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Infographic for Sanfilippo Syndrome IIIC and IIID
1. They are 1 in a million
We can tell them about our Natural History Study
WHAT IF
We could one day treat Sanfilippo Syndrome Type IIIC and IIID
but could not find the patients?
They can learn about our work on treatments
Together we can collaborate and make progress
Sources: JAMA 281 (3): 249–54, 1999 https://connect.patientcrossroads.org/?org=SanfilippoRegistry
We want to findthem to add to our registry
We need your help