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Asst. Prof., Dept. of Medical Ethics
Alfarabi Medical college, Riyadh
Dr. Ghaiath M. A. Hussein
Professionalism and Ethics Education for Residents (PEER)
Patients’ Rights
‫المرضى‬ ‫حقوق‬
Ethical basis for patients’ rights
Definition and classification of patient rights
Patient’s Right related to
 Treatment
 Access to care
 Choice of care
 Participation in decision making
 Privacy and Confidentiality
 Seek for 2nd opinion or referral
 Compassionate Palliative and EOL care
Outline
Before we start…where are we?
Patient
Doctor
Lab./X-
ray
Social
worker
Nurse
Manager
Educator
Doctors Are NOT the focus of the healthcare
Islamic Guidance behind care...
1. Relieved patients from some religious commitments ‫التكاليف‬ ‫عنهم‬ ‫خففت‬
‫الدينية‬:
( *‫ال‬ ُ‫م‬ُ‫ت‬ْ‫س‬َ‫م‬َ‫ال‬ ْ‫و‬َ‫أ‬ ِ‫ط‬ِ‫ئ‬‫َآ‬‫غ‬ْ‫ال‬ ‫ن‬ِ‫م‬ ‫م‬ُ‫ك‬‫ن‬ِ‫م‬ ٌ‫د‬َ‫ح‬َ‫أ‬ ‫اء‬َ‫ج‬ ْ‫و‬َ‫أ‬ ٍ‫ر‬َ‫ف‬َ‫س‬ ‫ى‬َ‫ل‬َ‫ع‬ ْ‫و‬َ‫أ‬ ‫ى‬َ‫ض‬ ْ‫ر‬َّ‫م‬ ‫م‬ُ‫ت‬‫ن‬ُ‫ك‬ ‫ن‬ِ‫إ‬ َ‫و‬‫ا‬َ‫م‬ ْ‫ا‬‫ُو‬‫د‬ ِ‫َج‬‫ت‬ ْ‫م‬َ‫ل‬َ‫ف‬ ‫اء‬َ‫س‬ِ‫ن‬ً‫ا‬‫ب‬ِ‫ي‬َ‫ط‬ ً‫ا‬‫يد‬ِ‫ع‬َ‫ص‬ ْ‫ا‬‫و‬ُ‫م‬َّ‫م‬َ‫ي‬َ‫ت‬َ‫ف‬ ‫ء‬)
( *‫ى‬َ‫ض‬ ْ‫ر‬َّ‫م‬ ‫م‬ُ‫ك‬‫ن‬ِ‫م‬ ُ‫ون‬ُ‫ك‬َ‫ي‬َ‫س‬ ‫ن‬َ‫أ‬ َ‫م‬ِ‫ل‬َ‫ع‬ ِ‫آن‬ ْ‫ر‬ُ‫ق‬ْ‫ال‬ َ‫ن‬ِ‫م‬ َ‫ر‬َّ‫س‬َ‫ي‬َ‫ت‬ ‫ا‬َ‫م‬ ‫وا‬ُ‫ؤ‬ َ‫ر‬ْ‫ق‬‫ا‬َ‫ف‬)‫المزمل‬ ‫سورة‬20
( *ِ‫م‬ ٌ‫ة‬َّ‫د‬ِ‫ع‬َ‫ف‬ ٍ‫ر‬َ‫ف‬َ‫س‬ ‫ى‬َ‫ل‬َ‫ع‬ ْ‫و‬َ‫أ‬ ً‫ا‬‫يض‬ ِ‫ر‬َ‫م‬ َ‫ان‬َ‫ك‬ ‫ن‬َ‫م‬ َ‫و‬ ُ‫ه‬ْ‫م‬ُ‫ص‬َ‫ي‬ْ‫ل‬َ‫ف‬ َ‫ر‬ْ‫ه‬َّ‫ش‬‫ال‬ ُ‫م‬ُ‫ك‬‫ن‬ِ‫م‬ َ‫د‬ِ‫ه‬َ‫ش‬ ‫ن‬َ‫م‬َ‫ف‬َ‫َر‬َُ‫أ‬ ٍ‫َّام‬‫ي‬َ‫أ‬ ْ‫ن‬)‫البقرة‬ ‫سورة‬185
( *ٌٍََ‫ق‬َ‫د‬َ‫ص‬ ْ‫و‬َ‫أ‬ ٍ‫ام‬َ‫ي‬ ِ‫ص‬ ‫ن‬ِ‫م‬ ٌٌَ‫ي‬ْ‫د‬ِ‫ف‬َ‫ف‬ ِ‫ه‬ِ‫س‬ْ‫أ‬َّ‫ر‬ ‫ن‬ِ‫م‬ ًًَ‫أ‬ ِ‫ه‬ِ‫ب‬ ْ‫و‬َ‫أ‬ ً‫ا‬‫يض‬ ِ‫ر‬َّ‫م‬ ‫م‬ُ‫ك‬‫ن‬ِ‫م‬ َ‫ان‬َ‫ك‬ ‫ن‬َ‫م‬‫ف‬ٍٍُ‫س‬ُ‫ن‬ ْ‫و‬َ‫أ‬)‫البقرة‬ ‫سورة‬196.
*{ُ‫ق‬ِ‫ف‬‫ُن‬‫ي‬ ‫ا‬َ‫م‬ َ‫ُون‬‫د‬ ِ‫ج‬َ‫ي‬ َ‫ال‬ َ‫ِين‬ًَّ‫ال‬ ‫ى‬َ‫ل‬َ‫ع‬ َ‫ال‬ َ‫و‬ ‫ى‬َ‫ض‬ ْ‫ر‬َ‫م‬ْ‫ال‬ ‫ى‬َ‫ل‬َ‫ع‬ َ‫ال‬ َ‫و‬ ‫اء‬َ‫ف‬َ‫ع‬ُّ‫ض‬‫ال‬ ‫ى‬َ‫ل‬َ‫ع‬ َ‫ْس‬‫ي‬َّ‫ل‬ٌٌ  َ‫ر‬َ‫ح‬ َ‫ون‬)ٌ‫التوب‬ ‫سورة‬91
