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Augmentative and Alternative
    Communication: Giving Voice
    to Survivors of Brain Injury
                                   Barbara Goodman, CCC-SLP
                                      Heather Kriesman, BS



© 2012 Bancroft | All rights reserved
Technology




© 2012 Bancroft | All rights reserved
Definitions:
         • Traumatic Brain Injury (TBI): an injury to
           the brain caused by an external force after
           birth (Brain Injury Association of America,
           2012)




© 2012 Bancroft | All rights reserved
Definitions
• Augmentative & Alternative
  Communication (AAC)
  – Any approach designed to support, enhance or
    supplements the communication of individuals
    who are not independent verbal
    communicators in all situations (Nicolosi,
    Harryman & Kresheck, 1989).
Definitions
        Types of Symbol Systems:
        • Static Boards
                  – Point & Communicate
        • Pull Off Boards
                  – PEC Boards
        • Dynamic Speech Devices
                  – Dynavox, Prentke Romich & Tablets



© 2012 Bancroft | All rights reserved
Examples of Dynamic Speech Devices

Proloquo2go (iPad app.)                 Dynavox- Express




© 2012 Bancroft | All rights reserved
Definitions

        Multimodality Communicator
        • Is an individual who uses more than one
          expressive communication strategy




© 2012 Bancroft | All rights reserved
Assessment
       • Formal Testing & Informal Measures
                 – Functional Communication Profile-Revised
                   (FCT), 2003, Larry Kleiman
                 – InterAACT Framework and Dynamic Goal Grid
                   (Dynavox, 2011)
                 – Mayo Portland Asaptability Inventoryy-4 (MPAI-
                   4Lezak, Malec)



© 2012 Bancroft | All rights reserved
Functional Communication
        Profile
        • Functional Communication Profile-Revised
          2003, authored by Larry Kleiman, CCC SLP
        • http://www.linguisystems.com/sample1/4040.pdf




© 2012 Bancroft | All rights reserved
Functional Communication Profile-Revised
            (FCT)




© 2012 Bancroft | All rights reserved
InterAACT

         • http://www.dynavoxtech.com/interact/
           continuum-of-communication/




© 2012 Bancroft | All rights reserved
InterAACT
  • Communicative Ability Levels:
            – Emergent
            – Context Dependent
            – Independent
                      • Multimodality Communicator




© 2012 Bancroft | All rights reserved
Assessment

        Communicative Competencies
        • Linguistic- vocabulary and sentence structure
        • Operational- care/maintenance of device
        • Social- how language is used
        • Strategic- know how and when to communicate




© 2012 Bancroft | All rights reserved
Assessment

        Mayo Portland Adaptability Inventory- 4
         (MPAI-4)
        • Abilities- includes mobility, vision, communication,
          memory
                  – Adjustment-includes fatigue, anxiety, depression, impaired self-
                    awareness
                  – Participation-initiation, social and leisure activities, employment
                  – Pre-Existing and Associated Conditions-pre morbid issues that
                    may impact rehabilitation




© 2012 Bancroft | All rights reserved
Assessment Results

  Integrative picture of the whole individual,
    relative strengths and AAC needs
  • Trial
  • Trial
  • Trial



© 2012 Bancroft | All rights reserved
Selection of Devices

         • SETT Framework
                  –      Student (adult client)
                  –      Environments
                  –      Tasks
                  –      Tools



© 2012 Bancroft | All rights reserved
Selection of Devices

         • Results of assessment and SETT
         • What currently works/doesn’t work
         • What the user wants to use




© 2012 Bancroft | All rights reserved
Selection of Devices
         • If the user can read and write
                -Choose a text to speech device
                -word and phrase prediction
                -pre-stored messages


         • If the user has difficulty reading or
           writing
                -Choose an icon based system
                -Can be photos, icons, drawing


© 2012 Bancroft | All rights reserved
Selection of Devices
         • If the user has word finding and memory
           problems
                  – A subject or scene based communication system may
                    help
                  – Limit the number of pages one has to navigate




© 2012 Bancroft | All rights reserved
Selection of Devices
         • Vision issues, Physical disabilities
                  –      Choose a system with larger buttons.
                  –      May need to be mounted
                  –      May need to be worn
                  –      Consider scanning




© 2012 Bancroft | All rights reserved
Selection of Devices
         • What does the user want to say?
                  –      Convey information?
                  –      Tell stories?
                  –      Answer questions?
                  –      Order for themselves?

         • What does the user need to say?
                  – Participate?
                  – Answer questions?
                  – Convey information?


© 2012 Bancroft | All rights reserved
Selection of Devices

        What currently works?
        • Paper/pencil, gestures, sign, email, text,
          VOCA, combination
        • What is he using that doesn’t work?
                  – Poor handwriting, poor articulation
        • People stick with what is easy and familiar


© 2012 Bancroft | All rights reserved
Selection of Devices
         • Results of assessment will guide the
           decision making process, but the deciding
           factor has to be the user.
         • Appropriate choices will provide
           communication independence.
         • Incorrect decisions will lead to system
           abandonment.

