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Multiple health
problems in
elderly people
page 950
Excessive
drinking in
young women
page 952
Adverse drug
reactions in
elderly people
page 956
Palliative care
beyond cancer
page 958
Drug resistant
infections in
poor countries
page 948
Management
of chronic pain
page 954
M
A
K
IN
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IF
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945BMJ | 26 APRIL 2008 | VOLUME 336
BMJ | Making a difference | 26 april 2008 | VoluMe 336
947
Running the gauntlet to improve
patient care
This supplement is the result of a gauntlet
thrown down, and picked up, during a dinner
in London just over a year ago. The gauntlet
thrower was Don Berwick, president of the
Institute for Healthcare Improvement in Boston.
What, he asked, was the BMJ Publishing Group
really for? What were we trying to achieve? In
reply, I and our chief executive, Stella Dutton,
were quick to quote the BMJ’s mission, which
ends with the crucial words “to improve
outcomes for patients.” Fine, said Don, but how
about being more specific: which outcomes,
what patients, by how much?
We took his suggestion seriously. Why not
target a few important healthcare problems,
taking a quality improvement approach
and focusing on the evidence on how to
make a difference in these areas? But how
to choose which issues to tackle among
the many millions of pressing healthcare
challenges facing the world? We turned in the
first instance to BMJ readers. In May 2007
we asked you to tell us what information was
most needed to improve the quality of care of
patients in clinical practice. From your many
rapid responses we harvested more than 200
ideas. After categorising these and matching
them against the priorities of national and
international bodies, we created a shortlist
of 12. With the help of an expert panel (see
http://makingadifference.bmj.com) we cut
these down to six.
Inevitably the choice of topics is subjective
rather than scientific, but the six we have
ended up with are interesting. Several turn the
spotlight on areas that are less than glamorous
and are perhaps all too often passed over, even
as their impact on individual lives and society
increases. Two topics deal with problems of
old age: multiple illness and adverse drug
reactions. Two deal with palliation: of chronic
pain and in dying from non-malignant disease.
The remaining topics deal with two very
different but serious and growing public health
challenges: drug resistant infections in the
developing world and excessive drinking in
young women. You will no doubt find important
gaps in what we have chosen. But if this
initiative proves useful we can expand it further.
On each of the six topics we’ve invited
leading commentators to write the pairs
of articles that make up this supplement.
One article in each pair aims to describe
the importance of the problem in terms of
its health and societal impact. The other
looks at the available evidence on quality
improvement initiatives to tackle the problem.
Perhaps inevitably, several of the quality
improvement articles conclude that the
evidence is inadequate and more research is
needed, but the authors do lay out what they
think are the priorities for future research.
One key priority is to develop new and better
research methodologies for evaluating quality
improvement initiatives.
We need to choose one or two of these topics
to focus on over the next year, on which we will
create and compile content across the BMJ
Group’s portfolio of products: the BMJ, BMJ
Journals, Clinical Evidence, Best Treatments,
and BMJ Learning. How will we know whether
we have made a difference? We probably won’t
in any scientific sense. But we
will be looking for ways to
evaluate the effect of the
initiative. On this, as
well as on the topics
themselves, we would
welcome your thoughts.
Fiona Godlee, editor, BMJ
[email protected]
For 20 years the National Confidential Enquiry into Patient
Outcome and Death (NCEPOD) has been
committed to improving the quality of care received by patients
in hospital. NCEPOD does this by
undertaking confidential surveys, publishing reports that
highlight remediable factors in the care of
patients. NCEPOD’s remit extends across surgery and medicine
and it is the valued contribution of all
the clinicians and hospitals involved that ensures the quality of
the reports produced.
For more information visit www.ncepod.org.uk or call us on
0207 631 3444.
Registered charity: 1075588 Company Limited by
Guarantee: 03019382
Improving the
quality of medical
and surgical care
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in any scientific sense. But we
will be looking for ways to
BMJ
m a k i n g a d i f f e r e n c e
several topics turn the
spotlight on areas that
are less than glamorous
and are perhaps all
too often passed over,
even as their impact
on individual lives and
society increases
948 BMJ | Making a difference | 26 april 2008 | VoluMe 336
A shrinking window of opportunity
Around the world an estimated 10 million children
under the age of 5 years die each year, the vast
majority (90%) in a mere 42 countries. Of the
major causes of death among children, infections
such as newborn sepsis, diarrhoeal disorders,
pneumonia, meningitis, and malaria are major
killers. While much is known about the role that
poor availability of interventions has in childhood
morbidity and mortality in developing countries,
much less is known about the contribution of
antimicrobial resistance—but it is likely that the
contribution of resistant infections is significant. In
a prospective study of 1828 children with signs of
systemic infections in Tanzania, the mortality from
Gram negative bloodstream infection (44% of the
deaths) was more than double that from malaria
(20%) and Gram positive bloodstream infections
(17%), and antimicrobial resistance was found to
be a significant risk factor for mortality. A literature
review has underscored the importance of hospital
acquired resistant bacterial infections among
newborn infants in developing countries.
The emergence of antimicrobial resistance
is recognised as a major contributor to excess
morbidity and healthcare costs in developed
countries. In poorer countries, limited laboratory
facilities and the lack of robust, population based
surveillance systems has meant that information
on the effect of antimicrobial resistance on health
outcomes is restricted to a small number of
infections. Emerging drug resistance in malaria,
recognised for many years, has now resulted
in many traditional drugs such as chloroquine
becoming completely ineffective. An evaluation
of trends in malaria treatment in sub-Saharan
Africa has shown that continuing use of ineffective
chloroquine treatment has contributed to excess
malaria mortality. The case fatality rate for malaria
fell as an increasing proportion of children received
an effective treatment regimen: adjusted malaria
case fatality rates were 5.1% in 1992 and 3.3%
in 1994, and the corresponding percentages of
children who received effective therapy were 85%
in 1992 and 97% in 1993-4.
The increasing resistance of Streptococcus
pneumoniae and Haemophilus influenzae to
drugs has an effect on pneumonia mortality
that is less well recognised, largely because of
the difficulty in isolating the organisms from
the bloodstream. In a prospective study of
children in 5000 Bangladeshi urban households
who had invasive pneumococcal disease, the
Certain principles of effective quality improve-
ment interventions are universal. Relevant
stakeholders must believe that it is worth while
to remedy the deficiency in quality, that the
benefits of change outweigh the costs, and that
change is possible. The threat of antibiotic resist-
ance and its coevolution with particular patterns
of antibiotic use are also universal.
Unfortunately, the public health agendas of
few countries have prioritised the problem of
antibiotic resistance. This is especially true in
less developed countries, where antibiotics are
often overused and misused by formal and
informal healthcare providers and by patients,
who are often able to obtain antibiotics without
a prescription. Few policy makers, few mem-
bers of the general public, and unfortunately
too few medical schools and health profession-
als recognise the urgency and implications of
the problem. Instead, pharmaceutical policies
often focus on scaling up and ensuring access
to drugs, including broad spectrum antibiotics,
without considering rational use.
What will really help to create change and fos-
ter effective quality interventions to tackle resist-
ant infections in developing countries? Strategies
in such countries require changes at the levels of
policy, the institution (including healthcare pro-
viders), and the individual. Quality improve-
ment strategies to improve the behaviour of
providers and patients do exist in developing
countries, but their success depends on govern-
ment and stakeholder support.
To increase government and stakeholder
involvement and accountability, it is impor-
tant to establish national programmes that
publically report rates of antibiotic use and
resistance. Although the World Health Organi-
zation (WHO), the Pan American Health
Organization, and others have promulgated
useful recommendations for hospitals and
communities around the world to combat anti-
microbial resistance, few developing countries
have been able to implement these recom-
mendations fully. When resources are limited,
assuring access to drugs tends to overshadow
the quality of their utilisation. The interna-
tional community should partner with devel-
oping countries to perform the initial cycles
of measurement and to design systems to link
the data with information to the public on the
effect of the problem on population health,
personal health, and the economy. Such meas-
urement should occur across several countries
in close proximity to harness “peer pressure”
and foster better practices.
m a k i n g a d i f f e r e n c e
drug resistant
infections in
poor countries
Resistance to drugs in many
common childhood infections
is a growing problem in the
developing world, says Zulfiqar
Bhutta. Effective programmes
to combat resistance are within
reach in developing countries,
argue ralph gonzales and
colleagues, but we must move
swiftly
Longer versions of all the articles
in the Making a Difference
supplement, including references
and figures, are at
http://makingadifference.bmj.com
A major burden on children
BMJ | Making a difference | 26 april 2008 | VoluMe 336
949
Performance measurement and account-
ability are potent inducers of behavioural and
systemic change in organisations. For example,
accreditation agencies and funders now require
hospitals in the United States to publically
report performance and outcome measures, a
policy that has triggered an explosion of quality
improvement activity in US hospitals. An excel-
lent template for the annual measurement and
comparison between countries of consumption
of antimicrobials and resistance rates has been
developed by the GRACE project in Europe
(www.grace-lrti.org/portal/en-GB). Similar uti-
lisation and resistance profiles for developing
countries are needed, and efforts are under way
to accomplish this in Latin America through a
partnership between research institutions, gov-
ernment agencies, and WHO.
Many lessons from quality improvement
interventions in health care in wealthier coun-
tries can be applied elsewhere. Various frame-
works and theories have been found useful for
diagnosing contextual factors and developing
strategies to change specific policies, organisa-
tional practices, and the behaviour of provid-
ers and individual consumers. For example,
education and decision support, when part of
a comprehensive effort, have been useful in
HIV prevention, tuberculosis management,
and tobacco control, as well as in appropriate
antibiotic use. The literature also shows that
quality improvement initiatives that lack local
champions and stakeholder support will face
formidable challenges to success.
Strategies that work in one place must be
assessed for their applicability to other settings,
and programmes must be tailored to countries’
unique circumstances. Formative research into
social factors and practices in specific regional
and local contexts, such as how the public and
professionals make decisions to recommend,
procure, and use antibiotics, is indispensable
to achieve change. For example, we found
that most patients (62%) purchasing antibiot-
ics in Mexican pharmacies without a prescrip-
tion reported acting on the recommendation
of a clinician. Thus, in Mexico, education
campaigns to reduce unnecessary antibiotic
use must target doctors as well as the public.
Nevertheless, educating the public is crucial,
as patients often misuse antibiotics regardless
of whether they were bought over the counter
or were prescribed.
In developing countries, access to antibiotics
without a prescription is commonplace. Here
the priority should be to change regulatory
policies related to antibiotic procurement and
to enforce these policies. This includes creat-
ing an infrastructure for surveillance, commu-
nication, and effective sanctions. For example,
in Chile a mass media campaign preceded
enforcement of regulatory measures making
antibiotics available by prescription only,
resulting in a 35% decrease in antibiotic con-
sumption. It may be useful to emphasise the
repercussions that are unique to antibiotic use:
in contrast to other drugs the consequences of
an individual using antibiotics extend to that
person’s family and community. Finally, we
need to use data and the media to challenge
the perception that providing access to antibi-
otics without a prescription somehow helps to
compensate for the lower access to doctors in
poorer countries.
The window of opportunity for combating
antibiotic resistance continues to shrink. Much
work remains to be done in most countries, but
particularly in developing countries. We believe
that effective programmes to tackle resistant
infections are tenable and within reach of the
constrained resources of developing countries.
The major barriers are the political and public
will to set up the systems that can bring about
change. Partnerships among national and inter-
national stakeholders will help.
ralph gonzales professor of medicine (epidemiology and
biostatistics), Clinical and Translational Sciences Institute KL2
Multidisciplinary Career Development Program, University of
California, San Francisco [email protected]
kitty k corbett professor, Faculty of Health Sciences, Simon
Fraser University, Burnaby, British Columbia
Veronika Wirtz lecturer, anahi dreser researcher, Center of
Health Systems Research, Instituto Nacional de Salud Publica,
Morelos, Mexico
incidence of the disease was 447 episodes per
100 000 child years, and the rates of resistance to
penicillin, co-trimoxazole, chloramphenicol, and
ciprofloxacin were, respectively, 3%, 82%, 15%,
and 24%.
Such evidence of the failure of co-trimoxazole
has led to the recommendation to use amoxicillin
to treat pneumonia in primary care settings, but
as yet few health systems in the poorest countries
have the extra funds needed to implement these
recommendations widely. This is akin to the need
for combination therapy for effective malaria
treatment and to second line treatment for drug
resistant tuberculosis in children, both looming
realities in public health systems in sub-Saharan
Africa. In South and South East Asia a major burden
of childhood bacteraemic infections is related
to typhoid fever, as well as the infections listed
above. Over the last two decades the prevalence of
multidrug resistant typhoid has steadily increased
in Asia, and with the widespread use of generic
ciprofloxacin and cephalosporins resistance
to these second line antibiotics has steadily
grown. Increasing antimicrobial resistance
results in a much higher economic burden on
the health systems of poor countries, because of
the higher likelihood of treatment failure and of
complications associated with such infections.
Several factors are associated with the rise of
resistance to common infections in developing
countries, including the global spread of drug
resistant clones as travel becomes easier
and local antimicrobial pressure on common
organisms. This second factor may be related
to inappropriate prescribing of antibiotics, the
unregulated availability over the counter of
these drugs, and (for reasons of affordability)
inappropriate dosages and duration of
treatment.
Increasing public awareness, improving
standards of care, and the appropriate regulation
of the use of such antimicrobials are all important
steps. A recent evaluation of the effect of the
Swedish national programme for the surveillance
of antibiotic use and resistance and the
implementation of rational antibiotic use showed
that antibiotic use among outpatients fell from
15.7 defined daily doses per 1000 people in 1995
to 12.6 per 1000 in 2004. The largest reduction (by
52%) was noted in children, with no measurable
negative consequences on admission rates for
common upper respiratory infections. However,
examples of successful application of such
interventions in developing countries are few.
What are the main challenges with regard to
antimicrobial resistance in common childhood
infections in developing countries? We need better
information systems defining the magnitude
of the problem and training programmes to
optimise treatment with antibiotics. As we need to
balance antibiotic “access” as well as “excess,”
measures to regulate antibiotic availability must be
accompanied by strengthening workforce capacity
and drug supplies in dysfunctional health systems.
The crisis of increasing antimicrobial resistance
to serious and common childhood bacterial
infections is a reality in developing countries, and
solutions are urgently needed.
Zulfiqar a Bhutta professor and chairman, Department of
Paediatrics and Child Health,The Aga Khan University, Karachi
[email protected]
antimicrobial resistance
results in a much higher
economic burden on the health
systems of poor countries
drug resistant infections in poor countries
Never had it so good?
950 BMJ | Making a difference | 26 april 2008 | VoluMe 336
Adapting what is known
What does it mean to be old? What is the
relation between ageing and illness? How
does the subjective experience of multiple and
compounding illnesses relate to the medical
model and the taxonomy of disease? These
questions become more pressing as an ever
greater proportion of the population survives
into extreme old age, and as the postwar baby
boomers—those who “never had it so good,”
as Harold Macmillan put it—begin to draw
their pensions.
Globally the proportion of people aged ≥60
years is growing very fast. It is expected that by
2025 a total of about 1.2 billion people will be
in this age group. By 2050 this number will have
risen to two billion, 80% of them in developing
countries. The older population itself is also
ageing. Currently 69 million people are aged over
80, and although this age group now accounts
for only 1% of the world’s population (and 3%
in developed countries), it is the fastest growing
segment of the population.
The World Health Organization and many
national governments are promoting the concept
of “active ageing,” which portrays ageing as a
positive experience and promotes continuing
participation in social, economic, cultural,
and civic activities. The concept is based on
rights rather than on need and seeks to move
away from a view of elderly people as frail and
dependent. All this is to be applauded, but it may
conceal a worrying reluctance to acknowledge
the inevitable reality of death and dying. All
bodies must die and find ways of doing so.
Age is a fundamental cause of disease,
working through a multiplicity of causal
pathways to generate multiple risk factors and
multiple disease outcomes. All clinicians are
familiar with this process, by which treating one
disease in a frail, older person often means that
symptoms reappear through another pathway.
As the treatment of disease slowly becomes
more effective, an ever greater proportion of the
population survives with multiple compounding
chronic diseases. The commonest of these
are cardiovascular disease, stroke, diabetes,
cancer, chronic obstructive pulmonary disease,
musculoskeletal conditions, and mental illness
(including dementia), occurring in many different
combinations. The orthodox medical view is
that these are distinct and definable conditions
each of which carries a different prognosis and
Multiple health problems are not unique to
older persons; they are, however, more preva-
lent in this group. Furthermore, as a person
ages, what was once a reasonable choice in
treatment may be less appropriate, even
harmful. In making clinical decisions about
the health of older patients and in quality
improvement for managing care, what are the
trade-offs between benefit and risk? What are
the opportunities for, and the barriers against,
putting such knowledge into practice?
A 78 year old woman with complex
health problems visits her doctor. Although
in younger patients clinical recommenda-
tions may include screening mammography
or intensive control of diabetes, this woman
may not actually live long enough to benefit
from these interventions. The issues that are
most important to her may bear little rela-
tion to the bioclinical problems her doctor
has been trained to diagnose and treat. Col-
laborative decision making by clinicians and
older patients such as this woman is almost
always made in a grey zone of unavailable
evidence and divergent expectations. Yet
tools are becoming available to help weigh
the trade-offs between treatment benefits and
competing risks. As these tools become more
sophisticated and easier to use in the everyday
clinical setting, they will help in clarifying the
choices that must be made by older patients
with multiple health problems.
The environment in which care is offered
and decisions made—the system of “usual
care”—is often bad for health. Its toxicity may
be a consequence of too many health workers
providing fragmented care, too many drugs
having adverse side effects, or too much inten-
sive treatment leading to dangerous compli-
cations. And usual care suffers by being fast
paced, reimbursed according to volume, and
focused too much on what the matter is with
the patient, rather than what matters to the
patient. Many alternatives to this usual care
are better, but most of these add additional
workforce—nurses, case managers, “coaches,”
and “teams”—in bewildering combinations
called disease management, case management,
transition management, and geriatric evaluation
and management. Other effective alternatives
to usual care, such as routine telephone calls
to the patient from an identified primary care
clinician, need no additional workforce.
That there are so many things wrong with
the usual care and so many ways to improve
it raises an obvious question: why hasn’t qual-
m a k i n g a d i f f e r e n c e
Multiple health
problems in
elderly people
Longer versions of all the articles
in the Making a Difference
supplement, including references
and figures, are at
http://makingadifference.bmj.com
With ever increasing pressure
on doctors’ time, iona Heath
wonders whether primary care
really meets the needs of elderly
people at all, while John Wasson
suggests ways for doctors to
improve the care of older patients
that don’t require extra resources
or staffing
BMJ | Making a difference | 26 april 2008 | VoluMe 336
951
requires different treatment. However, people
who live with multiple diseases, physical and
mental, experience them simultaneously and
inseparably. The patient with diabetes and
depression and congestive cardiac failure
does not have these conditions in separate
compartments of her life. She has all three
inseparably and, if she is also lonely and
frightened, all of this is a single condition.
The problem is that in health care the
specialist medical view predominates. And, as
a direct result, multiple diagnoses lead almost
inevitably to polypharmacy as each condition
is treated in perverse isolation from the others.