2. Visiting them is a duty (on everybody, not only doctors) ‫جعلت‬
ً‫ا‬‫اجب‬‫و‬ ً‫ا‬‫حق‬ ‫عيادتهم‬.
3. Referred to their health, mental, and social requirements ‫على‬ ‫نبهت‬
‫يحتاجونها‬ ‫مسائل‬:ً‫ا‬‫اجتماعي‬‫و‬ ً‫ا‬‫ونفسي‬ ً‫ا‬‫صحي‬.
Patients’ Rights on who?
State (MOH)
Providers
Family Community
Patient’s Right
Rights directly related to Treatment
 Receive treatment
 Consent to treatment
( accept or refuse )
 Privacy
 Confidentiality
 Compassionate End of
Life ( EOL ) Care
Right Not directly related to treatment
 Respect
 Safety
 Protection for Physical
assault ( specially vulnerable )
 Spiritual care
 Participation in research studies
Saudi Commission for Health Specialties
PATIENT’S BILL OF RIGHTS AND
RESPONSIBILITIES (KSA)
http://www.moh.gov.sa/en/HealthAwareness/EducationalContent/HealthTips/Pages/Ti
ps-2011-1-29-001.aspx
Rights of Patients & Their Families
1. Knowing Patient and Family
Rights and Responsibilities
2. Getting Health Care
3. Privacy and Confidentiality
4. Safety and Protection
5. Respect and Appreciation
6. Participation in the
Healthcare Plan
7. Refuse Treatment
8. Participation in Research
Studies
9. Organ and Tissues Donation
Policies and Procedures
10. Health Insurance and
Financial Policy
11. Clear and Comprehensive
Declaration Forms
12. Complaints and Suggestions
Policies and Procedures
• Child Patient Rights
• Elderly Patient Rights
• Psychiatric Patient Rights
• Special Needs Patient Rights
Treatment-Related Rights
• Access to care
• Choice of Care
• Participation in decision making
• Privacy & Confidentiality
• Seek 2nd Opinion/Referral
• Compassionate Palliative & EOL care
• Complaints and Suggestions Policies and
Procedures
1- Access to Care
Patients have the right to have access to healthcare
that meets their needs at the time they need it at a
cost they can afford.
