BreastCancerTrials.org is a patient-centered, non-profit resource that provides personalized matching of breast cancer patients to clinical trials. It aims to make information about clinical trials more accessible and easy to understand for patients. The site launched in 2005 as a pilot and became a nationwide service in 2008. It currently has around 2,200 subscribers and sees 30% of its traffic from return visits. The goal is to encourage more breast cancer patients to consider clinical trials as a routine option for their care.

1. BreastCancerTrials.org:
Personalized Matching to Clinical Trials
Elly J. Cohen, Ph.D.
Educate, Advocate, Navigate
Breast Health Summit-Breast Health Collaborative of Texas
October 21, 2011

2. Every advance in breast cancer care
has been the result of a clinical trial
However, less than 3% of eligible adult
cancer patients participate in trials
New York Times, August 2009

4. Joan Joanne
Schreiner Tyler
• Wanted to consider trials as an option for care
• Physicians didn’t refer them to trials
• Turned to the Internet, BUT found it:
• Overwhelming
• Not personalized
• Not always current

5. Patient-centered resource for information and access to
clinical trials, dedicated to breast cancer
◦ Personalized, non-profit matching service
◦ Easy-to-read trial information
◦ 2005: Pilot
◦ 2008: Nationwide service

6. BreastCancerTrials.org
Demo

7. Weekly email to users, if newly listed trial matches their profile
 ~2200 subscribers
 Return visits account for 30% of traffic

8. Matching QuickViews Navigation
BreastCancerTrials.org
Encourage all patients to consider clinical trials
as a routine option for care

9. Thank you!
Visit us at:
www.BreastCancerTrials.org

10. Many Ways to Participate
• Surveys
• Registries
• Donating blood/saliva