Research findings are extrapolated from younger
age groups and interpreted overoptimistically
in the context of what inevitably are limited life
expectancies. As a direct result, older people are
taking an ever increasing number of prescribed
drugs, but because of diminished physiological
reserve they are also more susceptible to adverse
drug reactions and interactions. Nevertheless,
the all too easy accusation of age discrimination
means that the limited time available for older
people to derive clinical benefit is not seen as
a legitimate reason for “underprescribing.”
Systems of “quality improvement” that involve
payment for performance, such as the UK
Quality and Outcomes Framework (QOF),
apply standards with no allowance for age
and systematically encourage overtreatment
of hypertension and type 2 diabetes, to
the detriment of patients. Many preventive
treatments in old age may simply change the
cause of death and not its date. The energetic
treatment of cardiovascular risk factors is
effective in reducing cardiovascular mortality but
does not prolong life and increases the likelihood
of a diagnosis of cancer or dementia.
Old people themselves have different
priorities and can find the epidemiological
perspectives of healthcare professionals to be
intrusive and inappropriate. Most elderly people
are very aware of death and know that it must
be faced and negotiated: “The big event of old
age—the thing which replaces love and creativity
as a source of drama—is death” (the author
Diana Athill).
Many frail older people have a rapidly
diminishing appetite for technological health
care and a proportionately increased need for
sensitive, gentle, hands-on physical care: a
need that is easily compromised by the very real
fear of becoming a burden. At present, medicine
seems to have limited means of marking
this transition, but such means are urgently
needed, because the continuing emphasis on
individual diseases leads, usually inadvertently,
to undertreatment, overtreatment, or
mistreatment—and often all three.
Tragically, the global trends of
commodification, privatisation, and
fragmentation in health care mean that the
dimensions of care most needed by frail elderly
people become less and less accessible. Yet
multiple illnesses can be coherently managed
only by a personal generalist physician who
is able to provide continuity of care for the
patient’s whole experience of illness, while at the
same time remaining alert to those diagnostic
possibilities that are readily remediable. But how,
within a market system, can unprofitable need
for time intensive and hands-on personal care
from a known other ever be given commensurate
priority?
iona Heath general practitioner
Caversham Group Practice, Kentish Town, London
[email protected]
ity improvement already resulted in better
usual care for older persons with multiple
health problems?
One reason commonly given for the per-
sistence of poor care is that most studies of
successful interventions for elderly patients,
when compared with usual care, have not
provided clear evidence of cost savings.
However, saving costs seems a poor reason
for not improving care, and indeed many of
the attributes of good quality care may not
require extra staff or money. In fact, within
the range of usual care about a fifth of older
patients with multiple health problems are
already receiving the high levels of access,
continuity, communication, and self man-
agement that are associated with successful
alternatives.
The fact that these crucial attributes of qual-
ity care are already available to some patients
raises a second question: can this high qual-
ity care be generalised to more patients?
An affirmative answer to this question is
provided by one innovative US example
of a quality improvement project: an online
collaboration involving a group of primary
care practices across the country (www.ideal-
medicalpractices.org). In these practices, the
percentage of older patients with complex
health problems who are attaining attributes
of high quality care as listed on the website
is more than twice that in non-participating
practices, even though they receive no spe-
cial reimbursement.
The thrust of future research into quality
improvement for older patients with multiple
health conditions should be directed towards
two objectives. The first is research into
how to adapt and adopt what is known. The
existing literature on quality improvement
demonstrates numerous ways to improve
health care for these patients through
timely assessment of “what matters,” easy
access to care, continuity of care with an
identifiable clinician, and understandable,
relevant information and support for con-
dition management and collaborative deci-
sion making. Although no particular setting,
patient population, or disease mix will be
identical to those reported in the published
literature, many essential elements are con-
stant. For example, it is not surprising to cli-
nicians that their patients’ confidence in self
management, financial status, and manag-
ing pain and psychosocial problems affects
their healthcare outcomes. What is surpris-
ing is that clinicians don’t systematically
evaluate these factors when assessing older
patients and placing them into categories for
the delivery of planned care. Technologies
and methods are already freely available to
help busy health professionals capture these
valuable opportunities.
The second area is research into how to
overcome the most conspicuous barrier to
the improvement of care: the current health-
care culture. The current culture induces dys-
functional workforce expectations, unwanted
variation in practice patterns, ineffective
training venues, counterproductive payment
incentives that are often based on inappro-
priate measures, and excessive technological
imperatives. Only in a very few clinical prac-
tices are measures of “what matters” to the
patient really at the centre of care. At a mini-
mum, the prevailing culture has to change
to enable breathing room from oppressive
volumes of consultations and paperwork so
that the few motivated health professionals
implementing patient centred, collaborative
care can become the many.
John H Wasson professor of geriatrics
Dartmouth Medical School, Lebanon, New Hampshire
[email protected]
the prevailing culture has
to change to enable breathing
room from oppressive
volumes of consultations
and paperwork
Never had it so good?
Multiple HealtH proBle Ms in elderly people
Adapting what is known
952 BMJ | Making a difference | 26 april 2008 | VoluMe 336
medical milestones
Reducing harm through quality
improvement
Are we now seeing the undesirable
consequences, for instance in drinking and
smoking habits, of female emancipation? As
women quite rightly seek greater opportunities
for equality in the workplace and in other
aspects of life, we see signs of them falling prey
more and more to so called lifestyle diseases.
Young women are all too commonly seen
huddling outside enjoying a cigarette; and while
lung cancer rates fall overall, they continue to
rise in women.
Women are also conspicuously heading for
equality in their drinking habits. In the most
recent British general household survey, 42% of
men and 39% of women aged 16 to 24 years had
exceeded safe recommended daily limits in the
previous week, with over half of those drinking
heavily or “bingeing.” The United Kingdom has
the heaviest drinking young women in Europe,
nearly 40% of whom admit to having drunk six or
more units in one session in the previous week.
Does it matter that our young women are
having fun? Most get away without harm and
will probably settle down. But those who do
not escape harm may have their life changed
fundamentally under the influence of alcohol.
Most first consensual sexual experiences and
unwanted pregnancies occur in this way, and
the distinction between rape and sex regretted
the next day can become blurred when women
are drunk. Genitourinary clinics see drink as the
biggest factor in unprotected sex and sexually
acquired infections. Some young women will
be scarred for life through drunken brawls and
arguments. In Scotland about 30% of women
committing violent crime are drunk.
Of course, the victims of accidents need not
be drunk themselves: alcohol is responsible
for much third party or collateral damage. In
England and Wales, over half of victims of
violence perpetrated by a stranger judged
the attacker to be under the influence of
alcohol. This is particularly an issue in
domestic violence, where again at least half of
perpetrators are likely to have been drinking.
It is remarkable how damage to the health of
third parties was such a tipping point for public
opinion on the issue of smoking in public
places, yet alcohol is hugely more serious in
this regard.
Teenage girls and young women are unlikely to
be receptive to arguments about serious organ
The concept of harm reduction has evolved
over nearly 90 years from its beginnings in the
1920s, when it applied to drug misuse in adult
populations. Applying the concept to adoles-
cent groups at risk is relatively new, requiring
that the concept be adapted appropriately.
Adolescent harm reduction spans a wider
array of harmful behaviours than are discussed in
the literature: substance misuse, multiple sexual
partners, violence and weapon carrying, non-use
of helmets when cycling, skating, or snowboard-
ing, riding with a driver who has been drinking,
and suicide plans. But the main contributor to
death from injuries in people in the United States
under the age of 21 is underage drinking.
Young women are “outdrinking” their male
counterparts of the same age and are more likely
to experience adverse health consequences. Such
behaviour may undermine neurological brain
development, predispose to adult dependency,
and increase mortality. The strong association
between drinking and having multiple sexual
partners “underscores the need to educate young
people about the effects of alcohol on partner
choice and the risk of infection with sexually
transmitted diseases,” as one study put it.
Harm from drinking often involves oth-
ers; among young women this other will often
be an unborn child. Fetal alcohol syndrome
is the leading cause of brain damage in chil-
dren in the United States. Young girls are now
drinking and smoking like boys and are more
likely to be depressed and to attempt suicide.
In primary care the complexity of these risky
behaviours among young people often goes
undetected, owing to lack of time, of access
to effective treatment, and of coordinated and
adequately funded resources in the commu-
nity to reduce harm.
A growing number of patients with serious
mental illness and substance misuse report
being treated in primary care or emergency
rooms. Despite the availability of evidence
based treatment for these disorders, many
patients and families do not receive effective
treatment in real world settings. One strategy
to help remove such barriers is to re-engineer
the processes of care delivery, using an evi-
dence base of changes that lead to improve-
ments in the quality and efficiency of care.
Our organisation, the non-profit Intermoun-
tain Healthcare (http://intermountainhealth-
m a k i n g a d i f f e r e n c e
Not just a “lifestyle disease”
excessive
drinking in
young women
Longer versions of all the articles
in the Making a Difference
supplement, including references
and figures, are at
http://makingadifference.bmj.com
The growing problem of binge
drinking among young women is
one that must be dealt with at a
societal level, says ian gilmore.
Nevertheless, doctors can make
a difference at an individual level,
and Brenda reiss-Brennan
and colleagues describe one US
quality improvement intervention
in primary care
BMJ | Making a difference | 26 april 2008 | VoluMe 336
953
damage in years to come, and so it is important
to highlight dangers that are more immediately
relevant to them. It is now apparent that fetal
alcohol syndrome, where babies are born with
severe brain damage and a typical physical
appearance, is but one end of a spectrum (fetal
alcohol spectrum disorders); and less obvious
behavioural disorders such as attention deficit
hyperactivity disorder may result from exposure
to alcohol in the womb. Unfortunately exposure
in early pregnancy is likely to be important, and
so far no safe threshold has been identified. Thus
the only safe advice is for women to avoid alcohol
if they seek to become pregnant—tough advice
where every celebration now seems to have
alcohol at its core.
Alcohol misuse remains the most important
cause of death from chronic liver disease
(cirrhosis), the prevalence of which has grown
startlingly in women, particularly in the 35-44
year age group (sevenfold in the last three
decades) but also in even younger women.
This reflects the early age when heavy drinking
starts. Particularly striking is the emergence
of the syndrome of alcoholic hepatitis
(not always associated with histological
cirrhosis), where the patient is febrile, deeply
jaundiced, and often has ascites and other
features of decompensation of liver function.
Histologically this can be indistinguishable
from non-alcoholic fatty liver disease, and it
has been suggested that alcoholic hepatitis
may be a “double hit” of alcohol on top of
a fatty liver, often associated with obesity,
which would explain the rapid increase in the
disease. Certainly the burden of harm is seen
disproportionately in the most disadvantaged
in society, a striking example of health
inequality that remains unexplained.
What can be done to turn this tide of alcohol
related health harm in young women? We
know that telling them to behave better will
not work. England’s national alcohol harm
reduction strategy of 2004 relied heavily on
voluntary partnerships with producers and
retailers of drink, linked to public education
and information. Sadly, these initiatives have
palpably failed. This should not surprise
us too much, because the best predictor of
alcohol related health damage is per capita
consumption, and it can hardly be in the
industry’s interests to have falling sales. Hence
we need to fall back on the tools that have an
international evidence base: mainly price and
availability. Alcoholic beverages have never
been as cheap in real terms as they currently
are—particularly those sold in off-licences and
supermarkets—nor as available.
Although approaches to increase price and
reduce availability smack of the “nanny state,”
it is simplistic to dismiss alcohol dependence
and physical damage as lifestyle diseases,
somehow down to the individual’s free choice
and nothing to do with the state. Cheap drink is
available and heavily promoted. Alcohol is our
favourite drug, and it is distressing to see young
women pressured into misusing it.
ian t gilmore president
Royal College of Physicians of London
[email protected]
care.org/xp/public/about-intermountain/),
became increasingly concerned that primary
care resources were not being used effectively
to treat patients with mental health conditions.
Its medical leaders were influential in estab-
lishing the mental health integration (MHI)
quality improvement programme. Over the
last decade Intermountain has implemented
MHI throughout 68 primary care clinics to
identify patients with mental health or sub-
stance use disorders and to treat them and
refer them to additional services. MHI makes
available a clinical team and offers financial
support to the primary care doctor.
Sustained results show that MHI leads to
improved functional status in patients and
improved satisfaction and confidence among
physicians in managing mental health prob-
lems as part of routine care at a neutral cost.
The primary care environment presents
opportunities and challenges for reducing
harm in young female drinkers. Alcohol
dependence and underage drinking are com-
plex family health problems and are intensely
personal and isolating issues for girls and
young women. It is an opportune consultation
in which teenagers’ health risks are uncov-
ered and wellness can be promoted. Although
guidelines are available, the routine screening
of young women for harmful behaviours var-
ies widely among primary care doctors.
The M H I assessment begins with a
common screening toolset administered by
the family doctor, who determines, with the
patient and family, the severity of the mental
health concerns. It includes comprehensive,
self reported measures of family history and
relational support, environmental stressors,
use of substances, depression, anxiety, and
bipolar and attention deficit disorders.
The results determine whether the doctor
continues routine treatment or triages the
patient to the MHI psychologist, psychiatrist,
or psychiatric nurse practitioner for prompt
consultation. The team includes a nurse
care manager, who provides support and
feedback to the doctor, the patient, and the
family. The care manager also provides edu-
cation and information and links the patient
to community resources, if this will benefit
the patient.
The team members use harm reduction
strategies to improve education and to pro-
vide treatment for alcohol misuse. They also
facilitate the involvement of families and
community resources in social support and
reinforcement of abstinence. Strategies that
are tailored to the preferences of patients and
communities are more likely to result in posi-
tive behaviour change.
Intermountain’s MHI database identified
123 263 patients across all age groups, 45% of
whom were women (55 568). The data show
that 25 945 girls and women aged <39 were
being treated for substance misuse and that
9107 had comorbidity of depression and sub-
stance misuse. Of those with a diagnosis of
substance misuse, 420 (1.6%) were 18 years
old or younger.
Adopting a harm reduction approach to
help young female drinkers and their fami-
lies will require quality improvement inter-
ventions that provide institutional support for
the primary care doctor to deliver care that
is matched to the family’s and community’s
social, financial, and cultural healthcare pref-
erences for wellness. Higher levels of social
capital exert strong protective effects against
alcohol misuse and harm.
Intermountain’s MHI programme is one
example of a quality improvement interven-
tion that tackles social capital needs and such
barriers as failed access and limited, frag-
mented treatment choices, which many fami-
lies face when trying to find help.
Brenda reiss-Brennan mental health integration director
[email protected]
Wayne cannon medical director
Primary Care Clinical Programs, Intermountain Healthcare
lucy a savitz senior scientist
pascal Briot analyst
Institute for Health Care Delivery Research,
Intermountain Healthcare, Salt Lake City, Utah
alcohol is our favourite
drug, and it is distressing
to see young women
pressured into misusing it
excessiVe drinking in young WoMen
Not just a “lifestyle disease”
954 BMJ | Making a difference | 26 april 2008 | VoluMe 336
medical milestones
Help and hope at the bottom
of the pile
Improving shared decision making
in osteoarthritis
Chronic pain is common—but it isn’t sexy.
People who through no fault of their own have
their lives demolished by pain deserve our
help. The Pain in Europe survey found that
19% of almost 50 000 people questioned in
a poll had chronic pain, defined as pain of at
least moderate severity occurring almost every
day for at least six months. One in five of these
people had pain for more than 20 years, and
most had pain for more than five years.
The main causes are back pain and arthritis,
and the incidence of chronic pain increases
with age. Our populations are ageing. In the
United States the number of people aged 65
years or older will have almost doubled by 2025
to 63 million, from 37 million in 2006, and
there will be a third of a million Americans over
the age of 100 years by 2020.
Chronic pain has a substantial impact on
quality of life. A Dutch study that analysed eight
large datasets by quality of life factors ranked
different medical problems. Musculoskeletal
conditions (including arthritis and back pain)
had the most severe effect on quality of life.
This impact of everyday pain on quality of life is
something that has yet to be fully appreciated
by those who organise our health services and
allocate resources.
Most normal or nociceptive pain can be
managed with conventional painkillers, from
paracetamol through to morphine, with the
more powerful painkiller added for more severe
pain. Most pains wax and wane, and flexible
prescribing takes time to explain. Problematic
pains include severe pain on movement with
little pain at rest, leaving patients oversedated
with painkillers when they are not moving.
Problematic side effects of the drugs include
drowsiness and constipation, a major burden
for elderly people.
Perhaps the most testing pains are
those that result from nerve damage, the
neuropathic pains. Peripheral nerve damage
from surgery, trauma, back pain, and the
classic post-herpetic neuralgia, painful
diabetic neuropathy, and trigeminal neuralgia
often respond poorly to conventional
painkillers and need the unconventional
drug classes, the antidepressants and
the antiepileptics. Titrating these drugs
to maximise pain relief and minimise side
effects is fiddly but necessary.
Common treatments for osteoarthritis include
physiotherapy, bracing, pharmacotherapy, and
joint replacement surgery. When treatments are
proposed that increase the risk of harm (such as
non-steroidal anti-inflammatory drugs, opioids,
or surgery), patients’ values concerning potential
benefits and harms need to be considered. How-
ever, clinicians find it difficult to judge patients’
values, which are also often based on unrealistic
expectations. Therefore tools that improve the
shared decision making process are important.
Shared decision making is a process in
which the patient and clinician together reach
an informed decision about the plan of care on
the basis of the patient’s clinical needs, priori-
ties, and values. The clinician’s expertise lies in
diagnosing and identifying treatment options
according to clinical priorities; the patient’s role
is to identify and communicate their informed
values and personal priorities, as shaped by their
social circumstances.
Patient decision aids are tools that prepare
patients for consultations by explaining options,
quantifying risks and benefits, helping patients
to clarify their values, and providing structured
guidance in deliberation and communication. A
review of 10 systematic reviews of patient deci-
sion aids found that they improved patients’
participation, increased their knowledge of
treatment options, realigned their expectations,
and improved the match between their values
and subsequent treatment decisions. The aids
also reduced the overuse of elective surgery (for
herniated disc, for example) without apparent
adverse effects on health outcomes. Another
study showed the potential for patient decision
aids to reduce inequalities among ethnic groups.
The Cochrane inventory of patient decision aids
(www.ohri.ca/decisionaid) uses international
standards to rate their quality. Decision aids for
osteoarthritis treatment are available online, in
brochures, and on DVD.
In 2006, patient decision aids were accessed
more than eight million times, mostly through
the internet. Ideally, these tools should be linked
to clinical care processes, but practitioners report
several barriers to implementation: inappropri-
ate content for their patients; forgetting to offer
them; inadequate time; content that was too
complex or too simple; and cost. Practitioners
are more likely to use patient decision aids if
they have a positive effect on patients’ outcomes
m a k i n g a d i f f e r e n c e
Management
of chronic pain
Longer versions of all the articles
in the Making a Difference
supplement, including references
and figures, are at
http://makingadifference.bmj.com
The burden of chronic pain for
those who have it and their
families is substantial, says
Henry mcQuay, and these
patients deserve better.
dawn stacey and colleagues
describe an example of quality
improvement in practice for one
group of people with chronic pain,
those with osteoarthritis
BMJ | Making a difference | 26 april 2008 | VoluMe 336
955
Most chronic pain is managed with drugs
in primary care. Obstinate pains—pains that
resist drug control at acceptable levels of side
effects—may need other treatment options,
from injections through to a multidisciplinary
pain management programme. The necessary
skill mix includes nursing, psychology,
drug expertise, and injection options and
physiotherapy.