Patients should not be denied access to care they
need or discriminated against based on their colour,
race, belief, disability, etc.
This includes their right to transport to hospital in
case of emergency (Ambulance).
Saudi Commission for Health Specialties
2- Choice of Care
These include:
 Receiving timely emergency care
 Treatment and rehabilitation
 Be seen of their doctor (of choice)
 Provision for special needs
 Counseling
 Palliative care
 Health information (education)
3- Participation in decision-making
Receive Relevant
Information
Diagnosis
Treatment
Prognosis
Post-Discharge Care
Hospital policies
Consent to
Treatment
Relevant facts
explained
Patients are free
from undue
influence
Patients assign
Substitute decision
maker (SDM)
Right to Refuse
Treatment
Relevant
alternatives
explained
Risks explained,
and consent taken
CAPACITY VOLUNTARINESS DISCLOSURE
•The patients has
the ability to:
• Understand
medical
information
• Appreciate the
risks
• Memorize the
information
•Communicate the
decision
•Freedom from
undue influence:
• Financial
• Social pressure
•Physical restraint
•Information:
•Diagnosis
• Possible prognosis
• Benefits and risk
of treatment
• Expected outcome
• In a language
understood by the
patient
4- Continued care, Seeking
2nd opinion & Referral
The patients have the right to:
 Receive uninterrupted care from his/her doctor.
 To be referred to other health care providers when
necessary.
 Receive a second opinion when the patient or
his/her doctor requests one.
 The second opinion must be provided by a
qualified health care professional within the same
organization.
Saudi Commission for Health Specialties
5- Compassionate EOL Care
The patient have the right to:
 Have her physical pain assessed and managed
 Have Advance Directive Plan (Living Will)
 Assign a family member to be the SDM
 Have her/his emotional and spiritual needs
addressed
Ethical quiz: what to draw the line between
“allowing your patient to die” and “helping your
patient to die?”
Saudi Commission for Health Specialties
6- Appeal and Complaint Submission
The patient have the right to:
 Be told on how to process her problems or
complaints
 Voice his/her concerns about the care she/he
receives
 Ask questions and express concerns about
hospital health care and services, without fear of
reprisal
 Have his/her complaint responded to in a timely
and satisfactory manner
Saudi Commission for Health Specialties
Additional Rights for special groups
Children Elderly
• Examined by specialized
team.
• Appropriate
environment
• Assign a companion
• Report any violence
against children to the
concerned authority.
• Avoid isolating the
patient unless it's
medically necessary.
• Meet their special
needs in the health
facility.
• Provide needed health
and treatment services
to the patient.
• Facilitate making
appointments and
having their medical
reports
Saudi Commission for Health Specialties
Additional Rights for special groups
Psychiatric Special Needs Patient
• Protect psychiatric patients
from harm.
• Ensure the patient’s freedom
of movement and shouldn’t
isolate him/her unless it’s
medically necessary.
• Allocating mental health clinics
• Provide suitable education and
rehabilitation methods
• Respect the patient’s dignity,
independency in addition to
his/her personal decisions.
• Provide specialized
equipments and tools for
special needs patients.
• Assist the patient in moving
• Provide suitable aisles and
bathrooms.
• Allocate parking spaces for
special needs patients.
Saudi Commission for Health Specialties
Key messages
 Make sure you and your patients know their rights
 Train your colleagues on patient’s rights
 Knowing and providing these rights protects you professionally
and legally
 Patient rights guide you to achieve your ethical and
professional goals of availing the best service to your patients
 Rights are rights! They are required by LAW, needed for
accreditation, and not gifts that you may or may not give.
