- Metastatic breast cancer poses significant challenges as it is incurable and can recur even after early-stage treatment, with over 500,000 deaths worldwide annually. Living with metastatic disease differs profoundly from early-stage experiences. - Two surveys of over 1,000 metastatic breast cancer patients across countries found high levels of fear, confusion and depression upon diagnosis. While most received family support, many felt stigma and isolation. Information seeking helped patients cope. - More research funding and clinical trials inclusive of quality of life are needed. Counting metastatic cases is important to assess needs and allocate resources for supportive care and treatments that meaningfully extend survival and quality of life for these patients. Guidelines can help patients navigate a still deadly disease.

1. Musa Mayer , MS, MFA Patient Advocate AdvancedBC.org Living with Advanced Breast Cancer: Challenges and Opportunities

6. Making a difference

12. Communities of support