The imperative to provide this tier of
expertise is humanitarian and economic.
Patients with chronic pain who are managed
poorly will bounce around the healthcare
system, becoming more and more
exasperated and consuming considerable
resources. Well managed pain contains this
excess use of resources, saving an estimated
£1500 (€1900; $3000) per patient per year.
Set against the background of the large
economic burden of chronic pain, the cost of
this tier of expertise is marginal.
An estimate of the financial burden of
musculoskeletal illness in the United States
argued for $50bn, and the indirect costs
of back pain in the United Kingdom are
estimated at £11bn. Certainly, chronic pain
increased costs for payers by more than
double, in comparison with matched controls
without pain ($C4200 (£2070; €2600;
$4100) versus $C1800 a year), an excellent
Canadian database survey found. There are
also financial implications for the person with
the pain, reduced household income being
the most obvious example.
No one thing will improve this situation.
We need more and better basic research, the
most tangible products of which are likely to
come from the major drug companies. But
there have been pitiably few new painkillers
in the past 30 years.
Clinical research and practice are now much
more likely to make a difference, helping
to make existing evidence sensible and
understandable so that people can use it. The
evidence base in pain enables us to assess
the relative effectiveness of treatments, for
instance in nociceptive and neuropathic
pain and indeed in migraine. This evidence
does not dictate what analgesic to use for a
particular patient but does help us to make
choices about treatments on the basis of their
effectiveness, propensity for harm, and cost.
Then there’s the provision of care. Chronic
disease comes low on the political priority
list, and chronic pain just gets forgotten.
The burden for the sufferers, their families,
and society is substantial and merits better
treatment.
The mark of a gracious society is how it
treats those with least voice. That chronic
pain puts people at the bottom of the pile
is precisely why we should be agitating on
their behalf for a fairer share of the medical
resource cake.
Henry McQuay professor of clinical anaesthetics
Nuffield Department of Anaesthetics, University of Oxford
[email protected]
or on the clinical interaction. Orthopaedic sur-
geons rated the content of patient decision aids
for osteoarthritis treatments as good to excel-
lent and were motivated to use them to improve
patients’ understanding but had concerns about
interrupting the flow of clinic work.
Patient decision aids have been implemented
successfully in specialist clinics in the United
Kingdom and Canada and in specialist and pri-
mary care clinics in the United States. Patients
with osteoarthritis, for example, use decision aids
together with balanced, evidence based informa-
tion on the treatment options and the likelihood
of the benefits and harms of those treatments.
The decision aids help patients clarify their val-
ues concerning benefits and harms by describing
what it is like to experience them. Patients then
complete a personal decision form, which elicits
their knowledge, values, preferred option, and
any unresolved “decisional needs” (for example,
uncertainty about their preference, gaps in their
knowledge of the options, lack of clarity of their
values concerning benefits and harms, and sup-
port needs). This information is summarised on
a “patient preference report,” which is sent to the
clinician to “close the loop” on decision making
with the patient.
In Canada, patients on the waiting list for a
surgical consultation are screened for eligibility
by trained general practitioners or physiothera-
pists before they receive a decision aid and
personal decision form. The Canadian patient
preference report (see http://makinga difference.
bmj.com) lists clinical priorities as determined by
self reported pain and functional limitations, the
trained screener’s assessment of surgical prior-
ity, and the patient’s preferences and decisional
needs. The report is paper based, but one author
(NC) has developed a similar computerised
report as part of the US Veterans Administra-
tion’s electronic patient health records.
Using the patient preference report together
with patient decision aids has the potential to
improve the clinical encounter and to provide
the incentive that practitioners need to over-
come their resistance to using the aids. For
example, when patients arrive at a surgeon’s
consultation with their preference report, the
surgeon can focus on issues of concern to the
patient, such as fears of side effects of surgery.
Thus the surgeon’s time will be used more effi-
ciently, and the care provided is more patient
centred, so patients and practitioners are both
more likely to be satisfied with the process.
Outcomes such as pain reduction and
improved function cannot be the sole quality
indicators in treatments that involve trade-offs
between potential benefits and harms. In such
treatment decisions, the quality of decision mak-
ing should be defined by how well the chosen
treatment option matches the features that mat-
ter most to the informed patient. Patient prefer-
ence reports document decision quality as an
indicator of the shared decision making proc-
ess. In addition to monitoring postoperative
complications such as infections, these reports
can be used by quality improvement teams to
monitor the extent to which high quality deci-
sions are achieved and decisional needs met.
Patient decision aids prepare patients for
making shared decisions concerning treatment.
Patient preference reports that summarise
patients’ clinical and decisional needs improve
communication. With standardised measures
and documentation of decisions, healthcare
organisations can monitor and include deci-
sion quality as another indicator of the quality
of their programmes.
dawn stacey assistant professor, School of Nursing,
University of Ottawa [email protected]
gillian Hawker professor of medicine, Division of
Rheumatology, University of Toronto
geoff dervin chairman, division of orthopaedic surgery,
Department of Surgery, University of Ottawa
ivan tomek assistant professor, Department of Orthopaedic
Surgery, Dartmouth-Hitchcock Medical Center and
Dartmouth Medical School, Lebanon, New Hampshire
nan cochran associate professor, Department of Medicine
and Community and Family Medicine, Dartmouth Medical
School, Hanover, New Hampshire
peter tugwell professor
Faculty of Medicine, University of Ottawa
annette M o’connor professor, School of Nursing,
University of Ottawa
an example of a patient preference report is at
http://makingadifference.bmj.com
chronic disease comes low
on the political priority list,
and chronic pain just gets
forgotten. the burden for the
sufferers, their families, and
society is substantial
Manage Ment of cHronic pain
956 BMJ | Making a difference | 26 april 2008 | VoluMe 336
medical milestones
The challenge of safer prescribing
Patients over 65 years old bear the greatest burden
of illness and thus are the greatest beneficiaries of
drugs to prevent, ameliorate, or treat conditions.
One of the most rapidly growing segments of the
population, they consume an ever increasing
proportion of all prescribed drugs.
For decades elderly people were excluded
from randomised trials of many preventive drugs,
reinforcing scepticism over whether they would
benefit from treatment of conditions such as
hypercholesterolaemia and hypertension. But
elderly patients may benefit from such treatments
at least as much as their younger counterparts.
In fact, because of the higher prevalence of
preventable disease in older patients, they often
derive greater benefits from such prescribing than
younger patients.
For this reason, much primary care has
shifted from the treatment of acute illness to the
management—often pharmacological—of “risk
states” in elderly people, including hypertension,
hypercholesterolaemia, and osteoporosis, as
well as diseases such as atrial fibrillation, heart
failure, and diabetes. Solid evidence from clinical
trials indicates that appropriate prescribing can
substantially reduce the burden of preventable
morbidity in these conditions. Although such
concerns are traditionally seen as a problem of the
industrialised world, they are rapidly becoming a
major issue facing developing countries as well.
But this benefit comes at a price: the high
prevalence of adverse drug reactions in older
patients. The problem has several sources.
One is the altered pharmacokinetic status of
elderly people; they are less able to metabolise
and excrete many common drugs, even in the
absence of liver or kidney diseases. They may
also have altered pharmacodynamic responses,
with some receptor systems (such as those for
opiates and benzodiazepines) having greater
sensitivity with advancing age, and others (such
as those for insulin) showing reduced sensitivity.
Unfortunately, the under-representation of older
patients (especially frail ones) in clinical trials
makes it even harder for the prescribing doctor to
prevent untoward drug reactions in older patients.
When an elderly person experiences an adverse
drug reaction, it may be mistakenly attributed
by the patient or doctor to a new disease or
(even worse) the ageing process itself. Examples
include the parkinsonian side effects of many
antipsychotic drugs and the fatigue, confusion,
Quality improvement for the care of older
people has become a priority in many
countries. Elderly people consume a large
proportion of health care, including drugs,
and evidence shows that prescribing to this
group is often inappropriate. Inappropriate
prescribing occurs in all care settings and
at the transition between settings. Negative
consequences include adverse drug events,
higher costs for the patient and society, and
impaired quality of life.
Specific approaches tailored to the needs
of frail elderly people are needed. A recent
review of ways to optimise prescribing to
older people found that geriatric medicine
services (involving a multidisciplinary team
that includes a geriatrician and other health-
care providers with specialised geriatrics
training), involvement of pharmacists in
care, and computerised decision support can
all improve the quality of prescribing to this
group in different settings.
Quality improvement strategies are more
likely to be effective when there is direct
interaction with the prescriber and when the
strategies are provided at the time of prescrib-
ing. In nursing homes, involvement of nurses
in strategies is another important factor. The
effect of educational interventions is mixed,
although the lack of training of doctors in
geriatrics is often cited as a cause of inap-
propriate prescribing.
However, widespread diffusion of effec-
tive approaches has not yet occurred. As in
many other fields, translating research into
practice is a delicate task. In the domain of
quality improvement for safer prescribing
to older people, this is further complicated
by a lack of strong data showing the impact
of effective approaches on important health
outcomes. Also, the question of who should
meet the cost of such approaches is a mat-
ter for debate. And we lack data on the cost
effectiveness of strategies. With regard to
computerised decision support systems, we
first need systems that have been tailored to
elderly patients before they can be imple-
mented more widely.
It is important to take environmental
barriers into account. Some barriers can
be specific to the setting of care or even
to the country of practice. For example,
improving the quality of prescribing of neu-
roleptics in nursing homes is less likely to
occur without an increase in staffing and
resources. Direct contact with prescribers
m a k i n g a d i f f e r e n c e
A substantial cause of preventable
illness
adverse drug
reactions in
elderly people
Longer versions of all the articles
in the Making a Difference
supplement, including references
and figures, are at
http://makingadifference.bmj.com
Doctors should pay greater
attention to managing the risk-
benefit relationship to improve care
of patients over 65, urge
Jerry avorn and William shrank.
The challenge of safer prescribing,
says anne spinewine, lies in
shared decision making
BMJ | Making a difference | 26 april 2008 | VoluMe 336
957
or depression-like symptoms that can result from
excessive use of heavily marketed psychoactive
drugs. Elderly people are at special risk of
such misattributions because of the pervasive
cultural assumption that growing older brings
with it a collection of inherent and inevitable
disabilities. The problem is compounded by the
slender preparation that most students receive in
geriatrics and in clinical pharmacology. There is
ample evidence of the clinical burden of iatrogenic
illness in the elderly. Studies of US patients aged
over 65 indicate that each year more than 180 000
life threatening or fatal adverse drug effects occur
in the outpatient setting, of which over half may
be preventable. Another study attributed 6.5%
of all hospitalisations in the general population
to adverse drug events, a rate that is likely to be
higher in elderly people.
Despite these gloomy realities, the most
notable aspect of drug induced illness in
elderly people is the most encouraging. Once
recognised, a side effect of a drug is probably
the single most reversible affliction in all of
geriatric medicine. Usually, care of elderly people
requires the management of conditions with a
downward course. But discovering that a symptom
is caused by a drug presents an uncommon
opportunity to effect a total “cure” by stopping
the offending prescription or lowering the dose.
In our own practices we have often seen patients
on a seemingly inexorable trajectory towards
institutional care whose functional capacity was
restored by thoughtful reassessment of their drug
regimens. This has led to the useful if overstated
recommendation that “any new symptom in an
older patient should be considered a possible
drug side effect until proved otherwise.”
As well as being alert to the possibility of new
iatrogenic problems, it is also prudent to reassess
a patient’s entire drug regimen at least twice a
year, including categories often overlooked by
patients and doctors: drugs bought over the
counter and “nutraceuticals” such as herbal
remedies or dietary supplements. Although these
products are often devoid of therapeutic benefit,
they can impose important toxicities, and their
interactions with prescribed drugs are poorly
understood. With growing use of the electronic
medical record, we can expect that drug regimen
review will increasingly be prompted by the
computer in the course of routine care. In one
computerised system for entering prescription
orders, the system automatically checks all
prescribed drugs and dosages against the age
of the patient and recommends a lower dose or
different drug if necessary.
Non-compliance with prescribed drug regimens
can produce a different kind of drug related
morbidity. In this “silent epidemic,” as much as
half of prescribed drugs are simply not taken.
Considerable morbidity results from this other
kind of drug related illness in elderly people, in
which potentially useful treatments are not taken
or (because of misplaced therapeutic nihilism) not
prescribed in the first place.
Broader systems based and educational
approaches are emerging to guide the evidence
based use of drugs in older patients so as to
reduce their burden of iatrogenic illness while
ensuring that needed drugs are prescribed
properly. Better attention to managing this benefit-
risk relationship will play an increasingly important
role in maintaining and improving the health of an
ageing population.
Jerry avorn professor of medicine [email protected]
William H shrank instructor in medicine
Division of Pharmacoepidemiology and Pharmacoeconomics,
Harvard Medical School, Boston
(such as with a clinical pharmacist) is not
always feasible in nursing homes, and this
can decrease the efficacy of the intervention.
In some countries pharmacists do not have
access to patients’ records. Consequently, a
quality improvement strategy that is effec-
tive in one care setting cannot be directly
transposed to another without adaptation.
The same applies to transposition between
countries, because of differences in practice
environments and culture.
Big improvements in communication at
the interface between primary and second-
ary care are urgently needed too. Many
adverse drug events result from problems
with communication relating to manage-
ment of drugs during the transition between
care settings. National online databases of
drugs dispensed to patients (as in Denmark),
to which all doctors and pharmacists have
access, should help to tackle such problems.
The same should apply to patient records.
Such a challenge should be taken up at the
national level, although of course steps must
be taken to protect patients’ privacy. Better
communication among prescribers to track
changes in treatment and to record the
reasons for those changes will also help to
avoid the fragmentation of care. This aspect
should be included in measures of quality
performance.
Quality improvement strategies for safer
prescribing in older people must include
shared decision making. The beliefs and
preferences of older patients concerning
treatment affect adherence and, in turn, the
safe use of drugs. Several recent studies
have shown the importance of considering
patients’ wishes, but many questions remain
unanswered.
The high prevalence of people with
dementia and the need to involve carers
in decisions complicate further the task
of shared decision making. Furthermore,
many prescribers are not familiar with the
principles of shared decision making or are
reluctant to engage in it because of the extra
time needed. Therefore a huge amount of
work needs to be done here, from research
to implementation. Education and train-
ing programmes for prescribers should
include sessions on communicating with
patients and on involving them in decisions.
Health authorities should also consider
including this dimension of care in quality
performance measures.
What are the most urgent of the unan-
swered research questions? We need more
clinical trials that enrol frail elderly patients,
to enhance our knowledge of the benefits and
risks of treatments in this group. With regard
to quality improvement strategies, we need to
evaluate the effect of multifaceted approaches
on important health outcomes and costs. This
is a challenging task that will certainly require
multicentre trials with large samples.
It is important that quality improvement
approaches are multidisciplinary in nature,
use computerised decision support systems
that are specific to this age group, and take
the patient’s view into account.
Meanwhile, national health systems
should provide incentives for prescribers
to regularly review treatments, develop
information systems to facilitate seamless
care, and encourage the implementation
of multidisciplinary approaches including
geriatric medicine services. Quality improve-
ment strategies need to be customised
to account for differences in patients,
prescribers, and environmental factors.
anne spinewine lecturer in pharmacotherapy
Cliniques Universitaires de Mont-Godinne, Yvoir, Belgium
[email protected]
Big improvements in
communication at the
interface between primary
and secondary care are
urgently needed
adVerse drug reactions in elderly people
The challenge of safer prescribing
958 BMJ | Making a difference | 26 april 2008 | VoluMe 336
medical milestones
Reliable comfort and meaningfulness
We must apply the lessons learnt from cancer
(often slowly and painfully) to the growing
number of people now dying from non-
malignant illnesses. New theoretical insights
into the trajectories of decline in a range of
long term conditions—together with technical
developments that aid the delivery of care in
people’s own homes and the timeless clinical
qualities of listening, compassion, empathy,
and inspiring hope—mean that we now have
the means to make a real difference to the
lives of so many people in the throes of their
final illness and to the lives of their loved ones.
Getting end of life care “right” lies at the heart of
what it means to be a civilised society, and thus
prioritising this area needs no apologies.
In 2005 cancer was responsible for a relatively
small percentage of deaths worldwide (13%),
while other long term conditions caused 47%. By
2030 the annual number of deaths around the
world is expected to rise from 58 million to 74
million, with conditions related to organ failure
and physical and cognitive frailty responsible
for most of this increase. Yet despite these rapid
demographic changes, palliative care services
typically still cater only for people with cancer. For
example, hospices in economically developed
countries currently provide 90% of their care to
patients with cancer. Moreover, people dying
from cancer usually have needs lasting for weeks
or months, whereas those dying from organ
failure or old age often have unmet needs that
extend over many months or years. It is little
wonder, then, that people dying of the “wrong”
condition and their carers, whether family, social,
or professional, are increasingly frustrated by the
major obstacles to accessing appropriate care.
The drive to extend palliative care beyond
cancer has so far been hampered by a
combination of factors: prognostic uncertainty;
funding difficulties (in the United Kingdom
influential cancer charities support many
hospices and outreach programmes); lack of
palliative care clinicians with expertise in non-
malignant diseases; and a hitherto relatively
weak evidence base in relation to appropriate
models of care. Although the empirical evidence
base remains weak, we do now have a good
theoretical understanding of when and how to
intervene in a range of conditions.
Prognostic uncertainty can and does hinder
clinicians in thinking and planning ahead. Most
To live well in the time left to them, patients
with fatal chronic conditions need confidence
that their healthcare system ensures excellent
medical diagnosis and treatment, prevention of
overwhelming symptoms, continuity and com-
prehensiveness of care, advance care planning,
patient centred decisions, ands support for car-
ers. Hospices and palliative care have improved
these dimensions of quality for people dying
from cancer. Applying those insights to other
fatal chronic conditions could greatly improve
the last part of life, although the endeavour
entails substantial challenges.
End of life care for elderly people will have
to last for a long time: being disabled enough to
need daily help now continues for an average
of more than two years before death. Patients
with non-malignant, long term illness are
older and frailer than patients with cancer (as
are their carers). Transfers between hospitals,
nursing homes, and home care often engender
delirium, depression, falls, treatment errors, and
pressure ulcers, in addition to the common hos-
pice problems of pain and loss. Entities that
are often unfamiliar to hospices—such as social
insurance programmes for poor people and dis-
ability transportation—will need to be partners
in care.
How can we ensure reliable services for
all in the last phase of life? Systematic qual-
ity improvement and policy reforms will offer
reliable and efficient strategies if they focus on
the three common patient trajectories: short
decline typical of cancers; intermittent exac-
erbations and sudden death typical of organ
system failures; and the slow dwindling course
typical of frailty.
