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JEIGH HALL : NEW MEDIA DESIGNER

JAMES HALL
E . J AY. H A L L 8 9 @ G M A I L . C O M
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Research
                                                                                                                                                        3 HINTS TO AUTISM                              principal investigator in the National Institute of   go by. But using the wrong intervention for a
                                                                                                                                                                                                       Mental Healthʼs Intramural Research Program           child with ASD can squander a precious window
                                                                                                                                                                                                       on autism. “Weʼre muddying the waters.” Not           of opportunity. Learning is life long, but many
                                                                                                                                                                                                       everyone concurs, “In many areas of the country,      kids who receive intensive intervention early,
                                                                                                                                                                                                       there is still a problem with under-diagnosis,”       in their first five years, do better than those


                                                          demonstrates that
                                                                                                                                                                                                       says Nancy Minshew, M.D. a professor of               who receive it later.” Establishing treatment


                      are distributed into
                                                                                                                                                                                                       psychiatry and neurology at the University of         standards so parents can choose effective


                                           the non-autistic po                  autistic traits                                                                                                        Pittsburghʼs School of Medicine. There is also
                                                                                                                                                                                                       growing concern that minority children are
                                                                                                                                                                                                                                                             programs is the mission of the newly organized
                                                                                                                                                                                                                                                             NAC (National Autism Center).


                      more of them, som                        pulation; some peop                                                                                                                     diagnosedat a rate far below that of Caucasian


                                          e have fewer. Hist                           le have
                                                                                                                                                                                                       kids, and at later ages.
                                                                                                                                                                                                                                                               THE GOOD NEW
                     viduals whom we                         ory suggests that m                                                                                                                       Experts do agree, however, that there is no one


                                         would today diagno                         any indi-                                                           Autism was first described and named           thing called autism, but that there are autisms
                                                                                                                                                                                                                                                               Millions of dollars have been


                                                               se as autistic - som
                                                                                                                                                                                                       - the broad categories of “regressive” and              spent to determine what autism

                     so - contributed pr
                                                                                                                                                        in 1943 and was said to comprise three
                                                                                                                                                                                                                                                               is, what causes it, and how we

                                                                                     e severely
                                                                                                                                                        common characteristics:
                                                                                                                                                                                                       “non-regressive” types, as well as subtypes


                                         ofoundly to our ar
                                                                                                                                                                                                       within these categories. To help clear up the           might prevent or cure it. And

                                                            t, our math, our sc
                                                                                                                                                        • Autistic children prefer to relate to



                     our literature. “
                                                                                                                                                        objects over people                            controversy, the National Institute of Mental           thatʼs all to the good. Weʼre on


                                                                                  ience, and
                                                                                                                                                                                                       Health launched a vast study last September             the brink of learning which genes
                                                                                                                                                        • Theyʼre obsessed with maintaining            to identify variants and refine the way doctors         predispose a child to autism and
                                                                                                                                                        routines and sameness in their lives
                                                                                                                                                                                                       make diagnoses. So as prevalent as autism is.           what might trigger its onset.
                                                                                                                                                        • They tend to seek complete aloneness,                                                                While a cure is not yet in sight,
                                                                                                                                                        shutting out the world around them.            DIAGNOSIS & TREATMENT
                                                                                                                                                                                                                                                               evʼve begun to figure out what

                    -- Morton Gernsba                                                                                                                                                                                                                          works for some children, in terms

                                            cher, parent of an
                                                                                                                                                                                                       How can you know - and how ealry can you find
                                                                                                                                                                                                       out - if your child falls anywhere on the broad         of intervention between the ages

