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Pechkucha compress
- 1. creativity under dark skies
- 2. to that getting from this
- 3. pace of change can be threatening
- 6. looking between the lines
- 7. avoiding the green-eyed monster
- 8. learning from political movements
- 9. real heroes
- 11. young people, new stories
- 12. getting over the stereotypes we internalise
- 13. strong has many meanings
- 15. recognising trauma and complexity
- 16. own device technology is key
- 18. positive images in plain view
- 19. scotland’s future and welfare
- 20. connect openly with other agendas
Hinweis der Redaktion
- Creativity under dark skies has a dual meaning.It’s what people need to find the capacity to use to find their recoveryIt’s what we all need to do in the seven years between now and 2020, as the effect of financial restrictions bite.So, imagine being there…First some challenges, then some ideas.
- It’s a cliché to show the ideal as a path with a light at the end, with a walker moving with a friend or loved one towards a bright future.But sorting out what might work and what choices to make from a bewildering set of options is often what we face in mental health, and to those looking for recovery.It’s a truism to say that we’re looking for one linear path, but by 2020 I’d hope to see a range of ‘guide’ roles in mental health, formal and informal, peer led and otherwise to help people make choices.
- It’s beyond question that between now and 2020, we face change. Think about where you were in 2006, what change has happened since then.But, change has always been a challenge in mental health, whether you have lived experience, whether you are a health professional or whether you work in the third sector.This is a brave snail. I have no idea if he made it to the top of the slope, but he was certainly moving at a different pace to the man behind.People are likely to move at different paces in the next few years, some will be at the leading edge, others not so much. But I know over the past few years I’ve personally come to recognise the fact that everyone is in some kind of ‘change process’ and that not everyone adopts the next big thing. So for the next few years, we’re all going to need to be tolerant of other’s capacity to take on change and innovation.
- Looking to the future can be like looking for a needle in a haystack. It is a privilege that we don’t always have, whether because we aren’t able to see beyond tonight because of being unwell, or because of the operational priorities we have day to day to keep moving forward.It’s great today to have that opportunity.Though it is hard, we will have to think about what public services and our own lives might belike going forward. It’s great to see the clear potential for mental health in things like the Christie Commission Report, but as mental health sector we need to find the time to engage with the future developments outside mental health that will shape the climate within.The potential for example for empowered communities and local decision making is huge, but we need to be mindful there of both the potential for this kind of thing to reduce stigma and discrimination, but also the potential for stigma to become discrimination in these contexts and for people with complex mental health problems to miss out on these benefits.
- Whilst we look to the future, we have to make sure we don’t bump into any rhinos that we missed when they were just specks on the horizon.There are a few huge obstacles that need to be got around somehow. Some of them might even be endangered species. I could mention welfare reform, I could mention budget restrictions, I could mention stigma, I could mention self stigma. And I will.But the biggest obstacle is fear. Franklin Roosevelt said ‘You have nothing to fear but fear itself’. Eleanor Roosevelt said that ‘nobody can make you feel inferior without your consent’Both admirable statements. But harder to apply in mental health, where fear and perceptions of inferiority are both things that undermine us.It’s idealistic but in 2020 I’d like to see more rhinos in the wild and less fear in the mental health sector.
- Negative space in art, is the space around and between the subject(s) of an imageQuite often the things that enable recovery to happen are things that are outside the boundaries, or between the lines. We might find out that art sets us free when we are in hospital, or we might find friendship on an internet forum.Looking forward we need to think less about the services we offer or use and the systems we have. Pathways are important, and evidence matters, but we have to also be able to work off the path, and look for evidence away from the usual methodologies and subjects. We also need to appreciate that our experiences are the sum of dark and light in any given situation.
- This is my green eye. It was intended to illustrate a day when I had a sickness bug. But it might also illustrate days when I see that somebody else is doing a project I’d have loved to do, or attending an amazing event.Competition exists amongst stakeholders in recovery, within and between sectors, individuals and groups. It always will do, and though it’s very ‘markety’ to talk about it like that, it’s reality.For 2020 I think we need to apply Open Source and Open Data principles to recovery. We should all be comfortable sharing what we’ve learned, what we think.We can test and develop, and the collaborations and shared understanding that could emerge from working in that way could be very strong.The second half of my presentation is a bit about some of the things I think are important for that journey.
- I think the mental health movement has a lot to learn, or recover, from other social and political movementsThere’s things to learn from movements like the LGBT rights movement, where political activism at grassroots and strategic level enabled the cause of equality to be firmly embedded in the community, in political circles, and now, slowly, in the public mind.Not everyone is a fighter, but the efforts of the early Stonewall campaigners and others like them gradually allowed LGBT people in all walks of life to start lending their power to the movement.Thousands more people experience mental ill health and recover than ever align themselves with the lived experience movement. If we want to make recovery a given, and it won’t be before 2020, we need to ensure that the obstacles outside mental health are addressed and that the people whose voices are never heard are at least quietly able to pull for mental health in the areas of life they have influence.For me that means abandoning the identification of identity through the use of services. It’s more than semantics for me as I haven’t used services for years, and don’t feel part of the ‘user’ movement, yet my work and my life is shaped by the lived experience I have.