For gains to be achieved and sustained, qual-
ity improvement requires clear goals, appropri-
ate teams, ways to monitor progress, sequential
testing of improvements, and the institution-
alisation of improved processes. Local quality
improvement has a track record of success in
correcting some shortcomings of ordinary care.
These include improving pain prevention and
treatment (such as by routinely responding at a
patient’s home within a time period determined
by the patient or a family member), developing
and implementing advance care plans (decid-
ing whether to attempt resuscitation, for exam-
ple), and preventing and healing pressure ulcers
(one quality improvement programme reduced
the incidence of full thickness lesions by 69%).
Quality improvement projects can reduce over-
treatment near the end of life, improve prognos-
tication and counselling by providing automatic
m a k i n g a d i f f e r e n c e
palliative care
beyond cancer
Longer versions of all the articles
in the Making a Difference
supplement, including references
and figures, are at
http://makingadifference.bmj.com
Care for all at the end of life
scott murray and aziz sheikh
say that the lessons learnt from
palliative care for cancer need to
be applied to other fatal conditions.
Healthcare delivery that is tailored
to the varying needs of patients
with these diseases will be
crucial in making a difference,
says Joanne lynn
BMJ | Making a difference | 26 april 2008 | VoluMe 336
959
patients with heart failure die when they are
still expected to live for more than six months,
and accurate prognostication is also virtually
impossible in people with chronic obstructive
pulmonary disease (COPD). Although this
uncertainty is frustrating for doctors, its very
presence can be a basis for initiating end of life
discussions.
Recent work is helpful in identifying critical
events and stages when a palliative approach may
be introduced. People with progressive chronic
illnesses follow three characteristic trajectories
(see figure on http://makingadifference.bmj.
com): a cancer trajectory, with steady progression
and usually a clear terminal phase; an organ
failure trajectory, with gradual decline punctuated
by episodes of acute deterioration and eventually
a seemingly unexpected death; and a trajectory of
prolonged gradual decline (typical of physical or
cognitive frailty).
Hospices provide excellent and accessible
care to people with cancer but are not configured
to address the needs of patients who don’t have
cancer. So what can we do? A typical critical
juncture in an organ failure trajectory, such
as hospitalisation for acute heart failure or an
exacerbation of COPD, should trigger a holistic
assessment and care plan for the next stage
of the illness. Practical models of care are now
being formulated and tested to fit the other two
trajectories. Some Scottish general practitioners
are, for instance, documenting a care plan for
every patient admitted to hospital with COPD.
Clinicians are thus alerted to “change gear” from
routine chronic disease management to a more
personalised palliative care approach, while
continuing active treatment. These trajectories
thus help us consider what should be done to
promote quality of life rather than focus on what
can be done, which may lead to futile treatment.
A strategic policy overview of these trajectories
may also help services to consider all people with
serious chronic illnesses equitably, rather than
cancer “top slicing” care.
Palliative care for everyone underscores the
need for anticipatory personalised care for all
people with life threatening illnesses. Technical
developments such as video conferencing
and remote monitoring devices may help in
realising this aspiration, but far more important
are the medical vocation’s essential clinical
skills—active listening, respecting autonomy,
and empathic care—none of which depends
on first world infrastructures. These can be
implemented anywhere in the world, as long
as health services respect the importance of
clinicians and patients having time together,
ideally in the context of a relationship that
allows for personal continuity of care.
Facilitating a good death should be recognised
as a core clinical proficiency, as basic as diagnosis
and treatment. Death should be managed
properly, integrating technical expertise with a
humanistic and ethical orientation. We also need
research into how best to identify, assess, and
plan the care of all patients who are sick enough
to die, and we need education that keeps alive
our humanity and sense of vocation. This is an
enormous challenge in politicised, market driven
healthcare models but one that will make an
important difference to those most in need.
scott a Murray professor of primary palliative care
[email protected]
aziz sheikh professor of primary care research and development
Division of Community Health Sciences: General Practice
Section, University of Edinburgh
a figure showing the three main trajectories of decline at
the end of life is at http://makingadifference.bmj.com
feedback to clinicians, and implement shared
accountability and effective drug reconciliation
throughout changes of care settings.
Sustainable excellence requires supportive
social policies. Practitioners working in trust-
worthy arrangements for delivering care must
make a living. But powerful economic interests
and social forces now encourage the oversell-
ing to patients and families of treatments with
little chance of success. Citizens and clinicians
must encourage political leaders to champion
more appropriate policies, such as allocating
healthcare payments to reward continuity and
comprehensive primary care and ensuring an
adequate income in retirement for family mem-
bers who are carers.
Such reforms will be more efficient when
they set out to match eligibility and service
patterns to the three dominant patterns in the
last phase of life. If palliative and hospice care
are available only to those who die in a pre-
dictable way in a short time, most people will
never qualify, because their timing of death will
stay uncertain until very close to the end of
life. A short period of hospice care does meet
the needs of many cancer patients, but people
with heart and lung failure are better served
by having a much longer period of support for
self care and rapid response to help people at
home in times of crises. In contrast, people with
dementia or who are frail are often best served
by having many years of support to carers in
the family. Delivery systems that are tailored to
the usual needs of these groups would enable
clinicians to customise care plans to the prefer-
ences of individual patients and their families.
The combination of specific innovations
from quality improvement, encouragement in
the form of payment and regulatory policy,
and services tailored to particular groups of
patients is a powerful package for reform. In
various forms, such a strategy is being pur-
sued in many places: the United Kingdom,
Saskatchewan in Canada, and Sweden, and in
the United States by Kaiser Permanente, the
Veterans Affairs Health System, and Medi-
care’s Quality Improvement Organizations in
each state.
Every clinical team can use quality improve-
ment to adapt its own care system to the needs
of patients with fatal illnesses. For example,
doctors can shoulder the burden of helping
patients and families come to a realistic view
of the outlook and to collaborate in making
plans. Claiming to be sustaining hope, doctors
often offer improbable treatment plans, falsely
implying that all will be well if the patient and
family go along with them. Instead, an hon-
est appraisal of the situation, the likely course
of the illness, and the treatment alternatives
would allow the patient, family, and clinicians
to negotiate the priorities among various goals,
the preferred strategy, and a timeframe for
reconsideration.
The ageing of populations will greatly
increase the number of sick and dying older
people, while smaller families and reduced
retirement security will shrink the number of
available carers in the family. The coming cri-
sis is obvious. Policy makers and practitioners
must learn to support family carers, and local
quality improvement and innovation in govern-
mental policy are the right prescriptions.
The dying patient’s clinical care team must
provide highly skilled diagnosis and treatment.
Doctors must be able to promise to prevent
pain and dyspnoea near death, for example.
Specialist palliative care is well established in
many countries, but palliative care skills among
those professionals who serve most patients—
long term care nurses, home care teams, gen-
eralist physicians, and specialist physicians—lag
far behind.
Joanne lynn medical officer
Office of Clinical Standards and Quality, Centers for Medicare
&
Medicaid Services, Baltimore [email protected]
local quality improvement
has a track record of success in
correcting some shortcomings
of ordinary care
palliatiVe care Beyond cancer
Reliable comfort and meaningfulness
Care for all at the end of life
Initial responses to the forum postings should include the
following three elements at a minimum:
(1) Your original opinion or thought about the question.
(2) Evidence that backs up your point of view (references,
URLs, etc.)
(3) Demonstration that you are connecting the dots, that you are
using critical analysis skills. Two ways to do this are by
providing examples that relate to your life/work or providing an
analogy that relates to the forum topic.
Please put the reference under each part
Part II:
After completing this weeks readings, including our Lesson in
the Lesson section:
Visit the following websites
http://www.sportpsychology.com/
http://www.appliedsportpsych.org
Provide a brief summary of why these organizations exist
Part III:
In this discussion you'll consider your personality and
specifically the kinds of roles you play, the way you respond in
different situations, and the things in which you believe.
Instructions
1. Thinking of your own personality, identify characteristics
that correspond to each of the following components of
personality structure, and describe these characteristics. When
posting your answer to the following questions, do so in the
format provided below and relate your answers to content you
read in our text.
Components
1. Role-related behaviors: How you act in different social
situations, for example, as coach or instructor, student, son or
daughter, and parent.
2. Typical responses: The way you typically respond in
different situations, for example, in a friendly pickup game or
exercise class, during the first meeting with new teammates, or
when learning a new skill in a comfortable environment.
3. Psychological core: Your most basic and deepest attitudes,
values, interests, and motives.
Part 4 please put reference at the end of each part
Please answer the following:
1. Define exercise physiology? Explain how exercise
physiology differs from sport physiology.
2. Provide an example of what is meant by studying acute
responses to a single bout of exercise.
3. Describe the essential characteristics of the three energy
systems.
Aust. J. Rural Health (2006) 14, 105–110
© 2006 The Authors
Journal Compilation © 2006 National Rural Health Alliance Inc.
doi: 10.1111/j.1440-1584.2006.00777.x
Blackwell Publishing AsiaMelbourne, AustraliaAJRAustralian
Journal of Rural Health1038-52822006 National Rural Health
Alliance Inc.? 2006143105110Original ArticleFAR WEST
MENTAL HEALTH INTEGRATION PROJECTD. A. PERKINS
ET AL.
Correspondence: Dr David Perkins, CEPHRIS, PO Box 2087,
Wollongong 2500, New South Wales, Australia. Email:
[email protected]
Accepted for publication 15 February 2006.
Original Article
Far West Area Health Service Mental Health Integration
Project: Model for rural Australia?
David A. Perkins,1 Russell Roberts,2 Tuana Sanders2 and Alan
Rosen2,3,4,5,6
1Centre for Equity and Primary Health Research in the Illawarra
and Shoalhaven, University of New
South Wales, Sydney, 2Greater Western Area Health Service,
Orange and Broken Hill, 3Royal North Shore
Hospital and 4Community Mental Health Services, 5School of
Public Health, University of Wollongong,
Wollongong, and 6Department of Psychological Medicine,
University of Sydney, Sydney, New South
Wales, Australia
Abstract
Objective: To see if a new model of service delivery
ensures that individuals with a mental illness in rural
and remote settings could be assessed, treated and cared
for in a more appropriate way.
Design: Community mental health teams (CMHTs),
general practitioners (GP) and other agencies were pro-
vided with clinical and broader support services by con-
sultant psychiatrists from public and private sectors.
The occasions of service were logged, audited and rele-
vant provider groups were interviewed. Ethics approval
was provided by Human Research Ethics Community
of University of New South Wales.
Setting: Far West Area Health Service (FWAHS),
remote New South Wales.
Participants: An enhanced service was provided for res-
idents, specialist mental health and other healthcare
providers.
Results:
• Regular access to psychiatrists for primary and sec-
ondary care was achieved in remote communities in
FWAHS.
• 3908 new patients were seen by CMHTs between July
2002 and December 2003 and 380 by visiting psychi-
atrists between January 2002 and July 2003.
• Secondary consultation, mentoring and education
opportunities were made available by tele-conference
and face-to-face for CMHTs and others in FWAHS.
• GPs and CMHTs in remote settings were satisfied
with improved access to psychiatrist care.
Conclusions: This model appears to be sustainable with
reasonable levels of funding in FWAHS and may be
applicable to other remote contexts.
KEY WORDS: access, integrated service, mental health,
remote, visiting.
Introduction
The 1993 National Health Strategy proposed significant
reform in provision of mental health services. It pro-
posed multidisciplinary service delivery, a single point
of entry for patients, an information system to support
continuity and integration of services, and major
reforms in financing. It found, few financing incentives
for the integration of public and private specialised men-
tal health services to ensure wider access and continuity
of care for people with chronic mental illness.1
The Second National Mental Health Plan 1998 found
widespread failings in integration.2 As part of the imple-
mentation of the plan the Commonwealth Government
sought expressions of interest from Area Mental Health
Services to demonstrate:
• Evidence of broad interest from public and private
sectors in conducting a demonstration project
• A description of current integration mechanisms
• An outline of a broad integration strategy to be
followed
• An agreement between stakeholders to collect rou-
tine patient outcomes.
Three projects were funded with the following aim:
To establish and document approaches to integrating
private psychiatrist and public mental health services.
The purpose is to create a more flexible integrated
framework within which mental health can be
delivered.3,4
These projects were collectively called Mental Health
Integration Projects (MHIP). The Far West Area Health
Service (FWAHS) was selected to receive planning and
then project funds. The live phase commenced in 2000
and the evaluation was published in December 2003.5
This paper reports research conducted in the evaluation
process.
106 D. A. PERKINS ET AL.
© 2006 The Authors
Journal Compilation © 2006 National Rural Health Alliance Inc.
The Third Mental Health Plan 2003 includes the fol-
lowing key principle:6all people in need of mental health
care should have access to timely and effective services,
irrespective of where they live.
Context
The FWAHS occupies one-third of the landmass, but
with about 50 000 people has less than 1% of the
NSW population (Fig. 1). The Australian Bureau of
Statistics has classified the entire area as remote. Thir-
teen per cent of the population are Aboriginal, com-
pared with 1.7% in the State. The area was rated as
having the highest level of socioeconomic disadvantage
in Australia.7
Twelve per cent of the FWAHS population have needs
that are usually treated by public mental health services,
that is, affective disorders, personality disorders, psy-
choses or cognitive impairment. About 20% have needs
usually treated by private mental health practitioners
that is, affective disorders, anxiety disorders and
substance abuse. Only eight Area Health Services in
Australia had a higher prevalence of these disorders
in 2002.7
In 1997 the Australian Medical Workforce Advisory
Committee reported a serious maldistribution of psychi-
atrists with one psychiatrist per 6610 people in capital
cities, one per 20 593 in large rural centres and one per
41 283 in other rural and remote centres.8
In consequence, Far West residents receive a small
proportion of Medicare monies spent on private psychi-
atrist services because there are no resident private psy-
chiatrists in the area. In the early 1990s the FWAHS
mental health service was regarded as a model service
being awarded silver and gold ANZ Mental Health
Service Achievement awards. However, the loss of key
staff in the 1990s had a damaging effect on the quality
of the service.9
There is one resident public psychiatrist based in
Broken Hill serving 50 000 people. There is high staff
What this study adds:
• This study was undertaken to see if a better
mental health services model could improve
access to psychiatrists in remote
communities and support resident health
care providers and GPs.
• This study shows that it is possible to
provide a good-quality mental health service
in remote communities using a primary
health care model where access is improved,
local staff are supported and most patients
are cared for in their communities.
FIGURE 1: Far West Area Health Service.
Pooncarie
Louth
Enngonia
Wanaaring
Tilpa
Towns in the
Far West Area Health Service
White Cliffs Bourke
Brewarrina
Goodooga
Lightning Ridge
Walgett
Collarenebri
Dareton
Euston
Balranald
Coomealla
Ivanhoe
Wentworth
Wilcannia
Menindee
Broken Hill
Tibooburra
What is already known on this subject:
• Psychiatrists have been visiting remote
communities on an ad hoc basis for many
years, often flying in and out on the same
day. Their work has consisted almost
entirely of patient assessment and the
services provided have not been
comprehensive or locally based.
FAR WEST MENTAL HEALTH INTEGRATION PROJECT 107
© 2006 The Authors
Journal Compilation © 2006 National Rural Health Alliance Inc.
turnover among public mental health staff who have
fewer years of experience compared with their urban
counterparts. Two metropolitan psychiatrists have vis-
ited Broken Hill for many years fulfilling a clinical
role.10 A short-term project provided psychiatrists on a
day visit basis to Lightning Ridge and one psychiatrist
occasionally visited Dareton.
Objectives
The project objectives were:
• To provide access to comprehensive mental health
services
• To encourage multi-professional collaboration and
coordination
• To increase the focus on prevention and promotion
• To develop a coherent funding mechanism
• To enable consumer participation
• To provide education and support for mental health
workers and primary health professionals.
The Far West Mental Health
Integration Project
(FW-MHIP) model
The FWAHS Strategic Plan adopted a population health
approach to planning and a primary health care model
of service delivery because the population is scattered
over a large area, resources limited and health problems
increasingly lifestyle-related.11 This model ensures that
mental health services are an integral part of primary
health care and population health (Fig. 2).
Psychiatrists visit on a regular basis from metropol-
itan centres as do allied mental health specialists
from the Broken Hill headquarters. Their visits
include patient consultations and secondary activities
such as caseload review, mentorship and education of
local mental health and primary care staff. Resident
staff continue planned care between visits and are
able to consult by phone if necessary. They receive
regular supervision and support from psychiatrists
FIGURE 2: The Far West Mental Health Integration Project
model. CMHT, Community mental health team; FWAHS, Far
West
Area Health Service.
Core philosophy Elements of model
era secivres htlaeh latnem yramirp – ygetarts erac yramirP
provided by local generalist staff supported by specialists from
hubs and visiting psychiatrists from metropolitan centres
Hub structure – CMHTs support general health staff and
provide specialist services to patients
Funding mechanism – The Area Health Service was given the
funds it would receive if it had the national average number of
private psychiatrists working across the area and received an
equitable share of State mental health funds.
The local resident mental
health team, general
practitioners (GPs) and
other providers are
supported by specialist
mental health and
counselling staff and
visiting psychiatrists
Management process – Local mental health services are
provided by a CMHT working with GPs, generalist health staff
and others managed by a team leader who reports to the
Director of Mental Health and Counselling.
Visiting Patterns – An increase in the number of visiting
psychiatrists was achieved. Psychiatrists were strongly
encouraged to stay for one or more nights in the communities
they visited.
VMO roles – Specialist psychiatrists were appointed as
Visiting Medical Officers and encouraged to undertake a mix
of primary and secondary activities to meet the needs of the
teams and the communities serviced and to contribute to the
wider service.
Governance mechanism – The project was treated as core
business, covered the whole mental health and counselling
service and was subject to the normal governance mechanisms
of the FWAHS
108 D. A. PERKINS ET AL.
© 2006 The Authors
Journal Compilation © 2006 National Rural Health Alliance Inc.
enhancing staff development and contributing to job
satisfaction.
This model was implemented as the core service
model, with no private referrals to the visiting psychia-
trists who are Visiting Medical Officers. Referrals are
made to the mental health team who refer to visiting
psychiatrists where appropriate. The team leader plans
the visits of psychiatrists and allied specialists to meet
priority needs and is responsible to the Area Director of
Mental Health and Counselling.
Results
Access to psychiatrists
The implementation of FW-MHIP sectors provided
regular access to a psychiatrist for the first time for
patients from outside Broken Hill. Table 1 shows the
number of new patients seen by psychiatrists by sector
from January 2002 to June 2003. The figures in brack-
ets show new referrals as a percentage of all referrals
seen. Low first quarter figures reflect the start-up diffi-
culties and the introduction of psychiatrist activity
reporting processes. New referrals represent about half
of the patients seen. Team leaders reported that it is
usually possible to ensure that those requiring a spe-
cialist consultation see the psychiatrist on his/her next
visit.
Access to community mental health
teams (CMHTs)
Community mental health teams saw a large number of
new clients with a wide range of mental health and other
disorders (Table 2). Many of these individuals were seen
by the visiting psychiatrist and are also recorded in
Table 1.
Table 3 provides a breakdown of individuals by
diagnosis seen between July 2000 and December
2002.
