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BODIES &
BUILDINGS
NYU ITP LECTURE COURSE SPRING 2013
CLASS 3: FEBRUARY 25, 2013
JEN VAN DER MEER @JENVANDERMEER WWW.JENVANDERMEER.COM
BODIES IN THE NEWS




February 25, 2013




                      2	
  
February 25, 2013




                    3	
  
SHARE OF STOMACH 
On Lunchables: 
Kraft Lunchables pre-packed lunches, loaded with sugar and sodium,
and bringing in nearly $1 billion for Oscar Meyer over the years, were
financially backed by Philip Morris when they were created and
marketed to harried moms in the 1980s. Though they’ve been criticized
for being unhealthy to children,
“Well, that’s what the consumer wants, and we’re not putting a gun to
their head to eat it,” admits Geoffrey Bible, former CEO of Philip
Morris. “That’s what they want. If we give them less, they’ll buy less, and
the competitor will get our market. So you’re sort of trapped.” 



February 25, 2013




                                                                              4	
  
SENSORY-SPECIFIC SATIETY
The tendency for big distinct flavors to overwhelm the brain,
which responds by depressing your desire to have more. 

Pique the taste buds enough to be alluring but don’t have a distinct,
overriding single flavor that tells the brain to stop eating.







February 25, 2013




                                                                        5	
  
BLISS POINT 
Creating the greatest amount of crave. 

“There’s no moral issue for me,” he said. “I did the best science I could.
I was struggling to survive and didn’t have the luxury of being a moral
creature. As a researcher, I was ahead of my time.” 

- Howard Moskowitz- studied mathematics and holds a Ph.D. in
experimental psychology from Harvard, runs a consulting firm in White
Plains, where for more than three decades he has “optimized” a variety
of products for Campbell Soup, General Foods, Kraft and PepsiCo. 


February 25, 2013




                                                                             6	
  
READING/VIEWING 
Read: The quantified self, Counting every moment. The
Economist, March 3, 2012. 

Additional videos from Todd Park
Todd Park: Opening Data for Social Change 

Optional: 
Social fMRI: Investigating and shaping social mechanisms in the
real world. Nadav Aharonya, Wei Pana, Cory Ipa, Inas
Khayala,b, Alex Pentlanda. Persuasive and Mobile Computing.
Vol 7, 2011, 643-659. 
Hacking Healthcare 
Chapter 6: Patient Facing Software

February 25, 2013





                                                                  7	
  
ASSIGNMENT 
Write a one page essay to be presented in class. Do you find
the quantified self movement appealing? Give examples of
how you would imagine using data to monitor your own
health, or the health of someone you care for. 







February 25, 2013




                                                              8	
  
WRITING AN ARGUMENT 
Exercise – how to argue 
This is taken from the Op-Ed structure. From the Op-Ed Project)
Format: 
1.  Introduce from the context of the current discussion (LEDE)
    or news hook 
2.  State your thesis argument – what do you believe
3.  Provide three relevant examples proving your point (evidence
    point one, evidence point two, then conclusion)
4.  “To be sure” Provide the counterpoint, then argue against the
    counterpoint.
5.  Conclude with a recommended action. 

February 25, 2013




                                                                    9	
  
TRUE COST OF
HEALTH
& END OF LIFE CARE
BODIES & BUILDINGS




                      10	
  
PLACES TO INTERVENE IN A SYSTEM: 
12. Constants, parameters, numbers (subsidies, taxes, standards)
11. The sizes of buffers and other stabilizing stocks, relative to their flows
10. The structure of material stocks and flows (transport networks, population age structures)
9. Length of delays, relative to the rate of system change
8. The strength of negative feedback loops, relative to the impacts they are trying to correct against
7. The gain around driving positive feedback loops
6. The structure of information flows (who does and does not have access to what kinds of information)
5. The rules of the system (such as incentives, punishments, constraints)
4. The power to add, change, evolve, or self-organize system structure
3. The goals of the system
2. The mindset or paradigm out of which the system – its goals, power structure, rules, its culture-arises
1. The power to transcend paradigms




                                                                                                          11	
  
February 25, 2013
12	
  
February 25, 2013
5 THE RULES OF THE SYSTEM 
The rules of the system define its scope, its
boundaries, its degrees of freedom. 
Power over the rules is real power. 
They are high leverage points. 
If you want to understand the deepes
malfunctions of systems, pay attention to the
rules, and to who has power over them. 






                                                13	
  
February 25, 2013
THE COST OF
HEALTH CARE

BODIES & BUILDINGS




                      14	
  
BITTER PILL 




                    15	
  
February 25, 2013
THE CHARGEMASTER
Every hospital’s internal price list. Decades ago it was a
document the size of a phone book; now it’s a massive
computer file, thousands of items long, maintained by every
hospital.




