2013 Winter Medical Editor's Meeting: Sherri Frank Mazzotta,

1. Content Development Team:
2012 - 2013 Activity
Sherri Frank Mazzotta
Director of Content Development and Production
January 2013

2. Program Updates
• Carotid Endarterectomy
• Prostate Cancer HormoneTherapy
• Breast Reconstruction
• Breast Cancer Surgery
• Chronic Low Back Pain
• Osteoporosis
• Heart Failure
• Metastatic Breast Cancer
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3. Program Updates, continued
• Medical Care During Serious Illness
• Living with Coronary Heart Disease
• Abnormal Uterine Bleeding
• Uterine Fibroids
• Growing Older, Staying Well
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4. New Programs
• Anxiety
• PeripheralArtery Disease
Program in remake
• TreatmentChoices for Coronary Heart
Disease
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5. California HealthCare Foundation
• California HealthCare Foundation’s “Geographic
Variation Series”
• Examines the rates at which 16 elective treatments
and one screening test are delivered in different
communities in California
• PSA testing; treatments for prostate cancer,
breast cancer, low back pain, neck pain
• Foundation: Review and/or drafting of “Close ups”
reports
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6. Patient Perspectives Team
I. Collaboration with Brigham and Women’s Hospital,
Division of Pharmacoepidemiology, 2-year PCORI grant:
“Developing andTesting a Decision SupportTool
for Primary Medication Adherence”
• Foundation team:
- PamelaWescott: Project Consultant; Co-facilitated 8 focus groups
- Diana Stilwell: Project Consultant
- Michael Barry: Advisory Board member
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7. “Developing and Testing a Decision Support
Tool for Primary Medication Adherence”
Year 1
• Focus groups – inform content development:
- Identify knowledge, values, preferences of patients,
physicians, pharmacists
- Identify barriers to adherence
- Provide insights: Integrating tool into practice
• Decision aid design - underway
• Pilot testing
Year 2
• Refine decision aid design
• Disseminate results (publications, etc)
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8. Patient Perspectives Team
II. Collaboration with PCORI on Methodology
Standards
• Proposal for Foundation to provide 12
patient/provider video clips to illustrate PCORI’s
Methodology Standards report
• Clips will be juxtaposed with research stories
• PamelaWescott, Ellen Reifler overseeing work on
clips; involved in weekly calls with PCORI
• Contract has not yet been signed
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9. Australian Adaptations
• Bupa Health Dialog Australia
shared decision making initiative
• Adapt decision aid program booklets
for the Australian healthcare market
• Collaborate with the Foundation and
its Medical Editors on review of adapted
content
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10. Booklets Adapted for Use in Australia
• Living with Coronary Heart Disease
• Heart DiseaseTesting
• Treatment Choices for Coronary Heart Disease
• Heart Failure
• Treatment Choices for Hip Osteoarthritis
• Treatment Choices for Knee Osteoarthritis
• Torn Meniscus
• Early-Stage Knee Osteoarthritis
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12. Team for Australian Adaptations
• University of New South Wales:
- Review content to ensure alignment with Australian
guidelines
• Bupa Health Dialog Australia ClinicalTeam:
- Localize grammar/spelling, units of measure, terminology
(medications, procedures, etc.), product names
- Coordinate review by local clinical specialists
• Foundation / Medical Editors:
- Review/approve proposed revisions
- Review Australian guidelines , other supporting citations
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13. Challenges – Australia and Beyond
• Efficient adaptation process that includes local experts
• Aligning clinical content with country-specific guidelines
• Ensuring local clinical buy-in from key endorsing bodies
(e.g., Australian Disease Management Association, Royal
Australian College of General Practitioners)
• Implementation strategy
• Provider outreach, education and training
• Ongoing review and updating of adapted programs
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14. First steps…
• Explore feasibility of creating “global” core
product that would require less localization for
various countries
• Add international clinical experts to our Medical
Editor teams
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15. American College of Cardiology
Medication Decision Aids
• New collaboration!
• ACC Shared Decision MakingTask Force
• Topics:
- Statins for primary prevention
- Anticoagulation options for atrial fibrillation
• For ACC members and patients
• On ACC website portals September 2013
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16. Medication Decision Aid Features
• Foundation to produce
• Short production schedule (less than a year)
• Web-based educational content (~ 2,000 words)
• “Content Specification Documents” –
New, shorter format for evidence review
• Patient focus groups
• Provider survey viaACC
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17. Medication Decision Aid Features
• Introductory video by cardiologist
• Interactive risk calculators
• Clinician’sGuides
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18. Foundation / ACC Team
Steering Committee: Foundation
• JohnWong – Medical Editor, Chair of Steering Committee
• Colin Nelson – Senior Research Associate
• Margaret Lynch –Research Associate
• Diana Stilwell – Chief Production Officer
• Sherri Frank Mazzotta – Director CD/Production
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19. Foundation / ACC Team
Steering Committee: ACC
• Bill Lewis – MetroHealth, Cleveland, OH
• MinnowWalsh – St.Vincent Heart Center of Indiana,
Indianapolis, IN
• JoAnne Foody – Brigham andWomen’s Hospital,
Boston, MA
• Katherine Doermann Byrd – ACC staff liaison
• Lea Binder – ACC staff liaison
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