Support activities
Support activities were undertaken by a visiting psychi-
atrist with no patient present and the objective was to
assist local providers including: CMHT members, gen-
eral practitioners (GPs), hospital staff, Aboriginal med-
ical services staff and other agencies. These activities
accounted for 10–20% of specialist activity throughout
the project and included case review, mentorship, sec-
ondary consultation and education for mental health,
acute and primary care staff.
Collaboration
Collaboration with GPs improved but was not a spec-
tacular success for a number of reasons. GPs were in
short supply and reported being overworked with little
time for non-core activities. GP turnover was significant
and relationships with visiting psychiatrists take some
time to build. Many GPs were happy to refer to the
CMHT, and through the team to a psychiatrist, and to
await a letter from the specialist in a traditional manner.
However, GPs reported high quality instances of second-
ary consultation ranging from regular meetings with the
visiting psychiatrist to discuss issues such as treating
patients with personality disorders to one-off but valued
secondary consultations.
Discussion
Increased resources and a new flexibility in their use
enabled improved access to mental health services in a
remote context. These improvements are demonstrated
by the number of patients seen by psychiatrists and
CMHTs and reductions in or elimination of waiting
times.
Local access was critically important for some
Aboriginal and non-Aboriginal patients who typically
refused to travel for specialist care. As a secondary
consideration medical evacuations are an expensive
option for all concerned.
TABLE 1: New referrals seen by visiting psychiatrists by hub
Sector
January–March
2002
April–June
2002
July–September
2002
October–December
2002
January–March
2003
April–June
2003
Total
2002/03
Broken Hill 3 (60) 36 (61) 31 (47) 32 (52) 29 (67) 19 (40) 150
Dareton 6 (35) 5 (20) 6 (28) 6 (25) 6 (26) 10 (41) 39
Lightning Ridge 17 (44) 17 (53) 10 (28) 9 (34) 14 (32) 21 (47)
88
Bourke 11 (55) 18 (56) 13 (52) 23 (58) 17 (60) 21 (51) 103
Total 37 76 60 70 66 71 380
Brackets show new referrals as percentage of all patients seen
by visiting psychiatrist. Based on manual reporting by
psychiatrists
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Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx
Multiple health problems in elderly peoplepage 950Ex.docx

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Multiple health problems in elderly peoplepage 950Ex.docx

  • 1. Multiple health problems in elderly people page 950 Excessive drinking in young women page 952 Adverse drug reactions in elderly people page 956 Palliative care beyond cancer page 958 Drug resistant infections in poor countries page 948 Management of chronic pain page 954 M A K
  • 2. IN G A D IF FE R E N C E 945BMJ | 26 APRIL 2008 | VOLUME 336 BMJ | Making a difference | 26 april 2008 | VoluMe 336 947 Running the gauntlet to improve patient care This supplement is the result of a gauntlet thrown down, and picked up, during a dinner in London just over a year ago. The gauntlet thrower was Don Berwick, president of the Institute for Healthcare Improvement in Boston. What, he asked, was the BMJ Publishing Group really for? What were we trying to achieve? In reply, I and our chief executive, Stella Dutton, were quick to quote the BMJ’s mission, which ends with the crucial words “to improve
  • 3. outcomes for patients.” Fine, said Don, but how about being more specific: which outcomes, what patients, by how much? We took his suggestion seriously. Why not target a few important healthcare problems, taking a quality improvement approach and focusing on the evidence on how to make a difference in these areas? But how to choose which issues to tackle among the many millions of pressing healthcare challenges facing the world? We turned in the first instance to BMJ readers. In May 2007 we asked you to tell us what information was most needed to improve the quality of care of patients in clinical practice. From your many rapid responses we harvested more than 200 ideas. After categorising these and matching them against the priorities of national and international bodies, we created a shortlist of 12. With the help of an expert panel (see http://makingadifference.bmj.com) we cut these down to six. Inevitably the choice of topics is subjective rather than scientific, but the six we have ended up with are interesting. Several turn the spotlight on areas that are less than glamorous and are perhaps all too often passed over, even as their impact on individual lives and society increases. Two topics deal with problems of old age: multiple illness and adverse drug reactions. Two deal with palliation: of chronic pain and in dying from non-malignant disease. The remaining topics deal with two very
  • 4. different but serious and growing public health challenges: drug resistant infections in the developing world and excessive drinking in young women. You will no doubt find important gaps in what we have chosen. But if this initiative proves useful we can expand it further. On each of the six topics we’ve invited leading commentators to write the pairs of articles that make up this supplement. One article in each pair aims to describe the importance of the problem in terms of its health and societal impact. The other looks at the available evidence on quality improvement initiatives to tackle the problem. Perhaps inevitably, several of the quality improvement articles conclude that the evidence is inadequate and more research is needed, but the authors do lay out what they think are the priorities for future research. One key priority is to develop new and better research methodologies for evaluating quality improvement initiatives. We need to choose one or two of these topics to focus on over the next year, on which we will create and compile content across the BMJ Group’s portfolio of products: the BMJ, BMJ Journals, Clinical Evidence, Best Treatments, and BMJ Learning. How will we know whether we have made a difference? We probably won’t in any scientific sense. But we will be looking for ways to evaluate the effect of the initiative. On this, as well as on the topics
  • 5. themselves, we would welcome your thoughts. Fiona Godlee, editor, BMJ [email protected] For 20 years the National Confidential Enquiry into Patient Outcome and Death (NCEPOD) has been committed to improving the quality of care received by patients in hospital. NCEPOD does this by undertaking confidential surveys, publishing reports that highlight remediable factors in the care of patients. NCEPOD’s remit extends across surgery and medicine and it is the valued contribution of all the clinicians and hospitals involved that ensures the quality of the reports produced. For more information visit www.ncepod.org.uk or call us on 0207 631 3444. Registered charity: 1075588 Company Limited by Guarantee: 03019382 Improving the quality of medical and surgical care ADVERTISEMENT in any scientific sense. But we will be looking for ways to BMJ m a k i n g a d i f f e r e n c e several topics turn the spotlight on areas that
  • 6. are less than glamorous and are perhaps all too often passed over, even as their impact on individual lives and society increases 948 BMJ | Making a difference | 26 april 2008 | VoluMe 336 A shrinking window of opportunity Around the world an estimated 10 million children under the age of 5 years die each year, the vast majority (90%) in a mere 42 countries. Of the major causes of death among children, infections such as newborn sepsis, diarrhoeal disorders, pneumonia, meningitis, and malaria are major killers. While much is known about the role that poor availability of interventions has in childhood morbidity and mortality in developing countries, much less is known about the contribution of antimicrobial resistance—but it is likely that the contribution of resistant infections is significant. In a prospective study of 1828 children with signs of systemic infections in Tanzania, the mortality from Gram negative bloodstream infection (44% of the deaths) was more than double that from malaria (20%) and Gram positive bloodstream infections (17%), and antimicrobial resistance was found to be a significant risk factor for mortality. A literature review has underscored the importance of hospital acquired resistant bacterial infections among newborn infants in developing countries.
  • 7. The emergence of antimicrobial resistance is recognised as a major contributor to excess morbidity and healthcare costs in developed countries. In poorer countries, limited laboratory facilities and the lack of robust, population based surveillance systems has meant that information on the effect of antimicrobial resistance on health outcomes is restricted to a small number of infections. Emerging drug resistance in malaria, recognised for many years, has now resulted in many traditional drugs such as chloroquine becoming completely ineffective. An evaluation of trends in malaria treatment in sub-Saharan Africa has shown that continuing use of ineffective chloroquine treatment has contributed to excess malaria mortality. The case fatality rate for malaria fell as an increasing proportion of children received an effective treatment regimen: adjusted malaria case fatality rates were 5.1% in 1992 and 3.3% in 1994, and the corresponding percentages of children who received effective therapy were 85% in 1992 and 97% in 1993-4. The increasing resistance of Streptococcus pneumoniae and Haemophilus influenzae to drugs has an effect on pneumonia mortality that is less well recognised, largely because of the difficulty in isolating the organisms from the bloodstream. In a prospective study of children in 5000 Bangladeshi urban households who had invasive pneumococcal disease, the Certain principles of effective quality improve- ment interventions are universal. Relevant stakeholders must believe that it is worth while
  • 8. to remedy the deficiency in quality, that the benefits of change outweigh the costs, and that change is possible. The threat of antibiotic resist- ance and its coevolution with particular patterns of antibiotic use are also universal. Unfortunately, the public health agendas of few countries have prioritised the problem of antibiotic resistance. This is especially true in less developed countries, where antibiotics are often overused and misused by formal and informal healthcare providers and by patients, who are often able to obtain antibiotics without a prescription. Few policy makers, few mem- bers of the general public, and unfortunately too few medical schools and health profession- als recognise the urgency and implications of the problem. Instead, pharmaceutical policies often focus on scaling up and ensuring access to drugs, including broad spectrum antibiotics, without considering rational use. What will really help to create change and fos- ter effective quality interventions to tackle resist- ant infections in developing countries? Strategies in such countries require changes at the levels of policy, the institution (including healthcare pro- viders), and the individual. Quality improve- ment strategies to improve the behaviour of providers and patients do exist in developing countries, but their success depends on govern- ment and stakeholder support. To increase government and stakeholder involvement and accountability, it is impor-
  • 9. tant to establish national programmes that publically report rates of antibiotic use and resistance. Although the World Health Organi- zation (WHO), the Pan American Health Organization, and others have promulgated useful recommendations for hospitals and communities around the world to combat anti- microbial resistance, few developing countries have been able to implement these recom- mendations fully. When resources are limited, assuring access to drugs tends to overshadow the quality of their utilisation. The interna- tional community should partner with devel- oping countries to perform the initial cycles of measurement and to design systems to link the data with information to the public on the effect of the problem on population health, personal health, and the economy. Such meas- urement should occur across several countries in close proximity to harness “peer pressure” and foster better practices. m a k i n g a d i f f e r e n c e drug resistant infections in poor countries Resistance to drugs in many common childhood infections is a growing problem in the developing world, says Zulfiqar Bhutta. Effective programmes to combat resistance are within reach in developing countries, argue ralph gonzales and
  • 10. colleagues, but we must move swiftly Longer versions of all the articles in the Making a Difference supplement, including references and figures, are at http://makingadifference.bmj.com A major burden on children BMJ | Making a difference | 26 april 2008 | VoluMe 336 949 Performance measurement and account- ability are potent inducers of behavioural and systemic change in organisations. For example, accreditation agencies and funders now require hospitals in the United States to publically report performance and outcome measures, a policy that has triggered an explosion of quality improvement activity in US hospitals. An excel- lent template for the annual measurement and comparison between countries of consumption of antimicrobials and resistance rates has been developed by the GRACE project in Europe (www.grace-lrti.org/portal/en-GB). Similar uti- lisation and resistance profiles for developing countries are needed, and efforts are under way to accomplish this in Latin America through a partnership between research institutions, gov- ernment agencies, and WHO. Many lessons from quality improvement
  • 11. interventions in health care in wealthier coun- tries can be applied elsewhere. Various frame- works and theories have been found useful for diagnosing contextual factors and developing strategies to change specific policies, organisa- tional practices, and the behaviour of provid- ers and individual consumers. For example, education and decision support, when part of a comprehensive effort, have been useful in HIV prevention, tuberculosis management, and tobacco control, as well as in appropriate antibiotic use. The literature also shows that quality improvement initiatives that lack local champions and stakeholder support will face formidable challenges to success. Strategies that work in one place must be assessed for their applicability to other settings, and programmes must be tailored to countries’ unique circumstances. Formative research into social factors and practices in specific regional and local contexts, such as how the public and professionals make decisions to recommend, procure, and use antibiotics, is indispensable to achieve change. For example, we found that most patients (62%) purchasing antibiot- ics in Mexican pharmacies without a prescrip- tion reported acting on the recommendation of a clinician. Thus, in Mexico, education campaigns to reduce unnecessary antibiotic use must target doctors as well as the public. Nevertheless, educating the public is crucial, as patients often misuse antibiotics regardless of whether they were bought over the counter or were prescribed.
  • 12. In developing countries, access to antibiotics without a prescription is commonplace. Here the priority should be to change regulatory policies related to antibiotic procurement and to enforce these policies. This includes creat- ing an infrastructure for surveillance, commu- nication, and effective sanctions. For example, in Chile a mass media campaign preceded enforcement of regulatory measures making antibiotics available by prescription only, resulting in a 35% decrease in antibiotic con- sumption. It may be useful to emphasise the repercussions that are unique to antibiotic use: in contrast to other drugs the consequences of an individual using antibiotics extend to that person’s family and community. Finally, we need to use data and the media to challenge the perception that providing access to antibi- otics without a prescription somehow helps to compensate for the lower access to doctors in poorer countries. The window of opportunity for combating antibiotic resistance continues to shrink. Much work remains to be done in most countries, but particularly in developing countries. We believe that effective programmes to tackle resistant infections are tenable and within reach of the constrained resources of developing countries. The major barriers are the political and public will to set up the systems that can bring about change. Partnerships among national and inter- national stakeholders will help. ralph gonzales professor of medicine (epidemiology and
  • 13. biostatistics), Clinical and Translational Sciences Institute KL2 Multidisciplinary Career Development Program, University of California, San Francisco [email protected] kitty k corbett professor, Faculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia Veronika Wirtz lecturer, anahi dreser researcher, Center of Health Systems Research, Instituto Nacional de Salud Publica, Morelos, Mexico incidence of the disease was 447 episodes per 100 000 child years, and the rates of resistance to penicillin, co-trimoxazole, chloramphenicol, and ciprofloxacin were, respectively, 3%, 82%, 15%, and 24%. Such evidence of the failure of co-trimoxazole has led to the recommendation to use amoxicillin to treat pneumonia in primary care settings, but as yet few health systems in the poorest countries have the extra funds needed to implement these recommendations widely. This is akin to the need for combination therapy for effective malaria treatment and to second line treatment for drug resistant tuberculosis in children, both looming realities in public health systems in sub-Saharan Africa. In South and South East Asia a major burden of childhood bacteraemic infections is related to typhoid fever, as well as the infections listed above. Over the last two decades the prevalence of multidrug resistant typhoid has steadily increased in Asia, and with the widespread use of generic ciprofloxacin and cephalosporins resistance to these second line antibiotics has steadily grown. Increasing antimicrobial resistance results in a much higher economic burden on
  • 14. the health systems of poor countries, because of the higher likelihood of treatment failure and of complications associated with such infections. Several factors are associated with the rise of resistance to common infections in developing countries, including the global spread of drug resistant clones as travel becomes easier and local antimicrobial pressure on common organisms. This second factor may be related to inappropriate prescribing of antibiotics, the unregulated availability over the counter of these drugs, and (for reasons of affordability) inappropriate dosages and duration of treatment. Increasing public awareness, improving standards of care, and the appropriate regulation of the use of such antimicrobials are all important steps. A recent evaluation of the effect of the Swedish national programme for the surveillance of antibiotic use and resistance and the implementation of rational antibiotic use showed that antibiotic use among outpatients fell from 15.7 defined daily doses per 1000 people in 1995 to 12.6 per 1000 in 2004. The largest reduction (by 52%) was noted in children, with no measurable negative consequences on admission rates for common upper respiratory infections. However, examples of successful application of such interventions in developing countries are few. What are the main challenges with regard to antimicrobial resistance in common childhood infections in developing countries? We need better
  • 15. information systems defining the magnitude of the problem and training programmes to optimise treatment with antibiotics. As we need to balance antibiotic “access” as well as “excess,” measures to regulate antibiotic availability must be accompanied by strengthening workforce capacity and drug supplies in dysfunctional health systems. The crisis of increasing antimicrobial resistance to serious and common childhood bacterial infections is a reality in developing countries, and solutions are urgently needed. Zulfiqar a Bhutta professor and chairman, Department of Paediatrics and Child Health,The Aga Khan University, Karachi [email protected] antimicrobial resistance results in a much higher economic burden on the health systems of poor countries drug resistant infections in poor countries Never had it so good? 950 BMJ | Making a difference | 26 april 2008 | VoluMe 336 Adapting what is known What does it mean to be old? What is the relation between ageing and illness? How does the subjective experience of multiple and compounding illnesses relate to the medical model and the taxonomy of disease? These questions become more pressing as an ever
  • 16. greater proportion of the population survives into extreme old age, and as the postwar baby boomers—those who “never had it so good,” as Harold Macmillan put it—begin to draw their pensions. Globally the proportion of people aged ≥60 years is growing very fast. It is expected that by 2025 a total of about 1.2 billion people will be in this age group. By 2050 this number will have risen to two billion, 80% of them in developing countries. The older population itself is also ageing. Currently 69 million people are aged over 80, and although this age group now accounts for only 1% of the world’s population (and 3% in developed countries), it is the fastest growing segment of the population. The World Health Organization and many national governments are promoting the concept of “active ageing,” which portrays ageing as a positive experience and promotes continuing participation in social, economic, cultural, and civic activities. The concept is based on rights rather than on need and seeks to move away from a view of elderly people as frail and dependent. All this is to be applauded, but it may conceal a worrying reluctance to acknowledge the inevitable reality of death and dying. All bodies must die and find ways of doing so. Age is a fundamental cause of disease, working through a multiplicity of causal pathways to generate multiple risk factors and multiple disease outcomes. All clinicians are
  • 17. familiar with this process, by which treating one disease in a frail, older person often means that symptoms reappear through another pathway. As the treatment of disease slowly becomes more effective, an ever greater proportion of the population survives with multiple compounding chronic diseases. The commonest of these are cardiovascular disease, stroke, diabetes, cancer, chronic obstructive pulmonary disease, musculoskeletal conditions, and mental illness (including dementia), occurring in many different combinations. The orthodox medical view is that these are distinct and definable conditions each of which carries a different prognosis and Multiple health problems are not unique to older persons; they are, however, more preva- lent in this group. Furthermore, as a person ages, what was once a reasonable choice in treatment may be less appropriate, even harmful. In making clinical decisions about the health of older patients and in quality improvement for managing care, what are the trade-offs between benefit and risk? What are the opportunities for, and the barriers against, putting such knowledge into practice? A 78 year old woman with complex health problems visits her doctor. Although in younger patients clinical recommenda- tions may include screening mammography or intensive control of diabetes, this woman may not actually live long enough to benefit from these interventions. The issues that are most important to her may bear little rela- tion to the bioclinical problems her doctor
  • 18. has been trained to diagnose and treat. Col- laborative decision making by clinicians and older patients such as this woman is almost always made in a grey zone of unavailable evidence and divergent expectations. Yet tools are becoming available to help weigh the trade-offs between treatment benefits and competing risks. As these tools become more sophisticated and easier to use in the everyday clinical setting, they will help in clarifying the choices that must be made by older patients with multiple health problems. The environment in which care is offered and decisions made—the system of “usual care”—is often bad for health. Its toxicity may be a consequence of too many health workers providing fragmented care, too many drugs having adverse side effects, or too much inten- sive treatment leading to dangerous compli- cations. And usual care suffers by being fast paced, reimbursed according to volume, and focused too much on what the matter is with the patient, rather than what matters to the patient. Many alternatives to this usual care are better, but most of these add additional workforce—nurses, case managers, “coaches,” and “teams”—in bewildering combinations called disease management, case management, transition management, and geriatric evaluation and management. Other effective alternatives to usual care, such as routine telephone calls to the patient from an identified primary care clinician, need no additional workforce.