                                                             16	
  
February 25, 2013
THE COST CONUNDRUM
Americans like to believe that, with most
things, more is better. But research
suggests that where medicine is
concerned it may actually be worse.
For example, Rochester, Minnesota, where
the Mayo Clinic dominates the scene, has
fantastically high levels of technological
capability and quality, but its Medicare
spending is in the lowest fifteen per cent of
the country—$6,688 per enrollee in 2006,
which is eight thousand dollars less than the
figure for McAllen.
-Atul Gawande.
The Cost Conundrum. What a Texas town
can teach us about health care. The New
Yorker. June 1, 2009. 





                                                17	
  
February 25, 2013
18	
  
February 25, 2013
MORE IS WORSE 
In a 2003 study, another Dartmouth team, led by the internist Elliott
Fisher, examined the treatment received by a million elderly Americans
diagnosed with colon or rectal cancer, a hip fracture, or a heart attack.
They found that patients in higher-spending regions received
sixty per cent more care than elsewhere. They got more frequent
tests and procedures, more visits with specialists, and more frequent
admission to hospitals. Yet they did no better than other patients,
whether this was measured in terms of survival, their ability to function,
or satisfaction with the care they received. If anything, they seemed to
do worse.
That’s because nothing in medicine is without risks. Complications can
arise from hospital stays, medications, procedures, and tests, and when
these things are of marginal value the harm can be greater than the
benefits. 





                                                                             19	
  

February 25, 2013
COST VS. PREVENTION 
To make matters worse, Fisher found that patients in high-cost areas
were actually less likely to receive low-cost preventive services, such as flu
and pneumonia vaccines, faced longer waits at doctor and emergency-
room visits, and were less likely to have a primary-care physician. They
got more of the stuff that cost more, but not more of what they needed.







                                                                                20	
  
February 25, 2013
WHO MAKES THE
RULES?
“Health-care costs ultimately arise from the accumulation of individual
decisions doctors make about which services and treatments to write an
order for. The most expensive piece of medical equipment, as the saying
goes, is a doctor’s pen. And, as a rule, hospital executives don’t own the
pen caps. Doctors do.” 

-Atul Gawande








                                                                             21	
  
February 25, 2013
END OF LIFE CARE

BODIES & BUILDINGS




                      22	
  
COST OF END OF LIFE CARE




                            23	
  
February 25, 2013
COST OF END OF LIFE CARE




                            24	
  
February 25, 2013
STATE OF CARE




                    25	
  
February 25, 2013
DAYS IN HOSPITAL




                    26	
  
February 25, 2013
QUALITY OF DEATH
“Death, although inevitable, is distressing to contemplate and in many
cultures is taboo. Even where the issue can be openly discussed, the
obligations implied by the Hippocratic oath – rightly the starting point
for all curative medicine – do not fit easily with the demands of end-of-
life palliative care, where the patient’s recovery is unlikely and instead the
task falls to the physician (or more often, the caregiver) to minimize
suffering as death approaches.”
_Quality of Death. Economist Intelligence Unit. 2010. 




                                                                                 27	
  
February 25, 2013
PALLIATIVE CARE
Palliative care is care given to improve the quality of life of patients who
have a serious or life-threatening disease, such as cancer. The goal of
palliative care is to prevent or treat, as early as possible, the symptoms
and side effects of the disease and its treatment, in addition to the related
psychological, social, and spiritual problems. The goal is not to cure.
Palliative care is also called comfort care, supportive care, and symptom
management.
-National Cancer Institute 




                                                                                28	
  
February 25, 2013
HOSPICE 
Hospice is a special type of care in which medical, psychological, and
spiritual support are provided to patients and their loved ones when
cancer therapies are no longer controlling the disease. Hospice care
focuses on controlling pain and other symptoms of illness so patients can
remain as comfortable as possible near the end of life. Hospice focuses
on caring, not curing. The goal is to neither hasten nor postpone death.
If the patient’s condition improves or the cancer goes into remission,
hospice care can be discontinued and active treatment may resume.
Choosing hospice care doesn’t mean giving up. It just means that the
goal of treatment has changed. 
-National Cancer Institute 




                                                                            29	
  
February 25, 2013
THE HOSPICE MOVEMENT 
he UK, for example, is well ahead, having led the world in establishing a
dedicated hospice movement, spearheaded by Dame Cicely Saunders, who
founded St Christopher’s Hospice in 1967. 
The US followed suit in the 1970s. 
In 1988, palliative care was enshrined in the Australian healthcare
agreements, through which the federal government funds expenditures by
the country’s states and territories. 
In 2006, according to a study by the International Observatory on End of
Life Care (IOELC, a research body at the UK’s Lancaster University), more
than 150 countries were actively engaged in delivering hospice and palliative
care services. 
Yet the IOELC also found many instances where services were localised and
inaccessible to much of the population. 
And of the 234 countries it reviewed, only 35 had achieved any notable level
of integration with mainstream healthcare providers.




