Orthopedic Musculosketal Conditions, Achondroplasia, Scoliosis, Hip Dysplasia, Spina Bifida

1. Presented by : Rhonda Hodges & Tresce Willis

2. Definitions of the Disabilities

3. Definitions of the Disabilities (continued)

4. Rate of Occurrence

5. Rate of Occurrence (continued)

6. Causes

7. Causes (Continued)

8. Behavioral Characteristics

9. Behavioral Characteristics (Continued)

10. Physical Characteristics

11. Physical Characteristics (continued)

12. Educational Needs

13. Educational Needs (Continued)

14. Classroom Strategies Meet with the parents and the student early in the school year or even in June before enrolment to help determine individual student needs. Determine specific learning requirements based on recent assessment. Develop an Individual Education Plan (IEP). Recognize that the student requires extensive medical service which may be time-consuming and frustrating. The teacher is part of a team helping the student in learning to cope with minimal assistance. If the student is comfortable with it, and depending on the age of the group, talk to the class about the disorder. Encourage other students to find out how they can assist and when they should assist. Ask the school nurse, an occupational therapist, physiotherapist, a doctor for information and assistance. Accommodate absences from school for medical purposes by providing information and assistance for school liaison teachers and parents.

15. Classroom Strategies (Continued) Expect appropriate behavior. Students are accountable for their behavior whether disabled or not. Expect the same effort from all students in the class. If there are things the student with the disorder cannot do, give an equivalent task. Be as fair with the student with the disorder as with other students, e.g., intervening in teasing. The teacher's attitudes and actions set an example in fostering feelings of self-respect and dignity to grow. Assist the student to develop organizational skills by keeping books and school materials within easy reach, and by making lists and schedules of assignments, tests, special events, etc. Encourage the use of computers, typewriters and other aids to increase speed and to overcome any difficulties of hand control. Refer to the school occupational therapist for assistance. Orient the student to the school, especially for ramps, bathrooms with modifications and access to elevator. The school occupational therapist or physiotherapist can assist with adaptations to the environment.

16. Classroom Strategies (Continued) Work closely with the parents to reinforce both what is happening at school and at home. Make sure that others in the school (a teacher, administrator, counselor, substitute...) are familiar with the student's routine and requirements. As lack of bowel and bladder control is one of the greatest blocks to social acceptance for the student, ensure privacy and encourage independence. It is essential to ask the parents or health professionals about the student's routine. For activities outside the school, ensure that appropriate arrangements are made so the student can participate as much as possible. Encourage active participation in the classroom. Some subjects may need modification such as physical education and technology. Assist the student in forming social relationships. Students with rare disorders need positive social interactions as much as other students.

17. Parent Resources http://www.rxlist.comDetailed descriptions, usage directions, and side effects of prescription drugs approved for the US market, searchable by drug name; helpful in providing information similar to pharmaceutical package inserts on NSAIDs, pain medications, muscle relaxants, antidepressants and other drugs commonly prescribed http://www.patienttravel.orgThis nonprofit organization helps arrange and subsidize travel to medical facilities for treatment; it may be useful for the patient who needs to travel long distances, particularly by air, to a specialized doctor for treatment http://kidshealth.org/ http://www.supportforfamilies.org/internetguide/specdisab.html

18. Resources Spina Bifida Association4590 MacArthur Boulevard, NW Suite 250Washington , DC 20007Phone: 202-944-3285Toll Free: 800-621-3141Fax: 202-944-3295 www.spinabifidaassociation.org National Scoliosis Foundation5 Cabot PlaceStoughton, MA 02072(781) 341-6333Fax: (781) 341-8333Email: Scoliosis@aol.com Little People of America, Inc.250 El Camino RealSuite 201Tustin, CA 92780Tel: (714)368-3689Fax: (714)368-3367Tel: (888)572-2001Email: info@lpaonline.orghttp://www.lpaonline.org Hip Dysplasia http://www.hip-baby.org

19. Organizations MAGIC Foundation6645 W. North AvenueOak Park, IL 60302Tel: (708)383-0808Fax: (708)383-0899Tel: (800)362-4423Email: mary@magicfoundation.orghttp://www.magicfoundation.org March of Dimes Birth Defects Foundation1275 Mamaroneck AvenueWhite Plains, NY 10605Tel: (914)997-4488Fax: (914)997-4763Tel: (888)663-4637Email: Askus@marchofdimes.comhttp://www.modimes.org National Birth Defects Prevention Network. http://www.nbdpn.org National Organization for Rare Disorders55 Kenosia AvenuePO Box 1968Danbury, CT 06813-1968 Tel:(203) 744-0100Tollfree: (800) 999-6673 TDD Number: (203) 797-9590Fax;(203)798-2291 http://www.rarediseases.org Shriners Hospitals for Children International Shrine Headquarters, 2900 Rocky Point Dr., Tampa, FL 33607–1460. http://www.shrinershq.org

20. Bibliography http://www.healthofchildren.com/S/Spina-Bifida.html http://www.spinabifidasupport.com/lpcnervsys.htm http://www.healthofchildren.com/C/Congenital-Hip-Dysplasia.html http://www.bced.gov.bc.ca/specialed/awareness/65.htm http://emedicine.medscape.com/article/941280-followup http://www.mayoclinic.com/health/scoliosis/DS00194