Wondering where to start when planning your next fundraiser? No need to worry-- The FPIES Foundation has you covered. The FPIES Foundation is an Incorporated 501(c)3 Non-profit Foundation dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. It is our vision to provide tools for families & patients managing FPIES every day. We are an entirely volunteer-based organization and do not keep any paid employees– all manpower is unpaid and voluntary. Any efforts to support the activities of The FPIES Foundation are enormously appreciated, as we strongly value anyone reaching out to FPIES families. All donations from our incorporation (August 31, 2011) to present are tax deductible, and tax-exempt under our 501(c)(3) non-profit designation.

1. Fundraising with
The FPIES Foundation:
A Step-by-Step Guide to Creating Your Next
Awareness Event, Benefit, and/or Fundraiser

2. Fundraising with The Foundation
•
There are many ways to
show your support of The
FPIES Foundation and the
families that we serve!
•
Some families enjoy
contributing through the
gift of raising awareness
•
Some families enjoy
organizing fundraisers and
benefits

3. Fundraising with The Foundation
Creating a Fundraiser to
support the initiatives of
The FPIES Foundation:
• Check out the fundraiser idea
bank form!
• Fundraisers can be created by
you and your family or can be
run within an existing model at
a local business/ restaurant
• Some businesses that partner
with non-profits for fundraisers
include Whole Foods,
restaurants, and Wal-Mart

4. Fundraising with The Foundation
What steps do we need
to take?
–
Fill out the “Fundraiser
Resource Request”
Form, briefly detailing
your event and resources
needed
–
Resources can really help
your event to better
reach your supporters
and spread community
awareness responsibly
Planning Ahead!
•
Be sure to plan far
enough in advance to
account for appropriate
advertising and
organizing time
•
Be sure to plan far enough in
advance if partnering
with a business to raise
funds-- they may have
additional forms required

5. Family Benefits & Foundation Fundraisers
• Some families wish to raise
funds for a family benefit
in addition to fundraising for
The FPIES Foundation
• A Family Benefit (as
discussed here) is an event
created to raise funds for a
family affected by FPIES.
The funds are intended to be
used to help the family offset
the high cost of medical
expenses directly associated
with their child's diagnosis
•
The keys to a successful
combo event:
–
Determine in advance how the
funds will be divided
–
Clearly advertise both
aspects of the event and how
donations will be allocated, so
that supporters know how their
contributions are helping

6. Awareness with The Foundation
•
The gift of Awareness is
just as important, if not
more so, as fundraising.
•
Your family can
organize an awareness
event in tandem with a
fundraiser/benefit or
simply by itself
•
Keep reading for steps
to making it a success!

7. Awareness with The Foundation
•
An awareness event
is an event organized
with the intent to
inform/educate the
public about FPIES. It
can focus on medical
aspects, family life
aspects, or a
combination of both.
•
Activities are centralized
around awareness. A few
examples include:
–
A question and answer
session
–
A family friendly event at
which educational materials
are also provided
–
Being a guest speaker at a
pre-existing event, like a
parent support group

8. Our Family's Story: A Fundraiser Event
Event: We Partnered with a local restaurant for
a “Family Fun Night” and Sweepstakes Prize
Giveaway
Paperwork: A brief form detailing the
cause and including our contact info
Organizing/Advertising: Created and
distributed flyers, contacted local TV media
and gave interviews, visited businesses and/or
wrote letters requesting donations for
sweepstakes prizes, prepared awareness
materials to display at the event
Set-up/ Clean-up: Spent about 30 minutes
on each, before & after event
Time Commitment: 8-10 total hours pre-
event, 3 hours for the event
Outcome: We received a donation from the
restaurant for the cause and also raised funds
through the sweepstakes

9. Our Family's Story:
A Fundraiser and Family Benefit
Event: We decided on a Fundraiser/Family
Benefit to help with our growing medical
bills, while also raising funds for FPIES
awareness.
Fundraiser: Profits from the meal sold were
donated to FPIES awareness. A food
vendor provided the meal and donated
the profits
Benefit: This was organized by a family
member who organized the location and
preparations, with input from our family
What We Did: Provided awareness items,
such as a “scrapbook” of photos and info
about our son's journey with FPIES, and
also FPIES info for supporters to read at
the event.
Key Considerations: How far to plan in advance, what services
and products will be donated, How to advertise and where to
distribute flyers, Who will help to plan the event, Is there a way
to contact the media about this event

10. Our Family's Story:
A Family Benefit and Awareness Event
We decided to do a family benefit to help
cover the costs of growing medical bills.
A family friend organized the event for us.
Here are some of the concepts that
helped the process:
1. Venue aspects: (serving meals, indoor/outdoor
space, permits involved, reservation time
needed)
2. Scheduling/Organization: (time,
entertainment, raffles/ sweepstakes/ silent
auctions, enlisting help)
3. Advertising/ Media: (making media contacts,
designing and placing posters, print/ online
advertising, contacting The FPIES
Foundation for assistance when needed)
*** Our family friend handled all donations. An
account was set up for us at a local bank and
all donations were deposited there. We were
given a debit card for the account to use
when we needed it for medical costs.

11. Resources for Success!
• The Fundraiser Resource Request Form
• The Fundraiser Idea Bank
• The FPIES Foundation Fundraiser Packet:
“Awareness is Action, and it Starts with You!”
• “What is FPIES” PDF
• “What is FPIES” Family-friendly flyer
• The FPIES FAQ Sampler
• “Awareness is Action” downloadable brochure
• “Awareness is Action” downloadable brochure/flyer
• Contact an FPIES Foundation representative to discuss details
and to ask questions about your event!