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Can	
  Personal	
  Lifestreams	
  
Provide	
  Data	
  for	
  Public	
  Good?	
  
                 #sxsw	
  #lifedata	
  
                          	
  
          Steve	
  Brown	
  @brown2020	
  
         Shawn	
  Achor	
  @shawnachor	
  
Lifestream:	
  A	
  -me-­‐ordered	
  stream	
  of	
  
documents	
  that	
  func-ons	
  as	
  a	
  diary	
  of	
  
your	
  electronic	
  life;	
  every	
  document	
  you	
  
create	
  and	
  every	
  document	
  other	
  people	
  
send	
  you	
  is	
  stored	
  in	
  your	
  lifestream.	
  
	
  
-­‐	
  Eric	
  Freeman	
  and	
  David	
  Gelernter,	
  1995	
  
More	
  
lifestream	
  
data	
  exists	
  
today	
  than	
  
ever	
  before	
  
imagined	
  
We	
  tend	
  to	
  focus	
  on	
  the	
  side	
  of	
  
the	
  lifestream	
  coin	
  can	
  bite.	
  
“If	
  I’ve	
  Googled	
  “diabetes”	
  
for	
  a	
  friend	
  or	
  “date	
  rape	
  
drugs”	
  for	
  a	
  mystery	
  I’m	
  
wriDng,	
  data	
  aggregators	
  
assume	
  those	
  searches	
  
reflect	
  my	
  own	
  health	
  and	
  
procliviDes.”	
  

Facebook	
  Is	
  Using	
  You	
  
February	
  4,	
  2012	
  
“Your	
  wallet	
  PC	
  will	
  be	
  able	
  to	
  keep	
  audio,	
  Dme,	
  
locaDon,	
  and	
  eventually	
  even	
  video	
  records	
  of	
  
everything	
  that	
  happens	
  to	
  you.	
  It	
  will	
  be	
  able	
  to	
  
record	
  every	
  word	
  you	
  say	
  and	
  every	
  word	
  said	
  to	
  
you,	
  as	
  well	
  as	
  your	
  body	
  temperature,	
  your	
  blood	
  
pressure,	
  the	
  barometric	
  pressure,	
  and	
  a	
  variety	
  of	
  
other	
  data	
  about	
  you	
  and	
  your	
  surroundings.…	
  It	
  will	
  
be	
  able	
  to	
  track	
  your	
  interacDons	
  with	
  the	
  network
—all	
  of	
  the	
  commands	
  you	
  issue,	
  the	
  messages	
  you	
  
send,	
  the	
  people	
  you	
  call	
  or	
  who	
  call	
  you.”	
  
The	
  previous	
  quote	
  
was	
  from	
  Bill	
  Gates	
  in	
  
1995	
  in	
  his	
  book	
  The	
  
Road	
  Ahead	
  
There	
  are	
  two	
  sides	
  of	
  
the	
  lifestream	
  coin.	
  
How	
  can	
  personal	
  
lifestream	
  data	
  being	
  
used	
  for	
  good?	
  
Catch.com:	
  A	
  private	
  lifestream	
  for	
  
your	
  own	
  goals	
  and	
  projects,	
  
producRvity	
  and	
  self-­‐reflecRon	
  
Example:	
  Lifestream	
  data	
  can	
  be	
  shared	
  and	
  aggregated	
  for	
  shared	
  goals	
  and	
  projects,	
  
including	
  ciRzen	
  science	
  and	
  environment	
  protecRon	
  from	
  apps	
  related	
  to	
  topics	
  you	
  care	
  about.	
  
Example:	
  California	
  Roadkill	
  ObservaRon	
  System	
  aggregates	
  data	
  from	
  concerned	
  ciRzens	
  
Example:	
  CiRzen-­‐reported	
  data	
  tracking	
  the	
  impact	
  and	
  status	
  of	
  the	
  Gulf	
  Oil	
  Spill	
  
Example:	
  Ushahidi	
  is	
  a	
  plaZorm	
  for	
  aggregaRng	
  ciRzen-­‐reported	
  data	
  on	
  any	
  issue.	
  
Started	
  in	
  Africa	
  to	
  report	
  and	
  share	
  reports	
  of	
  violence	
  a[er	
  an	
  elecRon	
  in	
  Kenya.	
  
Juliana	
  Ro:ch	
  -­‐	
  
ExecuRve	
  Director	
  
Ushahidi	
  is	
  now	
  used	
  worldwide,	
  including	
  in	
  
applicaRons	
  for	
  public	
  health	
  surveillance	
  in	
  the	
  US.	
  
Health	
  Buddy:	
  Successful	
  early	
  pioneer	
  of	
  
self-­‐reported	
  personal	
  health	
  status	
  data	
  
designed	
  to	
  improve	
  chronic	
  care	
  and	
  
reduce	
  hospital	
  admissions.	
  
