1. Parents’ Association For Children
with Spina Bifida and
Hydrocephalus, Central Region
Uganda
A Parent’s perspective of
provision of good Care to a Spina
Bifida and Hydrocephalus Child,
Presentation By Naluyima
Concepta Katende

2. What do I understand by good
Care as a parent and where does it
Start?
As a parent I must have the knowledge about the
condition of my child. This includes;
- How the disease comes about?

3. Cont…
- Probable progress and complications of the
condition?
- Where am I going to take my child for
medical and rehabilitation care?
- How do I handle the child in terms of proper
Hygiene, nutrition?
- What is the community perception about my
child’s condition and how do I go about this
stigma?

4. Asante Saana.