- In 2020 I hope there will be enough role models for people experiencing mental ill health that everyone can benefit from connecting with others who share similar experiences. So, more real heroes in the media, more peer support both formal and informal, and more mental health ‘lifestyle’…in or out of the ‘specialist’ mental health environment.
- These are pennants created by women in Glasgow who asylum seekers or refugees. They were made as part of a project that MHF is working on with the Scottish Refugee Council and Freedom from Torture called Amaan. We’ve been working with women who have experience of pre-migration trauma to develop a training intervention for staff like bus drivers, UK Borders Agency staff and health service staff to help them understand more about the mental health challenges people face and have faced.Many of the women we worked with didn’t have the words to describe mental health and wellbeing, or didn’t have the voice to express what they felt. Using an arts approach alongside other discussion methods, the women have been able to shape the work of the project and improve their own self-advocacy and wellbeing.By 2020 I hope we will have reached more of those who need to find words, or voice, to enable them to move forward.
- For the last year I’ve been blown away by working with young people, three if the UK’s leading grant funders and digital technology experts to design some projects that use technology to solve some of the challenges young people face. It’s been great to see young people far more open about mental health, and it will be interesting to see the difference that young people like this make as they start making their mark in mental health, and outside.
- OK. I’m sorry for this one. It is me. I put it there because for years I believed, because everyone I wanted to like me at school told me, that being fat meant ugly and useless. We have a lot to learn about self-stigma and the effect that causes, and addressing that is a huge challenge for 2020. So much of what the disability movement has learned and won has been on the back of things like the social model of disability, where it’s the discriminator's problem, not the disabled person.
- Lots of people think people with mental health problems are weak, or fragile. In fact we often do more than cope…we often learn to thrive in new ways.We should celebrate the things that make us stronger and become part of our learning and lives through mental ill health. It’s a transferable skill like any other.
- Everything we do involves our brains. Everything in mental health involves our brains.By 2020 we need to make friends with neuroscience, and continue to call for better basic neuroscience research. The forthcoming EU research 2020 programme will give opportunities for that for some, and we need to ensure that better basic understanding helps us across all areas of mental health, including, but not restricted to drugs.
- A while ago I said we needed to read between the lines. So often the negative space in a person’s life includes experiences of trauma. Equally, people don’t tend to have simple problems, and those people with the most tangles lives have the hardest time finding recovery. By 2020 we need to be better able to acknowledge and manage trauma, and complexity. We need to make space for people to address trauma if they want, and we need to recognise that we’ve gone past the days of one problem, one medical solution. We’re starting on that road now…
- In 2006 I got a phone with WAP, and it took me weeks to get a broadband connection installed. I’d already been using the internet to give and receive informal peer support for my mental health for a decade.As we move forward, own device technology will be very important as people rely less on landlines and computers, and more on devices they carry. The potential for this is limitless, but we also need to be very careful that we don’t push people who aren’t ready towards exclusively online solutions, but develop them together.There are exciting developments coming with this in Scotland, through Project Ginsberg, but by 2020, I hope and expect that people will choose to use technology as an essential but not exclusive part of their recovery.
- This is a storyboard…part of a service design process for one of the innovation labs project. In this case it’s Madly In Love, a website for young people to give relationship information, tips and advice to young people with mental health problems and their friends/partners.Co-production is the big buzz word at the moment. I think genuine co-production and a methodical design approach to scoping challenges and addressing them might be the thing that turns ‘consultation’ into ‘empowerment’ in mental health. With Innovation labs 56 people created 147 ideas, refined them to 10, developed those together, and then pitched those to three of the UK’s biggest funders, who are now funding nine of these.
- As a photographer, I would love to never see another stock image of a person holding their knees and rocking. We need to put out more positive images and change the images that evoke mental health. This is Liberton United FC, a youth football team who have Action on Depression as their kit sponsor. The message is in front of people every weekend.This picture appeared all over the UK in a street exhibition about the role of the web in people’s lives, as a positive message about mental health.
- Welfare reform is the thing I hear most about on Twitter and in real life meetings as being the stressor and the obstacle in people’s mental health journey. Undoubtedly the fear caused by repeated assessments, uncertainty about financial means and ability to plan and a very real media portrayal of disabled people as ‘scroungers’ is hurting people, and in all likelihood placing them at risk.By 2020 I hope we will have found our way to a system of social protection that is affordable, but does not disadvantage those with mental health problems or fluctuating conditions. Whatever happens in the independence debate, it’s very unlikely we will return to what we had.
- My last point….That is a plea to make sure that by 2020 we try to mainstream mental health across all policy areas, in health and beyond.I have recently been working on Self-Directed Support in mental health and it’s become clear that the mental health movement isn’t comfortable with where it fits with personalisation, which means that there is a risk that some people who could benefit from self-directed support may not access it. Moreover, there’s been a clear call for engagement by the lived experience movement in giving information about SDS, a challenge which I hope will be taken up.We need to open doors, not close them, and look for opportunities where there are challenges.Back to one of my very first points…we need to think creatively, no matter how dark the skies or how hard it seems.