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Becoming a Health Literate Organization:
Tools You Can Use from DHHS & Beyond

    Cindy Brach
    Center for Delivery,
    Organization, and Markets
Overview

 Health Literacy Basics

 10 Attributes of a Health
  Literate Organization
 Vision for the Future
Health
Literacy
Basics
Definition of Health Literacy

“The degree to which individuals have
the capacity to obtain, communicate,
process, and understand basic health
information and services needed to
make appropriate health decisions.”

                   - Affordable Care Act
Prevalence & Disparities

        Percentage of adults in each health literacy
               level, by race/ethnicity, 2003

100%      12                 2         4                 7       3
                    14                       18
80%                         41       31
                                                         45             Proficient
          53                                                     59
60%                 58                       52                         Intermediate
                                     25
40%                         34                           23             Basic
20%       22                         41      18                  28     Below Basic
                    19
                            24                           25
          14         9                       13                  9
 0%
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New Evidence Report

          Report found:
           More evidence of
            link between limited
            health literacy and
            poorer health
            outcomes
           Some evidence
            interventions can
            reduce disease
            severity, ER visits,
            and hospital
            admissions
Health Literacy Equation



               X                           =



Skills/Abilities x Difficulty/Complexity   = Health Literacy
Cycle of Crisis Care




                Koh et al. 2012
National Action Plan to
         Improve Health Literacy
 Goal 1: Patient education materials
 Goal 2: Tools to implement system
    change
   Goal 3: Health education in school
   Goal 4: Adult Ed, ESOL
   Goal 5: Partnerships
   Goal 6: Fund research and build the
    field
   Goal 7: Dissemination
Health Literate Organizations

A health literate organization
makes it easier for people to
navigate, understand, and
use information and services
to take care of their health.

                Brach et al. 2012
Attributes of Health
Literate Organizations
10 attributes
of a health
literate
health care
organization
A Health Literate Organization
1. Has leadership that makes health literacy
  integral to its mission, structure, and
  operations. Leadership:
  – Makes clear and effective communication a
    priority
  – Assigns responsibility for health literacy
    oversight
  – Sets goals for health literacy improvement
  – Allocates fiscal and human resources
Attribute 2
        A Health Literate Organization
1. Integrates health literacy into planning,
   evaluation measures, patient safety,
   and quality improvement.
  – Incorporates health literacy into all
    planning activities
  – Conducts ongoing organizational
    assessments
  – Measures the success in achieving the
    health literacy attributes and identifies
    areas for quality improvement
CDC Health Literacy
                Planning Tool




Tool available from
CDC’s health literacy site
Pharmacy Health Literacy
   Assessment Tool
           3 Parts:
            Assessment tour by
              objective auditor
            Pharmacy staff
              survey
            Pharmacy patient
              focus group guide

            Available from the
            AHRQ Pharmacy Health Lite
                                 Lit
Measuring Patient Experiences:
         CAHPS® Health Literacy

 CAHPS® Item Set for Addressing
  Health Literacy - Supplement to
  Clinician/Group CAHPS®
 Hospital CAHPS® Supplement - coming
  soon
 Health Plan CAHPS® Supplement - pilot
  testing
National Benchmarking Data

In the last 12 months, how often did:
 This provider give you easy to understand
  instructions about what to do to take care
  of this illness or health condition?
 This provider ask you to describe how you
  were going to follow these instructions?

 Someone explain the purpose of a form
  before you signed it?
Attribute 3
       A Health Literate Organization
 Prepares the workforce to be health
  literate and monitors progress
   – Hires diverse staff with health literacy
     expertise
   – Sets and meets goals for training all staff and
     members of governing bodies
   – Provides health literacy training and
     incorporates health literacy into orientations
     and other trainings
   – Arranges for staff to take advantage of on-
     line health literacy training resources
http://www.cdc.gov/healthliteracy/training/index.html
Attribute 4
      A Health Literate Organization
 Includes populations served in the
  design, implementation, and evaluation
  of health information and services
   – Includes members of the population on
     governing bodies
   – Establish advisory groups that involve
     individuals with limited health literacy, adult
     educators, and experts in health literacy
   – Collaborate with community members in
     design and implementation of interventions
     and development and testing of materials.
Attribute 5
      A Health Literate Organization
 Meets needs of populations with a range
  of health literacy skills while avoiding
  stigmatization
   – Adopts health literacy universal
     precautions, such as offering everyone
     help with literacy tasks
   – Allocates resources proportionate to the
     concentration of individuals with limited
     health literacy
Health Literacy
     Universal Precautions

