Patient-controlled medical records

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Mohammad Al-Ubaydli

Lecture at the Royal Soc

Gesundheit & Medizin

Invite local GPs instantly

Specialist nurse or carer
can invite on behalf of
patient

Great Ormond Street Hospital transferring
data to St Mark’s Hospital for smoother

Work with charities

Scanning and uploading all past x-rays

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This review by the National Data Guardian for Health and Care (NDG), Dame Fiona Caldicott, makes recommendations to the Secretary of State for Health. These are aimed at strengthening the safeguards for keeping health and care information secure and ensuring the public can make informed choices about how their data is used. The NDG proposes new data security standards for the NHS and social care, a method for testing compliance against the standards, and a new opt-out to make clear how people’s health and care information will be used and in what circumstances they can opt out. Dame Fiona’s report argues that the public should be engaged about how their information is used and safeguarded, and the benefits of data sharing, with a wide-ranging consultation on her proposals as a first step. A letter from Dame Fiona Caldicott and David Behan, Care Quality Commission Chief Executive, to the Health Secretary outlines the common themes between the NDG review and a review of data security in the NHS carried out by the CQC.

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Mohammad Al-Ubaydli

The Global Social Impact Investment Steering Group (GSG) was established in August 2015 as the successor to the Social Impact Investment Taskforce, established by G8. The GSG is continuing the work of the Taskforce in catalysing a global social impact investment market across a wider membership. Its members include 13 countries plus the EU, as well as active observers from government and from leading network organisations supportive of impact investment. Across the world, attitudes are changing. Old certainties about tightly defined roles for government, civil society and business are dissolving. Social sector organisations are becoming more business-like, and business is looking ever more to delivering sustainable value.

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Dr Steven Laitner (Co-Chair of the NHS East of England Long-Term Conditions Programme Board, GP and Associate Medical Director) Steve will talk about the East of England Vision for improving the lives of people with Long Term Conditions like COPD, diabetes, CHF etc. He will then talk about the need for innovation to support patients in managing their own long term conditions and improving their health and the productivity of health services.

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Darren Umbers (UK Sales Director, Philips Respironics) (pictured) Darren will talk about both devices and support services Philips is offering in the UK for sleep apnoea patients. This will include CPAP devices to aid breathing and nebulizers able to report compliance. He will also talk about “back office” support for these devices. Darren will therefore pick up on the references that Steve will make to monitoring devices and treatment and cover patient support to some extent.

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Dr Mohammad Al-Ubaydli (CEO of Patients Know Best) Dr Al-Ubaydli is author of the book "Personal health records: A guide for clinicians", in which he surveyed the different ways in which patients can work with their clinical team using software. A new generation of tools allows patients to manage their health and Mohammad will cover some of these in his talk, including products by large US companies like Google and Microsoft, as well as the UK software industry. He will also describe the experiences of his own company, Patients Know Best, which integrates its patient-controlled medical records platform into the NHS secure network.

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