteria for Health related websites and accessibility of web sites. Patients who seek online health information may have a variety of physical impairments, and its important to develop resources that are usable by individuals with disabilities. □The Web Accesible initiative (WAI) and the spanish UNE 139803, provides guidelines for assuring broad accesibility to Internet Based Information.
  • 38. 37 The Internet and Health: Controversies and Opportunities Objetives Internet Solutions Health Care Information Quality Experience credibility Proposals Self- regulaing policies They are the rules and guiding principles a health site follows with respect to privacy, security, editorial, and advertising. Their main problema are that often are posted as footnotes –so consumers may be unaware of their existence- , are self-proclaimed, and are not standardized. Source disclosure. By using high-quality sources, a health site can demonstrate it has the ability to gather, organize, and present quality health information and add value for consumers. If consumers trust most of the sources used by a health portal, they are likely to transfer that trust to the portal itself.
  • 39. 38 The Internet and Health: Controversies and Opportunities Objetives Internet Solutions Health Care Information Quality Experience Acredited Search Engines Proposals The search engines, on the heels of the Web, realized that they have a real stake in making sure the results of their searches are relevant, reliable and trustworthy. Rather search engines (not specialized) promoting trustworthy health and medical sites such as Kosmix.com, mamashealth.com, Webmd.com and Healthline.com whith “touts sites that have been accredited by online Web ethics committees like the Health on the Net Foundation.”
  • 40. 39 The Internet and Health: Controversies and Opportunities Objetives Internet g Authority, Transparency and Honesty Quality Experience g Contents: gtrustworthy, Proposals gupdated, glegible, iniciativas gadapted to the receiver • eHealth g Orientación: • Hon Code g receiver information, • Discern g segmentation (patients vs profesionals) • IHC g disclaimers, g contact facilities, • pWMC g usability • WMA
  • 41. 40 The Internet and Health: Controversies and Opportunities Objetives iniciatives Internet HON PRINCIPLES (*) Quality 1 2 3 4 5 6 7 8 Experience WMA Proposals PWMC HON: Authority / Complementarity / Confidentiality / Attribution / Justifiability / Authorship / Sponsorship / Editorial policy . eEUROPE 2002 QUALITY CRITERIA (*) 1 2 3 4 5 6 WMA PWMC eEurope: Transparency and Honesty / Authority / Privacy / Updating / Accountability / Accesibility
  • 42. 41 The Internet and Health: Controversies and Opportunities Objetives una duda ... Internet Quality Who must assume responsability offer health Experience information online to citizen? Proposals g goverment institutions g medical societies and organizations g patient associations(asoc. enfermos, autoayuda...) g profesional staff
  • 43. 42 The Internet and Health: Controversies and Opportunities Objetives una duda ... Internet ...What sources of information trust european citizens? Quality Experiences 0 20 40 60 80 100 Proposals Medical societies 84,4 Org consumidores 67,2 Universities 65,5 Mass Media 39,3 Goverment 23,4 Org religious 22,9 Political org 10,7 Eurobarometro 2003 (58.0)
  • 44. 43 The Internet and Health: Controversies and Opportunities Objetives Internet Quality En la mejora de calidad ... Experience Proposals proyect Webs Médicas de Calidad (pWMC)
  • 45. 44 The Internet and Health: Controversies and Opportunities Objetives proyecto Webs Médicas de Calidad (pWMC) Internet Is .... Quality Experience An inter-institutional iniciative with an important Presence of scientific organizations (TSB, AEP...) Proposals Look for ... An rigurous acreditation of the Internet resources, since ethic and usability perspective Seal
  • 46. 45 The Internet and Health: Controversies and Opportunities Objetives Internet Internet presence Quality E-journal ? Educaensalud ? Campusalud vs Experience TSBsalud Proposals web TSB Accesibility plans Online education? Experts group NTS pWMC Campusalud Prof
  • 47. 46 The Internet and Health: Controversies and Opportunities Objetives Internet Quality A Patients Virtual Library Experience Proposals Access to credible and comprehensible health information Evidence based information Documents offers by prestige organizations User friendly and accesible tools Free log in Pattern standard defined by BIREME-PAHO/WHO A reference site where obtain trustworthy health information for citizens who consume that like for professionals who must provide it
  • 48. 47 The Internet and Health: Controversies and Opportunities Objetives Internet Finding relevant information and ascertaining its Quality trustworthiness are two Experience inseparable concepts necessary for the web to flourish as an Proposals unpredecedent source of knowledge and continue in Conclusion helping ill patient or citizen to stay healthy
  • 49. The Internet and Health: Controversies and Opportunities Thank you!!