Structuring the delivery of care as if
everyone may have limited health
literacy
– You can’t tell by looking
– Higher literacy skills ≠ understanding
– Health literacy is a state not a trait
– Everyone benefits from clear
   communication
Health Literacy
        Universal Precautions Toolkit
 20 Tools
 Quick Start Guide
 Path to Improvement
 Appendices
  – Over 25 resources
     such as sample
     forms, PowerPoint
     presentations, and
     worksheets
                          http://ahrq.gov/qual/literacy
Attribute 6
     A Health Literate Organization
 Uses health literacy strategies in
  interpersonal communications and
  confirms understanding at all points of
  contact
   – Refrains from using medical jargon
   – Confirms understanding (e.g. Teach-Back)
   – Secures language assistance for speakers
     of languages other than English
   – Limits to two to three messages at a time
   – Encourages questions
Reducing Health
Literacy Demands
Attribute 7
      A Health Literate Organization
 Provides easy access to health
  information and services and navigation
  assistance
   – Facilitates scheduling appointments with
     other services
   – Uses clear signage
   – Offers assistance with all literacy related
     tasks
   – Makes electronic patient portals user-
     centered and provides training on how to
     use them
Guides on Reaching Limited
    Literacy Audiences
Attribute 8
     A Health Literate Organization
 Designs and distributes print,
  audio/visual materials, and social media
  content that is easy to understand and
  act on
   – Involves diverse audiences, including
     those with limited health literacy, in
     development and rigorous user testing
   – Uses a quality translation process to
     produce materials in languages other than
     English
www.cms.gov/WrittenMaterialsToolkit/
Pill Cards

                         www.ahrq.gov/pharmhealthlit/

Name: Sarah Smith                                         Date Created:
12/15/07
Pharmacy phone number: 123-456-7890

Name         Used For    Instructions     Morning Afternoon Evening       Night



Simvastati   Cholester   Take 1 pill at
    n           ol       night
  20mg




Furosemid      Fluid     Take 2 pills
    e                    in the
  20mg                   morning and
                         2 pills in the
                         evening


 Insulin                 Inject 24         24 units         12 units
 70/30       Diabetes    units before
             (Sugar)     breakfast
                         and 12 units
                         before
                         dinner
Attribute 9
      A Health Literate Organization
 Addresses health literacy in high risk
  situations, including care transitions and
  communications about medicines
   – Prioritizes high-risk situations (e.g.,
     informed consent for surgery and other
     invasive procedures)
   – Emphasizes high-risk topics (e.g.,
     conditions that require extensive self-
     management)
A Practical Guide to
      Informed Consent
 No more Toni Cordells
 Hospital Culture Change
 Improving the process
 Improving forms
  – Style guide
  – Samples
 Guide available on the Web
Attribute 10
     A Health Literate Organization
 Communicates clearly what health plans
  cover and what individuals will have to
  pay for services
  – Provides easy-to-understand descriptions
    of health insurance policies
  – Communicates the out-of-pocket costs for
    health care services before they are
    delivered
Benefit and
        Coverage Information
 Template for Summary of Benefits
  and Coverage that all private insurers
  will use

 Coverage examples
insurance of health
  Glossary
           terms
 insurance terms
Vision
for the
Future
Vision of National Action
   Plan to Improve Health Literacy

The vision informing the
National Action Plan is of a
society that:
 Provides everyone access to
  accurate, actionable health
  information
 Delivers person-centered health
  information and services
 Supports life-long learning and skills
  to promote good health
Koh et al. 2012
Find Other State Health
     Literacy Activity




CDC State Health Literacy Activity Map
Federal Health
             Literacy Information

 AHRQ Health Literacy and Cultural
  Competence Browse Page

 30,000+ subscribers to AHRQ
  Email Updates

 HHS Resources
“If [patients’] understanding
is incorrect or incomplete,
we did not find the right
way to reach them. Being
health literate is just as
important for clinicians as it
is for patients.”
                           Dr. Regina Benjamin
                              Surgeon General
What Questions Do You Have?




      www.ahrq.gov

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Priester conference brach 4 6-12 with hyperlinks