Saudi Commission for Health Specialties

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Lecture 9&10 patients rights (13.3.2017)

  • 1. Asst. Prof., Dept. of Medical Ethics Alfarabi Medical college, Riyadh Dr. Ghaiath M. A. Hussein Professionalism and Ethics Education for Residents (PEER) Patients’ Rights ‫المرضى‬ ‫حقوق‬
  • 2. Ethical basis for patients’ rights Definition and classification of patient rights Patient’s Right related to  Treatment  Access to care  Choice of care  Participation in decision making  Privacy and Confidentiality  Seek for 2nd opinion or referral  Compassionate Palliative and EOL care Outline
  • 3. Before we start…where are we? Patient Doctor Lab./X- ray Social worker Nurse Manager Educator Doctors Are NOT the focus of the healthcare
  • 4. Islamic Guidance behind care... 1. Relieved patients from some religious commitments ‫التكاليف‬ ‫عنهم‬ ‫خففت‬ ‫الدينية‬: ( *‫ال‬ ُ‫م‬ُ‫ت‬ْ‫س‬َ‫م‬َ‫ال‬ ْ‫و‬َ‫أ‬ ِ‫ط‬ِ‫ئ‬‫َآ‬‫غ‬ْ‫ال‬ ‫ن‬ِ‫م‬ ‫م‬ُ‫ك‬‫ن‬ِ‫م‬ ٌ‫د‬َ‫ح‬َ‫أ‬ ‫اء‬َ‫ج‬ ْ‫و‬َ‫أ‬ ٍ‫ر‬َ‫ف‬َ‫س‬ ‫ى‬َ‫ل‬َ‫ع‬ ْ‫و‬َ‫أ‬ ‫ى‬َ‫ض‬ ْ‫ر‬َّ‫م‬ ‫م‬ُ‫ت‬‫ن‬ُ‫ك‬ ‫ن‬ِ‫إ‬ َ‫و‬‫ا‬َ‫م‬ ْ‫ا‬‫ُو‬‫د‬ ِ‫َج‬‫ت‬ ْ‫م‬َ‫ل‬َ‫ف‬ ‫اء‬َ‫س‬ِ‫ن‬ً‫ا‬‫ب‬ِ‫ي‬َ‫ط‬ ً‫ا‬‫يد‬ِ‫ع‬َ‫ص‬ ْ‫ا‬‫و‬ُ‫م‬َّ‫م‬َ‫ي‬َ‫ت‬َ‫ف‬ ‫ء‬) ( *‫ى‬َ‫ض‬ ْ‫ر‬َّ‫م‬ ‫م‬ُ‫ك‬‫ن‬ِ‫م‬ ُ‫ون‬ُ‫ك‬َ‫ي‬َ‫س‬ ‫ن‬َ‫أ‬ َ‫م‬ِ‫ل‬َ‫ع‬ ِ‫آن‬ ْ‫ر‬ُ‫ق‬ْ‫ال‬ َ‫ن‬ِ‫م‬ َ‫ر‬َّ‫س‬َ‫ي‬َ‫ت‬ ‫ا‬َ‫م‬ ‫وا‬ُ‫ؤ‬ َ‫ر‬ْ‫ق‬‫ا‬َ‫ف‬)‫المزمل‬ ‫سورة‬20 ( *ِ‫م‬ ٌ‫ة‬َّ‫د‬ِ‫ع‬َ‫ف‬ ٍ‫ر‬َ‫ف‬َ‫س‬ ‫ى‬َ‫ل‬َ‫ع‬ ْ‫و‬َ‫أ‬ ً‫ا‬‫يض‬ ِ‫ر‬َ‫م‬ َ‫ان‬َ‫ك‬ ‫ن‬َ‫م‬ َ‫و‬ ُ‫ه‬ْ‫م‬ُ‫ص‬َ‫ي‬ْ‫ل‬َ‫ف‬ َ‫ر‬ْ‫ه‬َّ‫ش‬‫ال‬ ُ‫م‬ُ‫ك‬‫ن‬ِ‫م‬ َ‫د‬ِ‫ه‬َ‫ش‬ ‫ن‬َ‫م‬َ‫ف‬َ‫َر‬َُ‫أ‬ ٍ‫َّام‬‫ي‬َ‫أ‬ ْ‫ن‬)‫البقرة‬ ‫سورة‬185 ( *ٌٍََ‫ق‬َ‫د‬َ‫ص‬ ْ‫و‬َ‫أ‬ ٍ‫ام‬َ‫ي‬ ِ‫ص‬ ‫ن‬ِ‫م‬ ٌٌَ‫ي‬ْ‫د‬ِ‫ف‬َ‫ف‬ ِ‫ه‬ِ‫س‬ْ‫أ‬َّ‫ر‬ ‫ن‬ِ‫م‬ ًًَ‫أ‬ ِ‫ه‬ِ‫ب‬ ْ‫و‬َ‫أ‬ ً‫ا‬‫يض‬ ِ‫ر‬َّ‫م‬ ‫م‬ُ‫ك‬‫ن‬ِ‫م‬ َ‫ان‬َ‫ك‬ ‫ن‬َ‫م‬‫ف‬ٍٍُ‫س‬ُ‫ن‬ ْ‫و‬َ‫أ‬)‫البقرة‬ ‫سورة‬196. *{ُ‫ق‬ِ‫ف‬‫ُن‬‫ي‬ ‫ا‬َ‫م‬ َ‫ُون‬‫د‬ ِ‫ج‬َ‫ي‬ َ‫ال‬ َ‫ِين‬ًَّ‫ال‬ ‫ى‬َ‫ل‬َ‫ع‬ َ‫ال‬ َ‫و‬ ‫ى‬َ‫ض‬ ْ‫ر‬َ‫م‬ْ‫ال‬ ‫ى‬َ‫ل‬َ‫ع‬ َ‫ال‬ َ‫و‬ ‫اء‬َ‫ف‬َ‫ع‬ُّ‫ض‬‫ال‬ ‫ى‬َ‫ل‬َ‫ع‬ َ‫ْس‬‫ي‬َّ‫ل‬ٌٌ َ‫ر‬َ‫ح‬ َ‫ون‬)ٌ‫التوب‬ ‫سورة‬91 2. Visiting them is a duty (on everybody, not only doctors) ‫جعلت‬ ً‫ا‬‫اجب‬‫و‬ ً‫ا‬‫حق‬ ‫عيادتهم‬. 3. Referred to their health, mental, and social requirements ‫على‬ ‫نبهت‬ ‫يحتاجونها‬ ‫مسائل‬:ً‫ا‬‫اجتماعي‬‫و‬ ً‫ا‬‫ونفسي‬ ً‫ا‬‫صحي‬.