  • 19. That there are so many things wrong with the usual care and so many ways to improve it raises an obvious question: why hasn’t qual- m a k i n g a d i f f e r e n c e Multiple health problems in elderly people Longer versions of all the articles in the Making a Difference supplement, including references and figures, are at http://makingadifference.bmj.com With ever increasing pressure on doctors’ time, iona Heath wonders whether primary care really meets the needs of elderly people at all, while John Wasson suggests ways for doctors to improve the care of older patients that don’t require extra resources or staffing BMJ | Making a difference | 26 april 2008 | VoluMe 336 951 requires different treatment. However, people who live with multiple diseases, physical and mental, experience them simultaneously and inseparably. The patient with diabetes and depression and congestive cardiac failure
  • 20. does not have these conditions in separate compartments of her life. She has all three inseparably and, if she is also lonely and frightened, all of this is a single condition. The problem is that in health care the specialist medical view predominates. And, as a direct result, multiple diagnoses lead almost inevitably to polypharmacy as each condition is treated in perverse isolation from the others. Research findings are extrapolated from younger age groups and interpreted overoptimistically in the context of what inevitably are limited life expectancies. As a direct result, older people are taking an ever increasing number of prescribed drugs, but because of diminished physiological reserve they are also more susceptible to adverse drug reactions and interactions. Nevertheless, the all too easy accusation of age discrimination means that the limited time available for older people to derive clinical benefit is not seen as a legitimate reason for “underprescribing.” Systems of “quality improvement” that involve payment for performance, such as the UK Quality and Outcomes Framework (QOF), apply standards with no allowance for age and systematically encourage overtreatment of hypertension and type 2 diabetes, to the detriment of patients. Many preventive treatments in old age may simply change the cause of death and not its date. The energetic treatment of cardiovascular risk factors is effective in reducing cardiovascular mortality but does not prolong life and increases the likelihood of a diagnosis of cancer or dementia.
  • 21. Old people themselves have different priorities and can find the epidemiological perspectives of healthcare professionals to be intrusive and inappropriate. Most elderly people are very aware of death and know that it must be faced and negotiated: “The big event of old age—the thing which replaces love and creativity as a source of drama—is death” (the author Diana Athill). Many frail older people have a rapidly diminishing appetite for technological health care and a proportionately increased need for sensitive, gentle, hands-on physical care: a need that is easily compromised by the very real fear of becoming a burden. At present, medicine seems to have limited means of marking this transition, but such means are urgently needed, because the continuing emphasis on individual diseases leads, usually inadvertently, to undertreatment, overtreatment, or mistreatment—and often all three. Tragically, the global trends of commodification, privatisation, and fragmentation in health care mean that the dimensions of care most needed by frail elderly people become less and less accessible. Yet multiple illnesses can be coherently managed only by a personal generalist physician who is able to provide continuity of care for the patient’s whole experience of illness, while at the same time remaining alert to those diagnostic possibilities that are readily remediable. But how,
  • 22. within a market system, can unprofitable need for time intensive and hands-on personal care from a known other ever be given commensurate priority? iona Heath general practitioner Caversham Group Practice, Kentish Town, London [email protected] ity improvement already resulted in better usual care for older persons with multiple health problems? One reason commonly given for the per- sistence of poor care is that most studies of successful interventions for elderly patients, when compared with usual care, have not provided clear evidence of cost savings. However, saving costs seems a poor reason for not improving care, and indeed many of the attributes of good quality care may not require extra staff or money. In fact, within the range of usual care about a fifth of older patients with multiple health problems are already receiving the high levels of access, continuity, communication, and self man- agement that are associated with successful alternatives. The fact that these crucial attributes of qual- ity care are already available to some patients raises a second question: can this high qual- ity care be generalised to more patients? An affirmative answer to this question is provided by one innovative US example of a quality improvement project: an online
  • 23. collaboration involving a group of primary care practices across the country (www.ideal- medicalpractices.org). In these practices, the percentage of older patients with complex health problems who are attaining attributes of high quality care as listed on the website is more than twice that in non-participating practices, even though they receive no spe- cial reimbursement. The thrust of future research into quality improvement for older patients with multiple health conditions should be directed towards two objectives. The first is research into how to adapt and adopt what is known. The existing literature on quality improvement demonstrates numerous ways to improve health care for these patients through timely assessment of “what matters,” easy access to care, continuity of care with an identifiable clinician, and understandable, relevant information and support for con- dition management and collaborative deci- sion making. Although no particular setting, patient population, or disease mix will be identical to those reported in the published literature, many essential elements are con- stant. For example, it is not surprising to cli- nicians that their patients’ confidence in self management, financial status, and manag- ing pain and psychosocial problems affects their healthcare outcomes. What is surpris- ing is that clinicians don’t systematically evaluate these factors when assessing older patients and placing them into categories for
  • 24. the delivery of planned care. Technologies and methods are already freely available to help busy health professionals capture these valuable opportunities. The second area is research into how to overcome the most conspicuous barrier to the improvement of care: the current health- care culture. The current culture induces dys- functional workforce expectations, unwanted variation in practice patterns, ineffective training venues, counterproductive payment incentives that are often based on inappro- priate measures, and excessive technological imperatives. Only in a very few clinical prac- tices are measures of “what matters” to the patient really at the centre of care. At a mini- mum, the prevailing culture has to change to enable breathing room from oppressive volumes of consultations and paperwork so that the few motivated health professionals implementing patient centred, collaborative care can become the many. John H Wasson professor of geriatrics Dartmouth Medical School, Lebanon, New Hampshire [email protected] the prevailing culture has to change to enable breathing room from oppressive volumes of consultations and paperwork Never had it so good? Multiple HealtH proBle Ms in elderly people Adapting what is known
  • 25. 952 BMJ | Making a difference | 26 april 2008 | VoluMe 336 medical milestones Reducing harm through quality improvement Are we now seeing the undesirable consequences, for instance in drinking and smoking habits, of female emancipation? As women quite rightly seek greater opportunities for equality in the workplace and in other aspects of life, we see signs of them falling prey more and more to so called lifestyle diseases. Young women are all too commonly seen huddling outside enjoying a cigarette; and while lung cancer rates fall overall, they continue to rise in women. Women are also conspicuously heading for equality in their drinking habits. In the most recent British general household survey, 42% of men and 39% of women aged 16 to 24 years had exceeded safe recommended daily limits in the previous week, with over half of those drinking heavily or “bingeing.” The United Kingdom has the heaviest drinking young women in Europe, nearly 40% of whom admit to having drunk six or more units in one session in the previous week. Does it matter that our young women are having fun? Most get away without harm and will probably settle down. But those who do
  • 26. not escape harm may have their life changed fundamentally under the influence of alcohol. Most first consensual sexual experiences and unwanted pregnancies occur in this way, and the distinction between rape and sex regretted the next day can become blurred when women are drunk. Genitourinary clinics see drink as the biggest factor in unprotected sex and sexually acquired infections. Some young women will be scarred for life through drunken brawls and arguments. In Scotland about 30% of women committing violent crime are drunk. Of course, the victims of accidents need not be drunk themselves: alcohol is responsible for much third party or collateral damage. In England and Wales, over half of victims of violence perpetrated by a stranger judged the attacker to be under the influence of alcohol. This is particularly an issue in domestic violence, where again at least half of perpetrators are likely to have been drinking. It is remarkable how damage to the health of third parties was such a tipping point for public opinion on the issue of smoking in public places, yet alcohol is hugely more serious in this regard. Teenage girls and young women are unlikely to be receptive to arguments about serious organ The concept of harm reduction has evolved over nearly 90 years from its beginnings in the 1920s, when it applied to drug misuse in adult populations. Applying the concept to adoles-
  • 27. cent groups at risk is relatively new, requiring that the concept be adapted appropriately. Adolescent harm reduction spans a wider array of harmful behaviours than are discussed in the literature: substance misuse, multiple sexual partners, violence and weapon carrying, non-use of helmets when cycling, skating, or snowboard- ing, riding with a driver who has been drinking, and suicide plans. But the main contributor to death from injuries in people in the United States under the age of 21 is underage drinking. Young women are “outdrinking” their male counterparts of the same age and are more likely to experience adverse health consequences. Such behaviour may undermine neurological brain development, predispose to adult dependency, and increase mortality. The strong association between drinking and having multiple sexual partners “underscores the need to educate young people about the effects of alcohol on partner choice and the risk of infection with sexually transmitted diseases,” as one study put it. Harm from drinking often involves oth- ers; among young women this other will often be an unborn child. Fetal alcohol syndrome is the leading cause of brain damage in chil- dren in the United States. Young girls are now drinking and smoking like boys and are more likely to be depressed and to attempt suicide. In primary care the complexity of these risky behaviours among young people often goes undetected, owing to lack of time, of access to effective treatment, and of coordinated and
  • 28. adequately funded resources in the commu- nity to reduce harm. A growing number of patients with serious mental illness and substance misuse report being treated in primary care or emergency rooms. Despite the availability of evidence based treatment for these disorders, many patients and families do not receive effective treatment in real world settings. One strategy to help remove such barriers is to re-engineer the processes of care delivery, using an evi- dence base of changes that lead to improve- ments in the quality and efficiency of care. Our organisation, the non-profit Intermoun- tain Healthcare (http://intermountainhealth- m a k i n g a d i f f e r e n c e Not just a “lifestyle disease” excessive drinking in young women Longer versions of all the articles in the Making a Difference supplement, including references and figures, are at http://makingadifference.bmj.com The growing problem of binge drinking among young women is one that must be dealt with at a societal level, says ian gilmore.
  • 29. Nevertheless, doctors can make a difference at an individual level, and Brenda reiss-Brennan and colleagues describe one US quality improvement intervention in primary care BMJ | Making a difference | 26 april 2008 | VoluMe 336 953 damage in years to come, and so it is important to highlight dangers that are more immediately relevant to them. It is now apparent that fetal alcohol syndrome, where babies are born with severe brain damage and a typical physical appearance, is but one end of a spectrum (fetal alcohol spectrum disorders); and less obvious behavioural disorders such as attention deficit hyperactivity disorder may result from exposure to alcohol in the womb. Unfortunately exposure in early pregnancy is likely to be important, and so far no safe threshold has been identified. Thus the only safe advice is for women to avoid alcohol if they seek to become pregnant—tough advice where every celebration now seems to have alcohol at its core. Alcohol misuse remains the most important cause of death from chronic liver disease (cirrhosis), the prevalence of which has grown startlingly in women, particularly in the 35-44 year age group (sevenfold in the last three decades) but also in even younger women.
  • 30. This reflects the early age when heavy drinking starts. Particularly striking is the emergence of the syndrome of alcoholic hepatitis (not always associated with histological cirrhosis), where the patient is febrile, deeply jaundiced, and often has ascites and other features of decompensation of liver function. Histologically this can be indistinguishable from non-alcoholic fatty liver disease, and it has been suggested that alcoholic hepatitis may be a “double hit” of alcohol on top of a fatty liver, often associated with obesity, which would explain the rapid increase in the disease. Certainly the burden of harm is seen disproportionately in the most disadvantaged in society, a striking example of health inequality that remains unexplained. What can be done to turn this tide of alcohol related health harm in young women? We know that telling them to behave better will not work. England’s national alcohol harm reduction strategy of 2004 relied heavily on voluntary partnerships with producers and retailers of drink, linked to public education and information. Sadly, these initiatives have palpably failed. This should not surprise us too much, because the best predictor of alcohol related health damage is per capita consumption, and it can hardly be in the industry’s interests to have falling sales. Hence we need to fall back on the tools that have an international evidence base: mainly price and availability. Alcoholic beverages have never been as cheap in real terms as they currently
  • 31. are—particularly those sold in off-licences and supermarkets—nor as available. Although approaches to increase price and reduce availability smack of the “nanny state,” it is simplistic to dismiss alcohol dependence and physical damage as lifestyle diseases, somehow down to the individual’s free choice and nothing to do with the state. Cheap drink is available and heavily promoted. Alcohol is our favourite drug, and it is distressing to see young women pressured into misusing it. ian t gilmore president Royal College of Physicians of London [email protected] care.org/xp/public/about-intermountain/), became increasingly concerned that primary care resources were not being used effectively to treat patients with mental health conditions. Its medical leaders were influential in estab- lishing the mental health integration (MHI) quality improvement programme. Over the last decade Intermountain has implemented MHI throughout 68 primary care clinics to identify patients with mental health or sub- stance use disorders and to treat them and refer them to additional services. MHI makes available a clinical team and offers financial support to the primary care doctor. Sustained results show that MHI leads to improved functional status in patients and improved satisfaction and confidence among physicians in managing mental health prob- lems as part of routine care at a neutral cost.
  • 32. The primary care environment presents opportunities and challenges for reducing harm in young female drinkers. Alcohol dependence and underage drinking are com- plex family health problems and are intensely personal and isolating issues for girls and young women. It is an opportune consultation in which teenagers’ health risks are uncov- ered and wellness can be promoted. Although guidelines are available, the routine screening of young women for harmful behaviours var- ies widely among primary care doctors. The M H I assessment begins with a common screening toolset administered by the family doctor, who determines, with the patient and family, the severity of the mental health concerns. It includes comprehensive, self reported measures of family history and relational support, environmental stressors, use of substances, depression, anxiety, and bipolar and attention deficit disorders. The results determine whether the doctor continues routine treatment or triages the patient to the MHI psychologist, psychiatrist, or psychiatric nurse practitioner for prompt consultation. The team includes a nurse care manager, who provides support and feedback to the doctor, the patient, and the family. The care manager also provides edu- cation and information and links the patient to community resources, if this will benefit the patient. The team members use harm reduction
  • 33. strategies to improve education and to pro- vide treatment for alcohol misuse. They also facilitate the involvement of families and community resources in social support and reinforcement of abstinence. Strategies that are tailored to the preferences of patients and communities are more likely to result in posi- tive behaviour change. Intermountain’s MHI database identified 123 263 patients across all age groups, 45% of whom were women (55 568). The data show that 25 945 girls and women aged <39 were being treated for substance misuse and that 9107 had comorbidity of depression and sub- stance misuse. Of those with a diagnosis of substance misuse, 420 (1.6%) were 18 years old or younger. Adopting a harm reduction approach to help young female drinkers and their fami- lies will require quality improvement inter- ventions that provide institutional support for the primary care doctor to deliver care that is matched to the family’s and community’s social, financial, and cultural healthcare pref- erences for wellness. Higher levels of social capital exert strong protective effects against alcohol misuse and harm. Intermountain’s MHI programme is one example of a quality improvement interven- tion that tackles social capital needs and such barriers as failed access and limited, frag- mented treatment choices, which many fami-
  • 34. lies face when trying to find help. Brenda reiss-Brennan mental health integration director [email protected] Wayne cannon medical director Primary Care Clinical Programs, Intermountain Healthcare lucy a savitz senior scientist pascal Briot analyst Institute for Health Care Delivery Research, Intermountain Healthcare, Salt Lake City, Utah alcohol is our favourite drug, and it is distressing to see young women pressured into misusing it excessiVe drinking in young WoMen Not just a “lifestyle disease” 954 BMJ | Making a difference | 26 april 2008 | VoluMe 336 medical milestones Help and hope at the bottom of the pile Improving shared decision making in osteoarthritis Chronic pain is common—but it isn’t sexy. People who through no fault of their own have their lives demolished by pain deserve our help. The Pain in Europe survey found that
  • 35. 19% of almost 50 000 people questioned in a poll had chronic pain, defined as pain of at least moderate severity occurring almost every day for at least six months. One in five of these people had pain for more than 20 years, and most had pain for more than five years. The main causes are back pain and arthritis, and the incidence of chronic pain increases with age. Our populations are ageing. In the United States the number of people aged 65 years or older will have almost doubled by 2025 to 63 million, from 37 million in 2006, and there will be a third of a million Americans over the age of 100 years by 2020. Chronic pain has a substantial impact on quality of life. A Dutch study that analysed eight large datasets by quality of life factors ranked different medical problems. Musculoskeletal conditions (including arthritis and back pain) had the most severe effect on quality of life. This impact of everyday pain on quality of life is something that has yet to be fully appreciated by those who organise our health services and allocate resources. Most normal or nociceptive pain can be managed with conventional painkillers, from paracetamol through to morphine, with the more powerful painkiller added for more severe pain. Most pains wax and wane, and flexible prescribing takes time to explain. Problematic pains include severe pain on movement with little pain at rest, leaving patients oversedated
  • 36. with painkillers when they are not moving. Problematic side effects of the drugs include drowsiness and constipation, a major burden for elderly people. Perhaps the most testing pains are those that result from nerve damage, the neuropathic pains. Peripheral nerve damage from surgery, trauma, back pain, and the classic post-herpetic neuralgia, painful diabetic neuropathy, and trigeminal neuralgia often respond poorly to conventional painkillers and need the unconventional drug classes, the antidepressants and the antiepileptics. Titrating these drugs to maximise pain relief and minimise side effects is fiddly but necessary. Common treatments for osteoarthritis include physiotherapy, bracing, pharmacotherapy, and joint replacement surgery. When treatments are proposed that increase the risk of harm (such as non-steroidal anti-inflammatory drugs, opioids, or surgery), patients’ values concerning potential benefits and harms need to be considered. How- ever, clinicians find it difficult to judge patients’ values, which are also often based on unrealistic expectations. Therefore tools that improve the shared decision making process are important. Shared decision making is a process in which the patient and clinician together reach an informed decision about the plan of care on the basis of the patient’s clinical needs, priori- ties, and values. The clinician’s expertise lies in diagnosing and identifying treatment options
  • 37. according to clinical priorities; the patient’s role is to identify and communicate their informed values and personal priorities, as shaped by their social circumstances. Patient decision aids are tools that prepare patients for consultations by explaining options, quantifying risks and benefits, helping patients to clarify their values, and providing structured guidance in deliberation and communication. A review of 10 systematic reviews of patient deci- sion aids found that they improved patients’ participation, increased their knowledge of treatment options, realigned their expectations, and improved the match between their values and subsequent treatment decisions. The aids also reduced the overuse of elective surgery (for herniated disc, for example) without apparent adverse effects on health outcomes. Another study showed the potential for patient decision aids to reduce inequalities among ethnic groups. The Cochrane inventory of patient decision aids (www.ohri.ca/decisionaid) uses international standards to rate their quality. Decision aids for osteoarthritis treatment are available online, in brochures, and on DVD. In 2006, patient decision aids were accessed more than eight million times, mostly through the internet. Ideally, these tools should be linked to clinical care processes, but practitioners report several barriers to implementation: inappropri- ate content for their patients; forgetting to offer them; inadequate time; content that was too complex or too simple; and cost. Practitioners