                                                                                30	
  
February 25, 2013
31	
  
February 25, 2013
32	
  
February 25, 2013
CULTURAL TABOOS 
I have been asked "How are you feeling today?" while I was
throwing up into a plastic washbasin. I have been asked as I
was emerging from a four-hour operation with a tube in every
orifice, "How are you feeling today?"

I am waiting for the moment when someone asks me this
question and I am dead. I'm a little sorry I'll miss that. 

- Vivian in Wit. A Play by Margaret Edson. 




                                                               33	
  
February 25, 2013
34	
  
February 25, 2013
ASSIGNMENT:
MARCH 4




                    35	
  
February 25, 2013
READING
To prepare for next week’s assignment, read: 
Protecting Patient Privacy: Strategies For Regulating
Electronic Health Records Exchange NYCLU 
Part 2 and Conclusion 
http://www.nyclu.org/files/publications/
nyclu_PatientPrivacy.pdf
Optional: 
Rekindling the Patient Privacy Debate. 
When Patients Tell Their Stories, Their Health May Improve. 
Wit. By Margaret Edson. Dramatists Play Service, Inc., Mar
1, 1999. 




                                                                36	
  
February 25, 2013
ASSIGNMENT: 
Prepare a written and spoken argument (2 pages, 5 minutes) clearly
outlining your position on the topic of open data and patient
empowerment. Do you feel that patients should own their own data? Do
you feel that people should be uniquely identified in an electronic health
system? What are the for and arguments against? 
This is taken from the Op-Ed structure. (From the Op-Ed Project)
Format: 
1.    Introduce from the context of the current discussion (LEDE)
2.    State your thesis argument – what do you believe
3.    Provide three relevant examples proving your point (evidence point
      one, evidence point two, then conclusion)
4.    “To be sure” Provide the counterpoint, then argue against the
      counterpoint.
5.    Conclude with a recommended action. 




                                                                            37	
  
February 25, 2013
LINKS AND PRESENTATION 
Today’s class presentation is available 
http://jenvandermeer.com/2013/02/bodies-and-buildings-
class-4-february-25/
And Links from this presentation are available here at
Annotary. 
https://annotary.com/collections/10009/bodies-and-
buildings-class-4 






                                                         38	
  
February 25, 2013

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Bodies and buildings nyu itp 2 25 2013