                                                                    autistic child.                                                                 concerns.                                          spectrum?                                               of 12 months and 5 years. “I
                                                                                                                                                    While the disorder has always been said to                                                                 do think, on balance, kids are
                                                                                                                                                    represent a “spectrum,” or range, of problems,     Parents whoʼve noted that their 14-month old            doing better,” says Dr. Volkmar.
                                                                                                                                                    today more children than in the past whose         doesnʼt babble or point, is losing skills, or           “Twenty-five years ago, when I
                                                                                                                                                    symptoms show both moreand less- severity          isnʼt talking by 18 months should talk to their         did my first follow-up on adults
                                                                                                                                                    are included. For instance,kids with Asperger      pediatrician and get a deveopmental screening.          Iʼd diagnosed as kids - kids
                                                                                                                                                    syndrome, which refers to high intelligence        If it indicates a possible problem, you should be
                                                                                                                                                                                                                                                               who never had any intervention
                                                                                                                                                    without language deficits but with social          referred to a specialist who can evaluate your
                                                                                                                                                                                                                                                               - only about two percent could
                                                                                                                                                    impairments, are placed on the spectrum, as        child further using tools such as the Autism
                                                                                                                                                    are those whose symptoms are so severe that        Diagnostic Observation Schedule (ADOS), a
                                                                                                                                                                                                                                                               live along, hold a job. But since
                                                                                                                                                    a generation ago they would have been termed       workup done by observing and interacting with           we started mandating education
                                                                                                                                                    mentally retarded.                                 the child.                                              and services, weʼre seeing more
                                                                                                                                                                                                                                                               independent kids. Iʼd say that
                                                                                                                                                    No one disputes that the number of children        That said, getting a qualified medical                  two percent has become more
                                                                                                                                                    diagnosed with an autistic spectrum disorder       diagnosis for an infant or a toddler is not the         like twenty.” In other words,
                                                                                                                                                    (ASD) has gone way up compared with statistics     straightforward process it should be. Thereʼs           weʼre doing ten times better than
                                                                                                                                                    from 30 years ago.                                 “tremendous variability” in the skill that public       we were doing a generation ago
                                                                                                                                                    But as widespread as ASD appears to be-            agencies and private practices bring to the
                                                                                                                                                                                                                                                               Thatʼs the “growing number”
                                                                                                                                                    affecting as many as 1 in every 150 children,      screening process, says Fred Volkmar, M.D.,
                                                                                                                                                                                                                                                               we s h o u l d b e a w a r e o f .
                                                                                                                                                    according to the Centers for Disease Control       chairman of the Department of Child Study at
                                                                                                                                                    and Prevention - experts agree that it cannot be   Yale University. “Weʼve put a lot of money into
                                                                                                                                                                                                                                                               A n d thatʼs the evidence we
                                                                                                                                                    called an “epidemic.                               research but not enough into translating that           should start seeing.
                                                                                                                                                                                                       research into medical practice.”
                                                                                                                                                    The fact is, itʼs impossible to compare how
                                                                                                                                                    common autism is today with 10 or 20 years         And a sound diagnosis is only the beginning.




                                                                                                                                                                                                                                                               AUTI
                                                                                                                                                    ago. Not only are doctors better at spotting       Treatment is the next step, and there are no
                                                                                                                                                    ASD, so the diagnosis is more frequent, but        fewer than ten types of interventions offered
                                                                                                                                                    many experts say that doctorsʼ interpretation      nationwide that work to some degree, says Dr.
                                                                                                                                                    of the spectrum has become so inclusive that       Volkmar.
                                                                                                                                                    a diagnosis of autism is no diagnosis at all.
                                                                                                                                                    “The use of the term has expanded to the point     But usually only one type is available in any one
                                                                                                                                                    where children referred to me as autistic lack     area. Making a choice (if there is one) between
                                                                                                                                                    the social deficit, which is the core symptom,”    or among approaches not easy on the parent,
      -BRIAN DINOT
                                                                     WHAT IS AUTISM?
                                                                                                                                                    says Susan Swedo, M.D., a pediatrician and the     either, because theyʼre arenʼt clear standards to

                                                                                                                                                                                                                                                                         Family Living               3




                                                                    A
                                                                          tism seems to be everywhere these days
                                                                          - in newspapers, on TV, even on bumper                                    Research
                                                                                                                                                    demonstrates that autistic traits                   DIAGNOSIS & TREATMENT
                                                                                                                                                    are distributed into the non-                                                                             into translating that research into medical

                                                                    stickers. The rate is skyrocketing,reports                                      autistic population; some people
                                                                                                                                                    have more of them, some have
                                                                                                                                                                                                        How can you know - and how ealry can you
                                                                                                                                                                                                        find out - if your child falls anywhere on the
                                                                                                                                                                                                                                                              practice.”