© 2012 Bancroft | All rights reserved
Selection of Devices

         • Trial
         • Trial
         • Trial




© 2012 Bancroft | All rights reserved
Selection of Devices



    Writepad app                        DynaVox   Prentke-Romich   Saltillo




© 2012 Bancroft | All rights reserved
Selection of Devices
         • What matches the users communication
           needs, language level, physical abilities?
         • What is the user comfortable with?
         • Consider warranties
         • Consider durability
         • Consider customer service

© 2012 Bancroft | All rights reserved
Funding
         • Medicaid, Major Medical, TBI fund, VA, Private
           Charities, DVR and DDD fund dedicated
           communication devices.
                -SLP and or AAC report/ letter of medical necessity
                -doctor’s script
                -Assignment of Benefits form              -insurance cards
                -company funding paperwork                -insurance denial


         http://www.state.nj.us/humanservices/dds/document/resourse

© 2012 Bancroft | All rights reserved
Funding

         •      Order all accessories with device
         •      Purchases are for 5 years.
         •      Consider warranties
         •      Consider durability
         •      AAC, VOCA, medical necessity


© 2012 Bancroft | All rights reserved
Implementing and Maintaining AAC
       •      Less than 10% of adult AAC users and less than 25% of family
              members and caregivers of AAC users report receiving professional
              support to effectively implement AAC.

       •      Close to 20% of the professionals and close to 30% of the family
              members and caregivers consider the professional supporting the
              AAC user not or only slightly knowledgeable on AAC.

       •      Family members and caregivers report that only 20% of the AAC
              users in their care use AAC for the full range of communication
              functions, such as starting and changing a conversation.

       Results of 2012 survey from U of San Diego and California State U
       http://www.assistiveware.com/taking-pulse-augmentative-and-alternative-
           communication-ios

© 2012 Bancroft | All rights reserved
Implementing and Maintaining AAC

         • Programming needs to stay consistent with
           users’ communication abilities and needs

         • All need to be trained on programming and
           users’ language level/needs



© 2012 Bancroft | All rights reserved
Implementing and Maintaining
        AAC
        Regardless of choice, the device/tool must
        • fit with the user’s skill level
        • communicate what the user wants to say
        • be easy for the user to use
        • be what the user wants to use


© 2012 Bancroft | All rights reserved
Implementing and Maintaining AAC

             •       Interactive learning
             •       Access or location and function
             •       Demonstrate
             •       Training is for everyone




© 2012 Bancroft | All rights reserved
Implementing and Maintaining AAC

         • User Groups
         • Client focused
         • Family and client focused




© 2012 Bancroft | All rights reserved
Conclusion
      • Integration of a comprehensive
        communication assessment and selection
        process, leads to a functional, independent
        communicator.




© 2012 Bancroft | All rights reserved
Thank You!




                                        Barbara Goodman: bgoodman@bnh.org
                                        Heather Kriesman: hkriesman@bnh.org

© 2012 Bancroft | All rights reserved

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Augmentative and alternative communication