  • 38. are more likely to use patient decision aids if they have a positive effect on patients’ outcomes m a k i n g a d i f f e r e n c e Management of chronic pain Longer versions of all the articles in the Making a Difference supplement, including references and figures, are at http://makingadifference.bmj.com The burden of chronic pain for those who have it and their families is substantial, says Henry mcQuay, and these patients deserve better. dawn stacey and colleagues describe an example of quality improvement in practice for one group of people with chronic pain, those with osteoarthritis BMJ | Making a difference | 26 april 2008 | VoluMe 336 955 Most chronic pain is managed with drugs in primary care. Obstinate pains—pains that resist drug control at acceptable levels of side effects—may need other treatment options, from injections through to a multidisciplinary pain management programme. The necessary
  • 39. skill mix includes nursing, psychology, drug expertise, and injection options and physiotherapy. The imperative to provide this tier of expertise is humanitarian and economic. Patients with chronic pain who are managed poorly will bounce around the healthcare system, becoming more and more exasperated and consuming considerable resources. Well managed pain contains this excess use of resources, saving an estimated £1500 (€1900; $3000) per patient per year. Set against the background of the large economic burden of chronic pain, the cost of this tier of expertise is marginal. An estimate of the financial burden of musculoskeletal illness in the United States argued for $50bn, and the indirect costs of back pain in the United Kingdom are estimated at £11bn. Certainly, chronic pain increased costs for payers by more than double, in comparison with matched controls without pain ($C4200 (£2070; €2600; $4100) versus $C1800 a year), an excellent Canadian database survey found. There are also financial implications for the person with the pain, reduced household income being the most obvious example. No one thing will improve this situation. We need more and better basic research, the most tangible products of which are likely to come from the major drug companies. But
  • 40. there have been pitiably few new painkillers in the past 30 years. Clinical research and practice are now much more likely to make a difference, helping to make existing evidence sensible and understandable so that people can use it. The evidence base in pain enables us to assess the relative effectiveness of treatments, for instance in nociceptive and neuropathic pain and indeed in migraine. This evidence does not dictate what analgesic to use for a particular patient but does help us to make choices about treatments on the basis of their effectiveness, propensity for harm, and cost. Then there’s the provision of care. Chronic disease comes low on the political priority list, and chronic pain just gets forgotten. The burden for the sufferers, their families, and society is substantial and merits better treatment. The mark of a gracious society is how it treats those with least voice. That chronic pain puts people at the bottom of the pile is precisely why we should be agitating on their behalf for a fairer share of the medical resource cake. Henry McQuay professor of clinical anaesthetics Nuffield Department of Anaesthetics, University of Oxford [email protected] or on the clinical interaction. Orthopaedic sur- geons rated the content of patient decision aids
  • 41. for osteoarthritis treatments as good to excel- lent and were motivated to use them to improve patients’ understanding but had concerns about interrupting the flow of clinic work. Patient decision aids have been implemented successfully in specialist clinics in the United Kingdom and Canada and in specialist and pri- mary care clinics in the United States. Patients with osteoarthritis, for example, use decision aids together with balanced, evidence based informa- tion on the treatment options and the likelihood of the benefits and harms of those treatments. The decision aids help patients clarify their val- ues concerning benefits and harms by describing what it is like to experience them. Patients then complete a personal decision form, which elicits their knowledge, values, preferred option, and any unresolved “decisional needs” (for example, uncertainty about their preference, gaps in their knowledge of the options, lack of clarity of their values concerning benefits and harms, and sup- port needs). This information is summarised on a “patient preference report,” which is sent to the clinician to “close the loop” on decision making with the patient. In Canada, patients on the waiting list for a surgical consultation are screened for eligibility by trained general practitioners or physiothera- pists before they receive a decision aid and personal decision form. The Canadian patient preference report (see http://makinga difference. bmj.com) lists clinical priorities as determined by self reported pain and functional limitations, the
  • 42. trained screener’s assessment of surgical prior- ity, and the patient’s preferences and decisional needs. The report is paper based, but one author (NC) has developed a similar computerised report as part of the US Veterans Administra- tion’s electronic patient health records. Using the patient preference report together with patient decision aids has the potential to improve the clinical encounter and to provide the incentive that practitioners need to over- come their resistance to using the aids. For example, when patients arrive at a surgeon’s consultation with their preference report, the surgeon can focus on issues of concern to the patient, such as fears of side effects of surgery. Thus the surgeon’s time will be used more effi- ciently, and the care provided is more patient centred, so patients and practitioners are both more likely to be satisfied with the process. Outcomes such as pain reduction and improved function cannot be the sole quality indicators in treatments that involve trade-offs between potential benefits and harms. In such treatment decisions, the quality of decision mak- ing should be defined by how well the chosen treatment option matches the features that mat- ter most to the informed patient. Patient prefer- ence reports document decision quality as an indicator of the shared decision making proc- ess. In addition to monitoring postoperative complications such as infections, these reports can be used by quality improvement teams to monitor the extent to which high quality deci-
  • 43. sions are achieved and decisional needs met. Patient decision aids prepare patients for making shared decisions concerning treatment. Patient preference reports that summarise patients’ clinical and decisional needs improve communication. With standardised measures and documentation of decisions, healthcare organisations can monitor and include deci- sion quality as another indicator of the quality of their programmes. dawn stacey assistant professor, School of Nursing, University of Ottawa [email protected] gillian Hawker professor of medicine, Division of Rheumatology, University of Toronto geoff dervin chairman, division of orthopaedic surgery, Department of Surgery, University of Ottawa ivan tomek assistant professor, Department of Orthopaedic Surgery, Dartmouth-Hitchcock Medical Center and Dartmouth Medical School, Lebanon, New Hampshire nan cochran associate professor, Department of Medicine and Community and Family Medicine, Dartmouth Medical School, Hanover, New Hampshire peter tugwell professor Faculty of Medicine, University of Ottawa annette M o’connor professor, School of Nursing, University of Ottawa an example of a patient preference report is at http://makingadifference.bmj.com chronic disease comes low on the political priority list, and chronic pain just gets forgotten. the burden for the sufferers, their families, and society is substantial
  • 44. Manage Ment of cHronic pain 956 BMJ | Making a difference | 26 april 2008 | VoluMe 336 medical milestones The challenge of safer prescribing Patients over 65 years old bear the greatest burden of illness and thus are the greatest beneficiaries of drugs to prevent, ameliorate, or treat conditions. One of the most rapidly growing segments of the population, they consume an ever increasing proportion of all prescribed drugs. For decades elderly people were excluded from randomised trials of many preventive drugs, reinforcing scepticism over whether they would benefit from treatment of conditions such as hypercholesterolaemia and hypertension. But elderly patients may benefit from such treatments at least as much as their younger counterparts. In fact, because of the higher prevalence of preventable disease in older patients, they often derive greater benefits from such prescribing than younger patients. For this reason, much primary care has shifted from the treatment of acute illness to the management—often pharmacological—of “risk states” in elderly people, including hypertension, hypercholesterolaemia, and osteoporosis, as well as diseases such as atrial fibrillation, heart
  • 45. failure, and diabetes. Solid evidence from clinical trials indicates that appropriate prescribing can substantially reduce the burden of preventable morbidity in these conditions. Although such concerns are traditionally seen as a problem of the industrialised world, they are rapidly becoming a major issue facing developing countries as well. But this benefit comes at a price: the high prevalence of adverse drug reactions in older patients. The problem has several sources. One is the altered pharmacokinetic status of elderly people; they are less able to metabolise and excrete many common drugs, even in the absence of liver or kidney diseases. They may also have altered pharmacodynamic responses, with some receptor systems (such as those for opiates and benzodiazepines) having greater sensitivity with advancing age, and others (such as those for insulin) showing reduced sensitivity. Unfortunately, the under-representation of older patients (especially frail ones) in clinical trials makes it even harder for the prescribing doctor to prevent untoward drug reactions in older patients. When an elderly person experiences an adverse drug reaction, it may be mistakenly attributed by the patient or doctor to a new disease or (even worse) the ageing process itself. Examples include the parkinsonian side effects of many antipsychotic drugs and the fatigue, confusion, Quality improvement for the care of older people has become a priority in many countries. Elderly people consume a large
  • 46. proportion of health care, including drugs, and evidence shows that prescribing to this group is often inappropriate. Inappropriate prescribing occurs in all care settings and at the transition between settings. Negative consequences include adverse drug events, higher costs for the patient and society, and impaired quality of life. Specific approaches tailored to the needs of frail elderly people are needed. A recent review of ways to optimise prescribing to older people found that geriatric medicine services (involving a multidisciplinary team that includes a geriatrician and other health- care providers with specialised geriatrics training), involvement of pharmacists in care, and computerised decision support can all improve the quality of prescribing to this group in different settings. Quality improvement strategies are more likely to be effective when there is direct interaction with the prescriber and when the strategies are provided at the time of prescrib- ing. In nursing homes, involvement of nurses in strategies is another important factor. The effect of educational interventions is mixed, although the lack of training of doctors in geriatrics is often cited as a cause of inap- propriate prescribing. However, widespread diffusion of effec- tive approaches has not yet occurred. As in many other fields, translating research into
  • 47. practice is a delicate task. In the domain of quality improvement for safer prescribing to older people, this is further complicated by a lack of strong data showing the impact of effective approaches on important health outcomes. Also, the question of who should meet the cost of such approaches is a mat- ter for debate. And we lack data on the cost effectiveness of strategies. With regard to computerised decision support systems, we first need systems that have been tailored to elderly patients before they can be imple- mented more widely. It is important to take environmental barriers into account. Some barriers can be specific to the setting of care or even to the country of practice. For example, improving the quality of prescribing of neu- roleptics in nursing homes is less likely to occur without an increase in staffing and resources. Direct contact with prescribers m a k i n g a d i f f e r e n c e A substantial cause of preventable illness adverse drug reactions in elderly people Longer versions of all the articles in the Making a Difference supplement, including references and figures, are at
  • 48. http://makingadifference.bmj.com Doctors should pay greater attention to managing the risk- benefit relationship to improve care of patients over 65, urge Jerry avorn and William shrank. The challenge of safer prescribing, says anne spinewine, lies in shared decision making BMJ | Making a difference | 26 april 2008 | VoluMe 336 957 or depression-like symptoms that can result from excessive use of heavily marketed psychoactive drugs. Elderly people are at special risk of such misattributions because of the pervasive cultural assumption that growing older brings with it a collection of inherent and inevitable disabilities. The problem is compounded by the slender preparation that most students receive in geriatrics and in clinical pharmacology. There is ample evidence of the clinical burden of iatrogenic illness in the elderly. Studies of US patients aged over 65 indicate that each year more than 180 000 life threatening or fatal adverse drug effects occur in the outpatient setting, of which over half may be preventable. Another study attributed 6.5% of all hospitalisations in the general population to adverse drug events, a rate that is likely to be higher in elderly people. Despite these gloomy realities, the most
  • 49. notable aspect of drug induced illness in elderly people is the most encouraging. Once recognised, a side effect of a drug is probably the single most reversible affliction in all of geriatric medicine. Usually, care of elderly people requires the management of conditions with a downward course. But discovering that a symptom is caused by a drug presents an uncommon opportunity to effect a total “cure” by stopping the offending prescription or lowering the dose. In our own practices we have often seen patients on a seemingly inexorable trajectory towards institutional care whose functional capacity was restored by thoughtful reassessment of their drug regimens. This has led to the useful if overstated recommendation that “any new symptom in an older patient should be considered a possible drug side effect until proved otherwise.” As well as being alert to the possibility of new iatrogenic problems, it is also prudent to reassess a patient’s entire drug regimen at least twice a year, including categories often overlooked by patients and doctors: drugs bought over the counter and “nutraceuticals” such as herbal remedies or dietary supplements. Although these products are often devoid of therapeutic benefit, they can impose important toxicities, and their interactions with prescribed drugs are poorly understood. With growing use of the electronic medical record, we can expect that drug regimen review will increasingly be prompted by the computer in the course of routine care. In one computerised system for entering prescription
  • 50. orders, the system automatically checks all prescribed drugs and dosages against the age of the patient and recommends a lower dose or different drug if necessary. Non-compliance with prescribed drug regimens can produce a different kind of drug related morbidity. In this “silent epidemic,” as much as half of prescribed drugs are simply not taken. Considerable morbidity results from this other kind of drug related illness in elderly people, in which potentially useful treatments are not taken or (because of misplaced therapeutic nihilism) not prescribed in the first place. Broader systems based and educational approaches are emerging to guide the evidence based use of drugs in older patients so as to reduce their burden of iatrogenic illness while ensuring that needed drugs are prescribed properly. Better attention to managing this benefit- risk relationship will play an increasingly important role in maintaining and improving the health of an ageing population. Jerry avorn professor of medicine [email protected] William H shrank instructor in medicine Division of Pharmacoepidemiology and Pharmacoeconomics, Harvard Medical School, Boston (such as with a clinical pharmacist) is not always feasible in nursing homes, and this can decrease the efficacy of the intervention. In some countries pharmacists do not have access to patients’ records. Consequently, a quality improvement strategy that is effec-
  • 51. tive in one care setting cannot be directly transposed to another without adaptation. The same applies to transposition between countries, because of differences in practice environments and culture. Big improvements in communication at the interface between primary and second- ary care are urgently needed too. Many adverse drug events result from problems with communication relating to manage- ment of drugs during the transition between care settings. National online databases of drugs dispensed to patients (as in Denmark), to which all doctors and pharmacists have access, should help to tackle such problems. The same should apply to patient records. Such a challenge should be taken up at the national level, although of course steps must be taken to protect patients’ privacy. Better communication among prescribers to track changes in treatment and to record the reasons for those changes will also help to avoid the fragmentation of care. This aspect should be included in measures of quality performance. Quality improvement strategies for safer prescribing in older people must include shared decision making. The beliefs and preferences of older patients concerning treatment affect adherence and, in turn, the safe use of drugs. Several recent studies have shown the importance of considering patients’ wishes, but many questions remain unanswered.
  • 52. The high prevalence of people with dementia and the need to involve carers in decisions complicate further the task of shared decision making. Furthermore, many prescribers are not familiar with the principles of shared decision making or are reluctant to engage in it because of the extra time needed. Therefore a huge amount of work needs to be done here, from research to implementation. Education and train- ing programmes for prescribers should include sessions on communicating with patients and on involving them in decisions. Health authorities should also consider including this dimension of care in quality performance measures. What are the most urgent of the unan- swered research questions? We need more clinical trials that enrol frail elderly patients, to enhance our knowledge of the benefits and risks of treatments in this group. With regard to quality improvement strategies, we need to evaluate the effect of multifaceted approaches on important health outcomes and costs. This is a challenging task that will certainly require multicentre trials with large samples. It is important that quality improvement approaches are multidisciplinary in nature, use computerised decision support systems that are specific to this age group, and take the patient’s view into account.
  • 53. Meanwhile, national health systems should provide incentives for prescribers to regularly review treatments, develop information systems to facilitate seamless care, and encourage the implementation of multidisciplinary approaches including geriatric medicine services. Quality improve- ment strategies need to be customised to account for differences in patients, prescribers, and environmental factors. anne spinewine lecturer in pharmacotherapy Cliniques Universitaires de Mont-Godinne, Yvoir, Belgium [email protected] Big improvements in communication at the interface between primary and secondary care are urgently needed adVerse drug reactions in elderly people The challenge of safer prescribing 958 BMJ | Making a difference | 26 april 2008 | VoluMe 336 medical milestones Reliable comfort and meaningfulness We must apply the lessons learnt from cancer (often slowly and painfully) to the growing number of people now dying from non- malignant illnesses. New theoretical insights into the trajectories of decline in a range of
  • 54. long term conditions—together with technical developments that aid the delivery of care in people’s own homes and the timeless clinical qualities of listening, compassion, empathy, and inspiring hope—mean that we now have the means to make a real difference to the lives of so many people in the throes of their final illness and to the lives of their loved ones. Getting end of life care “right” lies at the heart of what it means to be a civilised society, and thus prioritising this area needs no apologies. In 2005 cancer was responsible for a relatively small percentage of deaths worldwide (13%), while other long term conditions caused 47%. By 2030 the annual number of deaths around the world is expected to rise from 58 million to 74 million, with conditions related to organ failure and physical and cognitive frailty responsible for most of this increase. Yet despite these rapid demographic changes, palliative care services typically still cater only for people with cancer. For example, hospices in economically developed countries currently provide 90% of their care to patients with cancer. Moreover, people dying from cancer usually have needs lasting for weeks or months, whereas those dying from organ failure or old age often have unmet needs that extend over many months or years. It is little wonder, then, that people dying of the “wrong” condition and their carers, whether family, social, or professional, are increasingly frustrated by the major obstacles to accessing appropriate care. The drive to extend palliative care beyond
  • 55. cancer has so far been hampered by a combination of factors: prognostic uncertainty; funding difficulties (in the United Kingdom influential cancer charities support many hospices and outreach programmes); lack of palliative care clinicians with expertise in non- malignant diseases; and a hitherto relatively weak evidence base in relation to appropriate models of care. Although the empirical evidence base remains weak, we do now have a good theoretical understanding of when and how to intervene in a range of conditions. Prognostic uncertainty can and does hinder clinicians in thinking and planning ahead. Most To live well in the time left to them, patients with fatal chronic conditions need confidence that their healthcare system ensures excellent medical diagnosis and treatment, prevention of overwhelming symptoms, continuity and com- prehensiveness of care, advance care planning, patient centred decisions, ands support for car- ers. Hospices and palliative care have improved these dimensions of quality for people dying from cancer. Applying those insights to other fatal chronic conditions could greatly improve the last part of life, although the endeavour entails substantial challenges. End of life care for elderly people will have to last for a long time: being disabled enough to need daily help now continues for an average of more than two years before death. Patients with non-malignant, long term illness are older and frailer than patients with cancer (as
  • 56. are their carers). Transfers between hospitals, nursing homes, and home care often engender delirium, depression, falls, treatment errors, and pressure ulcers, in addition to the common hos- pice problems of pain and loss. Entities that are often unfamiliar to hospices—such as social insurance programmes for poor people and dis- ability transportation—will need to be partners in care. How can we ensure reliable services for all in the last phase of life? Systematic qual- ity improvement and policy reforms will offer reliable and efficient strategies if they focus on the three common patient trajectories: short decline typical of cancers; intermittent exac- erbations and sudden death typical of organ system failures; and the slow dwindling course typical of frailty. For gains to be achieved and sustained, qual- ity improvement requires clear goals, appropri- ate teams, ways to monitor progress, sequential testing of improvements, and the institution- alisation of improved processes. Local quality improvement has a track record of success in correcting some shortcomings of ordinary care. These include improving pain prevention and treatment (such as by routinely responding at a patient’s home within a time period determined by the patient or a family member), developing and implementing advance care plans (decid- ing whether to attempt resuscitation, for exam- ple), and preventing and healing pressure ulcers (one quality improvement programme reduced the incidence of full thickness lesions by 69%).