                                                                                                                                                    fewer. History suggests that                        broad spectrum?                                       And a sound diagnosis is only the beginning.
                                                                                                                                                    many individuals whom we                                                                                  Treatment is the next step, and there are no

                                                                    say. We all seem to know of at least one                                        would today diagnose as autistic
                                                                                                                                                    - some severely so - contributed
                                                                                                                                                                                                        Parents whoʼve noted that their 14-month
                                                                                                                                                                                                        old doesnʼt babble or point, is losing skills,
                                                                                                                                                                                                                                                              fewer than ten types of interventions offered
                                                                                                                                                                                                                                                              nationwide that work to some degree, says
                                                                                                                                                    profoundly to our art, our math,                    or isnʼt talking by 18 months should talk to          Dr. Volkmar.
                                                                                                                                                    our science, and our literature. “                  their pediatrician and get a deveopmental

                                                                    child “on the spectrum.”                                                        -- Morton Gernsbacher, parent of
                                                                                                                                                    an autistic child.
                                                                                                                                                                                                        screening. If it indicates a possible problem,
                                                                                                                                                                                                        you should be referred to a specialist who can
                                                                                                                                                                                                                                                              But usually only one type is available in
                                                                                                                                                                                                                                                              any one area. Making a choice (if there is
                                                                                                                                                                                                        evaluate your child further using tools such as       one) between or among approaches not
                                                                                                                                                                                                        the Autism Diagnostic Observation Schedule            easy on the parent, either, because theyʼre

                                                                                      And     since        the      latest                                                                              (ADOS), a workup done by observing and
                                                                                                                                                                                                        interacting with the child.
                                                                                                                                                                                                                                                              arenʼt clear standards to go by. But using
                                                                                                                                                                                                                                                              the wrong intervention for a child with
                                                                                                                                                                                                                                                              ASD can squander a precious window of
                                                                                                                                                                                                        That said, getting a qualified medical                opportunity. Learning is life long, but many
                                                                                                                                                                                                        diagnosis for an infant or a toddler is not the       kids who receive intensive intervention early,
                                                                                      buzz   suggests       that     early                                                                              straightforward process it should be. Thereʼs
                                                                                                                                                                                                        “tremendous variability” in the skill that
                                                                                                                                                                                                                                                              in their first five years, do better than those
                                                                                                                                                                                                                                                              who receive it later.” Establishing treatment
                                                                                                                                                                                                        public agencies and private practices bring           standards so parents can choose effective
                                                                                                                                                                                                        to the screening process, says Fred Volkmar,          programs is the mission of the newly
                                                                                      intervention    is   crucial     for                                                                              M.D., chairman of the Department of Child
                                                                                                                                                                                                        Study at Yale University. “Weʼve put a
                                                                                                                                                                                                                                                              organized NAC (National Autism Center).

                                                                                                                                                                                                        lot of money into research but not enough

                                                                                      successful treatment, parents


                                                                                                       AUTISM
                                                                                      of ever younger children are
                                                                                      searching      for signs. Would
                                                                                                                                                        AUTISM FACTS
                                                                                      your pediatrician          recognize                          •    1 in 150 children is diagnosed with autism

                                                                                                                                                    •    1 in 94 boys is on the autism spectrum
                                                                                      them? Would you? The hype                                     •    67 children are diagnosed per day
                                                                                                                                                    •    A new case is diagnosed almost every 20 minutes

                                                                                      is worrisome, but the truth                                   •    More children will be diagnosed with autism this year than with AIDS, diabetes & cancer combined

                                                                                                                                                    •    Autism is the fastest-growing serious developmental disability in the U.S.