AutomaRcally	
  adding	
  lifestream	
  
data	
  from	
  drug	
  delivery	
  devices	
  
can	
  help	
  idenRfy	
  and	
  address	
  
environmental	
  causes	
  of	
  asthma	
  
and	
  pa^erns	
  in	
  treatment	
  
What	
  if	
  we	
  had	
  the	
  lifestream	
  data	
  on	
  the	
  
100	
  year	
  old	
  smokers	
  who	
  DIDN’T	
  get	
  cancer?	
  
Perhaps	
  we	
  could	
  find	
  some	
  clues	
  that	
  lead	
  us	
  
toward	
  new	
  treatments	
  and	
  cures.	
  
Shawn	
  Achor	
  studies	
  the	
  posiRve	
  
outliers	
  to	
  help	
  understand	
  how	
  we	
  
all	
  can	
  improve	
  ourselves.	
  This	
  field	
  
will	
  advance	
  rapidly	
  as	
  more	
  and	
  
more	
  lifestream	
  data	
  starts	
  to	
  be	
  
shared	
  for	
  public	
  good.	
  

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Can Personal Lifestreams Provide Data for Public Good

  • 1. Can  Personal  Lifestreams   Provide  Data  for  Public  Good?   #sxsw  #lifedata     Steve  Brown  @brown2020   Shawn  Achor  @shawnachor  
  • 2. Lifestream:  A  -me-­‐ordered  stream  of   documents  that  func-ons  as  a  diary  of   your  electronic  life;  every  document  you   create  and  every  document  other  people   send  you  is  stored  in  your  lifestream.     -­‐  Eric  Freeman  and  David  Gelernter,  1995  
  • 3. More   lifestream   data  exists   today  than   ever  before   imagined  
  • 4. We  tend  to  focus  on  the  side  of   the  lifestream  coin  can  bite.  
  • 5. “If  I’ve  Googled  “diabetes”   for  a  friend  or  “date  rape   drugs”  for  a  mystery  I’m   wriDng,  data  aggregators   assume  those  searches   reflect  my  own  health  and   procliviDes.”   Facebook  Is  Using  You   February  4,  2012  
  • 6. “Your  wallet  PC  will  be  able  to  keep  audio,  Dme,   locaDon,  and  eventually  even  video  records  of   everything  that  happens  to  you.  It  will  be  able  to   record  every  word  you  say  and  every  word  said  to   you,  as  well  as  your  body  temperature,  your  blood   pressure,  the  barometric  pressure,  and  a  variety  of   other  data  about  you  and  your  surroundings.…  It  will   be  able  to  track  your  interacDons  with  the  network —all  of  the  commands  you  issue,  the  messages  you   send,  the  people  you  call  or  who  call  you.”  
  • 7. The  previous  quote   was  from  Bill  Gates  in   1995  in  his  book  The   Road  Ahead  
  • 8. There  are  two  sides  of   the  lifestream  coin.   How  can  personal   lifestream  data  being   used  for  good?  
  • 9. Catch.com:  A  private  lifestream  for   your  own  goals  and  projects,   producRvity  and  self-­‐reflecRon  
  • 10. Example:  Lifestream  data  can  be  shared  and  aggregated  for  shared  goals  and  projects,   including  ciRzen  science  and  environment  protecRon  from  apps  related  to  topics  you  care  about.  
  • 11. Example:  California  Roadkill  ObservaRon  System  aggregates  data  from  concerned  ciRzens  
  • 12.
  • 13. Example:  CiRzen-­‐reported  data  tracking  the  impact  and  status  of  the  Gulf  Oil  Spill  
  • 14. Example:  Ushahidi  is  a  plaZorm  for  aggregaRng  ciRzen-­‐reported  data  on  any  issue.   Started  in  Africa  to  report  and  share  reports  of  violence  a[er  an  elecRon  in  Kenya.  
  • 15.
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  • 20. Juliana  Ro:ch  -­‐   ExecuRve  Director  
  • 21. Ushahidi  is  now  used  worldwide,  including  in   applicaRons  for  public  health  surveillance  in  the  US.  
  • 22.
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  • 29. Health  Buddy:  Successful  early  pioneer  of   self-­‐reported  personal  health  status  data   designed  to  improve  chronic  care  and   reduce  hospital  admissions.  
  • 30. AutomaRcally  adding  lifestream   data  from  drug  delivery  devices   can  help  idenRfy  and  address   environmental  causes  of  asthma   and  pa^erns  in  treatment  
  • 31. What  if  we  had  the  lifestream  data  on  the   100  year  old  smokers  who  DIDN’T  get  cancer?   Perhaps  we  could  find  some  clues  that  lead  us   toward  new  treatments  and  cures.  
  • 32. Shawn  Achor  studies  the  posiRve   outliers  to  help  understand  how  we   all  can  improve  ourselves.  This  field   will  advance  rapidly  as  more  and   more  lifestream  data  starts  to  be   shared  for  public  good.