This document summarizes an agenda for a meeting to discuss a challenge focused on developing a mobile application to help underserved and minority women prevent and fight breast and gynecologic cancers. The agenda includes introductions, an overview of the challenge, and a Q&A session. The challenge calls for an application that provides information on preventive services, allows interface with patient health records, supports care plans and remote follow-up, and supports patient engagement and caregiving. Disparities in cancer rates among racial and ethnic groups are also discussed.

1. On
the
Call:
Dr.
David
Hunt,
Medical
Officer
-­‐
ONC
Dr.
Paris
Butler,
Clinical
Advisory
to
the
Deputy
Assistant
Secretary
for
Minority
Health
Hemali
Thakkar,
Challenger
Manager
–
Health
2.0
Today’s
Agenda:
Introduc,ons
Brief
Challenge
Overview
Q&A
Office
of
the
Na,onal
Coordinator
for
1
Health
Informa,on
Technology

2. ONC
and
I2
Goals
• Better Health, Better Care, Better Value through Quality Improvement
• Further the mission of the Department of Health and Human Services
• Highlight programs, activities, and issues of concern
• Spur Innovation and Highlight Excellence
• Motivate, inspire, and lead
• Community building – Development of ecosystem
• Stimulate private sector investment
Office
of
the
Na,onal
Coordinator
for
2
Health
Informa,on
Technology

3. Over
300,000
new
breast
and
gynecologic
cancers
are
diagnosed
each
year
with
68,000
deaths
annually.
Office
of
the
Na,onal
Coordinator
for
3
Health
Informa,on
Technology

4. Breast
Cancer
hZp://www.cdc.gov/cancer/breast/
In
the
United
States
in
2008,*
210,203
women
were
diagnosed
with
breast
cancer,
and
40,589
women
died
from
the
disease.†
Except
for
skin
cancer,
breast
cancer
is
the
most
common
cancer
among
American
women.
*Latest
year
for
which
sta,s,cs
are
available.
†Source:
USCS.
Office
of
the
Na,onal
Coordinator
for
4
Health
Informa,on
Technology

5. Gynecologic
Cancers
Each
gynecologic
cancer
is
unique,
with
different
signs,
symptoms,
risk
factors
(things
that
may
increase
your
chance
of
geBng
a
disease),
and
prevenDon
strategies.
Every
year,
more
than
80,000
women
in
the
U.S.
are
told
they
have
a
gynecologic
cancer,
and
more
than
25,000
women
die
from
a
gynecologic
cancer.*
*Source:
U.S.
Cancer
Sta0s0cs
Working
Group
Office
of
the
Na,onal
Coordinator
for
5
Health
Informa,on
Technology

6. Age-­‐Adjusted
Cancer
Incidence
and
Death
Rates:
Female
Breast
and
Gynecologic
by
and
Race
and
Ethnicity,
United
States
Asian/Pacific American Indian/
All Races White Black Islander Alaska Native Hispanic
Female Breast Cancer
Incidence 121.9 122.6 118 87.9 65.6 92.8
Female Breast Cancer Death
Rates 22.5 21.9 31.2 11.9 12.8 14.6
Female Gynecologic
Cancer Incidence 48.4 48.9 45.5 34.4 31.3 45.8
Female Gynecologic Cancer
Death Rates 15.5 15.3 18.9 10.3 11.9 12.6
Rates
are
per
100,000
persons
and
are
age-­‐adjusted
to
the
2000
U.S.
standard
popula,on
(19
age
groups-­‐Census
P25-­‐1130).
hZp://apps.nccd.cdc.gov/uscs/cancersbyraceandethnicity.aspx
Office
of
the
Na,onal
Coordinator
for
6
Health
Informa,on
Technology

7. *Rates
are
per
100,000
persons
and
are
age-­‐adjusted
to
the
2000
U.S.
standard
populaDon
(19
age
groups-­‐Census
P25-­‐1130).
140
120
Female
Breast
Incidence
Female
Genital
System
Incidence
100
80
60
40
20
0
All
Races
White
Black
Asian/Pacific
Islander
American
Indian/Alaska
Hispanic
Office
of
the
Na,onal
Coordinator
for
Na,ve
7
Health
Informa,on
Technology

8. *Rates
are
per
100,000
persons
and
are
age-­‐adjusted
to
the
2000
U.S.
standard
populaDon
(19
age
groups-­‐Census
P25-­‐1130).
35
30
Female
Breast
Death
Rates
25
Female
Genital
Death
Rates
20
15
10
5
0
All
Races
White
Office
Black
Na,onal
Asian/Pacific
Islander
American
Indian/Alaska
Na,ve
of
the
Coordinator
for
Hispanic
8
Health
Informa,on
Technology