                                                                                      behind it should ease some                                    •

                                                                                                                                                    •
                                                                                                                                                         Autism costs the nation over $90 billion per year, a figure expected to double in the next decade

                                                                                                                                                         Autism receives less than 5% of the research funding of many less prevalent childhood diseases

                                                                                                                                                    •    Boys are four times more likely than girls to have autism
                                                                                                                                                    •    There is no medical detection or cure for autism

                                                                                                                                                4              Family Living




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INSIDE:




OUTSIDE:




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STU
                                                                         DIO
                                                                             S I
                                                                                 NC
                                                                                      .




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Jeigh Hall New Media Designer Profile

  • 1. JEIGH HALL : NEW MEDIA DESIGNER JAMES HALL E . J AY. H A L L 8 9 @ G M A I L . C O M
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  • 7. Research 3 HINTS TO AUTISM principal investigator in the National Institute of go by. But using the wrong intervention for a Mental Healthʼs Intramural Research Program child with ASD can squander a precious window on autism. “Weʼre muddying the waters.” Not of opportunity. Learning is life long, but many everyone concurs, “In many areas of the country, kids who receive intensive intervention early, there is still a problem with under-diagnosis,” in their first five years, do better than those demonstrates that says Nancy Minshew, M.D. a professor of who receive it later.” Establishing treatment are distributed into psychiatry and neurology at the University of standards so parents can choose effective the non-autistic po autistic traits Pittsburghʼs School of Medicine. There is also growing concern that minority children are programs is the mission of the newly organized NAC (National Autism Center). more of them, som pulation; some peop diagnosedat a rate far below that of Caucasian e have fewer. Hist le have kids, and at later ages. THE GOOD NEW viduals whom we ory suggests that m Experts do agree, however, that there is no one would today diagno any indi- Autism was first described and named thing called autism, but that there are autisms Millions of dollars have been se as autistic - som - the broad categories of “regressive” and spent to determine what autism so - contributed pr in 1943 and was said to comprise three is, what causes it, and how we e severely common characteristics: “non-regressive” types, as well as subtypes ofoundly to our ar within these categories. To help clear up the might prevent or cure it. And t, our math, our sc • Autistic children prefer to relate to our literature. “ objects over people controversy, the National Institute of Mental thatʼs all to the good. Weʼre on ience, and Health launched a vast study last September the brink of learning which genes • Theyʼre obsessed with maintaining to identify variants and refine the way doctors predispose a child to autism and routines and sameness in their lives make diagnoses. So as prevalent as autism is. what might trigger its onset. • They tend to seek complete aloneness, While a cure is not yet in sight, shutting out the world around them. DIAGNOSIS & TREATMENT evʼve begun to figure out what -- Morton Gernsba works for some children, in terms cher, parent of an How can you know - and how ealry can you find out - if your child falls anywhere on the broad of intervention between the ages autistic child. concerns. spectrum? of 12 months and 5 years. “I While the disorder has always been said to do think, on balance, kids are represent a “spectrum,” or range, of problems, Parents whoʼve noted that their 14-month old doing better,” says Dr. Volkmar. today more children than in the past whose doesnʼt babble or point, is losing skills, or “Twenty-five years ago, when I symptoms show both moreand less- severity isnʼt talking by 18 months should talk to their did my first follow-up on adults are included. For instance,kids with Asperger pediatrician and get a deveopmental screening. Iʼd diagnosed as kids - kids syndrome, which refers to high intelligence If it indicates a possible problem, you should be who never had any intervention without language deficits but with social referred to a specialist who can evaluate your - only about two percent could impairments, are placed on the spectrum, as child further using tools such as the Autism are those whose symptoms are so severe that Diagnostic Observation Schedule (ADOS), a live along, hold a job. But