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Collaborative RESearch Team to study psychosocial issues in
               Bipolar Disorder (CREST.BD):


 ‘Advancing bipolar disorders research
           via collaborative
       knowledge translation’
Introduction
• Multidisciplinary network of researchers, health care providers and community
  members researching and exchanging knowledge about psychological and social
  factors in BD
• Aim of enhancing the wellness of people living with the condition
• Create and test innovative ways of exchanging knowledge and expertise
• People with lived experience of BD, their health care providers and families are
  actively engaged in the cycle of research and knowledge exchange
CREST.BD Network Structure

Listening Members: Community Consultation
Group, online and social media community




Collaborators & Partners : Clinician & advocacy
organizations, formalized Project Advisory Group



Core Team Members: (Peer) Researchers &
healthcare providers, core staff
Mixed Methods               Qualitative            Quantitative




Knowledge Translation


                                          Methods
                           •Membership: academic researchers, people with
                        lived-experience, family members, health care providers
                        •Multidisciplinary: psychology, psychiatry, criminology,
                               nursing, gerontology, genetic counselling
                              •Expertise: wide range of BD specialisation
                            •Focus: integrated knowledge translation (KT)
                                                                                          Stigma
                             •Emphasis: community-based participatory
Psychosocial
Treatment
                                         research methods




          Psychopathology      Clinician Researcher            Recovery               Support Staff
Results
             Development of four pillars of research

                       Quality                                 Psycho-
  Wellness               of                  Stigma             social
                        Life                                 Treatments




    Advancing                                                    CBT & PE,
 research into BD   Advancing quality       Advancing BD            CPD
self-management     of life assessment     stigma research    courses, family-
   strategies &     in research, daily       & treatment          focused
  dissemination     life & clinical care    interventions    therapies, geneti
       tools                                                   c counselling
Results Cont’d
   Focus on knowledge translation (KT) strategies to swiftly and
      effectively disseminate research findings in core pillars




                                Knowledge             Develop ‘research
Theatrical performance
                             dissemination &         snapshots’ – general
  (live show & DVD
                             engagement via         audience summaries of
  events) targeting
                          website, social media &     research grants &
         stigma
                            video share sites            publications
Conclusion
CREST.BD Model has potential to pay dividends in improving the
           quality & effectiveness of BD research:




• Allows for development of research hypotheses that are of high relevance to
  those affected by BD
• Improves research recruitment and retention, and quality of data
• Increases relevance and pragmatism of new treatment interventions
• Empowers patients & reduce BD-related stigma
Acknowledgment:
   CREST.BD’s work is made possible by a 3-year Network Catalyst –
Knowledge Translation grant provided by Canadian Institutes for Health
             Research, Canada’s federal funding agency.

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Overview of CREST.BD: A Pan-Canadian Research & Knowlegde Exchange Network

  • 1. Collaborative RESearch Team to study psychosocial issues in Bipolar Disorder (CREST.BD): ‘Advancing bipolar disorders research via collaborative knowledge translation’
  • 2. Introduction • Multidisciplinary network of researchers, health care providers and community members researching and exchanging knowledge about psychological and social factors in BD • Aim of enhancing the wellness of people living with the condition • Create and test innovative ways of exchanging knowledge and expertise • People with lived experience of BD, their health care providers and families are actively engaged in the cycle of research and knowledge exchange
  • 3. CREST.BD Network Structure Listening Members: Community Consultation Group, online and social media community Collaborators & Partners : Clinician & advocacy organizations, formalized Project Advisory Group Core Team Members: (Peer) Researchers & healthcare providers, core staff
  • 4. Mixed Methods Qualitative Quantitative Knowledge Translation Methods •Membership: academic researchers, people with lived-experience, family members, health care providers •Multidisciplinary: psychology, psychiatry, criminology, nursing, gerontology, genetic counselling •Expertise: wide range of BD specialisation •Focus: integrated knowledge translation (KT) Stigma •Emphasis: community-based participatory Psychosocial Treatment research methods Psychopathology Clinician Researcher Recovery Support Staff
  • 5. Results Development of four pillars of research Quality Psycho- Wellness of Stigma social Life Treatments Advancing CBT & PE, research into BD Advancing quality Advancing BD CPD self-management of life assessment stigma research courses, family- strategies & in research, daily & treatment focused dissemination life & clinical care interventions therapies, geneti tools c counselling
  • 6. Results Cont’d Focus on knowledge translation (KT) strategies to swiftly and effectively disseminate research findings in core pillars Knowledge Develop ‘research Theatrical performance dissemination & snapshots’ – general (live show & DVD engagement via audience summaries of events) targeting website, social media & research grants & stigma video share sites publications
  • 7. Conclusion CREST.BD Model has potential to pay dividends in improving the quality & effectiveness of BD research: • Allows for development of research hypotheses that are of high relevance to those affected by BD • Improves research recruitment and retention, and quality of data • Increases relevance and pragmatism of new treatment interventions • Empowers patients & reduce BD-related stigma
  • 8. Acknowledgment: CREST.BD’s work is made possible by a 3-year Network Catalyst – Knowledge Translation grant provided by Canadian Institutes for Health Research, Canada’s federal funding agency.