  • 1. Augmentative and Alternative Communication: Giving Voice to Survivors of Brain Injury Barbara Goodman, CCC-SLP Heather Kriesman, BS © 2012 Bancroft | All rights reserved
  • 2. Technology © 2012 Bancroft | All rights reserved
  • 3. Definitions: • Traumatic Brain Injury (TBI): an injury to the brain caused by an external force after birth (Brain Injury Association of America, 2012) © 2012 Bancroft | All rights reserved
  • 4. Definitions • Augmentative & Alternative Communication (AAC) – Any approach designed to support, enhance or supplements the communication of individuals who are not independent verbal communicators in all situations (Nicolosi, Harryman & Kresheck, 1989).
  • 5. Definitions Types of Symbol Systems: • Static Boards – Point & Communicate • Pull Off Boards – PEC Boards • Dynamic Speech Devices – Dynavox, Prentke Romich & Tablets © 2012 Bancroft | All rights reserved
  • 6. Examples of Dynamic Speech Devices Proloquo2go (iPad app.) Dynavox- Express © 2012 Bancroft | All rights reserved
  • 7. Definitions Multimodality Communicator • Is an individual who uses more than one expressive communication strategy © 2012 Bancroft | All rights reserved
  • 8. Assessment • Formal Testing & Informal Measures – Functional Communication Profile-Revised (FCT), 2003, Larry Kleiman – InterAACT Framework and Dynamic Goal Grid (Dynavox, 2011) – Mayo Portland Asaptability Inventoryy-4 (MPAI- 4Lezak, Malec) © 2012 Bancroft | All rights reserved
  • 9. Functional Communication Profile • Functional Communication Profile-Revised 2003, authored by Larry Kleiman, CCC SLP • http://www.linguisystems.com/sample1/4040.pdf © 2012 Bancroft | All rights reserved
  • 10. Functional Communication Profile-Revised (FCT) © 2012 Bancroft | All rights reserved
  • 11. InterAACT • http://www.dynavoxtech.com/interact/ continuum-of-communication/ © 2012 Bancroft | All rights reserved
  • 12. InterAACT • Communicative Ability Levels: – Emergent – Context Dependent – Independent • Multimodality Communicator © 2012 Bancroft | All rights reserved
  • 13. Assessment Communicative Competencies • Linguistic- vocabulary and sentence structure • Operational- care/maintenance of device • Social- how language is used • Strategic- know how and when to communicate © 2012 Bancroft | All rights reserved
  • 14. Assessment Mayo Portland Adaptability Inventory- 4 (MPAI-4) • Abilities- includes mobility, vision, communication, memory – Adjustment-includes fatigue, anxiety, depression, impaired self- awareness – Participation-initiation, social and leisure activities, employment – Pre-Existing and Associated Conditions-pre morbid issues that may impact rehabilitation © 2012 Bancroft | All rights reserved
  • 15. Assessment Results Integrative picture of the whole individual, relative strengths and AAC needs • Trial • Trial • Trial © 2012 Bancroft | All rights reserved
  • 16. Selection of Devices • SETT Framework – Student (adult client) – Environments – Tasks – Tools © 2012 Bancroft | All rights reserved
  • 17. Selection of Devices • Results of assessment and SETT • What currently works/doesn’t work • What the user wants to use © 2012 Bancroft | All rights reserved
  • 18. Selection of Devices • If the user can read and write -Choose a text to speech device -word and phrase prediction -pre-stored messages • If the user has difficulty reading or writing -Choose an icon based system -Can be photos, icons, drawing © 2012 Bancroft | All rights reserved
  • 19. Selection of Devices • If the user has word finding and memory problems – A subject or scene based communication system may help – Limit the number of pages one has to navigate © 2012 Bancroft | All rights reserved
  • 20. Selection of Devices • Vision issues, Physical disabilities – Choose a system with larger buttons. – May need to be mounted – May need to be worn – Consider scanning © 2012 Bancroft | All rights reserved
  • 21. Selection of Devices • What does the user want to say? – Convey information? – Tell stories? – Answer questions? – Order for themselves? • What does the user need to say? – Participate? – Answer questions? – Convey information? © 2012 Bancroft | All rights reserved
  • 22. Selection of Devices What currently works? • Paper/pencil, gestures, sign, email, text, VOCA, combination • What is he using that doesn’t work? – Poor handwriting, poor articulation • People stick with what is easy and familiar © 2012 Bancroft | All rights reserved
  • 23. Selection of Devices • Results of assessment will guide the decision making process, but the deciding factor has to be the user. • Appropriate choices will provide communication independence. • Incorrect decisions will lead to system abandonment. © 2012 Bancroft | All rights reserved
  • 24. Selection of Devices • Trial • Trial • Trial © 2012 Bancroft | All rights reserved
  • 25. Selection of Devices Writepad app DynaVox Prentke-Romich Saltillo © 2012 Bancroft | All rights reserved
  • 26. Selection of Devices • What matches the users communication needs, language level, physical abilities? • What is the user comfortable with? • Consider warranties • Consider durability • Consider customer service © 2012 Bancroft | All rights reserved
  • 27. Funding • Medicaid, Major Medical, TBI fund, VA, Private Charities, DVR and DDD fund dedicated communication devices. -SLP and or AAC report/ letter of medical necessity -doctor’s script -Assignment of Benefits form -insurance cards -company funding paperwork -insurance denial http://www.state.nj.us/humanservices/dds/document/resourse © 2012 Bancroft | All rights reserved
  • 28. Funding • Order all accessories with device • Purchases are for 5 years. • Consider warranties • Consider durability • AAC, VOCA, medical necessity © 2012 Bancroft | All rights reserved
  • 29. Implementing and Maintaining AAC • Less than 10% of adult AAC users and less than 25% of family members and caregivers of AAC users report receiving professional support to effectively implement AAC. • Close to 20% of the professionals and close to 30% of the family members and caregivers consider the professional supporting the AAC user not or only slightly knowledgeable on AAC. • Family members and caregivers report that only 20% of the AAC users in their care use AAC for the full range of communication functions, such as starting and changing a conversation. Results of 2012 survey from U of San Diego and California State U http://www.assistiveware.com/taking-pulse-augmentative-and-alternative- communication-ios © 2012 Bancroft | All rights reserved
  • 30. Implementing and Maintaining AAC • Programming needs to stay consistent with users’ communication abilities and needs • All need to be trained on programming and users’ language level/needs © 2012 Bancroft | All rights reserved
  • 31. Implementing and Maintaining AAC Regardless of choice, the device/tool must • fit with the user’s skill level • communicate what the user wants to say • be easy for the user to use • be what the user wants to use © 2012 Bancroft | All rights reserved
  • 32. Implementing and Maintaining AAC • Interactive learning • Access or location and function • Demonstrate • Training is for everyone © 2012 Bancroft | All rights reserved
  • 33. Implementing and Maintaining AAC • User Groups • Client focused • Family and client focused © 2012 Bancroft | All rights reserved
  • 34. Conclusion • Integration of a comprehensive communication assessment and selection process, leads to a functional, independent communicator. © 2012 Bancroft | All rights reserved
  • 35. Thank You! Barbara Goodman: bgoodman@bnh.org Heather Kriesman: hkriesman@bnh.org © 2012 Bancroft | All rights reserved