since a generation ago they would have been termed workup done by observing and interacting with we started mandating education mentally retarded. the child. and services, weʼre seeing more independent kids. Iʼd say that No one disputes that the number of children That said, getting a qualified medical two percent has become more diagnosed with an autistic spectrum disorder diagnosis for an infant or a toddler is not the like twenty.” In other words, (ASD) has gone way up compared with statistics straightforward process it should be. Thereʼs weʼre doing ten times better than from 30 years ago. “tremendous variability” in the skill that public we were doing a generation ago But as widespread as ASD appears to be- agencies and private practices bring to the Thatʼs the “growing number” affecting as many as 1 in every 150 children, screening process, says Fred Volkmar, M.D., we s h o u l d b e a w a r e o f . according to the Centers for Disease Control chairman of the Department of Child Study at and Prevention - experts agree that it cannot be Yale University. “Weʼve put a lot of money into A n d thatʼs the evidence we called an “epidemic. research but not enough into translating that should start seeing. research into medical practice.” The fact is, itʼs impossible to compare how common autism is today with 10 or 20 years And a sound diagnosis is only the beginning. AUTI ago. Not only are doctors better at spotting Treatment is the next step, and there are no ASD, so the diagnosis is more frequent, but fewer than ten types of interventions offered many experts say that doctorsʼ interpretation nationwide that work to some degree, says Dr. of the spectrum has become so inclusive that Volkmar. a diagnosis of autism is no diagnosis at all. “The use of the term has expanded to the point But usually only one type is available in any one where children referred to me as autistic lack area. Making a choice (if there is one) between the social deficit, which is the core symptom,” or among approaches not easy on the parent, -BRIAN DINOT WHAT IS AUTISM? says Susan Swedo, M.D., a pediatrician and the either, because theyʼre arenʼt clear standards to Family Living 3 A tism seems to be everywhere these days - in newspapers, on TV, even on bumper Research demonstrates that autistic traits DIAGNOSIS & TREATMENT are distributed into the non- into translating that research into medical stickers. The rate is skyrocketing,reports autistic population; some people have more of them, some have How can you know - and how ealry can you find out - if your child falls anywhere on the practice.” fewer. History suggests that broad spectrum? And a sound diagnosis is only the beginning. many individuals whom we Treatment is the next step, and there are no say. We all seem to know of at least one would today diagnose as autistic - some severely so - contributed Parents whoʼve noted that their 14-month old doesnʼt babble or point, is losing skills, fewer than ten types of interventions offered nationwide that work to some degree, says profoundly to our art, our math, or isnʼt talking by 18 months should talk to Dr. Volkmar. our science, and our literature. “ their pediatrician and get a deveopmental child “on the spectrum.” -- Morton Gernsbacher, parent of an autistic child. screening. If it indicates a possible problem, you should be referred to a specialist who can But usually only one type is available in any one area. Making a choice (if there is evaluate your child further using tools such as one) between or among approaches not the Autism Diagnostic Observation Schedule easy on the parent, either, because theyʼre And since the latest (ADOS), a workup done by observing and interacting with the child. arenʼt clear standards to go by. But using the wrong intervention for a child with ASD can squander a precious window of That said, getting a qualified medical opportunity. Learning is life long, but many diagnosis for an infant or a toddler is not the kids who receive intensive intervention early, buzz suggests that early straightforward process it should be. Thereʼs “tremendous variability” in the skill that in their first five years, do better than those who receive it later.” Establishing treatment public agencies and private practices bring standards so parents can choose effective to the screening process, says Fred Volkmar, programs is the mission of the newly intervention is crucial for M.D., chairman of the Department of Child Study at Yale University. “Weʼve put a organized NAC (National Autism Center). lot of money into research but not enough successful treatment, parents AUTISM of ever younger children are searching for signs. Would AUTISM FACTS your pediatrician recognize • 1 in 150 children is diagnosed with autism • 1 in 94 boys is on the autism spectrum them? Would you? The hype • 67 children are diagnosed per day • A new case is diagnosed almost every 20 minutes is worrisome, but the truth • More children will be diagnosed with autism this year than with AIDS, diabetes & cancer combined • Autism is the fastest-growing serious developmental disability in the U.S. behind it should ease some • • Autism costs the nation over $90 billion per year, a figure expected to double in the next decade Autism receives less than 5% of the research funding of many less prevalent childhood diseases • Boys are four times more likely than girls to have autism • There is no medical detection or cure for autism 4 Family Living 7 J E I G H H A L L N E W M E D I A D E S I G N E R E.JHNMD@JEIGHHALL.COM P. 2 2 9 - 9 4 7 - 4 4 5 5 W . W W W . J E I G H H A L L . C O M
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