  • 1. Becoming a Health Literate Organization: Tools You Can Use from DHHS & Beyond Cindy Brach Center for Delivery, Organization, and Markets
  • 2. Overview  Health Literacy Basics  10 Attributes of a Health Literate Organization  Vision for the Future
  • 4. Definition of Health Literacy “The degree to which individuals have the capacity to obtain, communicate, process, and understand basic health information and services needed to make appropriate health decisions.” - Affordable Care Act
  • 5. Prevalence & Disparities Percentage of adults in each health literacy level, by race/ethnicity, 2003 100% 12 2 4 7 3 14 18 80% 41 31 45 Proficient 53 59 60% 58 52 Intermediate 25 40% 34 23 Basic 20% 22 41 18 28 Below Basic 19 24 25 14 9 13 9 0% l N I te k ta AP nic l cia ac /A hi Source: NAAL To a AI W Bl a sp tir Hi ul M
  • 6. New Evidence Report Report found:  More evidence of link between limited health literacy and poorer health outcomes  Some evidence interventions can reduce disease severity, ER visits, and hospital admissions
  • 7. Health Literacy Equation X = Skills/Abilities x Difficulty/Complexity = Health Literacy
  • 8. Cycle of Crisis Care Koh et al. 2012
  • 9. National Action Plan to Improve Health Literacy  Goal 1: Patient education materials  Goal 2: Tools to implement system change  Goal 3: Health education in school  Goal 4: Adult Ed, ESOL  Goal 5: Partnerships  Goal 6: Fund research and build the field  Goal 7: Dissemination
  • 10. Health Literate Organizations A health literate organization makes it easier for people to navigate, understand, and use information and services to take care of their health. Brach et al. 2012
  • 12. 10 attributes of a health literate health care organization
  • 13. A Health Literate Organization 1. Has leadership that makes health literacy integral to its mission, structure, and operations. Leadership: – Makes clear and effective communication a priority – Assigns responsibility for health literacy oversight – Sets goals for health literacy improvement – Allocates fiscal and human resources
  • 14. Attribute 2 A Health Literate Organization 1. Integrates health literacy into planning, evaluation measures, patient safety, and quality improvement. – Incorporates health literacy into all planning activities – Conducts ongoing organizational assessments – Measures the success in achieving the health literacy attributes and identifies areas for quality improvement
  • 15. CDC Health Literacy Planning Tool Tool available from CDC’s health literacy site
  • 16.
  • 17. Pharmacy Health Literacy Assessment Tool 3 Parts:  Assessment tour by objective auditor  Pharmacy staff survey  Pharmacy patient focus group guide Available from the AHRQ Pharmacy Health Lite Lit
  • 18. Measuring Patient Experiences: CAHPS® Health Literacy  CAHPS® Item Set for Addressing Health Literacy - Supplement to Clinician/Group CAHPS®  Hospital CAHPS® Supplement - coming soon  Health Plan CAHPS® Supplement - pilot testing
  • 19. National Benchmarking Data In the last 12 months, how often did:  This provider give you easy to understand instructions about what to do to take care of this illness or health condition?  This provider ask you to describe how you were going to follow these instructions?  Someone explain the purpose of a form before you signed it?
  • 20. Attribute 3 A Health Literate Organization  Prepares the workforce to be health literate and monitors progress – Hires diverse staff with health literacy expertise – Sets and meets goals for training all staff and members of governing bodies – Provides health literacy training and incorporates health literacy into orientations and other trainings – Arranges for staff to take advantage of on- line health literacy training resources
  • 22.
  • 23. Attribute 4 A Health Literate Organization  Includes populations served in the design, implementation, and evaluation of health information and services – Includes members of the population on governing bodies – Establish advisory groups that involve individuals with limited health literacy, adult educators, and experts in health literacy – Collaborate with community members in design and implementation of interventions and development and testing of materials.