  • 5. Patients’ Rights on who? State (MOH) Providers Family Community
  • 6. Patient’s Right Rights directly related to Treatment  Receive treatment  Consent to treatment ( accept or refuse )  Privacy  Confidentiality  Compassionate End of Life ( EOL ) Care Right Not directly related to treatment  Respect  Safety  Protection for Physical assault ( specially vulnerable )  Spiritual care  Participation in research studies
  • 7. Saudi Commission for Health Specialties
  • 8. PATIENT’S BILL OF RIGHTS AND RESPONSIBILITIES (KSA) http://www.moh.gov.sa/en/HealthAwareness/EducationalContent/HealthTips/Pages/Ti ps-2011-1-29-001.aspx
  • 9. Rights of Patients & Their Families 1. Knowing Patient and Family Rights and Responsibilities 2. Getting Health Care 3. Privacy and Confidentiality 4. Safety and Protection 5. Respect and Appreciation 6. Participation in the Healthcare Plan 7. Refuse Treatment 8. Participation in Research Studies 9. Organ and Tissues Donation Policies and Procedures 10. Health Insurance and Financial Policy 11. Clear and Comprehensive Declaration Forms 12. Complaints and Suggestions Policies and Procedures • Child Patient Rights • Elderly Patient Rights • Psychiatric Patient Rights • Special Needs Patient Rights
  • 10. Treatment-Related Rights • Access to care • Choice of Care • Participation in decision making • Privacy & Confidentiality • Seek 2nd Opinion/Referral • Compassionate Palliative & EOL care • Complaints and Suggestions Policies and Procedures
  • 11. 1- Access to Care Patients have the right to have access to healthcare that meets their needs at the time they need it at a cost they can afford. Patients should not be denied access to care they need or discriminated against based on their colour, race, belief, disability, etc. This includes their right to transport to hospital in case of emergency (Ambulance). Saudi Commission for Health Specialties
  • 12. 2- Choice of Care These include:  Receiving timely emergency care  Treatment and rehabilitation  Be seen of their doctor (of choice)  Provision for special needs  Counseling  Palliative care  Health information (education)
  • 13. 3- Participation in decision-making Receive Relevant Information Diagnosis Treatment Prognosis Post-Discharge Care Hospital policies Consent to Treatment Relevant facts explained Patients are free from undue influence Patients assign Substitute decision maker (SDM) Right to Refuse Treatment Relevant alternatives explained Risks explained, and consent taken
  • 14. CAPACITY VOLUNTARINESS DISCLOSURE •The patients has the ability to: • Understand medical information • Appreciate the risks • Memorize the information •Communicate the decision •Freedom from undue influence: • Financial • Social pressure •Physical restraint •Information: •Diagnosis • Possible prognosis • Benefits and risk of treatment • Expected outcome • In a language understood by the patient
  • 15. 4- Continued care, Seeking 2nd opinion & Referral The patients have the right to:  Receive uninterrupted care from his/her doctor.  To be referred to other health care providers when necessary.  Receive a second opinion when the patient or his/her doctor requests one.  The second opinion must be provided by a qualified health care professional within the same organization. Saudi Commission for Health Specialties
  • 16. 5- Compassionate EOL Care The patient have the right to:  Have her physical pain assessed and managed  Have Advance Directive Plan (Living Will)  Assign a family member to be the SDM  Have her/his emotional and spiritual needs addressed Ethical quiz: what to draw the line between “allowing your patient to die” and “helping your patient to die?” Saudi Commission for Health Specialties
  • 17. 6- Appeal and Complaint Submission The patient have the right to:  Be told on how to process her problems or complaints  Voice his/her concerns about the care she/he receives  Ask questions and express concerns about hospital health care and services, without fear of reprisal  Have his/her complaint responded to in a timely and satisfactory manner Saudi Commission for Health Specialties
  • 18. Additional Rights for special groups Children Elderly • Examined by specialized team. • Appropriate environment • Assign a companion • Report any violence against children to the concerned authority. • Avoid isolating the patient unless it's medically necessary. • Meet their special needs in the health facility. • Provide needed health and treatment services to the patient. • Facilitate making appointments and having their medical reports Saudi Commission for Health Specialties
  • 19. Additional Rights for special groups Psychiatric Special Needs Patient • Protect psychiatric patients from harm. • Ensure the patient’s freedom of movement and shouldn’t isolate him/her unless it’s medically necessary. • Allocating mental health clinics • Provide suitable education and rehabilitation methods • Respect the patient’s dignity, independency in addition to his/her personal decisions. • Provide specialized equipments and tools for special needs patients. • Assist the patient in moving • Provide suitable aisles and bathrooms. • Allocate parking spaces for special needs patients. Saudi Commission for Health Specialties
  • 20. Key messages  Make sure you and your patients know their rights  Train your colleagues on patient’s rights  Knowing and providing these rights protects you professionally and legally  Patient rights guide you to achieve your ethical and professional goals of availing the best service to your patients  Rights are rights! They are required by LAW, needed for accreditation, and not gifts that you may or may not give. Saudi Commission for Health Specialties