  • 1. BODIES & BUILDINGS NYU ITP LECTURE COURSE SPRING 2013 CLASS 3: FEBRUARY 25, 2013 JEN VAN DER MEER @JENVANDERMEER WWW.JENVANDERMEER.COM
  • 2. BODIES IN THE NEWS February 25, 2013 2  
  • 4. SHARE OF STOMACH On Lunchables: Kraft Lunchables pre-packed lunches, loaded with sugar and sodium, and bringing in nearly $1 billion for Oscar Meyer over the years, were financially backed by Philip Morris when they were created and marketed to harried moms in the 1980s. Though they’ve been criticized for being unhealthy to children, “Well, that’s what the consumer wants, and we’re not putting a gun to their head to eat it,” admits Geoffrey Bible, former CEO of Philip Morris. “That’s what they want. If we give them less, they’ll buy less, and the competitor will get our market. So you’re sort of trapped.” February 25, 2013 4  
  • 5. SENSORY-SPECIFIC SATIETY The tendency for big distinct flavors to overwhelm the brain, which responds by depressing your desire to have more. Pique the taste buds enough to be alluring but don’t have a distinct, overriding single flavor that tells the brain to stop eating. February 25, 2013 5  
  • 6. BLISS POINT Creating the greatest amount of crave. “There’s no moral issue for me,” he said. “I did the best science I could. I was struggling to survive and didn’t have the luxury of being a moral creature. As a researcher, I was ahead of my time.” - Howard Moskowitz- studied mathematics and holds a Ph.D. in experimental psychology from Harvard, runs a consulting firm in White Plains, where for more than three decades he has “optimized” a variety of products for Campbell Soup, General Foods, Kraft and PepsiCo. February 25, 2013 6  
  • 7. READING/VIEWING Read: The quantified self, Counting every moment. The Economist, March 3, 2012. Additional videos from Todd Park Todd Park: Opening Data for Social Change Optional: Social fMRI: Investigating and shaping social mechanisms in the real world. Nadav Aharonya, Wei Pana, Cory Ipa, Inas Khayala,b, Alex Pentlanda. Persuasive and Mobile Computing. Vol 7, 2011, 643-659. Hacking Healthcare Chapter 6: Patient Facing Software February 25, 2013 7  
  • 8. ASSIGNMENT Write a one page essay to be presented in class. Do you find the quantified self movement appealing? Give examples of how you would imagine using data to monitor your own health, or the health of someone you care for. February 25, 2013 8  
  • 9. WRITING AN ARGUMENT Exercise – how to argue This is taken from the Op-Ed structure. From the Op-Ed Project) Format: 1.  Introduce from the context of the current discussion (LEDE) or news hook 2.  State your thesis argument – what do you believe 3.  Provide three relevant examples proving your point (evidence point one, evidence point two, then conclusion) 4.  “To be sure” Provide the counterpoint, then argue against the counterpoint. 5.  Conclude with a recommended action. February 25, 2013 9  
  • 10. TRUE COST OF HEALTH & END OF LIFE CARE BODIES & BUILDINGS 10  
  • 11. PLACES TO INTERVENE IN A SYSTEM: 12. Constants, parameters, numbers (subsidies, taxes, standards) 11. The sizes of buffers and other stabilizing stocks, relative to their flows 10. The structure of material stocks and flows (transport networks, population age structures) 9. Length of delays, relative to the rate of system change 8. The strength of negative feedback loops, relative to the impacts they are trying to correct against 7. The gain around driving positive feedback loops 6. The structure of information flows (who does and does not have access to what kinds of information) 5. The rules of the system (such as incentives, punishments, constraints) 4. The power to add, change, evolve, or self-organize system structure 3. The goals of the system 2. The mindset or paradigm out of which the system – its goals, power structure, rules, its culture-arises 1. The power to transcend paradigms 11   February 25, 2013
  • 13. 5 THE RULES OF THE SYSTEM The rules of the system define its scope, its boundaries, its degrees of freedom. Power over the rules is real power. They are high leverage points. If you want to understand the deepes malfunctions of systems, pay attention to the rules, and to who has power over them. 13   February 25, 2013
  • 14. THE COST OF HEALTH CARE BODIES & BUILDINGS 14  
  • 15. BITTER PILL 15   February 25, 2013
  • 16. THE CHARGEMASTER Every hospital’s internal price list. Decades ago it was a document the size of a phone book; now it’s a massive computer file, thousands of items long, maintained by every hospital. 16   February 25, 2013
  • 17. THE COST CONUNDRUM Americans like to believe that, with most things, more is better. But research suggests that where medicine is concerned it may actually be worse. For example, Rochester, Minnesota, where the Mayo Clinic dominates the scene, has fantastically high levels of technological capability and quality, but its Medicare spending is in the lowest fifteen per cent of the country—$6,688 per enrollee in 2006, which is eight thousand dollars less than the figure for McAllen. -Atul Gawande. The Cost Conundrum. What a Texas town can teach us about health care. The New Yorker. June 1, 2009. 17   February 25, 2013
  • 19. MORE IS WORSE In a 2003 study, another Dartmouth team, led by the internist Elliott Fisher, examined the treatment received by a million elderly Americans diagnosed with colon or rectal cancer, a hip fracture, or a heart attack. They found that patients in higher-spending regions received sixty per cent more care than elsewhere. They got more frequent tests and procedures, more visits with specialists, and more frequent admission to hospitals. Yet they did no better than other patients, whether this was measured in terms of survival, their ability to function, or satisfaction with the care they received. If anything, they seemed to do worse. That’s because nothing in medicine is without risks. Complications can arise from hospital stays, medications, procedures, and tests, and when these things are of marginal value the harm can be greater than the benefits. 19   February 25, 2013