9. While
the
incidence
and
prevalence
of
these
cancers
are
widespread
as
depicted
by
this
data,
dispari,es
in
preven,on,
early
treatment,
quality
of
care,
and
outcomes
result
in
higher
morbidity
and
mortality
rates
among
minority
and
underserved
women.
Office
of
the
Na,onal
Coordinator
for
9
Health
Informa,on
Technology

10. The
Challenge
• The
Challenge
calls
on
sohware
developers
to
create
an
applica,on
for
mobile
devices,
in
mul,ple
languages,
that
can
help
underserved
and
minority
women
fight
and
prevent
cancer.
• Providing
general
informa,on
regarding
preven,ve
and
screening
services
for
breast
and
gynecologic
cancers—including,
but
not
limited
to,
benefits,
,ming,
scheduling,
and
loca,on.
• Allowing
for
the
interface
with
pa,ent
health
records
or
provider-­‐
sponsored
pa,ent
portals
to
provide
specific
reminders
and
trigger
electronic
health
record-­‐based
clinical
decision
support
regarding
the
,ming
of
preven,ve
services.
Office
of
the
Na,onal
Coordinator
for
10
Health
Informa,on
Technology

11. The
Challenge
(cont’d)
• Suppor,ng
the
storage,
viewing,
and
even
the
exchange
of
complex
pa,ent
care
plans.
In
par,cular,
the
applica,on
will
help
strengthen
communica,on
among
provider
care
teams,
possibly
spread
out
across
large
geographic
loca,ons,
to
afford
op,mal
remote
follow-­‐up
(e.g.
be
able
to
send
pa,ent
informa,on
to
electronic
health
records
via
Direct,
hZp://directproject.org/).
• Suppor,ng
pa,ent
engagement
and
care
giver
support
with
applica,ons
that
help
pa,ents
and/or
their
caregivers
keep
track
of
complex
care
plans,
such
as
connec,ons
to
community
health
workers,
promotores
de
salud,
or
pa,ent
navigators.
Office
of
the
Na,onal
Coordinator
for
11
Health
Informa,on
Technology

12. Judging
Criteria
• PaDent
engagement:
Incorpora,ng
pa,ent-­‐reported
informa,on
• Quality
and
accessibility
of
informaDon:
Providing
high
quality,
evidence-­‐based
informa,on
and
interven,ons
using
plain
language,
a
clear
display
that
considers
usability
on
a
small-­‐screen
interface
(Web
Usability
and
Aging,
Usability
and
Mobile
Devices),
and
targe,ng
pa,ents
with
a
range
of
health
literacy
levels
• Targeted
and
acDonable
informaDon:
Providing
tailored
informa,on,
recommenda,ons,
and
reminders
• Links
to
online
communiDes
and/or
social
media:
Link
pa,ents
with
others
who
are
facing
the
same
health
challenges
through
social
media
sites
or
organiza,ons,
such
as
the
American
Cancer
Society,
and
to
other
sources
of
support,
such
as
community
health
workers,
pa,ent
navigators,
or
promotores
de
salud
• InnovaDveness
and
usability:
Innova,veness
and
an
easy-­‐to-­‐use
interface
for
pa,ents
with
a
range
of
experiences
and
comfort
levels
with
technology
• Non-­‐English
language
availability:
Availability
of
the
tool
in
languages
used
in
minority
and
underserved
communi,es
Office
of
the
Na,onal
Coordinator
for
12
Health
Informa,on
Technology

13. Timeline
Submission
Period
Begins:
August
23,
2012
Submission
Period
for
Entries
Ends:
February
5,
2013
Evalua,on
Process
for
Entries
Begins:
February
8,
2013
Evalua,on
Process
for
Entries
Ends:
February
19,
2013
Winners
no,fied:
February
24,
2013
Winners
Announced:
Conference
TBD,
March-­‐April
2013
Office
of
the
Na,onal
Coordinator
for
13
Health
Informa,on
Technology

14. Prizes
First
Place:
$85,000
+
demo
opp
at
conf
Second
Place:
$10,000
Third
Place:
$5,000
Not
to
men?on:
recogni?on,
publicity,
credibility
and
reach!
Office
of
the
Na,onal
Coordinator
for
14
Health
Informa,on
Technology

15. Ques,ons?
www.health2challenge.org
Contact Hemali:
hemali@health2con.com
Office
of
the
Na,onal
Coordinator
for
15
Health
Informa,on
Technology