  • 57. Quality improvement projects can reduce over- treatment near the end of life, improve prognos- tication and counselling by providing automatic m a k i n g a d i f f e r e n c e palliative care beyond cancer Longer versions of all the articles in the Making a Difference supplement, including references and figures, are at http://makingadifference.bmj.com Care for all at the end of life scott murray and aziz sheikh say that the lessons learnt from palliative care for cancer need to be applied to other fatal conditions. Healthcare delivery that is tailored to the varying needs of patients with these diseases will be crucial in making a difference, says Joanne lynn BMJ | Making a difference | 26 april 2008 | VoluMe 336 959 patients with heart failure die when they are still expected to live for more than six months, and accurate prognostication is also virtually impossible in people with chronic obstructive
  • 58. pulmonary disease (COPD). Although this uncertainty is frustrating for doctors, its very presence can be a basis for initiating end of life discussions. Recent work is helpful in identifying critical events and stages when a palliative approach may be introduced. People with progressive chronic illnesses follow three characteristic trajectories (see figure on http://makingadifference.bmj. com): a cancer trajectory, with steady progression and usually a clear terminal phase; an organ failure trajectory, with gradual decline punctuated by episodes of acute deterioration and eventually a seemingly unexpected death; and a trajectory of prolonged gradual decline (typical of physical or cognitive frailty). Hospices provide excellent and accessible care to people with cancer but are not configured to address the needs of patients who don’t have cancer. So what can we do? A typical critical juncture in an organ failure trajectory, such as hospitalisation for acute heart failure or an exacerbation of COPD, should trigger a holistic assessment and care plan for the next stage of the illness. Practical models of care are now being formulated and tested to fit the other two trajectories. Some Scottish general practitioners are, for instance, documenting a care plan for every patient admitted to hospital with COPD. Clinicians are thus alerted to “change gear” from routine chronic disease management to a more personalised palliative care approach, while continuing active treatment. These trajectories
  • 59. thus help us consider what should be done to promote quality of life rather than focus on what can be done, which may lead to futile treatment. A strategic policy overview of these trajectories may also help services to consider all people with serious chronic illnesses equitably, rather than cancer “top slicing” care. Palliative care for everyone underscores the need for anticipatory personalised care for all people with life threatening illnesses. Technical developments such as video conferencing and remote monitoring devices may help in realising this aspiration, but far more important are the medical vocation’s essential clinical skills—active listening, respecting autonomy, and empathic care—none of which depends on first world infrastructures. These can be implemented anywhere in the world, as long as health services respect the importance of clinicians and patients having time together, ideally in the context of a relationship that allows for personal continuity of care. Facilitating a good death should be recognised as a core clinical proficiency, as basic as diagnosis and treatment. Death should be managed properly, integrating technical expertise with a humanistic and ethical orientation. We also need research into how best to identify, assess, and plan the care of all patients who are sick enough to die, and we need education that keeps alive our humanity and sense of vocation. This is an enormous challenge in politicised, market driven healthcare models but one that will make an
  • 60. important difference to those most in need. scott a Murray professor of primary palliative care [email protected] aziz sheikh professor of primary care research and development Division of Community Health Sciences: General Practice Section, University of Edinburgh a figure showing the three main trajectories of decline at the end of life is at http://makingadifference.bmj.com feedback to clinicians, and implement shared accountability and effective drug reconciliation throughout changes of care settings. Sustainable excellence requires supportive social policies. Practitioners working in trust- worthy arrangements for delivering care must make a living. But powerful economic interests and social forces now encourage the oversell- ing to patients and families of treatments with little chance of success. Citizens and clinicians must encourage political leaders to champion more appropriate policies, such as allocating healthcare payments to reward continuity and comprehensive primary care and ensuring an adequate income in retirement for family mem- bers who are carers. Such reforms will be more efficient when they set out to match eligibility and service patterns to the three dominant patterns in the last phase of life. If palliative and hospice care are available only to those who die in a pre- dictable way in a short time, most people will never qualify, because their timing of death will stay uncertain until very close to the end of
  • 61. life. A short period of hospice care does meet the needs of many cancer patients, but people with heart and lung failure are better served by having a much longer period of support for self care and rapid response to help people at home in times of crises. In contrast, people with dementia or who are frail are often best served by having many years of support to carers in the family. Delivery systems that are tailored to the usual needs of these groups would enable clinicians to customise care plans to the prefer- ences of individual patients and their families. The combination of specific innovations from quality improvement, encouragement in the form of payment and regulatory policy, and services tailored to particular groups of patients is a powerful package for reform. In various forms, such a strategy is being pur- sued in many places: the United Kingdom, Saskatchewan in Canada, and Sweden, and in the United States by Kaiser Permanente, the Veterans Affairs Health System, and Medi- care’s Quality Improvement Organizations in each state. Every clinical team can use quality improve- ment to adapt its own care system to the needs of patients with fatal illnesses. For example, doctors can shoulder the burden of helping patients and families come to a realistic view of the outlook and to collaborate in making plans. Claiming to be sustaining hope, doctors often offer improbable treatment plans, falsely
  • 62. implying that all will be well if the patient and family go along with them. Instead, an hon- est appraisal of the situation, the likely course of the illness, and the treatment alternatives would allow the patient, family, and clinicians to negotiate the priorities among various goals, the preferred strategy, and a timeframe for reconsideration. The ageing of populations will greatly increase the number of sick and dying older people, while smaller families and reduced retirement security will shrink the number of available carers in the family. The coming cri- sis is obvious. Policy makers and practitioners must learn to support family carers, and local quality improvement and innovation in govern- mental policy are the right prescriptions. The dying patient’s clinical care team must provide highly skilled diagnosis and treatment. Doctors must be able to promise to prevent pain and dyspnoea near death, for example. Specialist palliative care is well established in many countries, but palliative care skills among those professionals who serve most patients— long term care nurses, home care teams, gen- eralist physicians, and specialist physicians—lag far behind. Joanne lynn medical officer Office of Clinical Standards and Quality, Centers for Medicare & Medicaid Services, Baltimore [email protected] local quality improvement has a track record of success in correcting some shortcomings
  • 63. of ordinary care palliatiVe care Beyond cancer Reliable comfort and meaningfulness Care for all at the end of life Initial responses to the forum postings should include the following three elements at a minimum: (1) Your original opinion or thought about the question. (2) Evidence that backs up your point of view (references, URLs, etc.) (3) Demonstration that you are connecting the dots, that you are using critical analysis skills. Two ways to do this are by providing examples that relate to your life/work or providing an analogy that relates to the forum topic. Please put the reference under each part Part II: After completing this weeks readings, including our Lesson in the Lesson section: Visit the following websites http://www.sportpsychology.com/ http://www.appliedsportpsych.org Provide a brief summary of why these organizations exist Part III: In this discussion you'll consider your personality and specifically the kinds of roles you play, the way you respond in different situations, and the things in which you believe. Instructions
  • 64. 1. Thinking of your own personality, identify characteristics that correspond to each of the following components of personality structure, and describe these characteristics. When posting your answer to the following questions, do so in the format provided below and relate your answers to content you read in our text. Components 1. Role-related behaviors: How you act in different social situations, for example, as coach or instructor, student, son or daughter, and parent. 2. Typical responses: The way you typically respond in different situations, for example, in a friendly pickup game or exercise class, during the first meeting with new teammates, or when learning a new skill in a comfortable environment. 3. Psychological core: Your most basic and deepest attitudes, values, interests, and motives. Part 4 please put reference at the end of each part Please answer the following: 1. Define exercise physiology? Explain how exercise physiology differs from sport physiology. 2. Provide an example of what is meant by studying acute responses to a single bout of exercise. 3. Describe the essential characteristics of the three energy systems.
  • 65. Aust. J. Rural Health (2006) 14, 105–110 © 2006 The Authors Journal Compilation © 2006 National Rural Health Alliance Inc. doi: 10.1111/j.1440-1584.2006.00777.x Blackwell Publishing AsiaMelbourne, AustraliaAJRAustralian Journal of Rural Health1038-52822006 National Rural Health Alliance Inc.? 2006143105110Original ArticleFAR WEST MENTAL HEALTH INTEGRATION PROJECTD. A. PERKINS ET AL. Correspondence: Dr David Perkins, CEPHRIS, PO Box 2087, Wollongong 2500, New South Wales, Australia. Email: [email protected] Accepted for publication 15 February 2006. Original Article Far West Area Health Service Mental Health Integration Project: Model for rural Australia? David A. Perkins,1 Russell Roberts,2 Tuana Sanders2 and Alan Rosen2,3,4,5,6 1Centre for Equity and Primary Health Research in the Illawarra and Shoalhaven, University of New South Wales, Sydney, 2Greater Western Area Health Service, Orange and Broken Hill, 3Royal North Shore Hospital and 4Community Mental Health Services, 5School of Public Health, University of Wollongong, Wollongong, and 6Department of Psychological Medicine, University of Sydney, Sydney, New South Wales, Australia Abstract Objective: To see if a new model of service delivery
  • 66. ensures that individuals with a mental illness in rural and remote settings could be assessed, treated and cared for in a more appropriate way. Design: Community mental health teams (CMHTs), general practitioners (GP) and other agencies were pro- vided with clinical and broader support services by con- sultant psychiatrists from public and private sectors. The occasions of service were logged, audited and rele- vant provider groups were interviewed. Ethics approval was provided by Human Research Ethics Community of University of New South Wales. Setting: Far West Area Health Service (FWAHS), remote New South Wales. Participants: An enhanced service was provided for res- idents, specialist mental health and other healthcare providers. Results: • Regular access to psychiatrists for primary and sec- ondary care was achieved in remote communities in FWAHS. • 3908 new patients were seen by CMHTs between July 2002 and December 2003 and 380 by visiting psychi- atrists between January 2002 and July 2003. • Secondary consultation, mentoring and education opportunities were made available by tele-conference and face-to-face for CMHTs and others in FWAHS. • GPs and CMHTs in remote settings were satisfied with improved access to psychiatrist care. Conclusions: This model appears to be sustainable with reasonable levels of funding in FWAHS and may be applicable to other remote contexts.
  • 67. KEY WORDS: access, integrated service, mental health, remote, visiting. Introduction The 1993 National Health Strategy proposed significant reform in provision of mental health services. It pro- posed multidisciplinary service delivery, a single point of entry for patients, an information system to support continuity and integration of services, and major reforms in financing. It found, few financing incentives for the integration of public and private specialised men- tal health services to ensure wider access and continuity of care for people with chronic mental illness.1 The Second National Mental Health Plan 1998 found widespread failings in integration.2 As part of the imple- mentation of the plan the Commonwealth Government sought expressions of interest from Area Mental Health Services to demonstrate: • Evidence of broad interest from public and private sectors in conducting a demonstration project • A description of current integration mechanisms • An outline of a broad integration strategy to be followed • An agreement between stakeholders to collect rou- tine patient outcomes. Three projects were funded with the following aim: To establish and document approaches to integrating private psychiatrist and public mental health services. The purpose is to create a more flexible integrated framework within which mental health can be
  • 68. delivered.3,4 These projects were collectively called Mental Health Integration Projects (MHIP). The Far West Area Health Service (FWAHS) was selected to receive planning and then project funds. The live phase commenced in 2000 and the evaluation was published in December 2003.5 This paper reports research conducted in the evaluation process. 106 D. A. PERKINS ET AL. © 2006 The Authors Journal Compilation © 2006 National Rural Health Alliance Inc. The Third Mental Health Plan 2003 includes the fol- lowing key principle:6all people in need of mental health care should have access to timely and effective services, irrespective of where they live. Context The FWAHS occupies one-third of the landmass, but with about 50 000 people has less than 1% of the NSW population (Fig. 1). The Australian Bureau of Statistics has classified the entire area as remote. Thir- teen per cent of the population are Aboriginal, com- pared with 1.7% in the State. The area was rated as having the highest level of socioeconomic disadvantage in Australia.7 Twelve per cent of the FWAHS population have needs that are usually treated by public mental health services, that is, affective disorders, personality disorders, psy-
  • 69. choses or cognitive impairment. About 20% have needs usually treated by private mental health practitioners that is, affective disorders, anxiety disorders and substance abuse. Only eight Area Health Services in Australia had a higher prevalence of these disorders in 2002.7 In 1997 the Australian Medical Workforce Advisory Committee reported a serious maldistribution of psychi- atrists with one psychiatrist per 6610 people in capital cities, one per 20 593 in large rural centres and one per 41 283 in other rural and remote centres.8 In consequence, Far West residents receive a small proportion of Medicare monies spent on private psychi- atrist services because there are no resident private psy- chiatrists in the area. In the early 1990s the FWAHS mental health service was regarded as a model service being awarded silver and gold ANZ Mental Health Service Achievement awards. However, the loss of key staff in the 1990s had a damaging effect on the quality of the service.9 There is one resident public psychiatrist based in Broken Hill serving 50 000 people. There is high staff What this study adds: • This study was undertaken to see if a better mental health services model could improve access to psychiatrists in remote communities and support resident health care providers and GPs. • This study shows that it is possible to
  • 70. provide a good-quality mental health service in remote communities using a primary health care model where access is improved, local staff are supported and most patients are cared for in their communities. FIGURE 1: Far West Area Health Service. Pooncarie Louth Enngonia Wanaaring Tilpa Towns in the Far West Area Health Service White Cliffs Bourke Brewarrina Goodooga Lightning Ridge Walgett Collarenebri Dareton Euston
  • 71. Balranald Coomealla Ivanhoe Wentworth Wilcannia Menindee Broken Hill Tibooburra What is already known on this subject: • Psychiatrists have been visiting remote communities on an ad hoc basis for many years, often flying in and out on the same day. Their work has consisted almost entirely of patient assessment and the services provided have not been comprehensive or locally based. FAR WEST MENTAL HEALTH INTEGRATION PROJECT 107 © 2006 The Authors Journal Compilation © 2006 National Rural Health Alliance Inc. turnover among public mental health staff who have fewer years of experience compared with their urban counterparts. Two metropolitan psychiatrists have vis-
  • 72. ited Broken Hill for many years fulfilling a clinical role.10 A short-term project provided psychiatrists on a day visit basis to Lightning Ridge and one psychiatrist occasionally visited Dareton. Objectives The project objectives were: • To provide access to comprehensive mental health services • To encourage multi-professional collaboration and coordination • To increase the focus on prevention and promotion • To develop a coherent funding mechanism • To enable consumer participation • To provide education and support for mental health workers and primary health professionals. The Far West Mental Health Integration Project (FW-MHIP) model The FWAHS Strategic Plan adopted a population health approach to planning and a primary health care model of service delivery because the population is scattered over a large area, resources limited and health problems increasingly lifestyle-related.11 This model ensures that mental health services are an integral part of primary health care and population health (Fig. 2). Psychiatrists visit on a regular basis from metropol- itan centres as do allied mental health specialists from the Broken Hill headquarters. Their visits include patient consultations and secondary activities such as caseload review, mentorship and education of
  • 73. local mental health and primary care staff. Resident staff continue planned care between visits and are able to consult by phone if necessary. They receive regular supervision and support from psychiatrists FIGURE 2: The Far West Mental Health Integration Project model. CMHT, Community mental health team; FWAHS, Far West Area Health Service. Core philosophy Elements of model era secivres htlaeh latnem yramirp – ygetarts erac yramirP provided by local generalist staff supported by specialists from hubs and visiting psychiatrists from metropolitan centres Hub structure – CMHTs support general health staff and provide specialist services to patients Funding mechanism – The Area Health Service was given the funds it would receive if it had the national average number of private psychiatrists working across the area and received an equitable share of State mental health funds. The local resident mental health team, general practitioners (GPs) and other providers are supported by specialist mental health and counselling staff and visiting psychiatrists Management process – Local mental health services are provided by a CMHT working with GPs, generalist health staff and others managed by a team leader who reports to the
  • 74. Director of Mental Health and Counselling. Visiting Patterns – An increase in the number of visiting psychiatrists was achieved. Psychiatrists were strongly encouraged to stay for one or more nights in the communities they visited. VMO roles – Specialist psychiatrists were appointed as Visiting Medical Officers and encouraged to undertake a mix of primary and secondary activities to meet the needs of the teams and the communities serviced and to contribute to the wider service. Governance mechanism – The project was treated as core business, covered the whole mental health and counselling service and was subject to the normal governance mechanisms of the FWAHS 108 D. A. PERKINS ET AL. © 2006 The Authors Journal Compilation © 2006 National Rural Health Alliance Inc. enhancing staff development and contributing to job satisfaction. This model was implemented as the core service model, with no private referrals to the visiting psychia- trists who are Visiting Medical Officers. Referrals are made to the mental health team who refer to visiting psychiatrists where appropriate. The team leader plans the visits of psychiatrists and allied specialists to meet priority needs and is responsible to the Area Director of Mental Health and Counselling.
  • 75. Results Access to psychiatrists The implementation of FW-MHIP sectors provided regular access to a psychiatrist for the first time for patients from outside Broken Hill. Table 1 shows the number of new patients seen by psychiatrists by sector from January 2002 to June 2003. The figures in brack- ets show new referrals as a percentage of all referrals seen. Low first quarter figures reflect the start-up diffi- culties and the introduction of psychiatrist activity reporting processes. New referrals represent about half of the patients seen. Team leaders reported that it is usually possible to ensure that those requiring a spe- cialist consultation see the psychiatrist on his/her next visit. Access to community mental health teams (CMHTs) Community mental health teams saw a large number of new clients with a wide range of mental health and other disorders (Table 2). Many of these individuals were seen by the visiting psychiatrist and are also recorded in Table 1. Table 3 provides a breakdown of individuals by diagnosis seen between July 2000 and December 2002. Support activities Support activities were undertaken by a visiting psychi- atrist with no patient present and the objective was to
  • 76. assist local providers including: CMHT members, gen- eral practitioners (GPs), hospital staff, Aboriginal med- ical services staff and other agencies. These activities accounted for 10–20% of specialist activity throughout the project and included case review, mentorship, sec- ondary consultation and education for mental health, acute and primary care staff. Collaboration Collaboration with GPs improved but was not a spec- tacular success for a number of reasons. GPs were in short supply and reported being overworked with little time for non-core activities. GP turnover was significant and relationships with visiting psychiatrists take some time to build. Many GPs were happy to refer to the CMHT, and through the team to a psychiatrist, and to await a letter from the specialist in a traditional manner. However, GPs reported high quality instances of second- ary consultation ranging from regular meetings with the visiting psychiatrist to discuss issues such as treating patients with personality disorders to one-off but valued secondary consultations. Discussion Increased resources and a new flexibility in their use enabled improved access to mental health services in a remote context. These improvements are demonstrated by the number of patients seen by psychiatrists and CMHTs and reductions in or elimination of waiting times. Local access was critically important for some Aboriginal and non-Aboriginal patients who typically refused to travel for specialist care. As a secondary consideration medical evacuations are an expensive
  • 77. option for all concerned. TABLE 1: New referrals seen by visiting psychiatrists by hub Sector January–March 2002 April–June 2002 July–September 2002 October–December 2002 January–March 2003 April–June 2003 Total 2002/03 Broken Hill 3 (60) 36 (61) 31 (47) 32 (52) 29 (67) 19 (40) 150 Dareton 6 (35) 5 (20) 6 (28) 6 (25) 6 (26) 10 (41) 39 Lightning Ridge 17 (44) 17 (53) 10 (28) 9 (34) 14 (32) 21 (47) 88 Bourke 11 (55) 18 (56) 13 (52) 23 (58) 17 (60) 21 (51) 103 Total 37 76 60 70 66 71 380 Brackets show new referrals as percentage of all patients seen by visiting psychiatrist. Based on manual reporting by psychiatrists