  • 20. COST VS. PREVENTION To make matters worse, Fisher found that patients in high-cost areas were actually less likely to receive low-cost preventive services, such as flu and pneumonia vaccines, faced longer waits at doctor and emergency- room visits, and were less likely to have a primary-care physician. They got more of the stuff that cost more, but not more of what they needed. 20   February 25, 2013
  • 21. WHO MAKES THE RULES? “Health-care costs ultimately arise from the accumulation of individual decisions doctors make about which services and treatments to write an order for. The most expensive piece of medical equipment, as the saying goes, is a doctor’s pen. And, as a rule, hospital executives don’t own the pen caps. Doctors do.” -Atul Gawande 21   February 25, 2013
  • 22. END OF LIFE CARE BODIES & BUILDINGS 22  
  • 23. COST OF END OF LIFE CARE 23   February 25, 2013
  • 24. COST OF END OF LIFE CARE 24   February 25, 2013
  • 25. STATE OF CARE 25   February 25, 2013
  • 26. DAYS IN HOSPITAL 26   February 25, 2013
  • 27. QUALITY OF DEATH “Death, although inevitable, is distressing to contemplate and in many cultures is taboo. Even where the issue can be openly discussed, the obligations implied by the Hippocratic oath – rightly the starting point for all curative medicine – do not fit easily with the demands of end-of- life palliative care, where the patient’s recovery is unlikely and instead the task falls to the physician (or more often, the caregiver) to minimize suffering as death approaches.” _Quality of Death. Economist Intelligence Unit. 2010. 27   February 25, 2013
  • 28. PALLIATIVE CARE Palliative care is care given to improve the quality of life of patients who have a serious or life-threatening disease, such as cancer. The goal of palliative care is to prevent or treat, as early as possible, the symptoms and side effects of the disease and its treatment, in addition to the related psychological, social, and spiritual problems. The goal is not to cure. Palliative care is also called comfort care, supportive care, and symptom management. -National Cancer Institute 28   February 25, 2013
  • 29. HOSPICE Hospice is a special type of care in which medical, psychological, and spiritual support are provided to patients and their loved ones when cancer therapies are no longer controlling the disease. Hospice care focuses on controlling pain and other symptoms of illness so patients can remain as comfortable as possible near the end of life. Hospice focuses on caring, not curing. The goal is to neither hasten nor postpone death. If the patient’s condition improves or the cancer goes into remission, hospice care can be discontinued and active treatment may resume. Choosing hospice care doesn’t mean giving up. It just means that the goal of treatment has changed. -National Cancer Institute 29   February 25, 2013
  • 30. THE HOSPICE MOVEMENT he UK, for example, is well ahead, having led the world in establishing a dedicated hospice movement, spearheaded by Dame Cicely Saunders, who founded St Christopher’s Hospice in 1967. The US followed suit in the 1970s. In 1988, palliative care was enshrined in the Australian healthcare agreements, through which the federal government funds expenditures by the country’s states and territories. In 2006, according to a study by the International Observatory on End of Life Care (IOELC, a research body at the UK’s Lancaster University), more than 150 countries were actively engaged in delivering hospice and palliative care services. Yet the IOELC also found many instances where services were localised and inaccessible to much of the population. And of the 234 countries it reviewed, only 35 had achieved any notable level of integration with mainstream healthcare providers. 30   February 25, 2013
  • 33. CULTURAL TABOOS I have been asked "How are you feeling today?" while I was throwing up into a plastic washbasin. I have been asked as I was emerging from a four-hour operation with a tube in every orifice, "How are you feeling today?" I am waiting for the moment when someone asks me this question and I am dead. I'm a little sorry I'll miss that. - Vivian in Wit. A Play by Margaret Edson. 33   February 25, 2013
  • 35. ASSIGNMENT: MARCH 4 35   February 25, 2013
  • 36. READING To prepare for next week’s assignment, read: Protecting Patient Privacy: Strategies For Regulating Electronic Health Records Exchange NYCLU Part 2 and Conclusion http://www.nyclu.org/files/publications/ nyclu_PatientPrivacy.pdf Optional: Rekindling the Patient Privacy Debate. When Patients Tell Their Stories, Their Health May Improve. Wit. By Margaret Edson. Dramatists Play Service, Inc., Mar 1, 1999. 36   February 25, 2013
  • 37. ASSIGNMENT: Prepare a written and spoken argument (2 pages, 5 minutes) clearly outlining your position on the topic of open data and patient empowerment. Do you feel that patients should own their own data? Do you feel that people should be uniquely identified in an electronic health system? What are the for and arguments against? This is taken from the Op-Ed structure. (From the Op-Ed Project) Format: 1.  Introduce from the context of the current discussion (LEDE) 2.  State your thesis argument – what do you believe 3.  Provide three relevant examples proving your point (evidence point one, evidence point two, then conclusion) 4.  “To be sure” Provide the counterpoint, then argue against the counterpoint. 5.  Conclude with a recommended action. 37   February 25, 2013
  • 38. LINKS AND PRESENTATION Today’s class presentation is available http://jenvandermeer.com/2013/02/bodies-and-buildings- class-4-february-25/ And Links from this presentation are available here at Annotary. https://annotary.com/collections/10009/bodies-and- buildings-class-4 38   February 25, 2013