1. Niemann-Pick Type C What is it?

2. The name Niemann-Pick originated from two German pediatricians

3. Albert Niemann was the doctor who first identified Type A in 1914

4. and LudwickPick identified Type B in 1927

5. Niemann-Pick disease is somewhat like Alzheimer’s Disease It is sometimes referred to as The Childhood Alzheimer's

6. People with Niemann-Pick Type C are unable to metabolize cholesterol in lysosomes

7. Because of this, extreme amounts of cholesterol collect Within the spleen, liver and brain

8. Niemann- Pick Type C usually affects school age children Although the disease can strike at any time from early infancy to adulthood

9. Symptoms include: an enlarged spleen and/or liver, jaundice, and difficulty with upward and downward eye movements

10. Other symptoms may include: clumsiness, difficulty with walking, difficulty with controlling limb movements and slurred or irregular speech

11. Learning difficulties, inability to swallow and other neurological abnormalities:

12. Life expectancy for this disease is variable depending on the severity of the symptoms.

13. In spite of this, life expectancy after diagnosis is only 6 - 10 years.

14. Niemann-Pick Type C is believed to be an important link in the battles against heart disease, Alzheimer's, stroke and seizure disorders

15. Children rarely live to see their 15th birthday.

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