  • 24. Attribute 5 A Health Literate Organization  Meets needs of populations with a range of health literacy skills while avoiding stigmatization – Adopts health literacy universal precautions, such as offering everyone help with literacy tasks – Allocates resources proportionate to the concentration of individuals with limited health literacy
  • 25. Health Literacy Universal Precautions Structuring the delivery of care as if everyone may have limited health literacy – You can’t tell by looking – Higher literacy skills ≠ understanding – Health literacy is a state not a trait – Everyone benefits from clear communication
  • 26. Health Literacy Universal Precautions Toolkit  20 Tools  Quick Start Guide  Path to Improvement  Appendices – Over 25 resources such as sample forms, PowerPoint presentations, and worksheets http://ahrq.gov/qual/literacy
  • 27. Attribute 6 A Health Literate Organization  Uses health literacy strategies in interpersonal communications and confirms understanding at all points of contact – Refrains from using medical jargon – Confirms understanding (e.g. Teach-Back) – Secures language assistance for speakers of languages other than English – Limits to two to three messages at a time – Encourages questions
  • 29. Attribute 7 A Health Literate Organization  Provides easy access to health information and services and navigation assistance – Facilitates scheduling appointments with other services – Uses clear signage – Offers assistance with all literacy related tasks – Makes electronic patient portals user- centered and provides training on how to use them
  • 30. Guides on Reaching Limited Literacy Audiences
  • 31. Attribute 8 A Health Literate Organization  Designs and distributes print, audio/visual materials, and social media content that is easy to understand and act on – Involves diverse audiences, including those with limited health literacy, in development and rigorous user testing – Uses a quality translation process to produce materials in languages other than English
  • 33. Pill Cards www.ahrq.gov/pharmhealthlit/ Name: Sarah Smith Date Created: 12/15/07 Pharmacy phone number: 123-456-7890 Name Used For Instructions Morning Afternoon Evening Night Simvastati Cholester Take 1 pill at n ol night 20mg Furosemid Fluid Take 2 pills e in the 20mg morning and 2 pills in the evening Insulin Inject 24 24 units 12 units 70/30 Diabetes units before (Sugar) breakfast and 12 units before dinner
  • 34. Attribute 9 A Health Literate Organization  Addresses health literacy in high risk situations, including care transitions and communications about medicines – Prioritizes high-risk situations (e.g., informed consent for surgery and other invasive procedures) – Emphasizes high-risk topics (e.g., conditions that require extensive self- management)
  • 35. A Practical Guide to Informed Consent  No more Toni Cordells  Hospital Culture Change  Improving the process  Improving forms – Style guide – Samples  Guide available on the Web
  • 36. Attribute 10 A Health Literate Organization  Communicates clearly what health plans cover and what individuals will have to pay for services – Provides easy-to-understand descriptions of health insurance policies – Communicates the out-of-pocket costs for health care services before they are delivered
  • 37. Benefit and Coverage Information  Template for Summary of Benefits and Coverage that all private insurers will use  Coverage examples insurance of health Glossary terms insurance terms
  • 39. Vision of National Action Plan to Improve Health Literacy The vision informing the National Action Plan is of a society that:  Provides everyone access to accurate, actionable health information  Delivers person-centered health information and services  Supports life-long learning and skills to promote good health
  • 40. Koh et al. 2012
  • 41. Find Other State Health Literacy Activity CDC State Health Literacy Activity Map
  • 42. Federal Health Literacy Information  AHRQ Health Literacy and Cultural Competence Browse Page  30,000+ subscribers to AHRQ Email Updates  HHS Resources
  • 43. “If [patients’] understanding is incorrect or incomplete, we did not find the right way to reach them. Being health literate is just as important for clinicians as it is for patients.” Dr. Regina Benjamin Surgeon General
  • 44. What Questions Do You Have? www.ahrq.gov

Hinweis der Redaktion

  1. Let’s start out with the definition of health literacy. The definition that has evolved over the years. The most recent change came from the Affordable Care Act passed in 2010; the word “communicate” was added. This makes it even clearer that a health literate individual is not a passive receiver of health information but is engaged in an exchange of information. It also underscores that health literacy is not limited to comprehending written information, but includes verbal communication as well.
  2. Only 12 percent of adults had Proficient health literacy. In other words, nearly nine out of ten adults may lack the skills needed to manage their health and prevent disease. Over half of Black Americans and two-thirds of Hispanic Americans did not reach the Intermediate level. An example of an intermediate task is understanding the correct dosage of a drug based on reading an over-the-counter drug label.
  3. Limited health literacy contributes to the “cycle of crisis care,” illustrated here.
  4. Published in April 2010, the National Action Plan is a product of public-private collaboration, through town hall meetings held in NYC, Sacramento, St. Louis, and Tampa. Develop and disseminate health and safety information that is accurate, accessible, and actionable Promote changes in the health care system that improve health information, communication, informed decisionmaking, and access to health services Incorporate accurate, standards-based, and developmentally appropriate health and science information and curricula in child care and education through the university level Support and expand local efforts to provide adult education, English language instruction, and culturally and linguistically appropriate health information services in the community Build partnerships, develop guidance, and change policies Increase basic research and the development, implementation, and evaluation of practices and interventions to improve health literacy Increase the dissemination and use of evidence-based health literacy practices and interventions
  5. The term “health literate organization” was coined by the Institute of Medicine Roundtable on Health Literacy.
  6. Inspired by the National Standards for Culturally and Linguistically Appropriate Services, we defined a set of 10 attributes of a health literate organization. These attributes are most relevant to organizations that provide direct care to patients, but also relevant to health care professionals, and to the broader range of organizations and institutions such as payors and health plans, vendors of health information technology and patient education products, accreditation and credentialing organizations, and benefits managers.
  7. Makes clear and effective patient communication a priority across all levels of the organization and across all communication channels. Applies health literacy universal precautions, whereby communication is simplified to the greatest extent possible and comprehension must be demonstrated by all because no assumptions are made as to who understands or needs extra assistance. Include an explicit commitment to be health literate in the organization’s mission statement, policies, and programs. Assign responsibility for health literacy oversight (e.g., a health literacy officer or high-level health literacy task force) Set goals for health literacy improvement, provide incentives to achieve those goals, and establish accountability for sub-optimal outcomes at every level of the organization. Allocate fiscal and human resources necessary to effectively and efficiently meet health literacy improvement goals (e.g., funds for editing and testing materials with target audiences, extra time to support individuals who need additional reinforcement or assistance, funds and time for health literacy training). Cultivate health literacy champions throughout the organization. Redesign systems to maximize individuals’ capacities to learn how to maintain good health, manage illness or disease, communicate effectively, and make informed decisions. Contribute to local, state, and national efforts to improve organizational responses to health literacy.
  8. Develop and routinely collect metrics to measure the success of their system in achieving the health literacy attributes and to identify areas for further improvement Design and conduct rigorous program evaluations of health literacy interventions and activities. Assesses the impact of policies and programs on individuals with limited health literacy Partner with researchers to build an evidence base for health literacy interventions. Use assessments, measurement, and evaluations to inform continuous quality improvement. Ensure that patient surveys are designed to be understandable and easy to complete, and offer and provide assistance in completing surveys. Conduct root cause analysis of patient safety events to uncover and address communication failures.
  9. Use this slide to walk through the assessment format. The rating system. Importance column. Direction to tools to help.
  10. AHRQ and RWJF Other tools include a training program on communication for pharmacy staff, and a script for telephone reminders to refill prescriptions.
  11. HCAHPS Item Set for Addressing Health Literacy Did hospital staff tell you how to take care of yourself after you left the hospital? Were these instructions easy to understand? Did hospital staff ask you if you would have any problems taking care of yourself immediately after you left the hospital? Did you get instructions in writing about how to care for yourself immediately after you left the hospital? Were the written instructions easy to understand?
  12. MEPS NHDR Healthy People 2020
  13. Support staff in attending specialized health literacy training outside the organization. Bring in outside experts to augment in-house training resources. Develop ‘expert educators’ with cross-cutting educational skills who can serve as role models, mentors, and teach health literacy skills to others. Identify and implement appropriate new curricula. Collaborate with patients who can be effective speakers and trainers
  14. The Unified Health Communication: Addressing Health Literacy, Cultural Competency, and Limited English Proficiency Free online training from HRSA Go at your own pace Has helped +4,000 health care professionals and students improve patient-provider communication
  15. Tell personal story about pap smear
  16. Developed for AHRQ by the University of North Carolina
  17. (e.g., using the Teach-Back, Show-Me, or Chunk-and-Check methods)
  18. It’s not just clinicians that have to practice clear communication strategies. Receptionists should teach back appointment times, billing clerks should break down the steps patients have to take to be reimbursed by insurers.
  19. Health Literacy Online outlines how to: Deliver online health information that is actionable and engaging. Create a health Web site that's easy to use, particularly for people with limited literacy skills and limited experience using the Web. Evaluate and improve your health Web site with user-centered design.
  20. Toolkit for Making Written Material Clear and Effective 11-part health literacy resource Detailed guidelines on writing, design, and culturally appropriate translation from English into other languages Guide to testing written materials with readers
  21. AHRQ and RWJF
  22. Successful implementation of health literacy system adaptations can help break the cycle of crisis care and move health literacy into the mainstream of health care practices.
  23. Kentucky is not alone. Over a dozen states have health literacy coalitions or activities, including some of Kentucky’s neighbors such as Ohio.